Archives for posts with tag: this fragile vessel

The work day ended gently, and it’s been productive. which surprises me. The morning passed pretty quickly, but the minutes became prolonged and tedious as the afternoon began, and by 13:00 I was definitely aware that I’m ill. The headache that seemed to have diminished during the night is very much back. My sinuses feel weirdly dry and irritated, in spite of my drippy nose. I finally noticed that I had forgotten to remove my shoes after running a brief errand… then still managed to forget about them entirely until some minutes ago. I ache all over, although the chills and sweats seem to be over with. I’m “tired” – but not the healthy tiredness of the end of a long day at hard work, nor the anticipated tiredness of bedtime. Just feeling generally rundown. The malaise of illness seems so utterly mundane. But…

…I’m okay for nearly all values of “okay”, presently, in spite of being sick. It’s just a headcold. Pretty commonplace, and very ordinary. Hell, it’s that time of year, anyway, eh? I sigh, and let that go. It’s not really worth bitching about, and I’m snug at home and cared for…

My Traveling Partner asks me, every so often, if I’m feeling better. I mean… mostly? Sort of. Some? A little bit? As with the way I often answer questions, the answer isn’t helpful at all, and fails to communicate anything worth knowing. It’s a challenge I deal with often, and I know it frustrates people. What frustrates me is how often people who know I have brain damage either completely forget that there are some very specific things that result from that (which affect communication in some cases) that I can’t reliably do much about, or behave as though it is as simple as doing things differently. Practicing doing some particular thing in some very particular way can be helpful over time, but (most especially) when my executive function and communication impairments are most severe (like, when I’m sick, or deeply fatigued), there’s often damned little I can actually do about it in any practical way. I just have to deal with the experience of struggling to communicate, when it happens. Frustrating all around.

I take a break with my Traveling Partner. He’s working on a project in the shop. He’s having his own experience with frustration and shares details with me. He offers to show me something he’s working on, or something to do with the thing frustrating him. I’m aware that I’m too sick to be sharp enough to appreciate and value the experience, putting us both at risk of still more frustration – so I decline in favor of more self-care, and maybe laying down for awhile. This fucking headache is kicking my ass, and has now partnered with my “everyday headache” to bring real oomph to my headache experience. I sigh to myself, alone in this comfortable space. My headache is not eased by whatever the fuck that low frequency whine outside is. A leaf-blower? A distant train engine idling on a siding? One of those vacuum or carpet cleaning trucks over at the apartment complex on the other side of the creek? It could be any number of things. One thing it definitely is, is incredibly irritating and I’ve got a fucking headache. I snarl quietly to myself, then remind myself it isn’t personal, at all. It’s just noise.

…This headache, though…

I breathe, exhale, and relax. I’m not at risk of death. I’m not headed to the ER. I’m not immobilized. I’ve got a headcold. Some random virus going around the community at the start of flu season caught up to me. I could have rolled d20 and predicted the outcome, most likely. Annoyingly mundane and not at all interesting. (Sorry.)

I sit quietly for a moment, appreciating the other details. The good stuff. I pull my focus back to this moment, this relationship, this little house situated between town and farm. There’s a lot to be grateful for. I’m grateful that the Anxious Adventurer is willing to make dinner, and that I had ingredients on hand to make that relatively easy on him. I’m grateful to have the means to quickly go to the pharmacy for cold remedies, and the freedom to do so at my convenience, even on a work day. I’m grateful that I can afford to do so, without worrying about trade-offs. I’m grateful for the good quality well-roasted sustainably sourced fair trade coffee beans from which I made my morning coffee. I’m grateful to have the opportunity to make that choice. I’m grateful to have become the kind of person who cares about the other human beings in the supply chain for the things I want or need in life, and the sort who makes choices that are informed by that caring nature. I’m grateful to recognize my relative privilege in life, in spite of the tough times I’ve endured along the way. I’m grateful for the computer that sits here on my desk; my Traveling Partner built it with my needs in mind, and it suits me so well! I’m grateful to be so well-loved by such a very interesting and delightful human being, one that I love so well. I’m grateful that my problems in life aren’t worse than they are – and that I am aware of my good fortune.

…Even when I’m sick, a few minutes of sincere gratitude is a powerful mood-lifter…

When I’m sick, my emotions are often very much “at the surface” of my awareness. This puts me at risk of losing my temper, or weeping over nonsense. In addition to those risks, though, it also puts me in touch with the softer subtler emotions, the little joys, the childlike delight over something that sparkles, the pure radiant happiness of a hug. It’s a weird time. I’m tired, but energized and restless. I’m volatile, but capable of beautiful moments of great joy, love, and delight. I’m kind of stupid, but barely matters because I’m also feeling accepted and safe and cared-for. Being human is peculiarly complicated. Nuanced. I try not to take it personally. If things go sideways, I know I’m loved anyway. I smile to myself and finish my tea. The work day is behind me. I can begin again tomorrow – for now, I’ll just take care of myself.

Last week’s snowstorm feels like a long time ago, not the short 4 days that it was. The long weekend I was so fortunate to enjoy stretched time and gave me an opportunity to really rest, to get a few things done, to enjoy my Traveling Partner (and my life) – and I took full advantage of it. I stayed up later. I slept in a couple times. I even took an afternoon to dive into a long-waiting personal project to do with sorting and filing and tidying up my many digital images of my art work. That was incredibly satisfying. I cooked a couple of really good meals. I enjoyed breakfast or brunch with my beloved each morning. Time well-spent. It wasn’t “fancy” or costly or exotic, it was just… mine. I needed that.

This morning I woke to my artificial sunrise and prepared to head to the office. I didn’t notice until I was almost half way into my commute that I had somehow set my wake up time to… 04:00. Good grief, really?? I definitely did not need to be up that early. No traffic, though… pleasant, quiet drive.

Now I’m at my desk, drinking my coffee, trying to stretch enough to feel… different than I do. I don’t know what I’m going for, maybe, but I think “comfortable” would be good. I feel unexpectedly sleepy, in spite of the coffee (because of it?). I didn’t sleep particularly well last night. I am paying for that, and the early wake up, in physical discomfort and restless sleepiness. My back aches with my osteo-arthritis. My neck aches from degenerative disk disease. My headache is with me this morning, too. My shoulders feel tight in spite of adjusting the height of this adjustable desk several times. The delicious relaxation of the weekend gives way to the subtle tension of the work week. I stay away from the news; it’s all pretty bad, and none of it is “new information”. It’s all stories about shitty people doing terrible things to make a name or profit for themselves, in some cases out of nothing more than pettiness and spite, other people standing around wringing their hands and not doing much of anything helpful about any of it. The usual. Human suffering. Human greed. Human cruelty. No superheroes.

…And I’m fairly fucking over hearing about Elon-fucking-Musk. I mean, seriously? That fucking guy. How he’s managed to con so many otherwise rational-seeming people is just beyond me. Why keep giving him more money for products he will not ever make? Can we not also let him tear down our fucking government? Are his substantial and obvious conflicts of interest not enough to make that clearly a terrible idea?! Fucking hell. Just how fucking stupid and gullible are we?

I pause my writing to hunt for a tissue in the quiet empty office. Noticing how good it feels to actually move around, I wander a bit, and take a walk around the building, outside, stretching, and taking deep breaths as I walk. I bring my attention back to “now” – where I am. This moment, here. Daybreak has come, dawn is here, the sunrise is imminent. It is a new day, filled with new opportunities. I amuse myself with observations of how good self-care sometimes feels. Funny that it can feel so hard to make time for those practices…

I sigh to myself and return to my desk, along with my aches and pains. Typical shit. Most of us deal with some measure of pain, some of us deal with more. It’s part of the human condition, and I try not to take it personally, and also do something about it and get on with my day. I smile fondly when my thoughts return to my Traveling Partner. I hope he gets the rest he needs. (He’s also been sleeping poorly.) I look at my calendar, check over my email, plan my workload for the day… It’s time to begin again.

This fragile human vessel is so… fragile. The biochemistry of life is complicated. Maslow’s hierarchy is worth keeping in mind. Self-care really matters. Yesterday evening I “hit a wall” – low blood sugar, pain, fatigue, stress… rough. My Traveling Partner reminded me to slow down and care for myself, suggested having a snack while I was rushing around trying to end the day. He was right. It made a huge difference.

I’m thinking about it now as I deal with my physical pain on a rainy day and deal with the background stress of the constant swirling discussion of stressful government madness. I breathe, exhale, and relax. I think about dinner. I look out the window at the rainy day. I remember to take pain medication. I drink water. I stand up and stretch and move around. I refresh the content of my thoughts with a pleasant distraction. Basic stuff.

It’s a gray rainy day. Not particularly cold, though it may be over the weekend. I sigh quietly and consider the imminent end of the work day. I think about far away friends and wonder how they are. I think about my Traveling Partner at home, also dealing with pain. Pain sucks. Still… it could be worse. The office is comfortably warm, and home will be as well. That’s no small thing. I think about dinner, again, and wonder if maybe pizza would be good…?

I smile to myself, grateful for what I’ve got, and what works. Hopeful, because that feels better than despair. There are verbs involved – and a lot of those have to do with self-care. So, I do a few of those things, and look forward to a hot shower after I get home. That’ll feel nice… a good way to begin again.

It’s going to be another hot summer day. I remind myself unnecessarily to drink enough water (meaning, specifically, more than usual). Seems likely that the remaining summers ahead for human kind will continue to be hot and then hotter, unless something changes. Stay cool. Take care of yourself. Avoid punishing manual labor in the heat of the day. Be alert for signs of heat-related illness and take steps sooner than later.

Another hot summer day ahead.

I woke early and slipped away into the earliest hint of dawn. The morning air was still and felt somehow warmer than the 67°F than it was. Yesterday the morning felt warm at 60°F. Tomorrow it’ll no doubt feel warmer still at some higher temperature. The nights are not cooling off completely and the days are getting warmer, too. Summer.

The sun rose an irritable looking orange at the edge of a hazy pink horizon, as I drove to the trailhead. It was vivid and beautiful, particularly the view as I came around a bend in the road, with Mt Hood silhouetted a deep smudgy lavender against the vibrant colors of the dawn. I love that particular view, and I am forced to enjoy it in the moment; there’s no place to stop, there, so no opportunity to get a picture, and I never know ahead of time what beauty may appear – and quickly disappear – as I come around that bend in the road.

So here it is another day. Another hot one. I walked my walk, taking note of the increasingly warm temperatures as I walked. Drinking water. At my halfway point, I sit awhile watching and listening. I update my list of things to get done today. I drink more water. I write these few words. The warm humid morning and sense of sharing the trail (though I don’t see anyone else) push me to maintain a brisk pace, and I am eager to get home and have a shower. I’m unpleasantly sticky with sweat.

I walk on, thinking thoughts of balance, perspective, moderation, and sufficiency. I breathe, exhale, and relax, grateful to have remembered to take allergy medication this morning. I watch the sun rise as I walk, and now I am distracted by having to pee. Still drinking water.

I approached the parking lot (and the restrooms), unsurprised to see it nearly full. It’s clearly time to begin again.

… Stay cool. Be safe. Drink water. Know your physical limits. Wear sunscreen if you’re going outside. Take care of yourself; you matter. Be careful with those spoons…

An update, some time later, same day…

My Traveling Partner woke shortly after I arrived home, and not in a good mood. His sleep was interrupted and less than ideally restful. He’s had a change of medication, too, and it’s causing considerable irritability. He’s aware of it, and alerts me (and the Anxious Adventurer) of the situation, asks for our patience, and suggests we keep our distance as much as possible. Practical advice, and I plan to take it. There’s little about my to-do list that requires participation or even input from anyone, so I figure I can keep myself productively occupied for much of the day.

…First things first, a healthy breakfast salad, and a nice cup of tea…

I queue up my art video playlist for some study time over a bite of breakfast. A good beginning, suited to the day ahead, beating the heat. Next, after breakfast, I’ll tackle the housekeeping chores while the day is still cool… I may even paint with these new pastels, today! 😀 I sip my tea and hope that my partner’s experience of the day improves once he is fully awake, and has had his coffee. If not then, I hope he finds a suitable opportunity to begin again, and finds his success there.

I’m taking an afternoon break. I pretty much had to; my brain started shutting down. I found myself staring intently into the distance without seeing anything, just sort of attracted to the light. My mind was still – too still – and my thoughts were vacant abstractions and vague ruminations. “Cognitive fatigue”. I recognize it when I feel it. I got up, stretched, moved around some. Drank some water. Made a cup of tea, which sits here, half-consumed though I don’t recall actually drinking any of it. I feel… disconnected. Disengaged. Something like, but not quite, sleepy…

…Fucking hell, I’ve got shit to do… don’t I? I sigh outloud. (I sound frustrated and impatient with myself.) I have been trying to “shake it off” for some minutes, now. I suppose I could “give in to it” and lay down on the couch in the lounge space of the office, where I’m working today, only… I already know I would not sleep, even a little. I’m not actually “sleepy”. My mind is tired, yes. My body? Not so much. Hell, I went to bed early last night, slept more or less through the night, woke mostly pretty well-rested (although rather groggy)… what the hell is this shit?? “I don’t have time for this!” I protest internally, knowing it won’t do any real good… that’s not how one overcomes fatigue. lol

…I try taking a short walk and getting some fresh air…

This has been a peculiarly intense work week. Not bad, and for sure I’ve gotten a lot done, and most of that well-ahead of required timing or deadlines. Nice problem to have, I guess. There are no holidays with long weekends in March. None in April on our work calendar, either… Memorial Day in May feels a long time away, and I find myself wondering if it is time to go camping, or head to the coast for a couple days of quiet time reading, writing, and walking the beach…? I know my Traveling Partner is super bored at home, as he continues his recovery; he’s finally starting to feel more himself as his injury heals, and this will soon mean he doesn’t need as much help from me on day-to-day basics supporting him. Am I just… tired? It’s a lot to handle, and he’s incredibly kind and gracious and careful not to overburden me (I’ve got limitations of my own) – but it’s not likely to be a surprise if I’m just hitting a “stall point” from fatigue building up over time. I find myself thinking “when was my last getaway…?” and realizing it has only been a handful of days, really; I went down the coast to visit my dear friend before she died…

…Suddenly the tears start to fall…

Okay, so I’ve failed to account for the emotional fatigue of also managing grief in the mix of all of everything else, I guess? I kind of feel like I’m mostly sort of “over it”… more or less… mostly… but… that isn’t really how grief or grieving works, is it? The tears are just steady falling at this point, and I just fucking let them. My dear friend – one of my dearest, and for such a very long time – deserves every honest tear I shed in her memory. So human. What else can I possibly offer her now?

…Definitely just straight up crying now…

…This almost feels hormonal…

…Fuck I’m just so g’damned tired “lately”… (how much “lately”? I don’t even know, maybe just today…)

…But what do I need from me? Well, shit. I actually just don’t know, and can’t seem to kick my brain back into gear, and now I’m dealing with tears, too. So I do what I can – what I have to get done to finish the day. One task at a time, with care and consideration, after taking a healthy break, walking around the block, breathing some fresh air, drinking some clean cold water and a nice cup of tea… “Soon enough it’ll all be over,” I think to myself, then when I’m struck by how grim and final that actually sounds, I break up laughing out loud, tears still falling. I probably look like a hysterical madwoman, right about now, and I don’t even care – it’s just a very human moment. I’m tired. At least I’m fucking laughing, though… That’ll have to be enough, until I begin again.