Archives for category: Relationships

I woke from a restless interrupted sleep, head aching. I slept on something wrong, and I woke with mild vertigo, which is taking its sweet damned time passing. I woke with my guts in a knot, and drenched in a sticky sweat. I drag myself through something like a morning routine, eager to get to the part where I’ve made coffee, and get to drink it. It doesn’t really help (or hasn’t yet), but it feels comforting and familiar.

I got through the noisy bit of the night by sleeping with noise-canceling headphones on for a while. I woke, again, some hours later and the noisy bathroom fan in an adjacent room had finally been silenced. I thought I’d return to a better, deeper sleep, but instead the remainder of my sleep was filled with restless worried dreams that I no longer remember.

…This cup of coffee is pretty good…

I look around the room and sigh. I have to pack, and it’s time to go home. I’m less than eager to do the packing part, but I’m definitely ready to return home. I miss my Traveling Partner, and I am eager to be in his arms and in his good company again, although we really weren’t ever entirely out of touch. That’s a level of cruelty I don’t aspire to, even when I most need time alone. It’s nice that my partner misses me when I am away, and likes to stay in touch. I feel loved.

I gaze out the open balcony door into the peculiar gray sky. It’s almost sunrise, but it’s another one that I won’t actually see, obscured by dense clouds. I think about getting a walk in, but this morning I just want to drink my coffee, write, watch the sky, pack, and return home. (I’ll probably still get a walk in, after this first cup of coffee…) I think about how pleasant a shower will feel, and wonder whether to do that before or after I pack? Like other thoughts, this one surfaces, I consider it without really engaging with it more directly, and let it pass by like one of the gulls beyond the balcony gliding over the emptied bay. I spend a moment contemplating the bay’s changing views, mud flats at low tide, filled by the incoming tide and looking very much like a proper bay once the tide has filled it again. I could watch this view for days – and do, every time I come here. How many times now? A dozen? More? A reliably satisfying getaway, whether I go to rest and read, or to paint, or to walk the beach and take pictures.

I breathe, exhale, and relax. I’ve enjoyed this quiet self-care time. I feel rested and ready to resume caregiving… and a good thing, too! It’s already time to begin again.

I’m sipping my morning coffee contentedly. It’s instant. I don’t care much about that – it’s fine. It’s even fairly good. There’s a sea breeze blowing through the open patio door. The breeze carries the scent of the sea from beyond the bay, and the sounds of sea birds beginning their day. It’s quite early, but past daybreak. A sunrise that I won’t see is imminent, and the skies are cloudy and hinting at more rain. From the desk in my hotel room, I can see gulls walking over the sand of the beach. The tide is out, and Siletz Bay has emptied and become a vast muddy flat, speckled with various seabirds: gulls, herons, and other birds I can’t name.

Morning on Siletz Bay at low tide.

I woke gently after a long-seeming night of decently good quality rest. I woke several times for no obvious reason, but it is a hotel, and it is rather noisy here even during the wee hours. Still, I got ample rest and woke feeling merry and definitely ready for coffee. Without hesitation, I dressed and made my way out and down to the beach for a walk in the cool morning breeze along the edge of the beach before returning to the room and making this very satisfying cup of coffee.

I opened the balcony door wide, to let in the sea breeze and the sound of the ocean. I can’t see it from this “ocean view” room on the first floor, but I can hear it. I’m not complaining, and I’m not dissatisfied, just saying – there’s no actual view of the ocean from this room. The bay is plenty entertaining and visually beautiful (the changing tides see to that). I gaze out through the open balcony door across the bay. Am I hearing thunder? I start feeling a bit chilled, in spite of this cup of hot coffee, so I put on my favorite baggy sweater for warmth, rather than close the door. I sip my coffee.

It’s been a good trip for creative work. I’m very satisfied so far with my progress, as I’ve switched to pastels and now need to learn this new medium. I’m enjoying the studious work of learning something new. I’m focused on landscapes for the most part, and it’s these that drew me to pastels – specifically sunrises and sunsets. There’s no further “why” to any of that, it’s simply the source of my current inspiration. I see a lot of sunrises.

New medium, new work.

It’s been a wholly satisfying break, and I definitely needed the downtime. Today, too, is mine. Mine for reflection, mine for walking, mine for reading, napping, wondering, and wandering. Mine for artistic study and for painting, or even for simply “playing with the colors”. Today begins with more rest, less stress, and hopefully ends with still more rest, and more resilience. The goal is to return home tomorrow ready to see my Traveling Partner through his recovery from his upcoming surgery without feeling exhausted, burdened, or so stressed that I just … can’t. It’s an endurance race, not a sprint – and this much needed pause along the way is intended to keep me in the race, all the way to the finish line, probably some time close to the winter holidays. (Realistically, although his initial recovery from the surgery itself may be pretty quick, I expect it may take some weeks or months for my Traveling Partner to get back to 100%, and I’d like to be quite useful and helpful and available for anything he may need to get there, over that time.)

I breathe, exhale, and relax. The sea breeze fills my lungs, and freshens the room. As the unseen sunrise progresses, I see the palette of the morning beach scene beyond the window change. There are now more shades of sandy beiges, and hints of bright green where strands of seaweed have been left behind by the receding tide. The darker browns of large pieces of driftwood, and the dark grays of the rocks that dot the beach along the bay stand out against the sand. The water is a chilly pale gray, with a hint of blue, and the sky above is quite the same, with a fluffier quality. To the west, a heavy foggy mist clings to the mountainside, obscuring the view. What sort of day will it be, I wonder?

…Where does this path lead?..

It’s too early yet to paint. The natural light coming in through the patio door isn’t yet enough. The interior lights of the room “aren’t the right color”. I laugh at my preferences regarding such things. I know me; if I were truly moved to paint something, with a specific idea in mind, the lighting as it is would not be sufficient to stop me. It’s just not my moment, artistically. I’m happy to sit, write, and drink coffee awhile longer. I think about making breakfast. I think about… beginning again. It’s a lovely day for it.

I breathe. Exhale. Relax. This moment, just as it is, is quite enough. I smile to myself and sip my coffee.

I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

It’s chilly this morning.

I woke up quite early, ahead of my alarm. My Traveling Partner was already awake (woke me inadvertently), and in pain. We hung out for a little while before I left for work and for my morning walk. I almost left without my laptop, and did entirely overlook grabbing a fleece, sweater, or hoodie. Did I mention it’s chilly this morning?

I hate seeing my partner in pain. He hates being in the pain he’s in, and even more than that, he hates the limits pain places on his activities and cognitive abilities. There’s so little either of us can do about it. We wait together for his surgery, angry about a medical system that places so many limitations on doctors and patients and the medical care available to people in need. It’s inhumane and ineffective, inefficient and frankly terrible. We endure. Surgery soon, then the painful and annoying recovery journey can begin.

…We travel together…

Sometimes shit is hard. Sometimes less so. Life is complicated. I feel fortunate to have my Traveling Partner on life’s messy and painful journey. We’re in this together.

The morning chill caught me by surprise and I hustled down the path briskly to warm myself. There’s a mist clinging to the low places along the marsh. I walk on with my thoughts.

Misty morning.

This mortal life has limitations imposed by circumstances and events or enterprises beyond our individual control. We often place additional, unnecessary, limits on what we do, don’t do, can or can’t do, or have, or be, or experience. It’s a bit strange, isn’t it? I walk thinking about self-imposed limits. I remember a much younger me, talking myself out of trying pastels, when I was first “developing my voice” as an artist. Why? I judged myself (in advance of practical experience) to be “too messy” for pastels. I never gave them a chance, in spite of being fascinated by the luminous purity of the pigments. Life would later place other limits on my artistic endeavors, but truly? I got there first with my own. (Why?! Dunno. It’s very human, I suppose.)

I walked along thinking about the journey that life has taken me on. The journey I share with my partner. The limitations of the paths we’re on, individually and together. Sometimes it’s not at all clear where the path leads, or why we face the limits we do.

… Next weekend, some solo time on the coast, with my pastels, my tinnitus, and my thoughts. I don’t know what will come of it, and I find myself wondering if I am being a dick to go, with my Traveling Partner suffering as he is. The Anxious Adventurer will be home, and providing caregiving… But is that even reasonable to ask, really? I’m suddenly overcome with self doubt, even though I know how much I need the downtime.

… It’s an endurance race, not a sprint…

… Self-care really matters…

… I turn back up the trail to head to the car. It’s time to begin again, again… already…

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.