Archives for posts with tag: pain
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Here It Comes

November 20, 2024 //
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I woke tired from a restless night of strangely lively surreal dreams. My walk felt short, and rushed. My day already feels busy and “crowded” with things that must get done before daybreak tomorrow, and the start of a few days of downtime spent attending to my emotional needs, and indulging artistic inspiration. Self-care is important and worth the time commitment to get a few things done so I can be away without concern, but… good grief I feel so busy right now.

I breathe, exhale, and relax. It’s the start of the workday, and looks to be an easy one. Routine, at least. Then home early enough to take my Traveling Partner to an appointment, then a quick shopping trip, then make (and enjoy) dinner, then pack (omg I should have worked from home today) and load the car, then, if there’s still time, a little time spent just chilling with my partner enjoying the last of the evening. Yeah, it feels like a busy day, but I’ve got a plan, and it’s not really “all that” – it just feels busy. Another breath. Another moment.

I’m in so much pain lately. A few days to myself to sit with that without also feeling like I’ve got to mask it to avoid making everyone around me uncomfortable will be a nice “luxury”. There’s more stress than I want to admit in having to “put a good face on it” when I hurt like this. Pain relief measures only do so much, and I’m not willing to take (nor am I prescribed) the quantities of painkillers it would take to shut down this amount and intensity of my personal combination of arthritis and headache pain. It is what it is. I’m also not willing to let pain call my shots or totally wreck my experience; there’s more to life than the pain I’m in. I remind myself often. Sometimes it helps, sometimes it just annoys me. Sometimes being annoyed about it helps in its own way. My Traveling Partner endures his own pain. Hell, even the Anxious Adventurer deals with pain – and frankly, most people do, to some extent, I guess. The challenge is not being a dick about it, and doing the most we each can to go ahead and live a good life in spite of the pain we’re in, and to remain mindful that we can’t possibly fully understand the pain someone else is in. Ever. Even if they say. We just can’t know their experience the way they do. So…I try to manage mine, and mostly keep it to myself. It’ll be nice to have a couple days to just sit and weep over it, while I paint, if that’s where it takes me, and not be worried that anyone else will be affected by those tears, or my pain.

Beyond the pain, I’m looking forward to a couple days of watching the tide come and go, and sitting with my thoughts – and my grief – and just “getting my head right” in my own way. The holidays are coming. The first in decades that my Dear Friend won’t be part of that experience in any way. That hurts more than I expected it to. No need to think about what to send her. No need to share anecdotes or pictures. No need to message her on Giftmas morning so she doesn’t experience the morning alone. No need to delight her with my curiosity about what my Traveling Partner may have gotten me, or made me, this year. She’s just…not here. My sorrow tries to swamp me every time I remember, and I really need to get past that somehow. It’s a lot. Granny? Gone, too. And Mom. And my long-gone girlfriend, T. There are unshed tears waiting their turn to fall, and I need to allow myself time for that this year.

I’m eager to hit the road, and hit the trail. Eager to walk my own path and feel my feelings (there’s no shame in these honest tears). I’m eager to begin again on the other side; the way out is through.

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Categories Allegories, art and the artist, autumn, Brain Injury, breathe, Free Will, gratitude, grief, health, inspiration, Love, meditation, Mindfulness, Moments, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, The Art of Being, women

Perspective on Lived Experience

July 25, 2024 //
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I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

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Categories Allegories, Anxiety, breathe, forgiveness, Free Will, Frustration, gratitude, health, Healthy Living, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being, The Big 5

No Words

July 20, 2024 //
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Well… Not literally “no words”…cuz here I am, eh? Words. I’ve got a fair few of these fuckers (words) laying about. May as well use them…but… This morning I’ve nothing much to say, really.

… I’m tired, and there’s this damned headache and this ringing in my ears…

“Anhedonia”. Now there’s a fucking word. Anhedonia is more or less simply a loss of delight, of interest, of the will to engage with pleasant and interesting things. It’s not “boredom”, and it most definitely is a “mental health issue”. Sometimes it’s simply that circumstances grind me down until I just fucking give up on a “just don’t give a shit” level that transcends even irritation, leaving me without the will to resist or try to overcome it at all. Here I am this morning.

… I’m just that tired, cognitively and emotionally…

Caregiving is hard work, and I’m learning that a great deal of the work involved is in the form of emotional labor. I have profound respect for people who are caregiving a loved one for years. I’ve only been doing it for months. It’s fucking hard, and it’s draining. 8 days until my coastal getaway, and I definitely need it, but… I’ll also need to really get away from the emotional labor of caregiving to get the rest I need so badly. Most of the brief opportunities for downtime since my Traveling Partner’s injury haven’t given me the rest I really needed, because I failed to leave the emotional labor behind, and returned home to still more. I didn’t understand that I needed to put that down, and didn’t understand what a large portion of the caregiving it really is. (I’m pretty new to taking on a caregiving role, and have never had a child.) I failed myself in this way, and by extension ended up also failing my Traveling Partner – in two ways.

1. I failed my Traveling Partner by not taking care of myself sufficiently well to ensure I am up to the challenges and requirements of caregiving over time. It’s an endurance race, not a sprint.

2. I failed my Traveling Partner by not setting clear boundaries with regard to emotional labor generally, or communicating clearly when the burden is too great for my limited human capacity.

I can see how these are both also failures of self-care, too. No wonder I’m fucking exhausted.

This morning I got to the trailhead and just sat in my car weeping quietly for some unmeasured amount of time. I really didn’t feel like walking, at all. Anhedonia is a difficult challenge to overcome, but eventually I got out of the car and trudged down the trail irritably. The rising sun only annoyed me and my sour mood followed me down the trail. I spitefully didn’t stop to sit and write in my preferred location, choosing instead to annoy myself by sitting uncomfortably elsewhere. (Good grief, really?! Fucking stupid.)

I’m sitting. Writing. Feeling irritable because my back aches, my head aches, my tinnitus is loud, and my Traveling Partner is injured. From the perspective of this moment it feels very much that there is “no end in sight”, and despair threatens to rear its head. I sigh deeply, and just let the unwanted tears fall.

This shit is hard.

…It could all be so much worse…

This shit is hard.

I breathe, exhale, and relax. Eventually, I even stop crying, and even mostly stop feeling overcome by anhedonia. I clearly need to get some downtime, some relief, a real break… Which makes me feel like an asshole; my Traveling Partner gets no break from being injured and in pain and needing my help. Fuck.

… Did I mention that this shit is hard?

I’m okay for most values of okay. My Traveling Partner is, too. He’s got surgery scheduled. This is, thankfully, a temporary situation, and we’ve got the additional help of the Anxious Adventurer now (which is greatly appreciated and very much needed). I make a point to reset my perspective, my expectations, and my awareness. It’s not helpful to become mired in pain – particularly someone else’s, and especially when I’ve also got to manage my own. It’s hard, sure, but it truly could be worse, and in some respects it isn’t even as bad as it sometimes feels. We’re fortunate: I’m employed, we have health insurance, we’ve got help, and this isn’t a terminal health issue.

If I were better at this caregiving stuff, I might be more easily able to lift my Traveling Partner from his pain-focused funk, when he gets stuck there. I sit with that thought for a few minutes. I think about the many years of therapy and skilled mental health care I’ve been fortunate to receive. I think about mindfulness practices, meditation, and CBT.

… I remind myself that I can’t do the verbs for anyone else, and that we’ve each got to walk our own hard mile…

I breathe, exhale, and relax. Sometimes the best thing I can do to care for my partner is to care for myself. I think about the day ahead, and the things I’d like to get done. I think about my partner, and what he may need today, and consider how best to be there for him.

It’s a new day. The sun is warm on my back. I hear voices coming down the trail. It’s time to begin again…

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Categories Allegories, anhedonia, Anxiety, breathe, forgiveness, Free Will, gratitude, grief, health, loneliness, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being

Pain & Bullshit

January 10, 2024 //
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Pro-tip: don’t add to your physical pain with your bullshit and baggage. I mean, if you can avoid it, it’s a good choice. This morning, my Traveling Partner offered me a master class in how to refrain from adding additional bullshit to a pain-filled morning. Reflecting on it, I’m pretty impressed.

I woke from a fairly shitty night’s sleep in a lot of pain. He was already up, and also in pain. I wasn’t much in the mood for conversation. That was clearly also the case with him. I got up. I dressed. I got ready to leave (early) for work. We exchanged few words, and a brief kiss, and I was on my way. A short while later, he sent me a message checking in on me, wishing me well, and making a point to alert me he was in pain, and doing his best. I felt pretty cared for, honestly. Neither of us was feeling our best, and the morning got off to a pretty good start without either of us “starting shit” or creating chaos or unpleasantness out of our shitty moment individually, in spite of that.

Sometimes adulting is hard. It’s super easy to take dumb shit personally, or to lash out at someone else over a purely subjective bit of unpleasantness going on for us that doesn’t have to affect anyone else at all, if only we acted with sufficient care. I sit here sipping my coffee, appreciating my Traveling Partner for the effort he makes every day to show me the love he feels… even when he’s “not feeling it”, because all he really feels is physical pain. For sure, he’s as human as anyone. We both are. It’s not always a perfect effort for either of us, and sometimes things go awry in a vexing way, but… not this morning. I enjoyed an easy commute, partly because my heart felt light and I felt loved in spite of being in pain. Hopefully, he does, too. The day begins well.

I got to the office, made coffee, and tackled the payday stuff with a smile. I just went from being a contractor, to being full-time (with the same company) and I’m enjoying the feeling of security, and a sense of being “back on track”. I sit with that awhile, feeling grateful for the “here and now” and grateful for a good partnership to rely on in tough times. It’s enough. More than enough – it’s pretty exceptional (based on my own limited experience).

I sit quietly for a few minutes. It’s awhile yet before daybreak. Still quite early. There’s time to reflect, to meditate, to sip coffee, and watch the night slowly become day. There’s time to begin again. 🙂

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Categories Allegories, anger, Anxiety, Brain Injury, breathe, forgiveness, Free Will, gratitude, health, Love, meditation, Mindfulness, Moments, pain, Perspective, Post Traumatic Stress, Relationships, Sleepless Nights, The Art of Being, The Big 5

Having a Merry One

December 24, 2023 //
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I slept late this morning. No walk. I was up during the night, unwell (I’ll spare you the gross human details). Still, I’m awake now, and feeling pretty merry, in spite of being so recently awake that I’m still rubbing my eyes and sorting myself out. My coffee is still too hot to drink.

Banana bread in spite of pain.

Yesterday was a difficult day. I was just in so much pain doing basic things to help care for my Traveling Partner while he recovers from being injured was at the edge of what I could do at all. I rarely “feel my years” – but yesterday I felt ancient and worn. I managed to do laundry, though (and got his folded and put away where he could more easily get it, and he just couldn’t have done that for himself), and I did dishes (seems like there are always dishes to do in a household where anyone cooks). I even baked a very delicious banana bread. It was a well-spent day in my partner’s good company, generally speaking, though I was in enough pain to need to take frequent breaks from literally everything, including his company, in order to give my back or my neck a rest of the effort of … being upright. For fucks’ sake, how is that okay?? Fuck pain.

Enjoying a chill holiday is okay too.

Today is Giftmas Eve. Sure, I’m in some pain this morning, but it’s not like yesterday. Yes, I was up for an hour during the night being quite ill, but I feel like I’m over it now – and I slept quite late, and woke feeling rested. It’s nice. I may make a quick trip to the grocery store for some things I am missing from the pantry, before the day gets too far along, but the plan is to just enjoy the holiday at home with my Traveling Partner. Videos. Working on my model. Sharing each other’s good company. Dinner later, also here at home. Nothing super fancy this year, maybe stir fry, or Salisbury steak. I’m enjoying the relaxed approach to the holiday.

For now, coffee & meditation. Later, I’ll work on my Tachikoma model, and maybe bake something? Bread? I don’t know… I feel inspired to make something to share with my Traveling Partner, somehow. I could fold and put away my own damned laundry… that doesn’t sound like much fun, but I’ll be pleased to see the task completed, I know. This year I just want to enjoy my partner’s company, and share a few moments of merriment and maybe a hot-buttered rum, in the evening. All of that later… first, some quiet coffee-sipping, and thought-thinking. 😀

…Later, I’ll begin again.

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Categories Allegories, breathe, forgiveness, Free Will, gratitude, Healthy Living, inspiration, Love, meditation, Metaphors, Moments, pain, Perspective, Practices, Relationships, Sleepless Nights, The Art of Being, winter, Words
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