I overlooked writing at all yesterday. I mean, to be clear, I “wrote” quite a lot, as a function of the work I do for a paycheck. A lot. What I failed to do was any other sort of writing: introspective, meditative, creative, nothing of that sort. I arrived home from work wholly exhausted, brain fatigued, dragging myself along on pure willpower alone, and the awareness that if I didn’t do this or that task, no one else would either.
… I managed to hold enough in reserve to make dinner…
I’m still tired this morning. My last several nights have been restless and my sleep interrupted and full of nightmares and stressful dreams of failure, futility, and pointlessly chasing unachievable goals. Hell, Elon-fucking-Musk even made an appearance in one of my unpleasant dreams and he was just as big a clueless out-of-touch douchebag in my dream as he is reported to be in life. Bleh. G’damn I hope I sleep better tonight.
I’m in a ferocious amount of pain and filled with resentment at insurers who don’t want to cover long-term services that maintain better quality of life and reduce pain, but without “fixing” anything. My occipital neuralgia flared up some days ago after quite a long time of only dealing with it occasionally; it’s clear that the additional care I had been receiving was actually reducing my pain. “Fuckers,” I snarl quietly, but I don’t know who I am most angry with – my insurance company or the rich assholes who built this stupid entirely profit-focused system. This is a fucking dumb way to approach medicine.
I sigh quietly. Let it go. I’m paying out of pocket for the care I need, today. It’s not a sustainable choice. I can’t do it often, but I definitely need some help managing the pain right now, after three exhausting work weeks that I am happy to put behind me.
Dawn on the marsh
It’s a new day. Boots on, cane in hand, this trail isn’t going to walk itself. For now I’ve got the place all to myself, a treat for my fatigued consciousness. Solitude. No people. No need to speak or hear words. I breathe, exhale, and relax. Today, self-care first. Then, I’ll begin again.
I went to the usual trailhead of my favorite weekend morning hike. Pretty morning, but… the trailhead is busier than usual. A parked vehicle (vacant but with hazard lights left on), an especially disreputable looking old van (windows covered by foil), and an old RV with signs of being someone’s long-term dwelling, are in the parking lot. My skin crawls, and I experience a sense of “stranger danger”. I could be overreacting, but by the time I could be certain that I am or am not, it could easily be too late, eh? I move on, and go to the western trailhead of the park, on the far side, nearer to my usual “halfway point”. I’ll walk the trail in a different direction, approaching the views from the other side, and I’ll take a route that doesn’t approach the other trailhead at all (skirting the marsh instead of crossing it).
A calm sentinel.
It’s a lovely morning, and I’ve no regrets over the change of direction. I walk the trail contentedly. I see geese, and nutria, robins and squirrels. I walk along the river for a while. I look across a different bit of meadow, at a different stand of trees on the other side.
A change of perspective.
The morning is chilly but not cold, and I am warm from walking. I feel relaxed and rested, and my (quite minor) seasonal allergies are not vexing me; I remembered to add allergy meds to my morning medication. I feel comfortable in my skin and merry as I walk. I am supported by my cane (it’s actually a very strong, lightweight Leki trekking pole with some shock absorbtion), and my ankle does not yet ache from the walking, nor do my feet hurt. I would be walking in spite of those things, but it’s nice not having to fight that pain, this morning.
I think about the day ahead, but my thoughts are scattered, fractured by distractions: birds, flowers, movement in the underbrush. I walk on, enjoying the scents of Spring. I try, briefly, to recall whether I have errands to run, but I fail, and for the moment I don’t actually care. I’m wrapped in this moment, now, and it’s quite enough.
I walk, thinking about my beloved Traveling Partner, sleeping at home. He’ll likely be quite sore today after physical therapy yesterday. I resolve to keep myself occupied until he alerts me that he’s up and about for the day, to do what little I can to ensure he gets the rest he also needs. I smile. My heart is filled with love and my thoughts with fond memories. He is so much part of my life and experience after 15 years together. May 1st is our anniversary, but “that moment” that he truly became part of my life and my future was actually on his birthday, in December, at the end of 2009. By February we were the best of friends, by June he had moved in with me. Even then, I don’t think either of us anticipated marriage being part of our journey (less than a year later), we were both pretty sour on the notion from our past experiences. Still, here we are. Feels almost as if we’ve “always” been together. It’s easy to forget what a short time it has been. I grin to myself as I walk. He could not be more dear to me, nor further entangled in my heart. I am wrapped in his love every moment of every day. I sigh happily, and keep walking.
An enormous flock of Canada geese pass overhead. I think about my Granny, and wish that she could have met my Traveling Partner. I think she would have liked him. I know my Dad would have. I chuckle over the ways of men, and wonder what it might have been like had my Dad and my partner had a chance to enjoy each other’s company? I walk on wondering when I stopped being angry at my father? When had I truly forgiven him? It’s clear that I have… How strange. I once thought I never could.
Time passes, and the passage of time heals a lot of hurts, given a chance. Forgiveness isn’t for those who have hurt or wronged us, my Traveling Partner was right about that; forgiveness benefits most the one who forgives. Forgiveness is a letting go of the terrible weight of lasting pain and lingering rage. Forgiveness is another way to begin again.
My footsteps on the path are regular and even, steady like the tick of a clock. The clock is ticking. I walk on, with new perspective, toward the next curve on the path, the next opportunity to begin again. It’s time. It’s always time. I’m okay with that.
I’m sipping my coffee and ignoring (as much as I can) the chronic pain of my osteo-arthritis, which radiates upward from my spinal fusion, which was done years ago, when the state of the art was quite different than it is today. I knew then that my surgery was a new approach to the problem, and that some outcomes were unknown. The goal was to prevent me from ending up in a wheelchair partially paralyzed, and to allow me to continue to serve on active duty (Army). I guess for most values of success, my surgeries were a great success. I’m still walking. I did continue to serve (was even deployed to war in the 90s’), after a period of convalescent “retirement”, although I got “RIF’d” after that war (which broke my heart, but is an altogether unrelated story). So, generally, I’ve nothing to regret about that surgery if I’m just thinking about those details. But…
…There were consequences – of both the injury itself, and the surgeries that followed. The arthritis started to develop in my spine about 3 years after my surgeries. I didn’t understand why I was in so much pain all the time, and it took a rather stupid amount of time for that to be appropriately diagnosed; I was young. Medical bias being a real thing, many doctors were persistently just as “mystified” as I was. What could be causing my pain? How could I have arthritis at my young age? I still feel frustration and annoyance by that lack of curiosity, and lack of diagnostic skill (or persistance). Pain they could not feel themselves did not matter to them.
Then, there were the other things… the persistent chronic itch below my left shoulder blade, that I couldn’t quite reach and that scratching didn’t ease. A “phantom itch” that still bothers me occasionally (CBT really helped with that). A chronically cramped muscle down low on my back, on the left side of my body, most likely a result of the disturbed section of musculature attaching to my spine being put back “not quite in the right place” during my surgery (to make room for the hardware that was there for a year) and which healed into a new, less than ideal, location. This, too, still bothers me, often. Most of it I had to “figure out” in pieces, with limited help from too many doctors, and a lot of study. Sexual challenges (both neurological, and also to do with practical matters like lubrication) that were awkward to discuss were another thing; I was past 60 before a physician finally said, with some surprise, “of course that’s related to your spinal injury” after looking at my records, surgical reports, and images, and listening to me with great care. She seemed so matter-of-fact about it, I ended up enraged for days that no one else had said as much. I went through some shit over that issue with more than one lover, I can tell you. Turned out it wasn’t “my fault” or “a lack of desire”, or anything I could actually do much about; I have a spinal injury. Duh. I spent a few days moping around pretty pissed off about it.
What I thought I understood.
Why am I on about this, today? It’s to do with perspective and knowledge, and how those create our understanding (or don’t). I knew coming out of my surgery all those years ago that I had a permanent “30% stenosis”, and I felt that I understood what that meant. I mean, words having meaning, and I knew the meanings of the words…so… I understand? Don’t I? I thought I “got it”. My lack of real understanding was stunning, and it would be decades before that changed. It wasn’t actually a doctor that changed my understanding. It was math – and a moment at the dining room table with my Traveling Partner; a “lightbulb moment” to do with circles, that was completely unrelated to my spine, my injury, or my pain. lol (Pay attention in school, kids – math matters, and it’s useful stuff.) Something clicked.
What I hadn’t understood, in spite of seeing the images, reading the reports, and discussing with doctors, was what my stenosis meant in my case, specifically. For many years, I imagined 30% percent stenosis as a uniform 30% reduction in a circular area. (I felt pretty stupid when my understanding changed.) Firstly, the spinal canal as a “tubular structure” is not a beautifully perfect mathematical cylinder wherein a slice would appear circular. Not at all. It’s quite different than that. Also, and more importantly, my injury (which crushed two vertebrae, and broke off a spinous process which was then forced into my spinal canal by the impact and subsequently could not be removed) and the repair of that injury did not result in anything like a uniform reduction in area all the way around. Not even close.
Geometry for the win. lol
Reality doesn’t care what we believe. Our pain doesn’t care what we think we understand about our body. Reality is. Pain is. Conditions are what they are regardless of our understanding. So, for years I had struggled with symptoms that made no sense to me – because I so poorly understood my condition – and which I could then not clearly articulate to doctors, who may also not have understood my condition, because (let’s just be real about this, eh) doctors are also human and also have limitations to their own knowledge (and limitations on the amount of time they can spend reading patient histories with the care needed). I understand more/better now, but… I’m still limited by all the things I do not know. I still live within a reality that I perhaps only partially understand because of those limits.
…And reality doesn’t care at all what I understand…
Our perspective and our knowledge limit our understanding – but reality goes on being real, regardless of what we think we know or how we think we understand the world around us.
I breathe, exhale, and relax. Living with the pain is pretty much a requirement. There is no option to live without it, at least not now, not really. I do my best. Maybe that reality will change at some point in the future? Technology changes. Medical progress is made. I’ve learned to practice fairly skillful pain management in the meantime. I’m not complaining, not really. Good self-care and skillful pain management may not add up to a “cure for pain” – but it does help.
I sip my coffee thinking about my Traveling Partner, his injury, his surgery, his progress… he’s come so far, so fast, relatively speaking (although I know it doesn’t feel that way to him). We both deal with pain, and I don’t personally see a future where that’s not a thing we deal with, each having our own experience, each doing our best. I feel fortunate to have a better understanding of my injury than I once did. I’m grateful for a conversation at the dining room table about math and circles and ratios and areas, and grateful for a partnership that understands pain and makes room for love anyway. Grateful for love. Things could be worse.
I look out the window. My mind wanders away from the pain I’m in – probably a change for the better. It doesn’t do to dwell on the pain. Don’t get me started about this fucking headache. I sigh quietly and glance at my calendar, and the clock. It’s time to begin again.
The work week finally ended. I got home tired and uninspired about home cooking, late in the afternoon. I wasn’t hungry, just thirsty and fatigued. My Traveling Partner had put in a full day in his shop machining parts to upgrade the lathe. He had overlooked having lunch. I made him a hearty sandwich and then put my feet up for a little while, taking the break I should have taken earlier in the day.
I never did feel like cooking a proper meal, and never had much of an appetite. I ordered pizza, instead of fussing. I did remember, at some point, that my beloved had asked me if I’d make banana bread with the last two bananas, so I did that. It turned out splendidly well. I used the Better Homes & Gardens recipe, with a bit more salt than it calls for, and being generous with the walnuts. I chuckled to myself about how often it has turned out that my Dad’s “secret family recipes” have been from that cookbook. It was definitely worth the effort. The pizza was good, too. It was a simple, quiet evening.
Simple joy.
This morning I woke from a sound sleep feeling rested, got up and started the morning. I’m sitting at the trailhead, waiting for enough daylight to see the trail on this rainy, muddy, morning and hoping for a break in the rain. The dense clouds overhead seem to tear themselves apart, a jagged gap opening to reveal the blue-gray sky of daybreak beyond. I lace up my boots.
I’m grateful for the simple joys in life. I’m grateful for these quiet morning moments of solitude and reflection. I’ve got a few days off work coming up, and I’m grateful for that too. I’m tired, and I am finding it harder these days to manage my pain; a couple days of leisure and creative time will do me good. I run my fingers through my hair, enjoying the softness of it, and watch the clouds moving away toward the horizon. No colorful sunrise this morning, but many beautiful shades of blue and gray and lovely soft shadows. I’m content with the morning as it is. It’s enough. The pain is a small detail, inconsequential compared to the beauty of the morning, just a thing to be endured.
Finding joy in a moment.
A soft rain starts and stops, again and again. That won’t stop me, either. Like the pain, it is a small detail; I grab my rain poncho from my gear tote.
I sit awhile longer with my thoughts, savoring the moment before I begin again.
This morning is cold and foggy. I slept in (for some values of “sleeping in”), and still arrived at my selected trailhead well before dawn. This trail is lit for much of the distance I walk, but beyond the vineyard, near the river, I still needed my headlamp. I’ve been, and returned, and it is still quite dark, though there is a hint of daybreak on the horizon. It’s not yet visible from the lit area of the trail, or the parking lot. The new artificial lights are much too bright.
A walk through winter fog.
The morning is foggier than I expected, and somewhat warmer (still quite cold, near freezing). The fog makes everything seem quieter and more mysterious in the darkness. I see the headlights of workers arriving to a nearby construction sight, filtered through the fog, before I hear the sounds of their pick-up trucks. I’m okay with that. The dance of the lights over irregular pavement is fascinating, and I don’t care for the noise at all. I walked and watched with wonder, alone with my thoughts.
The Author arrives later this morning. 10:30 or so, though I’m not certain whether that means to the house or at the airport. I didn’t ask for clarification – I guess I’ll know soon enough. lol I’m excited about this visit from a dear long-time friend. It happens too rarely. I think of other far away friends and wonder whether to plan a trip to see some of them in the summer? I wonder whether my Traveling Partner will be up to being without me for a week…or in shape to go with me?
I sit quietly with my thoughts. The sky is beginning to be a hue of deep gray-blue, visibly no longer “night”. A new day. There are things to do, and a visit with a friend to look forward to. I consider getting a coffee somewhere nearby, but I am just as content to sit here, watching the sky slowly lighten as dawn unfolds. G’damn, sometimes I am such a simple and easily satisfied creature. I chuckle quietly to myself. I’m okay with it.
Evening Light 