Archives for category: Brain Injury

A friend asked me a question, and asked for “some steps, you know, some basic practices” because they were “freaking out with all this chaos and scary shit going on” (I know, me too, right?). I said I’d do my best. I hope it helps. ❤

Where does this path lead?

Sometimes it’s a difficult journey, this “life” thing, eh? It doesn’t have to be has difficult as it sometimes seems. It is an unfortunate truth that we often complicate our situation needlessly, sometimes through poor decision-making, sometimes through lack of clarity in our thinking, sometimes just because we have feelings and don’t reliably deal with those skillfully. But, the good news is that we do actually have choices, and tools at our disposal (like critical thinking, perspective, and non-attachment). We can take things a step at a time…

  1. Start where you are. Any journey is more difficult if you are trying to begin from somewhere other than where you actually stand. Honest self-reflection, acceptance, and making a point to test your assumptions and reality check your expectations is really useful.
  2. Breathe, exhale, relax. Maybe you don’t have “a meditation practice”. Maybe you don’t need one? It’s reliably helpful to “take a minute” to calm yourself when you are stressed out. Change your perspective or your environment, however briefly, and break out of your rumination or your stress spiral. Let small shit stay small. Let things go that you’re getting hung up on, if only for a little while. Take a break. Walk away from it.
  3. Take care of your “fragile vessel”. Such a simple thing – self-care really matters, particularly when life feels hardest. Are you getting enough rest? Are you eating healthy meals? Drinking enough water? How about a shower and some clean clothes? Have you taken prescription medications that may affect your feeling of wellness (or failed to take them)? Are you in pain – and are you doing something to ease that, if you can?
  4. No media, no doomscrolling. This one is a small thing, but a big deal; if you’re already stressed to the breaking point, feeling overwhelmed, or struggling to manage the details in your life, I promise you that reading the news, or doomscrolling endlessly through various feeds on your device(s) is not helpful. Put it down. Silence your notifications. Put the device on Do Not Disturb. Walk away from the tether that ties you to constant demands for your attention. Go outside. Take a walk. Read a book. Sit down over a cup of tea or coffee with an actual human being out in the world and have a conversation. (See point 2.)
  5. Put things into perspective. This one is both difficult and easy. Easy to say, sometimes more difficult to put into practice, just being real with you. Your perspective on a difficult moment may be filtered through the lens of the stress you feel, or prior experiences that weren’t really quite the same. You may be struggling with your chaos and damage, and past traumas may be coloring your understanding. Take a step back. (Don’t take dumb shit personally.) Consider the moment from more than one angle. This one moment, right here, is unique and unrepeatable – and it will pass (good or bad). Let it.
  6. Practice non-attachment. This is a practice that sometimes has some poignance (at least for me); let it go. Just that. Whatever it is, don’t cling to it. Let it go. If you lost the thing you cling to so tightly (whether it is an object, relationship, or sense of identity), things might change, sure, but – wouldn’t you (most likely) be okay if you allow yourself to be? We sometimes cling so tightly to something that isn’t even quite real. Some of what hurts us most we’ve completely made up – it’s safe to let that shit go.
  7. Practice gratitude. I’m not even kidding. I’m also not suggesting that being grateful for the struggle itself, or the pain you’re in, or this complicated moment is the goal. Not at all. I’m suggesting that being grateful for other things, the small wins, the pleasant moments, the little joys, the handful of things that are reliably part of your individual good fortune has real value. It’s difficult for anger, anxiety, or sorrow to compete for one’s attention with heartfelt gratitude. Authenticity matters, and gratitude can’t be “forced”, but there are likely to be quite a few little things for which you are truly grateful. Make room for those. Reflect on, and cherish those. It may give you a firm foundation to stand on before you…
  8. Take the next step. Life is a journey. Most of our path we walk alone. Sometimes we’re fortunate enough to share the journey, but it is still our journey. We’re each having our own experience. Walk on. Sure, have an eye on where you think you’d like to get to, but understand an important detail; the journey is the destination. Do your best to be the person you’d most like to be, moment to moment. Make those choices – the ones that allow you to walk your path, authentically.
  9. Be here, now. Spend less time on regret (the past is behind you) and worry (the future has not yet happened and may not be whatever you fear it might). Be present, in this moment. Now. This takes us back to point 1, you may have noticed… “start where you are”.
As with so many journeys, it isn’t always clear where the path leads.

Breathe. Exhale. Relax. You can begin again. Each time you stumble, pick yourself up, and begin again. Each time you fail, learn from that experience. You’ve got this. It’s your path, your journey, no one can handle this one better than you can.

Staying on the path is a choice, and there are verbs involved.

It’s a Friday. The headlines in my news feed are pretty horrible; more human cruelty, more corruption and greed, more vain human stupidity. I sigh and move on; I don’t have time for that bullshit. I have things to get done, a life to live, and an opportunity to do better, myself, than all of that nonsense. I decide to focus on what I can do as an individual to make life better for my family and my colleagues, and stay present here, now, and attentive to what I can do something about, personally. It feels more productive, and emotionally healthier.

…I have a list of things to do…

First things first, I take care of myself. Coffee. Meditation. A moment for reflection. Then thoughtful time spent on the household budget for the new pay period. I smile to myself, thinking of my Traveling Partner and how helpful he was when we got together, sharing his (much better) approach to such things. I’ve come a long way since then. During the time I lived alone, although we were still together, he wisely “kicked off the training wheels” and insisted I handle my own affairs financially, feeling that I was ready for that (and wanting to feel certain I could take care of myself in this way, come what may). Having a brain injury had long presented significant challenges for me in that area; managing money was hard for as long as I could remember, when I met my Traveling Partner. Making and following a budget was hard. Understanding when and how to flex on a plan was complicated. I didn’t make much money and it always seemed like I needed to stretch it further than it could go. I’d been disadvantaged by relationships with individuals willing to exploit my inexperience or my brain damage for their own benefit. I didn’t understand my worth. I am grateful to my beloved Traveling Partner whenever I sit down on a payday Friday to look over the numbers, make a plan, and prepare for another cycle of bills, expenses, and living life. Paydays used to be terrifying and filled with anxiety – now they’re just days that begin with a spreadsheet, some thoughtful choices, and some notes to share with my partner, and the chance to get his thoughts on the plan and make changes based on those. He has good ideas and we’re a team. I smile, feeling fortunate and loved.

I look over the things I need to get done over the next couple of weeks, and over the coming weekend. Pick up new glasses. Get the oil changed in my car. Grocery shop. Finish the storage move. Prepare the garden for the coming of Spring. I sigh to myself; I failed to properly winterize the garden last autumn, busy with other things that seemed a higher priority at the time. I’ll pay for that now. The Spring prep tasks will be a bit more complicated, a bit more laborious, a bit more tedious. Choices. I laugh softly to myself and sip my coffee. We make our choices and pay the price when we choose poorly. That’s just real.

…I’m excited about having new glasses, my prescription has changed and it’ll be good to see clearly again…

I sip my coffee and do a quick “personal inventory”. My tinnitus is loud in my ears this morning, but I’m not in much pain. I’m feeling the chill of morning, but I’m not especially uncomfortable. I feel relaxed and ready for the day. My chronic headache is only a 2 on a 1-10 scale, which is almost pleasant, all things considered. It’s a good start to the day. I feel rested and calm. It was probably a good choice to avoid the news feed – nothing good comes of added unnecessary stress over terrible shit I can’t change to my sense of self first thing in the morning. Being “present”, and having a sense of “where I’m at” at the start of the day is a useful practice, for me. I’m less likely to unexpectedly find myself mired in chaos and damage, or having some problematic tantrum over bullshit. I can take better care of myself when I know what I need. (That probably all seems pretty obvious…)

Daybreak comes, then dawn, and I see the suggestion of a sunrise behind dense gray clouds. A new day. Looks like a good one, so long as I don’t think about things to do with governments, politicians, billionaires, corporate greed, exploitation of vulnerable populations, or climate change. I sigh to myself and get ready to begin again.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

We’ve all got to walk our own mile. Sometimes it is a difficult journey. Sometimes we’re fortunate enough to share some portion of the journey with other travelers. The company we keep matters. A lot. Walking a difficult path alone may be a better choice than sharing the journey with those who wish you ill ( or even those who simply don’t care whether you stumble).

The way ahead may not be obvious. Conditions may be bleak.

I’ve never understood why someone would choose an unforgiving path in the company of the hostile, mean-spirited, cruel, or other ill-intentioned souls on life’s journey. Sometimes we happen upon such folk, our paths may cross, but why choose to endure miles shared alongside them? What value does it add beyond painful lessons learned? Won’t circumstances deliver enough of that without seeking it out?

Isn’t being alone and walking a solitary mile better than sharing the journey with someone who would mistreat you?

Walk on. Choose the company you keep with care.

It can be a cold and unforgiving journey without also sharing your hard miles with those who wish you ill, or who would misuse your gracious presence for their own ends.

We’ve all got to walk our own mile, whatever the weather. (It’s a metaphor.)

My steps on the trail make a crunching sound as I walk over what’s left of the snow. I feel the snow compress and yield beneath my weight with each step further.  The air is clean and crisp, and feels strangely warm for 36°F. I feel comfortable in my warm sweater and my fleece. My steps feel purposeful as I walk through the fog along the marsh trail. Daybreak has come and the gray of the foggy morning changes hue. No colorful sunrise this morning. I have the trail to myself and I walk with my solitary thoughts, content to be alone.

I am grateful for a partnership that gives me such easy freedom to embrace solitary joy. My Traveling Partner has a standing invitation to join me on my morning walks, any time. (He’s more of an afternoon walk in the sunshine guy.) He doesn’t grudge me this solitary joy, and isn’t inclined to be out here on the foggy winter trail. I’m grateful to share the journey with such an understanding traveler.

My thoughts accompany me through the oak trees along the trail…

My thoughts wander. I smile recalling a time when I wore a favorite T-shirt that said “I don’t f* mean people” – and it was true then, and is still true now. I mean, why would I? Why would anyone? Isn’t it better to be alone? It’s a question I ask myself often, because I see so many people who seem uncomfortable with solitude. I don’t understand that, at all. Even my inner demons are better company than mean-spirited, cruel, or petty people. (I enjoy my own company quite a lot.)

Winter oaks, a foggy trail, and solitude.

I get back to the warmth of the car. Write a few words and reflect awhile on the quiet joy of a solitary mile in my own good company. The company we keep on this journey matters a lot. If you find you’d rather endure ill-intentioned companions than spend your time alone, that may be something worth reflecting on. You could be your own best friend. You could even walk a joyful solitary mile instead of enduring an unforgiving path in poorly chosen company. Isn’t it worth thinking about?

I breathe, exhale, and relax, sitting with my solitary thoughts, contentedly. It’s enough. I find quiet joy in this moment of solitude.

It has been worth it to step off the unforgiving path to walk a very different mile in well-chosen company – or solitude. Worth it to begin again.

I’m working on beginning again. A perfectly adequate reasonably pleasant ordinary sort of moment was poisoned so quickly by frustration. Frustration can be such a toxic thing – it hijacks my experience completely, if I allow whatever momentary bullshit to take over. In this case? The camera on my work laptop. I’m so annoyed by this. Somehow, the “privacy shutter” on this stupid thing is now toggled on, and every help file or article l I look at references some physical or software detail that is not at all how this particular laptop… is.

One suggests I use the small slider above the camera. There isn’t one on this laptop.

Another directs me to use the function key for the camera. This laptop does not appear to have that function key, specifically, and I haven’t yet found any clear guidance on what combination of other keys might get that result.

There are pages and pages and lists and lists of steps I could take, based on operating system – not one of them appears to match the details of this version that I’m using on this laptop.

…This difficulty only presents itself when I am on meetings, and has only done so since the meeting I had yesterday – on Zoom. (“Fuck this stupid bullshit” I snarl to myself, resenting having been talked into installing Zoom for one damned call in the first place.) I sigh to myself. Clear cache. Clear cookies. Uninstall Zoom. Reboot. Check all the privacy and camera settings I can find. All the basics. Minutes tick by unproductively, my frustration builds and spills over to… everything. I am annoyed and cranky.

“Stop.” I tell myself, gently. “Just stop. Give up on it for now, you don’t even have any more meetings today. Let it go. Reset. Begin again. Focus on other things that matter more. Fuck all this noise and bother over nothing.”

The view out the window, a different perspective on a moment.

I breathe, exhale, and relax. I put myself on “pause” and look out the window into the blue cloud-streaked sky.

I sip my afternoon coffee, pleased that it is better than the cup I had this morning. I let that be my focus, for now, just me, this view beyond the window, this cup of coffee. It’s enough. It’s this moment, right here.

The hardest part of toxic frustration is choosing to let it go. Now that I have, though, I can properly begin again. I sit awhile, watching the trees on the other side of the parking lot swaying in the winter wind. They wave back and forth steadily, like inverted pendulums, rocking, waving, hinting at a cold wind I’m grateful I don’t feel. The sun streaming in through the window gives an impression of warmth, though if I put my hand on the glass, I feel the cold come through. Definitely winter.

I remind myself to leave the office early enough to stop at the store for my beloved Traveling Partner and pick up a few things he’s asked for. I’m eager for him to be driving again – soon – but I also greatly enjoy doing little things to be helpful. It’s a small way to show my love and appreciation. I feel needed when he asks for some little thing. He feels loved when I handle it capably. It’s an exchange. I smile to myself, feeling the way our love “balances the scales”. We complement each other in so many ways. We’re so similar, and also so different – we share so much, and enjoy life together so much more than we would without each other. I sigh contentedly; this matters so much more than the earlier frustration.

I finish my coffee, and begin again.