Archives for posts with tag: caregiving

I woke around 03:00, to some noise most likely, or perhaps my Traveling Partner’s wakefulness, though when I returned to bed from the bathroom, he seemed to be snoring softly, asleep. I hope he gets the rest he needs. I sure didn’t, not last night. Took me some time to fall asleep, and I was awakened abruptly at some point by raised voices. I returned to sleep shortly after waking, but my dreams were restless, irritated, and unsettling. I was tired when I finally woke, too early, but I couldn’t find sleep again, and gave up – hopefully before my restlessness woke everyone else.

…I got up, dressed, and slipped away quietly…

I don’t much feel like walking, this morning. Aches and pains and bullshit, nothing of real consequence. I sit with my thoughts, perched on a picnic table near the trail, ready to walk if I get past my moody and irritable moment of ennui. I listen to the background noise of machinery, traffic, HVAC systems on nearby buildings… the sounds of humanity mismanaging a planet. There is a glow along the western horizon, the clouds overhead being illuminated by the city below. Pretty mundane stuff. I sigh quietly. My ankle aches, even within the comfortable security of my hiking boots. My left hip hurts in a way that suggests arthritis may be developing there. My head aches, feels mostly like fatigue and the studious, focused, effort to maintain top down control in spite of it. I catch myself gritting my teeth, and purposefully relax my jaw and let go of that bit of stress. My tinnitus is shrieking and whining in my ears. I’m not bitching about any of it, just noticing each detail, as I inventory my sensations and experience the moment with as much presence and awareness as I can.

… And I still don’t feel like walking…

I had an excellent brunch with a colleague on Sunday. Feels like, potentially, a real friendship forming. Maybe. Harder to be sure than it might have seemed when I was younger…or… before the pandemic, although I’m not at all sure how that is relevant. I really enjoyed the conversation. The food was good, too, but that clearly wasn’t the nourishment I was seeking – or what I found. It was more about the human connection. We talked about doing it every month, and talked about having some kind of holiday get together with our families, in December. That might be a lot of fun.

I sit enjoying the morning quiet. I think about love and my Traveling Partner, and how much faster his recovery is going these days. He’s able to do so much more now, and more every week. It’s a relief to feel some measure of day-to-day work being reduced as my beloved begins to resume tasks that he was handling routinely before his injury. Out of habit, I sometimes forget to give him the opportunity to do for himself. I’ve got to knock that shit off, for myself as much as for him.

I breathe, exhale, and relax. I meditate in the chilly autumn darkness before dawn comes. For a moment, the world seems peculiarly peaceful and undisturbed. I find that it often does in these solitary moments. The world’s chaos and hardship is almost entirely created by the human primates clinging to the surface of this mud ball hurtling through space. I almost sympathize with the “burn it all down and start over” cynics and nihilists. I was once among them, a like-minded sort, but it seems like a wasteful approach to problems that could be solved quite differently, and with a greater good in mind. Another distracting argument keeping us all preoccupied while billionaire grifters empty our bank accounts in exchange for empty promises.

…I sigh and let that go, too…

There is still no hint of daybreak, yet. The clock is ticking, though, and this moment is finite. I get to my feet with an impatient sigh, feeling more resigned than purposeful. I commit to dragging myself along the trail again this morning. I’ll feel better once I’ve gotten a walk in, I know. I just don’t happen to “feel like it”, but I also decide not to let that stop me.

…Fuck, I really want a nap. 😂 Instead, I begin again.

It is the wee hours, before 02:00, but after midnight. I’ll get back to sleep shortly. Noisy neighbors, rudely partying outside, in a rainstorm, well into the “quiet hours” indicated by the local noise ordinance. To be sure, a Saturday night, and they don’t do this often, but…they’re sure as hell doing it tonight, loudly. Fucking hell. We’re generally pretty chill about such things, but it’s too much, and quite unreasonable. I go out on the deck and ask them to keep it down. My Traveling Partner, still vexed by continuing noise some minutes later, finally has enough, and yells out the window, audibly angry.

… The noise finally dies down, some 15-20 minutes after we said something. I commit to bringing it up tomorrow, directly. Boundaries, people, consideration. Damn.

I hear my Traveling Partner turn in, again, in the other room. I prepare to do the same. The rain continues. Somewhere in the distance I hear a siren. Tomorrow is soon enough to begin again…

I went back to bed, and slept soundly and deeply, and woke later than usual by more than an hour. I dressed and managed to slip away quietly, without banging, clanging, sneezing, or dropping something to the floor with a crash. Win. Due to the time of year, and the dense storm clouds, it was still dark when I got on the highway, headed for this morning’s trail. The drive on a Sunday morning is reliably pleasant, no traffic.

I reach the trail at daybreak, boots already on because my casual wear soft slip-on shoes – an Allbirds knock-off – gave up on life a few days ago. I haven’t replaced them (yet?). The storm clouds overhead are beginning to break up along the eastern horizon, but it is also sprinkling. I chuckle to myself, thinking it might be nice if the weather would make up its mind, although I’m not actually bothered at all, I simply put on my rain poncho.

Actually, as I walked along contentedly to my halfway point, I noticed that nothing much is bothering me, presently, which is a nice change. I’ve been struggling a bit with my PTSD as the world seems to go crazy in a daft orgy of authoritarian cruelty and ignorant douche-baggery. I do my best to manage my symptoms when they flare up. It’s a lot of work, but I have better tools these days, and a more resilient, healthy partnership with a human being who loves me enough to give a shit about my mental health. I am emotionally supported, and more.

Yesterday was, as it turned out, the kind of day built on love and consideration, and my Traveling Partner and I moved through the challenges created by my bullshit with love and gracious good nature, generally. The evening ended with loving intimacy, and I felt profoundly cared for and nurtured, and thoroughly loved. I hope he did too. I sit on the fence rail swinging my feet like a kid, grinning to myself happily. Today has the added fun of brunch with a colleague who is local to me, and who is becoming more a friend than purely a professional associate. More reasons to smile, brunch and friendship.

My thoughts wander to my beloved Traveling Partner and his progress with healing and regaining more and more of his capabilities. G’damn I am so impressed and proud of him. He works at his physical recovery with dedication and diligence. He continues to make progress, and as he does, he continues to begin to do more and more of the day-to-day practical stuff he once took care of. Slowly the weight of the added workload that had fallen to me is being lifted, along with the stress that came of being unable to do all of everything every day. It’s not “about me”, though – I’m grateful to see him really doing better. I can’t describe my feeling of gratitude – and relief.

And it’s not raining! Small wins count, too.

I sit gazing out over the marsh, or the oaks that dot the hillside, listening to the wind blow, watching the trees bend to it, and observing the ripples that stretch across the pond (lake?) nearest to me. Migratory birds float on the water in small groups. Out in the marshy meadow I see a dot of color, as daylight comes. A tent? There is no camping permitted here, but this is a federal asset, and with the government shutdown, the gates are open 24 hours, and there are now two cars that seem permanently parked in the parking lot, one appears abandoned, the other, lived in. I feel annoyed by the cars, the tent, and the stupid shortsighted partisanship of our government.

I sigh and let that bullshit go; it’ll be there to consider some other time, and there is no reason to sacrifice my merry morning to it. I breathe, exhale, and relax, taking my time with meditation, so still and relaxed that a chipmunk climbs the fence to get closer with her curiosity, creeping up near to me, as I sit. I don’t have any of the sort of treats in my pocket that might interest a chipmunk… and anyway, common wisdom is that it is a bad idea to handfeed wildlife, or to take steps that could interfere with their natural routines. With that in mind, I just sit, still and quiet, enjoying her hesitant proximity. Delightful! An enormous Great Blue Heron flies past, low to the ground, heading to the water, startling the chipmunk. She darts away.

I think about brunch, and wonder whether it will go as planned? My new friend and I are both comfortable with change, and share very realistic expectations of such things. Either of us could cancel without causing hurt feelings, and we both deal with chronic conditions that make it likely that we might choose to, any time we plan something. lol I’m very much looking forward to brunch, but prepared to pivot to other things, should plans need to change.

I breathe the rain-fresh marsh air, deeply. It’s a lovely morning in spite of the rainy weather. The sprinkle begins to become something more like rain, and I’m grateful for my rain poncho. I get to my feet, ready to begin again.

It isn’t personal. Even when it feels personal, and pretty much whatever it is, it isn’t actually personal.

That car that cut you off in traffic, or “brake-checked” you on the highway? Not personal. That other driver is having their own experience.

The rude barista, check out person, or frosty receptionist? It’s not personal. They’re having their own experience.

Random moments of unpleasantness and stress day-to-day are so incredibly unlikely to be “about” us in any way. Even the targeted attacks of bullies have more to do with their poor character and mental health than anything to do with their victims. We make shit personal in our own heads. We “take” shit personally – and there are choices and verbs involved. We could choose to practice non-attachment and refrain from centering ourself in someone else’s experience. One of the hardest things for me to learn has been how very little of what is going on, even in my own relationships, has anything to do with me, personally, at all. It’s actually a disturbingly impersonal world.

An autumn morning at daybreak, a new day.

I sit at the halfway point on my morning walk, perched on a bench under a cloudy sky that hides a full moon. Feels like it might rain… but the air doesn’t have that scent. The air smells of autumn, fallen leaves, the persistent dampness left behind in shady places by last week’s rain.  It smells, too, of distant wildfires, and nearby chimneys. I’m cozy in a new cardigan, chosen for fit, price, and appearance, that turns out to also be quite comfy and warm. “Unbothered”, I think to myself when I seek to define my feelings this morning.

My night seemed brief and restless. My Traveling Partner had a difficult night struggling with some sort of unwellness. I woke from a deep sleep at his vexed exclamation, and for the next four and a half hours snatched whatever brief naps I could between his bouts of illness and physical difficulty. Was he “keeping me awake”? Not exactly. Partly, sure, and not through any intention – noise is noise. That surely wasn’t personal. The rest was me; half awake, alert to hear him if he called out to me, concerned, wanting to be available and ready if he needed me.

I woke minutes ahead of my alarm. I thought I’d turned that off to get some little bit more sleep? Apparently not. Didn’t matter, I woke early anyway. I was groggy and stupid, but also more concerned about slipping away quietly and letting my beloved get the rest he needed.

My thoughts wander back to a couple nights ago when he angrily chastised me for clearing my throat in an adjacent room and preventing him from sleeping. That also wasn’t personal – just irritating; I had “swallowed wrong” and was choking a bit on saliva that had gone down my trachea instead of my esophagus, making me cough and clear my throat several times, in a few short minutes. I had expected some amount of concern or sympathy, and feel a bit hurt looking back on that, as I compared circumstances. It wasn’t at all personal, though. We are each individuals having their own experience. Things aren’t always “about” us, even when we’ve centered ourself in our own experience, or lack understanding of some other. It feels a little unfair, but it’s not about that either.

I hear my Dad’s voice in my memory, “life isn’t fair,” he often said, not bemoaning the fact, just pointing it out. I guess that’s true… but “fair” is a helpful goal and “perspective” is a useful tool.

I breathe, exhale, and relax. Self-care is going to matter sooo much today. I’m starting the day tired, and the day ahead will be a busy one. I struggle to recall any tasks or errands I may have committed to beyond the work day. I feel certain there was something… but it evades my recollection. Fatigue reliably impairs my cognitive function before it really shows. I remind myself to slow down and be patient with myself, and to set clear, firm boundaries, and use expectation setting to support my practical limitations.

… I wish I didn’t have to work, but wishing is not an effective practice…

None of it is personal. Humans being human. Circumstances. Choices. Time and timing. I take another deep cold breath of the autumn air as daybreak creeps up on me. Chilly fingers yearn to find warmth and comfort in deeper pockets than these… and even the stupidity of tiny pockets on women’s clothing is an impersonal vexation. I let it go. I chuckle to myself; I let a lot of things go. I’m generally happier for it. Non-attachment is a powerful practice.

I sigh and watch the clouds overhead, shifting and roiling across the sky. It’s already time to begin again. I’ll do my best.

I reached the trail before daybreak. I walked down the path in the darkness, the bobbing half circle of light cast by my headlamp lighting the way ahead of me, but obscuring anything I might have seen beyond that bit of light. I consider that metaphorically for some distance, until my thoughts wander on.

Daybreak, and a new day.

By the time I get to my halfway point on the trail, I am thinking about the many “versions” of “myself” I have been over a lifetime. Each of the many jobs, addresses, relationships, traumas, and triumphs, have left their mark on the woman I am today. Steps on a path. A journey that is its own destination. I find myself asking some questions as I reflect on my life and the changing context(s) in which I have lived it. I think about the “here and now”, and the changes that brought me to this point.

  • In what version of myself have I been happiest, most often?
  • In what version did I most respect myself?
  • In what version did I enjoy the greatest sense of consistency between my values and my actions?
  • In what version did I seem to be most likeable?
  • In what version was I most likely to compromise my values for personal gain?
  • In what version was I villain, hero, or “NPC” in my life?
  • Are there versions of me that I regret so thoroughly that I am ashamed of the person I was?
  • How do I hold on to the best bits of all of the many versions of the woman in the mirror, and discard the worst, to become truly the woman I most want to be? (And is that version truly worthy of the effort required?)

I find self-reflection a worthwhile practice. I sit with my thoughts, listening to the sounds of an autumn morning between marsh ponds and meadow, breathing the chilly air carrying the scents of fall flowers and some hint of…mildew? It is a gray morning. The sky lightens slowly revealing a cloudy sky. The threat of rain exists in the scents on the mild breeze, and also in my arthritis pain.

The pain is annoying. I think (and write) about it too much, probably. It sometimes feels inescapable.

My Traveling Partner and I both deal with chronic pain. I do my best to manage my pain. When we’re hanging out, in pain, we each do what we can to take care of ourselves and each other. Our efforts are not reliably successful. Last night was difficult. I’d find some position in which my pain was lessened, and hold myself rigidly trying to hold on to that bit of improved comfort. He perceived it as “tension”, which I guess it was, in a sense. My tension is uncomfortable to be around, for him. He wants to help if he can (but he can’t really, it’s not that sort of thing).

His experience of pain had him squirming in my periphery, trying to get more comfortable, which I find uncomfortable to be around. I’d very much like to help, if I could (but I can’t really, it’s not that sort of thing). We do our best to be kind to each other, compassionate, empathetic without fusing with the experience of our beloved partner. It’s difficult. Pain “shrinks our world” and we’re sometimes terse with each other, when it’s actually the pain itself that is annoying us.

We ultimately ended the evening early, withdrawing to separate spaces to seek some kind of relief, if only from dealing with each other’s pain on top of our own. Seems a harsh and rather isolating approach to take, but it’s probably better than hurting each other’s feelings or taking out our discomfort on the person we love most.

I didn’t sleep well. Pain, again. I struggled with falling asleep, and once I had, I was awakened multiple times by one noise or another, or light, or the sound of angry voices, but each time I woke, the room was dark, and the house was quiet. It was weird. I woke abruptly, around 02:00, feeling a sense that “something wasn’t right”, but again all was apparently well and quiet. I returned to sleep and dreamt that I was awake… really thought I was, until my artificial sunrise woke me from a deep sleep. I had forgotten to turn it off for the weekend. I was still feeling groggy and a bit out of sorts even as I began my trek down the trail, some time later.

Saturday. No hurry, and there’s certainly ample time for self-reflection, and this is as good an opportunity than any – better than most. I breathe, exhale, and relax. I let my awareness of my pain recede into the background (for as long as I can). Daybreak becomes dawn, then daylight. I watch from my seat on this fence rail. A soft sprinkling of rain falls briefly.

I sigh to myself, suddenly missing old friends far away, and yearning to sit down over coffee and conversation. I’m momentarily overcome with a poignant feeling of nostalgia… Annapolis… Killeen… Monterey… Augsburg… Fresno… Times and people, long ago and far away. My eyes tear up a bit. The moment passes. My thoughts move on.

It begins to rain softly. I look down the path toward other places and new experiences. I admit to myself with some reluctance that it must be time to begin again… and I get to my feet, and walk on.

Change is. Like the weather, moments are ever-changing, evolving, not static things the way our recollections sometimes make them seem. They are not that snapshot in our memory, somehow more lasting than the moment itself could ever be. This morning the weather reminds me that change is, and that moments are brief, and impermanent. After yesterday’s warm sunny day, this morning’s chill feels unexpected. The mist clinging to the meadow and the edges of the marsh is a surprise. The morning begins with sunshine, but already it looks like it may rain – quite soon.

Sunshine as my walk begins. It doesn’t last.

I have no particular concerns over the weather, although I didn’t think I’d need my rain gear and didn’t grab it for the walk. I may come to regret that decision. For now, sitting at a favorite spot along the trail watching the sky turning dark and stormy, I’m content to watch and wonder and just be. Moments are what they are, and like rain showers, they will pass on by. I can wait them out, walk on, or find joy in them. Choices. One choice I just don’t have is a choice to halt change or stop the flow of time. Moments will come and go, without regard to the sort of moments they happen to be.

I sigh to myself. I am fine with this moment just as it is. I am rested and my pain is well-managed. The trail is not crowded, and it feels like I have it to myself although the parking lot had several cars in it when I arrived. I sit with my thoughts.

The day ahead is housework and laundry, and a bit of gardening, a pretty typical Sunday. I have a short grocery list – ingredients for dinner. My Traveling Partner is making dinner tonight, and I am eager to be helpful not only because I’m happy to see this positive milestone in his continuing recovery from injury,  but also because he’s an excellent cook and I enjoy what he brings to the table any time he’s in the kitchen.

I think about the housekeeping that really needs doing and remind myself that working from home reliably a couple days a week now also means some tasks can be put off to those days quite easily without adverse outcomes. Maybe do the laundry Tuesday? It’s a relief to be as focused on not exhausting myself as I am on getting things done. That six months of intense, sometimes round the clock, caregiving following my beloved’s surgery wasn’t just exhausting, it was emotionally trying and I often felt completely inadequate. I still find myself coping with that experience, even though it’s behind me, and hasn’t been a thing for months. I still feel the treadmill of endless tasks and too little capability under my feet, emotionally, and it’s taking practice and will and mindful presence to let that go. That moment has passed. I sigh again, feeling the intensity of my relief wash over me.

I hear footsteps coming up the trail slowly. I look up and see deer stepping along gently. They pause, watching me. A trio. A young buck and two does. I wonder if they have new fawns? I don’t see any. I consider taking their picture as they slowly approach me on the path, but when I move ever so slightly, they stop, stiff, alert, and wary. I relax and just watch them. When they get closer, I turn my head away, hoping to communicate that they’re no concern of mine, and that I am not a threat. The larger doe approaches very near me. There’s something tasty growing near my feet apparently, and she’s willing to take a chance on approaching quite closely. I could reach out and touch her, but don’t want to risk starting her. I let her breakfast in peace, and just sit quite still.

Voices coming up the trail get my attention. I look up, as the deer do. The deer bolt, and trot off into the trees. I sit where I am, and when people emerge around the bend in the trail I wave and nod. They are no concern of mine, and they walk on past.

Moments don’t last. Sunny afternoons may be followed by rainy mornings. Threats may emerge in one moment, and disappear in the next. Tears dry. Trauma heals. The clock ticks on.

I breathe, exhale, and relax. I get to my feet and look up the trail. The future is ahead of me, and this path won’t walk itself. It’s a good moment to begin again.