Archives for category: Brain Injury

Tomorrow is for sure my last work day in this lovely office space. I’m not changing jobs; we’re leaving this space. Feels… strange. It’s okay. Not a sorrowful moment, just a moment. I sit quietly, looking out these windows at this view, and wondering what my day-to-day experience will be like after I return from my camping trip to a new, different, routine? Probably still pretty routine; that’s how I tend to live, mostly. lol

…I didn’t have to commute to this place to do the work I could as easily have been doing at home. I embraced the commute, and this space, as an opportunity, and I’ve enjoyed it for these past 8 months or so. Change is. I’m okay with that. I’m also okay with giving up the cost of fuel for the commute, and parking in the city, and all the vexing details that go along with all of that…

Traffic.

I’m counting down the days until my camping trip. My Traveling Partner was frank last evening that he’ll miss me, that it’s hard to do everything for himself when I’m away right now (while he recovers from an injury), and that he’s also a bit jealous to be stuck at home while I am camping. That’s real. I feel for him – and I feel fortunate to be so loved as to be missed when I’m gone. That’s beautiful. We both get something out of missing each other now and then, and I know I’ll miss him too. I also yearn for this time away, which I will spend in a solitary way, quietly among the trees, on the trail, or by the campfire. I need this solo time much the same way he needs the joyful camaraderie of our union as lovers and traveling companions on life’s journey – we do our best to strike a healthy balance, so we each thrive individually and together. He probably gets more time alone than he needs (I often find myself a bit jealous of that), and I don’t always get the solitary time I need – but we know the needs are there (his for steady, close companionship, mine for interludes of aloneness), and we work together to meet them (all). Funny how much love makes that matter – and how hard love can make it to achieve. It’s a peculiar puzzle.

“Life Sparkles (with the love we feel)” 11″ x 14″ acrylic on canvas w/glow and glitter 2018

I think about the here and now, and contrast it with daydreams of other places, other lived experiences, over the course of this one lifetime. There are so many experiences that I will likely never have, that I’ve often considered, or even yearned for. We make choices, and follow the path our choices take us down. Some choices take a few items “off the menu”, and some choices open grand vistas of new opportunities to consider. There’s a lot of variety in the human experience. I sit with my coffee, considering my choices, and where they have lead me. I couldn’t always say so, but it is very true today; I am walking my own path. That feels pretty good. I’m okay with where I am standing in life, presently. It’s a good place to be, although the world often feels like a pretty seriously fucked up mess on a terrifying order of magnitude (when I zoom out to consider that)… up close, this one life, this moment here, is pretty good. I’m okay… contented. Even “happy”. Deeply in love with my partner. Working a job I find satisfying, alongside people I respect and enjoy as both people and as colleagues. Living fairly simply in a little home I can call my own. I’ve got a veggie garden, beautiful roses, a small library of books I love. I’m fortunate. I can’t attribute all of my good fortune to my exceptional decision-making… because frankly, that’s not been the case for me. I’ve bungled a ton of shit, and made so many awful choices in life… but… I’m here, now, and this is a good place to be. I’ve gotten lucky, a lot, and I’m grateful for the circumstances and friendships that have paved this path, and continue to light my way.

Like a potted rose slaking its thirst on a gentle rain; I’m grateful.

I sigh contentedly. Be here, now. Good suggestion, if you like where you’re standing. If that’s not the case, it’s time to begin again, perhaps, and choose differently? So many choices. They aren’t all easy – and mistakes will be made. Results will vary. Verbs will be involved. The best plans still require attentive follow-through, care, and action. Sometimes adulting is hard. Sometimes life is filled with sorrow. We fail, we fall, we hurt, we struggle… and then we begin again. No do-overs, really, but we can pick ourselves up, brush the dirt off our knees and the tears off our cheeks, and walk on. Mostly it’s enough. The journey is the destination. We become what we practice.

…What are you practicing?…

I chuckle when I notice how filled with aphorisms and purpose-built slogans this particular bit of writing happens to be. I’m okay with that, too. “Repetition is learning.” I heard that first from a monster, many years ago, under circumstances I don’t care to repeat (or share in any detail). The source of useful information has nothing much to do with the usefulness of the information, itself. Another good lesson learned.

Change is. Choose wisely.

I look fondly out the windows to the park below. It’s a lovely view and I’ll miss it, but it’s time for change – and time to begin again.

I’m sipping my coffee and thinking about brain damage. Specifically, one of the consequences (for me, of mine) and the way I have (and do) cope with it – poor memory. It’s not that the memories don’t get into “long-term storage” at all, it’s more that “my file system is corrupted” and I have difficulty retrieving them – or recognizing they are still available. Having an object or photo associated with an event has long been my preferred strategy for dealing with that. Handling something as mundane as a rock picked up on a beach can do so much to help me recall that day, that beach, that memory… Without the rock? No recollection. Same with pictures; a picture of a particular dewy rose brings to mind that specific spring morning, a walk after a rainstorm, the scents of the flowers all around, the feel of the sunshine in that moment – and even the thoughts I was thinking at the time. No picture? No memory. This coping strategy, unfortunately, has a noteworthy downside. Clutter. Mementos that are meaningless to anyone but me, and lacking in any intrinsic value.

Yesterday evening my Traveling Partner delighted me with a (second) new earring rack for all my many (many, soooo many) pairs of earrings, so that they can be more organized, and available at a glance. So convenient. It’s too much to put them all in the bathroom, though. So… casual fun 3D printed earrings are right there in the bathroom by the mirror – great for every day. The second rack? In my bedroom, with my somewhat less casual semi-precious gemstone earrings, and earrings of great sentimental value or a bit more worth. My best/fanciest earrings are safely tucked away in my jewelry box for “occasions”. Seems quite tidy, which I enjoy. Getting to that point, though, brought me up close and personal with the clutter that had definitely been accumulating in my personal spaces on this whole other level since my partner’s injury last fall, and the dust… omg, the fucking dust. I’ve been letting my spaces go to shit because I just don’t have the energy to keep up with every-fucking-thing all the damned time. It’s hard. I’ve failed myself in a number of small ways that, initially, don’t matter as much to me and feel more negotiable…but… I have gotten to that place where the clutter and untidiness (and the fucking dust) are unhealthy for me. It’s been on my to-do list for a while now. Yesterday I just felt pushed to do some small thing about it.

…I managed to tidy up one entire wall of my bedroom, including 3 bookcases (13 shelves, many dozens of books) and all the miscellany that had accumulated on their shelves. Knick-knacks, bits of things, scraps of paper, just… junk and crap and whatnot to deal with. So… I mostly dealt with it. Meaning to say, I grabbed a small box and anything I couldn’t figure out “where it goes” at a glance (to put it there immediately), I dropped into the box. (I dusted as I went.) At the end of this process, once the entire room is thusly dealt with, I’ll go through the items in the box one by one and probably throw a ton of that shit out – or put it where it obviously belongs, because by that point it should become clear. It felt good to get some of that done, and to have a strategy. I had my Traveling Partner’s support and he didn’t grief me over not hanging out – having that encouragement and emotional safety to do the thing needing to be done helps make it doable at all. Now I just need to keep at it.

One of the challenges is that this process involves touching a ton of little items that evoke memories. Some good. Some less so. It can be an emotional process, and I’m less skilled at making it less so. The way out is through; there are no shortcuts on emotional journeys. I say something about it, generally, to my Traveling Partner, and he comments that perhaps some of these memories are not worth keeping, or working so hard to keep, maybe. His memory works very differently; he struggles to let things go, and remembers too well, too long, too easily. That’s a struggle of another sort, for sure. I’m not saying I’d rather have that one, either, it just means we have a very different perspective on memory and memories. Useful, actually. That rock I handled while I took things from shelves and placed them in the box? The one that reminded me of that very blue sunny afternoon when I lived at #59, feeling alone and unloved, lonely not solitary, mired in despair? Finding that whimsically painted rock in the fork of a tree on my rather sad walk that day really lifted me up, but when I handle the rock now, I remember finding it, yes, and the joy that came of that moment, but I also remember that very blue afternoon, and how heavy my heart was. It’s a visceral memory of sorrow and aloneness. Do I need to keep that one? Is there value in feeling that feeling just because I handled a rock?? My Traveling Partner’s observations with regard to memory are, even now, quite thought-provoking for me.

I make some notes for later. Things to do to get ready for camping. A note to remember to go to the store for some essentials. Lists and notes and reminders are another way I cope with the consequences of brain damage (and PTSD). They reduce the likelihood I’ll forget some time-sensitive task, which is definitely a thing I am prone to. All the bills are on auto-pay, where that’s available – just another strategy for coping with poor memory. Effective.

Is the strategy effective?

Is the outcome useful – and intended?

I sip my coffee and consider strategies – and brain damage. It’s been a lifetime. Some of my strategies were formed before I understood what I was coping with in the first place. Some of my strategies have been less than ideally effective. Some of them even had problematic unanticipated other results. This too, has been a journey. I breathe, exhale, and relax. It’s a lovely sunny morning, and there’s work to be done. I have that moment of amusement that I often do when I take notice of “how easy” work often feels compared to life – and in this particular moment I realize it’s likely because the strategies are purpose-built, and often built on foundations of many people and processes over long periods of time, tested and refined and reviewed and analyzed. Of course that feels easier; I’m not making it up as I go along. lol Something to think about.

I sometimes borrow work strategies and try them out in my life (sometimes they work very well). That’s okay, too – it’s just another strategy. What works, works. I try not to continue practices that don’t work, and try to avoid relying on strategies that are not effective. My results vary. I keep practicing.

I smile at the blue sky beyond the window. It’s a nice day to begin again. I’ve got a strategy in mind… and that’s a good place to start. 😀

This morning the sun is shining in my eyes, though I’ve lowered the window shades to cut the glare. The season continues to evolve, Spring towards summer, and here I am with the sun in my eyes on a lovely Spring morning. I’m grateful. I don’t even mind the sun in my eyes. 😀

Small wins can make big differences. My appointment yesterday had a pleasant outcome; I don’t need surgery for a thing that seemed quite a big deal (to be something so small)… and as it turns out, it’s not something I need be worried about (at least for now, and maybe not at all). Win. I’ll take it. 😀 I sip my coffee with the sun shining in my eyes, feeling grateful. No surgery looming over me. Nice. I even had a very good experience with the medical care, and the physician, generally – I’m making a point to pause to appreciate that, because it hasn’t always been the case, at all, and I’m still dragging around some baggage over that.

I sigh and smile to myself. Feels like a good morning. It’s Friday, and it’s a short work day. I’ve got a manicure appointment at noon, and then home to start the weekend. Feels good. I sit with the good feelings awhile – there’s definitely value in staying with the good feelings for a little while. I think most of us don’t even notice the way we linger in our shittiest moments, reviving them for further scrutiny over and over again (as if that’s at all helpful), then just glossing over our moments of joy and contentment as though these fleeting moments somehow have less value than the shitty ones. (Maybe don’t do that, eh?) When I finally did learn how much value there is in lingering over my small joys and simple moments of contentment or delight, and learned to savor what is good in my life, the way my life felt overall changed a lot. Instead of a fairly miserable experience of existence pocked with occasional relief that felt both too-brief, and also likely to be “a trap” setting me up for future worse misery, my life became characterized by calm and contentment, with occasional experiences of sorrow, grief, frustration, or anger. Disappointment became… a moment. Anger became… transitory. Life began to feel pretty good, generally. I still have to make a point to practice “taking in the good” and savoring the best moments my experience has to offer. I don’t avoid or dodge life’s challenges, or pretend I can “manifest” them away from being what they are – but I can cope, because I know they are temporary. Incremental change over time – becoming what I practice – has meant that my life is, day-to-day, pretty good these days. It’s nice. (10 out of 10; do recommend. lol)

How does a person even begin to make this transformation? I think it starts simply enough; anger does not easily compete with gratitude. When I find myself beginning to feel angry, I deliberately pause and consider what I’m grateful for in the situation I find myself in or with regards to the person I am angry with. It helps “turn down the heat” in that moment, and gives me a chance to regain perspective. Similarly, with sorrow, with disappointment… gratitude is a great way to balance perspective. It’s not about “faking it”; there are often legitimate details in a challenging circumstance that we may feel grateful for, if we just take a moment to consider it from that perspective. Anxiety and fear work a little differently (for me), instead of gratitude, I reach for my curiosity, and my desire to know more and understand more deeply. The point, really, is to spin the difficulty such that I’m not mired in what is most difficult, so much as viewing it through the lens of other aspects of that experience – or making a point to deliberately consider something else altogether different, that brings other emotions into play, “unsticking me” from my hurt, my anger, or other similarly painful, harder to manage, emotional experiences.

Our emotions are not the enemy

…And “being emotional” is not an insult. The hidden win is to develop “emotional intelligence” and reliably good skill at appropriate emotional regulation (which can be developed… it takes practice).

I smile and sip my coffee. I take a moment to enjoy my breakfast salad (how did this so easily become “a thing”? Why haven’t I always done this? I feel so good in the mornings these days…). Another weekend already here… and that means another shot (Ozempic), another weigh-in, another opportunity to reflect on progress and become aware of slow steady change. I’m counting down the days to my camping trip, too… that’d be 9 days to go, now. 😀

What defines a luxury?

I make time for early morning conversation with my Traveling Partner. We talk about the deck (needs repairs) and the hot tub (older and super noisy), and the discussion quickly becomes the sort of productive strategy and planning conversation that really brings a new project to life… we decide to shut down the hot tub “permanently” (this one, at least), in favor of removing it and replacing it after the deck is repaired (rebuilt) with improved quality of life features in mind. These are things we’d talked about when we bought the house (4 years ago), but other things (reasonably) had to come first (like the roof). Homeownership has so many qualities I love over renting – “a place of my own” being top of my personal list there – and I do love the flexibility to change things as we’d like, but … damn… so much adulting required, and effort, and commitment, and time, and money… and… I’m okay with all of it. It’s exciting and satisfying, as each project begins and finishes. My Traveling Partner has great ideas and the skills needed to bring this to life. I’m eager to help, and see how things turn out. I’m definitely a fan of replacing the hot tub with a more energy efficient, quieter model. (I’ll bet the neighbors will be too; this old thing is super noisy!) Having a hot tub feels almost non-negotiable for me at this point, though… I get so much value out of it (pain relief, improvement mobility), now we’ve just got to sort out the details…

My thoughts wander from the here and now to a future I can see but can’t touch (yet). I feel hopeful – for a lot of reasons – and grateful. It’s a good feeling. I feel wrapped in love, and fortunate to have a really good partnership that enhances my life. I’m ready to begin again. 😀

This morning I woke gently, but confused. It took me a minute to sort out what day it is, and that my plan is quite different from my usual Thursday. I struggled to wake up thoroughly, and had to trek back down the hall twice for things I forgot.

The drive to this nature park I enjoy walking in was strange, too. So little traffic it was quite a surreal (and also relaxed) drive along a route that is generally part of my commute. What little traffic there was, was peculiarly professional, civil, and safe, moving along with purposeful efficiency, and no aggression. Maybe there is hope for humanity?

As I crested a hill, going around a particular curve, the view of Mt Hood spread before me briefly, silhouetted gray-blue against a smudgey peach-colored sunrise. Beautiful. I considered stopping… I always do. Consider it, I mean. I haven’t ever actually stopped at that spot; there’s no shoulder there, really, just a private driveway and traffic is moving pretty fast for those kind of shenanigans. Still, I feel fortunate to have seen that view, those colors, and gotten to enjoy the moment as I passed on by.

Lovely morning to begin again. Even a familiar path can present a new perspective.

I walked as the sun rose, watching the sky change from peach to gold to blue. There are mists clinging to the ground in low spots along the river and marsh. I can hear the highway traffic beyond the park, and the sounds of little birds in the trees and grasses along the trail. A small herd of deer cross the path ahead of me, fearlessly curious at that distance. The morning sunlight reaches the trees and the leaves become luminous, seeming to glow. It’s a lovely morning.

I walked along grateful for new beginnings and new days. Today is, so far, much better than yesterday. I still have no idea what the hell was biting my ass yesterday, but g’damn I was in an ugly mood. I spent the evening after work willfully fighting off my inner unpleasantness and making the effort needed to enjoy my Traveling Partner’s good company. It was, for the most part, a successful attempt to fight off my shitty mood. At one point, he “caught me” in my own head, distracted by my thoughts, and asked me what I was thinking about. Rather oddly, I was considering the complex pattern of a particular rug, rather randomly. Strange. Inconsequential. Probably not very satisfying as an answer to the question “what are you thinking about “. Honestly, it was just another way of distracting myself from my shit mood, which was characterized mostly by a distinct sense of just “not wanting to have to deal with people” at all.

…I’m glad I find myself in a more pleasant place today…

I’m frankly not the most social of creatures. My brain injury results in a certain lack of ability to shut the fuck up, often, and I tend to be a bit of a chatterbox as a result. If there are people around, I have no problem interacting with them. (My challenges are more to do with controlling my speech, recognizing social cues, and listening considerately.) I cherish my solitude, and I enjoy it (and truly need it). It’s hard on me when circumstances give me no time alone. (I sigh contentedly,  sitting here by the river in the morning sunshine, writing these words… thoroughly alone, and happy to be.) Lately, and in spite of occasional getaways, I feel “encroached upon” and crowded by people and commitments and the awareness that there’s precious little time for “everything “. There’s a sense that the clock is ticking – and always has been – and I’m struggling to give myself the space I need to truly thrive.

…Maybe I need to spend time in the studio, painting?

I glance at my watch… it’s time to head back to the car. I’ve got an appointment to get to, and errands to run. I’ve got a partner to care for, and dishes to do. It’s time to begin again.

I woke feeling vaguely irritated and feeling discontented and annoyed in advance of any annoyances. Rude start to the day. I woke feeling dissatisfied… with… life? That seems pretty fucking silly, all things considered, and I spent the drive to the office turning it over in my head. There’s a song that somehow seems to fit, though I haven’t yet pinned down why that is. It’s not a new song, nor a song I’ve listened to recently… it just “speaks to me” in this peculiar moment of discontent and aggravation.

…There’s nothing “wrong” with the moment or day, so far…

…I’m just feeling annoyed. It would be much easier to deal with this and put it to rest if I understood why.

I sigh and take a breath, and exhale, and relax, letting my shoulders drop, and my jaw unclench. Weird morning.

This life of mine is perhaps not the problem at all… could be I’m just feeling the weight of the world this morning. That’s baggage no one can carry for long. I sigh again, burdened by this all too human struggle. I reach for a song that sings to a different tune, hoping to change my mind. Feelings of discontent can become corrosive, left to build and become attached to something real… That’s not an experience I enjoy. I keep “setting down my baggage” and trying to restart my moment from a new perspective.

…I find myself missing a dear friend I’d have gone to for conversation and perspective in a moment like this, and my eyes fill with tears. …There’s a hole in my heart… We are mortal creatures. I suddenly feel “wrapped in loneliness” on top of feeling discontented. Shit. That’s not what I was going for at all. (Change is.)

G’damn… I guess I really need to get away from “all of it”… except… I’m relentlessly aware that I’ll be dragging the shit griefing me most right along with me wherever I go. Fucking hell. I guess I’m just feeling low this morning. 😦 I wipe the tears off my cheeks and remind myself “this too will pass” – change is.

I sigh again (it’s just that kind of morning, I guess), and hope that my Traveling Partner got the rest he needed, and hope to get myself sorted out before the day ends – I’d definitely rather not drag this shit home with me at the end of the day.

I’m looking forward to my camping trip. Life is feeling way too busy and complicated lately, and I’m exhausted on this whole other level. Wrung out from day-to-day routine effort and the emotional burden of being a human being in a world of chaos, violence, and petty ugliness – I need a break. What do I even do when I’m camping to get that “break”? I sit quietly a lot, listening to the breezes and watching small creatures living their lives. I sit watching the leaves flutter and the changing light filtered through the trees as the sun moves across the sky. I let my mind sort of “empty out” and “catch up” on all the shit I didn’t have time to consider more fully. I walk. I wander. I take pictures of things that catch my eye, and perspectives I might like to see again, some time later. I write, mostly poetry and bits of self-reflection. I read. I meditate. It’s not fancy, and it’s not complicated by “activities” in any planned way. I’m not trying to “occupy my time” – quite the opposite, actually, I’m trying to “rest my mind” and calm my heart. I don’t know a lot of ways of doing that, or any ways more effective than just… getting away, and giving myself time.

…Soon…

Isn’t it odd that we human creatures can find so much silly bullshit to feel vexed by or annoyed over, even in the context of a generally good life? It strikes me as quite strange and rather stupid that this is the case, and I find myself wondering what purpose such a thing may have served when we were more primitive creatures seeking to make our way in the world? I make a note to ask my therapist for his thoughts on these vague feelings of discontent, and how I can potentially make use of them more constructively – with fewer tears, less sorrow, and a whole lot less aggravating stupid emotional bullshit to wade through. I roll my eyes, even as I recognize that I’m being a little hard on myself; human is human. Sometimes it’s messy, and we don’t exactly teach “dealing with emotions” to children skillfully, such that they grow up with the tools to do the job well. I’m still learning… and somehow, I persist in thinking I should be past that by now… then remember, again, that the journey is the destination, and that the point seems to be the learning, itself.

…Another sigh. A sip of coffee. A glance at the clock. Well, shit. It’s time to begin again…