Archives for posts with tag: caregiving

My sleep used to be much worse than it is these days. I’m certain the CPAP machine helps (although wearing the mask and the experience of continuous positive air pressure are somewhat unpleasant and took getting used to). Sometimes my sleep is still of poor quality for one reason or another. Sometimes it’s just not enough sleep to feel rested. Sometimes I’m plagued by nightmares. This morning I’m faced with insufficient sleep of poor quality, due to interruptions (noise mostly).

I reliably wake up ridiculously early. Generally at 04:30, probably a lasting byproduct of early mornings in the military, construction, and long commutes for morning shifts of various sort. It requires days of leisure time without an alarm being set to boost my chance at “sleeping in”, and I rarely do. When my Traveling Partner and I were developing our friendship, he had encouraged me to take control of one factor I definitely could control to improve how much sleep I got; my bedtime. He suggested I go to bed earlier, based on when I wake and how much sleep I need (back then I was often up until midnight or later, still up early). It was advice that made a lot of difference for me. I go to bed pretty early as a result, rarely later than 21:00. (He has said, now and then, that he’d enjoy my company and would like me to stay up later, but not only do I still wake up early, I also deal often with interrupted sleep. Going to bed early is my only reliable chance at enough rest.)

Why am I on about sleep and sleep quality this morning? I didn’t sleep well last night, and didn’t get enough rest for the day ahead. It’s occupying my thoughts.

This morning I’m tired. So tired. It was after 21:00 before I went to sleep last night. I woke around 01:50, got up to pee and went back to bed, eventually falling sleep again. Sometime shortly after three, my Traveling Partner woke me. He couldn’t sleep, and was having difficulty breathing. He goes to the living room, wakeful and irritable. I try to return to sleep. Not much success. Every time I start to drift off, another noise wakes me, again. A cough. My partner trying to clear his throat or his sinuses.  The scrape of a chair along the floor. His frustration and sometimes panic feel palpable.

I definitely need more than four and a half hours of sleep, and I keep trying. I’m startled from a sound-but-too-brief moment of sleep by a firm hand knocking at the Anxious Adventurer’s adjacent bedroom door, and my partner’s irritated inquiry. I groan quietly and turn over and try sleep once more.

I drifted in and out of a restless sleep from the time my Traveling Partner woke me until the clock read 05:00 a couple hours later. My head aches. My eyeballs feel gritty and dry. I want literally nothing to do with other people, at all. At least not right now. I dress and leave the house. I don’t feel like walking, either. I just want to be alone with my irritation for awhile. I swing through a local coffee chain for too many shots of espresso over ice, black. Fuck Monday. I’m so not ready for this.

My Traveling Partner had returned to bed as I was leaving for the morning. I hope he gets back to sleep and gets some healthy rest. I get no second chances on a work day. I sigh to myself. It’s not his fault he’s having difficulty sleeping (or breathing).

I’ve set clear healthy reasonable boundaries about my sleep and not waking me if I’m sleeping, unless I’ve asked to be wakened (which I almost never do; I know how to use an alarm clock). I respect the sleep of others. Somehow I have still found myself in partnerships in which my partner(s) have found some justification for waking me, under one circumstance or another (and in some past relationships often). There’s rarely any sort of actual emergency that requires my attention, more that someone “wants a word” or to ask a question, or share a complaint. This frustrates the shit out of me, because it’s already difficult enough to get the rest I need.

Where caregiving or real emergencies are concerned, of course I roll my ass out of bed and do the needful without complaint. Everything else, I try to look past my fatigue and irritation to understand what is going on that might push a person to undermine someone else’s very necessary rest, and I try to be a compassionate and understanding partner, family member, or friend. This morning I’m having to fight through more annoyance than usual; I stayed up later last night to hang out with my Traveling Partner awhile longer, and I’m paying for it with lack of sleep. It feels “unfair”, but it isn’t really about that, and it’s definitely not personal. I made a choice. Just damned annoying that this is the outcome.

… I’m so fucking tired…

It’s been many days since I slept deeply through the night and woke feeling rested. I remind myself that it could be worse. I once endured more than a decade of sleep so poor I counted it a good night if I got even two hours of unbroken sleep, and rarely slept more than four hours total in a night. This is not that.

A new day will dawn. We can begin again.

I sit quietly at a local trailhead, listening to rain tapping the roof of my Traveling Partner’s truck. It’s comfortable and warm, and I am alone with my thoughts and my coffee. I definitely don’t feel like dealing with people right now. I’m tired, headachey, and irritable. Unfit for company. It’s too early for work. I don’t feel like walking.

I breathe, exhale, and relax, and focus on sorting myself out to face the day ahead. Soon enough I’ll have to begin again. I’ll do my best. It will have to be enough.

I woke earlier than I had hoped. It is a colder morning than forecast. My Traveling Partner is awake, coughing in the living room. I blow him a kiss as I leave the house, realizing moments later I could have actually kissed him. He sends me his love in the form of cute “stickers” in a message as I pull out of the coffee stand with a hot cup of coffee, ready to head up the highway. I reply with a couple cute stickers back, and find myself hopeful that he may be able to get a little more sleep.

Daybreak on the horizon.

It’s 22°F (-5.5°C)  as daybreak touches the horizon. Cold. Properly wintry. I sit in the warm car, with my coffee and my thoughts, waiting for the sun. I feel fairly certain the sunrise will bring the temperature up. It’ll still be a cold walk, and I’m already looking forward to a warming luxurious hot shower after I return home, but it’ll be better than walking in the dark on such an icy morning.

I saw a shooting star as I drove up the highway this morning. Yes, I made a wish on it. No, I don’t think making wishes on stars is actually something that works. lol What did I wish for? You’d laugh if I told you.

…What a weird scary world we’ve created…

I sigh to myself and turn my gaze back to the western horizon, now a streak of dirty orange with some blue-ish sky above it. The outline of Mt Hood becomes visible. The oaks that dot the meadow begin to take shape. There is comfort in real things in this real lived moment. I take refuge from my anxiety in this gentle “now”. Nothing much going on right here; a woman in a car at a trailhead, watching the sun rise. Pretty peaceful calm stuff. I have high hopes for a pleasant day ahead.

My head aches ferociously this morning. I take some medication and hope for relief. The cold hasn’t yet had its opportunity to seep into my bones, and my arthritis is not yet vexing me. That’s something, anyway. It’s enough and I’m grateful. My pain may be less manageable by the end of the day, but for now, I’m feeling pretty fortunate. Other than the cold, it’s a lovely morning to walk the trail here.

…I think about maybe getting my nails done before I head to San Francisco this week for work. It’s a definite maybe. 😂 I mean, I’d like to, but I’m reluctant to spend the money. It seems pretty frivolous… Choices.

Dawn comes.

The gate into the main parking area opens with a screech. I move the car closer to the access point for the year-round trail. I add my scarf, hat, and oversized fleece to my layers and put my gloves and cane handily within reach. I won’t want to stop long this morning, so I finish this now, before I set off down the trail. The colorful sunrise is a beautiful backdrop to the oaks.

I take my time enjoying the sunrise.

As the first light of day begins to touch the treetops, the frosted meadow grass sparkles. The hint of white suggests snow from a distance, but there’s been none of that. I’m selfishly grateful, but dismayed when I also think about summer ahead, crops, and the possibility of wild fires. Being good stewards of this one planet that is our home has not been easy for human primates; we tend towards self-serving greed and shortsightedness. We could do better.

Daylight. Across the highway I can see the lowland farm fields that in previous years have reliably become a shallow seasonal lake favored by migrating birds each winter. This morning it is a grassy field, mown short, covered in frost. G’damn I hope the planet recovers from the damage we have done (with or without us). I’d like to be around to see that.

Walking my own mile. Where does this path lead?

I sigh to myself, and begin again.

Merry Giftmas! 😁

What a beautiful morning to wake up to, plump stockings laid carefully on favorite seats, the tree lit and merrily keeping watch over the wrapped gifts, stacked to look plentiful in a season of limited resources. I even slept in! (Though I am still first to wake, somehow.)

… I don’t recall that I’ve ever slept in on Giftmas morning…

The rest of the house still sleeps. I put on soft holiday jazz, and make a cup of coffee. I look out on the morning…gray and rainy looking, here. I open the door and breathe the cool fresh air.

“…we wish you a merry Christmas, and a happy new year…” I smile listening to the music. An unhurried, relaxed Giftmas morning? Wow. It’s like a gift all its own.

Later, things will be busy with unwrapping gifts and sharing oohs and ahs of appreciation and delight, then, later still, family phone calls, brunch… and dishes. 😆 I’m not bitching; all the things we want most to enjoy require something of us in return. “You gotta pay for your thrills,” an old friend long ago used to tell me (and I miss you still, Trouble.). I know there are definitely verbs involved – and choices.

I sit with the quiet, joyful and content with the moment just as it is. I can begin again later.

I woke around 03:00, to some noise most likely, or perhaps my Traveling Partner’s wakefulness, though when I returned to bed from the bathroom, he seemed to be snoring softly, asleep. I hope he gets the rest he needs. I sure didn’t, not last night. Took me some time to fall asleep, and I was awakened abruptly at some point by raised voices. I returned to sleep shortly after waking, but my dreams were restless, irritated, and unsettling. I was tired when I finally woke, too early, but I couldn’t find sleep again, and gave up – hopefully before my restlessness woke everyone else.

…I got up, dressed, and slipped away quietly…

I don’t much feel like walking, this morning. Aches and pains and bullshit, nothing of real consequence. I sit with my thoughts, perched on a picnic table near the trail, ready to walk if I get past my moody and irritable moment of ennui. I listen to the background noise of machinery, traffic, HVAC systems on nearby buildings… the sounds of humanity mismanaging a planet. There is a glow along the western horizon, the clouds overhead being illuminated by the city below. Pretty mundane stuff. I sigh quietly. My ankle aches, even within the comfortable security of my hiking boots. My left hip hurts in a way that suggests arthritis may be developing there. My head aches, feels mostly like fatigue and the studious, focused, effort to maintain top down control in spite of it. I catch myself gritting my teeth, and purposefully relax my jaw and let go of that bit of stress. My tinnitus is shrieking and whining in my ears. I’m not bitching about any of it, just noticing each detail, as I inventory my sensations and experience the moment with as much presence and awareness as I can.

… And I still don’t feel like walking…

I had an excellent brunch with a colleague on Sunday. Feels like, potentially, a real friendship forming. Maybe. Harder to be sure than it might have seemed when I was younger…or… before the pandemic, although I’m not at all sure how that is relevant. I really enjoyed the conversation. The food was good, too, but that clearly wasn’t the nourishment I was seeking – or what I found. It was more about the human connection. We talked about doing it every month, and talked about having some kind of holiday get together with our families, in December. That might be a lot of fun.

I sit enjoying the morning quiet. I think about love and my Traveling Partner, and how much faster his recovery is going these days. He’s able to do so much more now, and more every week. It’s a relief to feel some measure of day-to-day work being reduced as my beloved begins to resume tasks that he was handling routinely before his injury. Out of habit, I sometimes forget to give him the opportunity to do for himself. I’ve got to knock that shit off, for myself as much as for him.

I breathe, exhale, and relax. I meditate in the chilly autumn darkness before dawn comes. For a moment, the world seems peculiarly peaceful and undisturbed. I find that it often does in these solitary moments. The world’s chaos and hardship is almost entirely created by the human primates clinging to the surface of this mud ball hurtling through space. I almost sympathize with the “burn it all down and start over” cynics and nihilists. I was once among them, a like-minded sort, but it seems like a wasteful approach to problems that could be solved quite differently, and with a greater good in mind. Another distracting argument keeping us all preoccupied while billionaire grifters empty our bank accounts in exchange for empty promises.

…I sigh and let that go, too…

There is still no hint of daybreak, yet. The clock is ticking, though, and this moment is finite. I get to my feet with an impatient sigh, feeling more resigned than purposeful. I commit to dragging myself along the trail again this morning. I’ll feel better once I’ve gotten a walk in, I know. I just don’t happen to “feel like it”, but I also decide not to let that stop me.

…Fuck, I really want a nap. 😂 Instead, I begin again.

It is the wee hours, before 02:00, but after midnight. I’ll get back to sleep shortly. Noisy neighbors, rudely partying outside, in a rainstorm, well into the “quiet hours” indicated by the local noise ordinance. To be sure, a Saturday night, and they don’t do this often, but…they’re sure as hell doing it tonight, loudly. Fucking hell. We’re generally pretty chill about such things, but it’s too much, and quite unreasonable. I go out on the deck and ask them to keep it down. My Traveling Partner, still vexed by continuing noise some minutes later, finally has enough, and yells out the window, audibly angry.

… The noise finally dies down, some 15-20 minutes after we said something. I commit to bringing it up tomorrow, directly. Boundaries, people, consideration. Damn.

I hear my Traveling Partner turn in, again, in the other room. I prepare to do the same. The rain continues. Somewhere in the distance I hear a siren. Tomorrow is soon enough to begin again…

I went back to bed, and slept soundly and deeply, and woke later than usual by more than an hour. I dressed and managed to slip away quietly, without banging, clanging, sneezing, or dropping something to the floor with a crash. Win. Due to the time of year, and the dense storm clouds, it was still dark when I got on the highway, headed for this morning’s trail. The drive on a Sunday morning is reliably pleasant, no traffic.

I reach the trail at daybreak, boots already on because my casual wear soft slip-on shoes – an Allbirds knock-off – gave up on life a few days ago. I haven’t replaced them (yet?). The storm clouds overhead are beginning to break up along the eastern horizon, but it is also sprinkling. I chuckle to myself, thinking it might be nice if the weather would make up its mind, although I’m not actually bothered at all, I simply put on my rain poncho.

Actually, as I walked along contentedly to my halfway point, I noticed that nothing much is bothering me, presently, which is a nice change. I’ve been struggling a bit with my PTSD as the world seems to go crazy in a daft orgy of authoritarian cruelty and ignorant douche-baggery. I do my best to manage my symptoms when they flare up. It’s a lot of work, but I have better tools these days, and a more resilient, healthy partnership with a human being who loves me enough to give a shit about my mental health. I am emotionally supported, and more.

Yesterday was, as it turned out, the kind of day built on love and consideration, and my Traveling Partner and I moved through the challenges created by my bullshit with love and gracious good nature, generally. The evening ended with loving intimacy, and I felt profoundly cared for and nurtured, and thoroughly loved. I hope he did too. I sit on the fence rail swinging my feet like a kid, grinning to myself happily. Today has the added fun of brunch with a colleague who is local to me, and who is becoming more a friend than purely a professional associate. More reasons to smile, brunch and friendship.

My thoughts wander to my beloved Traveling Partner and his progress with healing and regaining more and more of his capabilities. G’damn I am so impressed and proud of him. He works at his physical recovery with dedication and diligence. He continues to make progress, and as he does, he continues to begin to do more and more of the day-to-day practical stuff he once took care of. Slowly the weight of the added workload that had fallen to me is being lifted, along with the stress that came of being unable to do all of everything every day. It’s not “about me”, though – I’m grateful to see him really doing better. I can’t describe my feeling of gratitude – and relief.

And it’s not raining! Small wins count, too.

I sit gazing out over the marsh, or the oaks that dot the hillside, listening to the wind blow, watching the trees bend to it, and observing the ripples that stretch across the pond (lake?) nearest to me. Migratory birds float on the water in small groups. Out in the marshy meadow I see a dot of color, as daylight comes. A tent? There is no camping permitted here, but this is a federal asset, and with the government shutdown, the gates are open 24 hours, and there are now two cars that seem permanently parked in the parking lot, one appears abandoned, the other, lived in. I feel annoyed by the cars, the tent, and the stupid shortsighted partisanship of our government.

I sigh and let that bullshit go; it’ll be there to consider some other time, and there is no reason to sacrifice my merry morning to it. I breathe, exhale, and relax, taking my time with meditation, so still and relaxed that a chipmunk climbs the fence to get closer with her curiosity, creeping up near to me, as I sit. I don’t have any of the sort of treats in my pocket that might interest a chipmunk… and anyway, common wisdom is that it is a bad idea to handfeed wildlife, or to take steps that could interfere with their natural routines. With that in mind, I just sit, still and quiet, enjoying her hesitant proximity. Delightful! An enormous Great Blue Heron flies past, low to the ground, heading to the water, startling the chipmunk. She darts away.

I think about brunch, and wonder whether it will go as planned? My new friend and I are both comfortable with change, and share very realistic expectations of such things. Either of us could cancel without causing hurt feelings, and we both deal with chronic conditions that make it likely that we might choose to, any time we plan something. lol I’m very much looking forward to brunch, but prepared to pivot to other things, should plans need to change.

I breathe the rain-fresh marsh air, deeply. It’s a lovely morning in spite of the rainy weather. The sprinkle begins to become something more like rain, and I’m grateful for my rain poncho. I get to my feet, ready to begin again.