Archives for posts with tag: TBI

I’m sipping my coffee in the quiet of the office before dawn on a Monday morning, listening to a favorite jazz singer crooning softly in my ears. I find myself reflecting on the last time I listened to this particular woman’s voice, before “rediscovering her” recently, searching for a particular song to share with a friend going through some things. I lived a very different life at that time. Most of the music I listened to then was jazz. That realization got me thinking about the many different “versions of me” I have lived over a lifetime, through the lens of the music I listened to.

Using music to differentiate from one version of myself to another, I can see myself change over time, through career changes, addresses, partnerships, personal philosophy and points of view, economic circumstances, the books I read, the language I used, the way I painted, and even preferences in how I dressed, and who I hung out with. Change is. I’ve grown over a lifetime of choices, opportunities, and circumstances. Some of my changes have been inflicted upon me, some were choices. In some sense, I have been many women.

“Lichen II” watercolor on paper, 8″ x 10″ 1984 (painted while listening to jazz)

That woman who listened mostly to jazz lived with domestic violence, which she carefully hid from the view of colleagues. She had few friends. She was physically beautiful – as beautiful as she would ever be, but her mind was a mess. Her values and philosophy in life reflected the strained jigsaw puzzle of thinking errors and mental gymnastics needed to rationalize her experience. She lived a strange sleepless life, traumatized and anxious, and always vigilant. Music – particularly jazz – was always “a safe topic” at home. An acceptable shared pleasure. Her home was compulsively meticulously neat, always. It had to be. She was young – in her 20s – and a soldier on active duty. Respected at work, mistreated and tormented at home, she kept people at a distance, except those occasions when she “let it all go” and hit the club looking for a moment of affection in a stranger’s embrace, when circumstances permitted. It was a life of confusion, and as her mental health eroded, her substantial collection of jazz CDs increased. I listen to that music now with mixed emotions, when I listen to it at all. I find beauty in the music, and distress in the memories. I am a lifetime away from that young woman, and a very different person. I make different choices. I think different thoughts. I believe different things and understand the world differently.

I chose change many times before I ever put myself on this path. Searching for something different, and finding differences, but not wellness, contentment, or joy. For a long time I blindly chased “happiness”, finding mostly misery.

“Communion” acrylic on canvas w/ceramic details, 24″ x 36″, 2011 (painted listening to a mix of EDM tracks)

I’d found myself mired in futility long before I met my Traveling Partner. His friendship pulled me back from the brink of despair more than once, before we were ever lovers. His love was literally “life changing” – because it changed my thinking, and my choices. I’ve come so far! I smile to myself, and change the music. I’ve “changed the music” many times in this one mortal lifetime (it’s a metaphor). I’m grateful to have had that opportunity. I smile and listen to wise words in a favorite song. We can choose change. Sometimes change is forced upon us. Change is. I’m grateful for this enduring love (and partnership) along the journey.

“Siletz Bay Pink Sunrise II” pastel on pastelbord, 7″ x 9″, 2024 (painted listening to love songs)

…The journey is the destination. There is no map. If you stray from your path, begin again.

Used to be I had major issues with sound sensitivity, particularly in the voice frequency range. That seemed to be so much less problematic the last couple years, since shortly before the pandemic, I think. I never stopped to wonder why; I attributed that change to progress through therapy. Seemed obvious. Now I’ve got these hearing aids, and my sound sensitivity is back. lol Apparently I’d just been losing my hearing in the voice frequency range. LOL G’damn it.

I’m laughing over it more than anything else. Cosmic humor for those inclined to perceive (or create) a god. Last night I went to bed just a bit early, deeply fatigued from fighting to stay relaxed and merry in spite of my serious annoyance over “every little thing” to do with a variety of human sound effects that sourced with the human beings in the room with me. It wasn’t personal. Hell, it wasn’t even out of the ordinary – it was merely audible in a whole new way. I’ve got my hearing back, so it should have been predictable that I would also regain some measure of my sound sensitivity, and irritation to do with chomping, lip-smacking, slurping, clanging of dishes and utensils, banging of dishes and pots, stomping of feet, forced laughter, dealing with congestion, needlessly loud remarks when I’m listening to something else… all the regular human stuff. Fucking hell human beings are ridiculously noisy. I made the mistake of mentioning it aloud with some surprise at the observation, and instead of any sympathy whatsoever, what I got from the Anxious Adventurer (and primary source of most of the noise) was “maybe you should turn your hearing aids down”? (“How about maybe you try to be a little quieter – or at least show some fucking consideration and understanding, ffs?” Was my unstated response.) I was surprised at the callous disregard for my experience, and my somewhat hurt feelings and notable irritation were a major part of deciding to go to bed. I just didn’t feel like dealing with being treated dismissively in my own house by a human being who I expect to care about my experience at least a little bit and who receives a fuck-ton of consideration from me day-to-day.

…I may still have some unresolved feelings about this, apparently, I should deal with that. (So much for mostly laughing about it!)

I sigh to myself. The Anxious Adventurer may legitimately “not get it”, and is in some regards still half-feral. I remind myself to be patient and kind, and to coach more often than I snarl.

So. Yeah. There’s that. It’s otherwise quite a pleasant morning. I woke up a few minutes ahead of my artificial sunrise, feeling rested and cozy and warm. My morning routine was… routine (hearing aids and all). The drive to work was pleasant and uncomplicated, and traffic was light. The office is comfortably warm and quiet. The details of the day ahead seem well-planned, and I feel relaxed and confident. All things considered, a very good day for this one individual human being.

I made the mistake of peeking at the news headlines. This terrifying new administration is already getting going with excessive zeal with their attack on immigrants, without regard to the rights of citizens, military veterans, or consideration of basic human decency – it’s appalling, and shameful. Attacks on the basic human rights of women are already beginning. Attacks on the fundamentals of democracy itself, too. The whole thing is a grotesque mockery of anything to do with America. I don’t know what I expected, and I guess I’m not surprised; when someone tells you who they are, believe them. The voters knew they were electing a misogynist xenophobic criminal fraudster in November, and they did it anyway. Horrifying, yes. Shocking, maybe. A surprise? No, not really. Maybe we’ll learn something and start providing education in emotional intelligence, and critical thinking, in K-12 education after this mess is sorted out? At least that ignorant huckster in the President’s office isn’t fucking immortal. (Note to self: don’t read the news. You know it’s terrible, already. Definitely don’t read the comments – that’s where the trolls live.)

Seriously. Just don’t. 🙂

I breathe, exhale, and relax and let that shit go. I pull myself back to this “now” moment, this place, this time. I’ve got enough to do in front of me, and plenty to take care of without getting myself all stirred up over things I can’t fix or prevent. That won’t stop me from being compassionate, aware, or speaking up when I see this bullshit going on. I make a note on my calendar to write to my elected representatives – that’s still a step worth taking, though it often feels futile. I stay committed to being frank about my thoughts on these trying times with friends, neighbors, even casual strangers when the topics come up. I refuse to pretend I don’t care, or to stand silent in the face of cruelty and injustice. I’m just not okay with that.

Another breathe. Another moment to relax and bring myself back to “now”. Trying times. I smile to myself, and give myself a moment of compassion. I’ve seen a lot in 61 years, and some of it has been bad. This too shall pass. For real; change is.

I take a phone call. Finish my writing. Begin again.

I slept badly last night. I woke to the full brightness of my artificial sunrise (which usually wakes me much sooner, in soft dim light). My routine was thrown off by the addition of putting in my new hearing aids, which I’m not yet super skilled at, and doing it felt clumsy. My long hair and glasses complicate that a bit; it’s necessary to brush my hair before I put in my hearing aids – but brushing my hair is often “the last thing I do”, and I’d set things up such that the hearing aids were “too soon” in my routine (thinking I’d put them in right after I put on my glasses). lol Being fond of routines and habits has a downside; the plan needs to account for the realities of my lived experience. So. I found myself mentally rearranging my morning routine – during my morning routine – and the end result was that I forgot my computer glasses when I left for work. Fucking hell.

…The hearing aids work very well, though, so there’s that…

The drive to the office was ordinary enough, though I’m still getting used to the “convenience” of hearing things so differently. Even car sounds, like the seatbelt warning ding, are quite different, and not just “louder”. Interesting. It’s somewhat similar to the experience of getting new glasses after needing glasses for awhile. There’s a certain awe and wonder to the level of additional detail. (I also need new glasses…)

When my Traveling Partner wakes and sends me a text message, the notification reaches me through the hearing aids, which are paired with my phone. I rather stupidly had the volume almost all the way up, because without the hearing aids, that’s what it took to get my attention – and I still missed tons of messages, because I just wasn’t noticing the notifications. Well, that’s not a problem now! I chuckled and turned the volume way down, fairly delighted that I can stop compulsively checking for missed messages, now, being able to count on hearing the notification each time.

…Pretty mundane stuff, eh?…

I sip my coffee and take a moment for myself before I start getting caught up on work. My back aches in spite of taking pain medication for that. I shrug to myself grateful that I’m not yet experiencing eye strain from wearing the wrong glasses. It’s a very human experience. This fragile vessel isn’t in the shape it once was, and various components are needing attention, or assistance. My thoughts wander briefly to “how much longer?” but I don’t linger there – I know I won’t live forever, but I’ve no desire to drag the end closer to my “now” moment. I hear the phrase “death and taxes” in my thoughts and roll my eyes; it is time to do the taxes. Apparently I’d rather think about death. LOL Humans are weird. I breathe, exhale, and relax. This moment here, with my coffee and my inbox, is quite enough for now. I pull my attention back to “now”.

It’s still quite early, and I have the office to myself for the time being. It’s pleasantly quiet, although it sounds quite different in many little ways. I listen to the ventilation, the hum of distant machinery, and the subjective “silence” of this space. It’s not silent at all. It’s not even actually “quiet” – I just perceive this experience as “quiet” because it is not filled with the chaos of human voices. I sip my coffee, content and grateful. This is enough – even with the wrong glasses on. 😀 I look out the window into the pre-dawn darkness. Daybreak soon. I turn off the office light, too better see the day begin. The light of my monitors is enough to work by.

I feel incredibly grateful and fortunate. I’ve got a partnership I can count on, with a human being I quite adore. I’ve got a good job that keeps the bills paid, and the pantry stocked. I’ve got decent healthcare, and what it doesn’t cover is mostly handled by the VA when I need something more. I’ve got good friends and good colleagues. I’ve got this pleasant moment right here, and the hope that I’ll see many many more. It adds up to a pretty good experience. I sit with that awareness awhile. It’s been a worthy journey so far – and there’s further to go.

…It’s time to begin again…

I am sitting quietly, listening to the woosh of the ventilation and the zing and buzz of my tinnitus. Just that, nothing more. Some minutes pass before I consider my keyboard or my thoughts. I just sit awhile, with this infinite seeming moment. It’s isn’t though; it’s quite finite and mortal and limited by this space and whatever time and attention I give it. Just a moment. Sometimes a moment seems so fragile and fleeting. A metaphorical drop in the bucket of a lifetime of moments…but…how big is that bucket, anyway?

I breathe, exhale, and relax. I sip my coffee. I give a bit of attention to the pain in my neck, my back, my headache, and then move on; my thoughts are elsewhere. Here. Now. Just being. I’m not doing anything right now – other than making a point of noticing the stillness, and this moment, and writing a few words before letting stillness and quiet overtake me again. I exhale slowly, hearing my breath and noticing that the sounds of the ventilation, my breath, and my tinnitus all seem quite “the same volume”. I’m not certain they are, particularly considering the “sound” of my tinnitus isn’t a “real” sound at all – no one hears that but me.

I stretch, and sigh, and adjust the way I’m sitting in this rather uncomfortable office chair. It’ll be a day of it, though a short one. I see a new doctor today. For a moment I wonder how that will go, and whether I’ve chosen well or poorly. I put all that aside, again; the time is not now. “Now” is just this moment, here. Quiet. Still. Alone. It’s quite pleasant and… something else. Fulfilling? Satisfying? Peaceful. For a moment (this moment) there is no chaos. This is a chosen, deliberate, willful thing. I am choosing peace and order in this solitary moment. It isn’t much, as peace and order goes, and it surely does nothing noteworthy to improve the state of our messy chaotic terrifying world – but it is here, and now, and it is real. (No one is dying in this moment, in this place. Real peace. I’m choosing it. You can too. So can “they” – and by “they” I mean all those beyond these walls who are choosing to kill, or to send others to fight and kill and die. Those are most definitely choices and could be handled quite differently.)

I sigh quietly, annoyed to have let my thoughts slip from this moment to other moments, other places – other intentions. I pull my mind back, and begin again. Here. Now. This moment. This place. This feeling of peace and contentment and stillness.

Later this week The Author will visit me and my Traveling Partner, and I am eager to see him – it’s been too long. 2016? 2017? Something like that, I think. I remember his visit to help me move into #59… or was it the duplex? Was it both? He’s a good friend – willing to help with a move. Hell, he helped me move to Portland from Fresno, both of us driving vehicles not ideally up for that challenge. That’s friendship, right there. This has been an enduring friendship since we first met… 1996? I think so. He has visited me. I have visited him (though less often). I think about making a trip down his way maybe this Spring – if my Traveling Partner is up to being without me for a few days when that time comes. Could be fun. A chance to see many old friends, and renew those with shared moments and new memories. A worthwhile endeavor.

I smile and my thoughts move on. I look at the time, reluctantly. The work day calls for my attention. My coffee is almost gone. Daybreak is visible on the horizon, beyond the windows. It’s time to begin again.

I woke abruptly shortly before my silent alarm lit the room. I lay still and quiet, wondering what woke me, and still sensing the lingering remnants of my dreams. There was, rather oddly, an old Juice Newton song stuck in my head – not music I listen to, nor have I heard it recently. Peculiar, especially knowing I have not heard it recently (on background music in the grocery store or something of that sort). 1981 – I was finishing high school and preparing to head to basic training that year. It was a year of a lot of change. I was 17.

By the time I reached the office, the music in my head had shifted. 1975 – 10cc. Weird way to time travel, eh? I’d have been… 11? 12? Not long after my (most significant) TBI. It was a strange time, and I still lived at home, with my family of origin. I guess I could just say “with my family” – but that means different things to different people these days, and I’m specifically referencing my mother, father, and my two sisters, in this case. As I settled in to work, the music in my head moved on with the years… Alice CooperVan HalenAC/DC… I listen to songs from other times, still loving them, still moved by them, and just a little astonished by how much my tastes have changed over the years, with moods, with moments, with circumstances, and with relationships. I shake off a moment of soft sorrow, and choose a playlist from a more recent time, more upbeat, associated with happier memories and easier times. “A better groove“. Music is almost a kind of magic, I sometimes think – a way of casting a spell over ourselves, and carrying our heart back to another time, a different place.

I grin to myself and think of my beloved Traveling Partner and his exceptional gift for creating an emotional moment using music. He has inspired me so often, and moved me to laughter, to tears, to passion, so many times. I remember that I don’t have to sit with my pain just because a song plays… I can change the music.

It doesn’t do to dwell on sorrow and pain, and it’s very much a choice I can make – to let that go, to control the mood in the moment, to grab the wheel and drive. It’s my journey, after all.

I breathe, exhale, and relax. There’s a horizon in the distance, and a journey to make between here and there. It’s time to begin again.