I’m feeling sort of tender-hearted and starry-eyed this morning. It’s another pleasant day off and I’ll likely spend quite a lot of it in the garden, which is delightful. The weather is mild and the air smells of Spring flowers and mown lawns. My Traveling Partner made me a really cute 3D printed hydroponic strawberry tower (well, or for any sort of plant that will do well in that planter), and today I’ll wash some hydroponic “rocks” for the medium, check to see if I have “grow plugs” for planting seeds, maybe make a trip to storage with my Traveling Partner for this-or-that that we have, but not immediately on-hand. Fun. I love Spring. I love the way my partner loves me.
I got home from my walk this morning and sat down to do the payday stuff without stress. Nice. Finished that pretty quickly ready to move on to other things. I overlooked a really cool 3D printed image my beloved made for me “for our anniversary” (shit! I didn’t get or give him anything but my love. LOL) He made certain I saw it, and my eye keeps coming back to it, sitting on my desk now. I feel very loved.
Ooh – pretty!
I am delighted with the work he does creatively. He’s a different sort of artist than I am, myself, and I enjoy that so very much! He makes many things for my enjoyment, and to enhance the ease in my life, and the quality of my experience day-to-day. I sometimes feel inadequate doing “little more than” domestic tasks, caregiving, and bringing home a paycheck while he’s still partially disabled. I know that I’m not inadequate at all; and he tells me every day (in words and in actions) how very much he values me – both my efforts and my presence in his life. It’s nice. Good partnership.
I breathe, exhale, and relax, add a few things to my “to-do list” for today. Garden stuff. I’m glad I took the day off for a long weekend. Sure, I certainly “earned it”, but also I need it and I am enjoying it. Good choice. Time well-spent, on love, loving, and gardening. 😀
Speaking of gardening… on my way back into the house yesterday evening from a bit of wandering in the garden with an eye out for weeds and rosebuds, I spotted “a new neighbor”. A wee fancy sort of spider clinging to the siding, munching some other sort of less-than-ideal-to-have-around spider and watching me approach. I delighted in his fancy coloring, and snapped a picture to share with my partner before this wee neighbor hid from view or moved on.
A welcome sort of wee spider.
The clock is ticking. There is an entire day ahead! Flowers to smell, seeds to plant, weeds to pull, moments to enjoy with a partner I adore – an entire life to live – and it’s my own. Wow. I think it’s a good time to begin again.
It won’t always be this way – whatever way it happens to be at the moment. I do my best to enjoy the journey, in spite of pain, in spite of bad weather, in spite of pitfalls, challenges, and the consequences of poor choices. I do my best to enjoy the journey when it is easy to enjoy it (which seems pretty obvious, but turns out it sometimes isn’t), and also when it is difficult. I’m not suggesting bullshit affirmations and inauthentic enthusiasm, it’s more a matter of “doing my best”, and staying true to the path I’ve chosen. Sometimes it’s hard.
Last night was one of those times. I was in so much pain. My neck was hurting, and my occipital neuralgia had flared up. My headache was worse than usual and the left side of my body was a mess of knots, and cramps, and discomfort. It was pretty awful – bad enough that my beloved Traveling Partner (who could do nothing to ease my suffering) could not bear to be in my company. That was its own sort of misery, and I finally just gave up and went to bed early. I didn’t sleep, not right away, but I was also in no shape to enjoy a new video game I’ve started, and too distracted by pain to read anything new. I got as comfortable as I could, prepared for sleep, and picked up a book so familiar to me it may as well be stories from my own life. lol Stale and boring? No. Comforting and easy. Eventually I slept, and when I woke, there was my Kindle, standing where it had been. It turned itself off at some point after I stopped turning digital pages. Convenient.
A strawberry blossom in my garden, a metaphor for change, and joy – and impermance.
This morning is a new day. I woke feeling refreshed. Headache as near to gone as it ever gets these days. The left side of my body feels substantially the same as the right side. My neck is “only” stiff, and I don’t fuck with it, hoping to enjoy this brief reprieve from discomfort as long as it may last. My occipital neuralgia has died away on its own – probably the greatest relief of yesterday’s pain that I could ask for, today. There’s just no arguing with nerve pain, and so far nothing I’ve been prescribed works well enough to justify overlooking the side-effects (which, in one case, was suicidal despair – I mean, seriously? Fuck that shit, I’d rather spend the rest of my life with my face feeling like it is on fire). This morning is a happy relief and I got to the office feeling incredibly purposeful and productive. I wasted no time “catching up” on an entire day’s work, and planning the remainder of the week, besides. Feels good. I feel capable, which is not always how I feel.
Change is. Sometimes the journey is difficult, sometimes it is easy – it rarely stays the way it is for very long. Storms come and go. There are sunny days and cloudy days. (Weather makes a pretty good metaphor for change.) I sip my coffee and reflect on the value I have found in practicing non-attachment, and learning to “be here, now”, more easily, more often. Quality of life varies with our circumstances, sure, but it also varies based on how we deal with our circumstances, how we care for ourselves, and whether we’re finding whatever joy there may be, even in the toughest of times. Not one word about any of this being “easy” or coming naturally to me (or anyone) as a human being. I just keep walking my path, doing my best, and greeting each sunrise as an entirely new day, full of promise and moments that may never be repeated. That’s a pretty good place to begin a day, I find.
I smile to myself remembering something that occured to me this morning; this anniversary coming up for my Traveling Partner and I is significant in a very special way (to me). This anniversary marks this relationship being the longest of my long-term relationships. Hell, it’s even longer than the years I lived with my family of origin. Wow. I hope it lasts many years more. “Forever”, maybe, whatever that means in a human lifetime. I often do feel as if we’ve “always” been together in some strange way. We seem so deeply connected. Even when we’re cross with each other, I’m not feeling inclined to “head for the door”, other than maybe to go take a walk and put my mind on other things until I cool off. Deep, enduring love seems a rare thing. I’m glad I have this to enjoy and experience. I’m glad my Traveling Partner is sharing a portion of his journey with me (and mine with him). I thought about how best to celebrate this special anniversary with him, as I drove to the office. I didn’t come up with anything besides sharing the day. I don’t want an expensive trinket or token of his affection; I am wrapped in his love every day. I can’t think of a single thing to make for him or give to him that would say more about my love that the life we share already says. I just want to be with him. I guess I should take that day off work, then, eh? lol
I spent the weekend in the garden. It was lovely time, well-spent. “Soul-nourishing” time. Healing time. Productive time. Time spent gazing at flowers and working in the soil. Time spent sipping coffee and thinking about what to plant where, next, and pulling weeds. I hope I can maintain the momentum through the summer months! Last year I fell short of my goals (like, a lot) because caring for my beloved took much more of my time and energy that I expected (having had no experience with caregiving, previously). I wouldn’t change that; he needed me, and I love him far too much to put my garden ahead of him in my priorities under such circumstances.
I sip my coffee grateful to enjoy it. Grateful to enjoy love. Grateful that I don’t hurt as much today as I did yesterday. Grateful to have this wee suburban home and my little garden, and a few sunny days to spend there. I smile at the blue morning sky beyond the window. The clock is ticking – but it seems to tick a bit more slowly when I am enjoying the time. I think about that for a moment, and then begin again.
I’m sipping my coffee and reflecting on my journey, and things generally. My sleep was restless and filled with peculiarly realistic dreams of places, people, and circumstances that were in no way actually real in my own life. It was a bit unsettling to wake as if from an altogether different life into the life I live. It’s not the first time I’ve had such dreams, and I doubt it will be the last.
I made the drive to work watching the night sky transform at daybreak. Venus was bright above the horizon, and the sky was smudged with orange and rusty hues. I caught glimpses of Mt Hood from a couple vantage points that don’t offer a convenient place to stop, and struggled a bit to avoid being distracted by the beauty. Safety first! I have places to be, and loved ones who would like to see me again when I return. That was a pleasant thought in the moment. Something about the morning kept reminding me of “home” – not my home, now, but some long gone time and place that I can’t return to. It only exists in my memory. A spring afternoon, the buzz of insects, a screened in porch, and the hum of a fan, Easter shoes that pinched. A summer morning, the heavy scent of southern blossoms, the thick humid air, the clink of ice cubes in cold glasses, and sweat that doesn’t dry. Only memories, now – even most of the people are…gone. I sighed to myself as I drove, letting the thoughts drift through my mind like clouds. Nothing to be concerned about, just the morning of a new day, and some thoughts to get me started. It’s funny – I often “do my best writing” while I’m driving, and can’t jot down the words. lol An interesting challenge is finding them again, later. I rarely do. I find other words, other thoughts.
Strange journey, life, isn’t it? We each walk our own path. We’re each having our own experience. We persist in sharing our advice with other travelers as if they could ever truly make use of what we have learned ourselves – maybe, sometimes, in rare instances we really can learn from the experiences of others. I often wonder how true that really is. We are our own cartographers, and these “maps” we make aren’t very helpful to anyone else, generally. The moments and the journeys are uniquely our own. What do you actually get from reading these words? When I point out that we become what we practice, do you understand what I’m pointing out to you? How it applies to your own practices? The ways it could be useful to change your experience? How easily leaving dishes in the sink “now and then” becomes dishes in the sink more often? How difficult it can be to adopt a new better habit without committed practice? How easily anger becomes a character trait instead of a moment of emotion, when we yield to our anger and relish “venting” our frustration instead of steadily practicing some other approach? When I suggest practicing self-care, do you consider it and take action? When I observe that my chronic device use quickly became hard-to-resist doomscrolling and that I had to change my practices to preserve my emotional health, did you reflect on your own, and the effect it has had on you? You have a moment to make a change, to become the person you most want to be. What will you do with it?
I’m not telling you how to live – I’m just wondering what you get from my observations over time, or if it is merely an entertaining distraction?
We’re each walking our own path. Each tending our own garden. (These are metaphors.)
I’m just one human being, walking my own hard mile, facing my own trauma, and even the consequences of my own actions and choices. I’m grateful (and fortunate) to be where I am now, but there are no promises I’ll “always” have it like this – I’ve lived through far far worse. We are mortal creatures. We’re fortunate any time we can share the journey. I sip my coffee and think about love. Our choices in life only get us so far; some of it is also pure luck and the timing of circumstances. Each moment is precious – and unrepeatable. I reflect on Ichi-go ichi-e, and vita contemplativa – useful concepts. I practice non-attachment, and seek a sense of contentment and sufficiency. Along the way, I’ve found (often but not always) real actual no bullshit happiness. This surprises me, and I embrace the moments as I find them. Chasing happiness never got me there. Funny how that works.
Each moment as temporary as a flower.
My coffee is almost gone. The waning moon is faint in the cerulean blue of the morning sky. I’m okay right now – for all the values of okay – and I’m grateful. Nice moment. I breathe, exhale, and relax, and think about weekend gardening to come. There are strawberries to water, and arugula to plant. There are radish seedlings to thin, and a clematis vine to plant in a pot. There are new moments to live, and new thoughts to think. I smile to myself, grateful to have the chance to share words with you over my coffee, however you choose to use them. I wonder for a moment where your path may lead? Then, I get ready to begin again.
The drive to the office was relaxed and routine. My coffee isn’t bad (neither is it actually good, it’s just coffee). The view from the office window at dawn hints at a warm afternoon, later. A good day to be in the garden.
I’m in the office.
The waning “pink moon” setting as the day begins.
I sigh to myself. Breathe, exhale, relax. I take a few minutes for meditation before work begins. I plan the day ahead. I do a thoughtful body scan, and consider how best to manage my pain and the stiffness that results from the combination of sore muscles and arthritis. I seek the one, and try to avoid the other, but ultimately pain is pain; managing it as well as I can is a good practice. Not letting it run my life is an important choice. They both require a committed effort; there are verbs involved, and a steady willingness to care for this fragile vessel with a full measure of consideration, and my whole heart. I stretch and sigh again, before wondering “at what point is a sigh just a deep breath?” I let all that go and watch the moon set.
Yesterday was lovely. My appointment with the surgeon I was referred to went well, I guess, for some values of going well; I got referred to a different more specialized surgeon. lol Progress? I guess so. The Anxious Adventurer set up two more of the small raised beds for me in my new “west side garden”. It’s small space, and sure, it’s narrow, and limited, and the big A/C unit is right there, but… it’s also just outside my office window, and rather private (not visible from the street the way the front garden is). The first bed is already planted in strawberries, and since I started those from mature plants in 4″ pots, there are already flowers. I smile at the thought and yearn to feel the soil under my fingers as I fill the other two beds with soil and plant them with… something. I don’t know yet. It’s a spot that only gets afternoon sun, and I haven’t yet decided what else to plant there. Maybe just more strawberries? Something with flowers? Perhaps a clematis in that extra large black plastic nursery pot left over from when all my roses were potted (so many years, so many roses)? I smile, feeling my shoulders relax. I get so much joy from my garden I easily forget how I loathed the time I spent gardening as a kid. It felt like an obligation. A demand. Manual labor, nothing more or less, and I was sure that I had better things to do with my time. It felt like indentured servitude, then, and I longed to be 18, and master of my own affairs and decision-making.
What have you planted? How well do you tend your garden? (It’s a metaphor.)
…I’m grateful now for the time I spent in my parents’ garden; I use those experiences a lot, in my own garden, now. I’m still doing most of the labor. lol I don’t resent it any more. I appreciate help when I have it, but I love the work and my only resentment is that aging has robbed me of considerable strength and endurance for it… I have to choose my tasks wisely, and plan the work thoughtfully.
I hope the work day passes quickly. I’m eager to be back in the garden. I think about love and gardening awhile longer. I’d plant honeysuckle or jasmine instead of clematis, but either of those has serious potential to aggravate my Traveling Partner’s allergies rather a lot. I’ll miss them, maybe, but clematis offers lovely dramatic flowers, and will be less likely to be unpleasant for my beloved. I would not willfully choose to harm him. I think about how much I adore him. How my love is returned in equal measure; everywhere I turn in my home I see his love in the little things he has done or made for me. Even yesterday. New work skills, hobbies, creative endeavors, tools and materials, are often tried out or put to use the first time in some new something or other for me. I feel so loved.
A token of his affection, 3D printed, using Hue Forge.
The journey from being mired in trauma, sorrow, despair, or ancient pain is not an easy one. There’s no map. There is no sherpa to carry the baggage accumulated over a lifetime. There’s no handy tutorial. It’s a hard mile and we have to walk it ourselves, but every step, every moment, every sun rise is a chance to walk on, and to begin again. We become what we practice. We have choices. Sure, it’s a lot of work, and it’s often slow going. We stumble. We fall. We fail. It’s human – all of it, so very human. When I began this journey years ago, I only wanted to “be mostly okay” – to feel something good, at least as often as not. I wanted to manage the chaos in my head and to silence my nightmares.
I find myself, now, in a very different place – mostly thriving. Contented. Joyful. Even happy, rather a lot of the time. I wasn’t trying to get “here” – but once I got there, I just kept on walking. Kept working at healing. Kept practicing practices. Kept making better choices and slowly becoming someone more like the woman I most want to be. The journey is the destination – this isn’t new-age-y bullshit, although it is as metaphorical as it is practical – it’s quite real and you can make the journey yourself, from wherever you are now, to that place you most want to be, or at least someplace much better than where you feel you are. Keep walking. One day at a time. One practice at a time. One moment of studious self-care at a time. Making the decisions that the journey requires isn’t always effortless or obvious or even “painless”. Sometimes adulting is hard. I’m not telling you how to do the thing – I’m just saying it can be done, and hoping to provide some measure of hope and encouragement on what is admittedly a difficult journey. Life. Healing. Becoming. It’s not a journey of miles or moments, or hours or days – it is a journey frankly measured in years and decades. A lifetime. But the time does pass, and the miles do add up – and we do get somewhere as we go. Incremental change over time adds up. We become what we practice.
What are you practicing?
If I stopped writing today, I don’t know that it would be missed. There is so much life to live… I enjoy taking a moment to reflect on it, though, and doing so brings me great joy and peace. What about you? What are you doing to cultivate contentment? To find joy in your experience? To build emotional resilience? To become the person you most want to be? It’s not too late to make that journey – you only need to begin again.
I’m sipping my coffee and ignoring (as much as I can) the chronic pain of my osteo-arthritis, which radiates upward from my spinal fusion, which was done years ago, when the state of the art was quite different than it is today. I knew then that my surgery was a new approach to the problem, and that some outcomes were unknown. The goal was to prevent me from ending up in a wheelchair partially paralyzed, and to allow me to continue to serve on active duty (Army). I guess for most values of success, my surgeries were a great success. I’m still walking. I did continue to serve (was even deployed to war in the 90s’), after a period of convalescent “retirement”, although I got “RIF’d” after that war (which broke my heart, but is an altogether unrelated story). So, generally, I’ve nothing to regret about that surgery if I’m just thinking about those details. But…
…There were consequences – of both the injury itself, and the surgeries that followed. The arthritis started to develop in my spine about 3 years after my surgeries. I didn’t understand why I was in so much pain all the time, and it took a rather stupid amount of time for that to be appropriately diagnosed; I was young. Medical bias being a real thing, many doctors were persistently just as “mystified” as I was. What could be causing my pain? How could I have arthritis at my young age? I still feel frustration and annoyance by that lack of curiosity, and lack of diagnostic skill (or persistance). Pain they could not feel themselves did not matter to them.
Then, there were the other things… the persistent chronic itch below my left shoulder blade, that I couldn’t quite reach and that scratching didn’t ease. A “phantom itch” that still bothers me occasionally (CBT really helped with that). A chronically cramped muscle down low on my back, on the left side of my body, most likely a result of the disturbed section of musculature attaching to my spine being put back “not quite in the right place” during my surgery (to make room for the hardware that was there for a year) and which healed into a new, less than ideal, location. This, too, still bothers me, often. Most of it I had to “figure out” in pieces, with limited help from too many doctors, and a lot of study. Sexual challenges (both neurological, and also to do with practical matters like lubrication) that were awkward to discuss were another thing; I was past 60 before a physician finally said, with some surprise, “of course that’s related to your spinal injury” after looking at my records, surgical reports, and images, and listening to me with great care. She seemed so matter-of-fact about it, I ended up enraged for days that no one else had said as much. I went through some shit over that issue with more than one lover, I can tell you. Turned out it wasn’t “my fault” or “a lack of desire”, or anything I could actually do much about; I have a spinal injury. Duh. I spent a few days moping around pretty pissed off about it.
What I thought I understood.
Why am I on about this, today? It’s to do with perspective and knowledge, and how those create our understanding (or don’t). I knew coming out of my surgery all those years ago that I had a permanent “30% stenosis”, and I felt that I understood what that meant. I mean, words having meaning, and I knew the meanings of the words…so… I understand? Don’t I? I thought I “got it”. My lack of real understanding was stunning, and it would be decades before that changed. It wasn’t actually a doctor that changed my understanding. It was math – and a moment at the dining room table with my Traveling Partner; a “lightbulb moment” to do with circles, that was completely unrelated to my spine, my injury, or my pain. lol (Pay attention in school, kids – math matters, and it’s useful stuff.) Something clicked.
What I hadn’t understood, in spite of seeing the images, reading the reports, and discussing with doctors, was what my stenosis meant in my case, specifically. For many years, I imagined 30% percent stenosis as a uniform 30% reduction in a circular area. (I felt pretty stupid when my understanding changed.) Firstly, the spinal canal as a “tubular structure” is not a beautifully perfect mathematical cylinder wherein a slice would appear circular. Not at all. It’s quite different than that. Also, and more importantly, my injury (which crushed two vertebrae, and broke off a spinous process which was then forced into my spinal canal by the impact and subsequently could not be removed) and the repair of that injury did not result in anything like a uniform reduction in area all the way around. Not even close.
Geometry for the win. lol
Reality doesn’t care what we believe. Our pain doesn’t care what we think we understand about our body. Reality is. Pain is. Conditions are what they are regardless of our understanding. So, for years I had struggled with symptoms that made no sense to me – because I so poorly understood my condition – and which I could then not clearly articulate to doctors, who may also not have understood my condition, because (let’s just be real about this, eh) doctors are also human and also have limitations to their own knowledge (and limitations on the amount of time they can spend reading patient histories with the care needed). I understand more/better now, but… I’m still limited by all the things I do not know. I still live within a reality that I perhaps only partially understand because of those limits.
…And reality doesn’t care at all what I understand…
Our perspective and our knowledge limit our understanding – but reality goes on being real, regardless of what we think we know or how we think we understand the world around us.
I breathe, exhale, and relax. Living with the pain is pretty much a requirement. There is no option to live without it, at least not now, not really. I do my best. Maybe that reality will change at some point in the future? Technology changes. Medical progress is made. I’ve learned to practice fairly skillful pain management in the meantime. I’m not complaining, not really. Good self-care and skillful pain management may not add up to a “cure for pain” – but it does help.
I sip my coffee thinking about my Traveling Partner, his injury, his surgery, his progress… he’s come so far, so fast, relatively speaking (although I know it doesn’t feel that way to him). We both deal with pain, and I don’t personally see a future where that’s not a thing we deal with, each having our own experience, each doing our best. I feel fortunate to have a better understanding of my injury than I once did. I’m grateful for a conversation at the dining room table about math and circles and ratios and areas, and grateful for a partnership that understands pain and makes room for love anyway. Grateful for love. Things could be worse.
I look out the window. My mind wanders away from the pain I’m in – probably a change for the better. It doesn’t do to dwell on the pain. Don’t get me started about this fucking headache. I sigh quietly and glance at my calendar, and the clock. It’s time to begin again.
Evening Light 