Archives for posts with tag: cervicogenic headache

My walk this morning was short, local, and drizzly. It is a drizzly morning. I walked with my thoughts, and headed home to begin the day. The drive back to the house felt peculiarly nostalgic – something about the drizzle, and the way the sheen of water on the road reflected the light of the gray skies over head – and I found myself thinking about sick days on rainy Spring mornings as a kid. How is it that all my recollections of missing school due to being sick seem to be rainy days? I guess with the average number of rainy days where I grew up being about 111 days per year, falling primarily in the months between March and November, it would be better than a 1 in 3 chance of any given sick day being a rainy one. Maybe they really all were? lol

When I started down the trail, it wasn’t raining. Change is.

I arrived home to find my Traveling Partner awake, and it was lovely to see him. I made coffee for us both, and headed to my office to begin the day. All so very ordinary, so routine that the days sometimes seem to blur together except that the precious loving moments we share stand out, each unique and worth appreciating. It’s strange that when I look back on my childhood, there are really only a small handful of recollections I can count on as “my own”, and many of those are rather archetypical – conflations of many similar events becoming just one “memory”. When I look back on the past 15 years with my Traveling Partner, it’s not that way. There are many many memories, each built on small details that linger in my recollection. I don’t know whether this is a sort of before/after contrasting what remains of my memory after my head injury with how my memory works now, but there it is; I have relatively few childhood memories, and some of those are rather suspiciously recalled “in the third person”, as though I am remembering something I was told, not really remembering something I experienced.

I think about memory awhile, and rainy sick days. I remember those almost fondly. The rainy gray drive to the doctor’s office. Bundled up at home with chicken soup, saltine crackers, and a book to read. Sitting at the dining room table playing with Play-Doh, or coloring in a favorite coloring book. Napping. Waking. Reading. Before my head injury, my sick-day recollections are mostly to do with headcolds or the flu. After my head injury they are more often about headaches. I missed quite a bit of school, even through high school, over headaches. I don’t miss much work over headaches as an adult; I’ve learned to live with them. It’s an uneasy truce, some days, and I’d for sure prefer not to have a headache at all, but since I generally do (of one sort or another), it’s probably best that I don’t just give in and quit, eh?

You’re not alone with your pain. Not really. We’ve all got some kind of pain – well, most of us, I feel fairly certain. There are no doubt those rare few individuals with charmed lives of such good fortune that pain hasn’t become a thing to endure day after day after day after day after… You know? I’m not even sure those people are to be envied; they may lack some useful perspective on endurance, and what they are truly capable of, perhaps. (I don’t know; I’ve never lived that life.) I sip my coffee and notice that my mind has wandered on to other things. The garden. The roses. Pain management. Nutrition, diet, and exercise. The shit I’ve got to get done today. The things I’m eager to do for myself once the needful tasks of the day are behind me. My garden. Work. Life. Love. I let my mind wander on for a few minutes of self-reflection before I get started on work in earnest. Sometimes self-reflection feels a little self-indulgent, but it is actually an important bit of self-care (at least for me); it tends to keep me “on my path”.

…What are you doing to care for yourself? What are you practicing?

I breathe, exhale, and relax. The clock ticks on. The rain continues to fall. I notice that it is time to begin again.

This headache is vexing me. I feel as if I’ve done all I can to ease my discomfort. Have I? A bad headache can limit my ability to think clearly and make wise self-care choices. I let my Traveling Partner know that I’ve got this pretty terrible headache. Doing so isn’t only to feel less alone with it, nor is it solely about making sure he knows if something goes seriously wrong. As much as anything else, it is to get any helpful suggestions of things to do about it that I may have over looked; thinking through the pain is difficult. I know I’m not at my best.

My beloved does indeed think of something I could do that might help some. A hot shower. That does sound soothing. Maybe a soak in the hot tub, too?  I stretch – maybe movement will help. I correct my posture. I adjust the lights. I make myself relax (again). I drink more water. I have some magnesium. I eat a banana (potassium). I take an OTC headache remedy. I limit the noise in my work space. Item by item, I go down the list.

… This too will pass…

Headaches tend to be temporary. Soon enough the work day will end and I can focus on me. I’ll have that shower, a soak, maybe lay down for a few minutes. A great many of my headaches are to do with my neck. Degenerative disk disease is painful and inconvenient, and like the name says it gets progressively worse over time. I try not to think about that. The thought brings tears to my eyes and I feel suddenly helpless and childlike.

…It will pass (for most values of that idea, if only temporarily)…

Not what is generally expected of office decor, but it’s my office and I’ll decorate as I like. lol

I think about this cozy friendly welcoming space I’m in… It’s quite soft and nice and filled with colors and curves and soft places. It’s a very nice spot to lay down with a book (or a headache). It was my studio, it is my home office – my quiet space. Everywhere I look there are reminders that I am loved and valued: helpful or beautiful things my beloved has made for me, precious things collected over time, souvenirs of a life well-lived, and my own art work. It’s a nice spot to enjoy a quiet moment.

I sip my icy cold glass of water. Ice water might not be ideal for some headaches – this one doesn’t care about that. It doesn’t react to the temperature of the water at all. Noises are a bigger deal. The position I’m in matters more. I’m fairly confident this headache is coming from my neck; my left ear itches ferociously deep inside without any obvious cause. Nerve damage. It’s all quite unpleasant, but saying so is better than hiding it, and caring for this fragile vessel helps more than ignoring the pain ever could.

I sigh to myself and get back to work. The work day is nearly over – then I can begin again.

It won’t always be this way – whatever way it happens to be at the moment. I do my best to enjoy the journey, in spite of pain, in spite of bad weather, in spite of pitfalls, challenges, and the consequences of poor choices. I do my best to enjoy the journey when it is easy to enjoy it (which seems pretty obvious, but turns out it sometimes isn’t), and also when it is difficult. I’m not suggesting bullshit affirmations and inauthentic enthusiasm, it’s more a matter of “doing my best”, and staying true to the path I’ve chosen. Sometimes it’s hard.

Last night was one of those times. I was in so much pain. My neck was hurting, and my occipital neuralgia had flared up. My headache was worse than usual and the left side of my body was a mess of knots, and cramps, and discomfort. It was pretty awful – bad enough that my beloved Traveling Partner (who could do nothing to ease my suffering) could not bear to be in my company. That was its own sort of misery, and I finally just gave up and went to bed early. I didn’t sleep, not right away, but I was also in no shape to enjoy a new video game I’ve started, and too distracted by pain to read anything new. I got as comfortable as I could, prepared for sleep, and picked up a book so familiar to me it may as well be stories from my own life. lol Stale and boring? No. Comforting and easy. Eventually I slept, and when I woke, there was my Kindle, standing where it had been. It turned itself off at some point after I stopped turning digital pages. Convenient.

A strawberry blossom in my garden, a metaphor for change, and joy – and impermance.

This morning is a new day. I woke feeling refreshed. Headache as near to gone as it ever gets these days. The left side of my body feels substantially the same as the right side. My neck is “only” stiff, and I don’t fuck with it, hoping to enjoy this brief reprieve from discomfort as long as it may last. My occipital neuralgia has died away on its own – probably the greatest relief of yesterday’s pain that I could ask for, today. There’s just no arguing with nerve pain, and so far nothing I’ve been prescribed works well enough to justify overlooking the side-effects (which, in one case, was suicidal despair – I mean, seriously? Fuck that shit, I’d rather spend the rest of my life with my face feeling like it is on fire). This morning is a happy relief and I got to the office feeling incredibly purposeful and productive. I wasted no time “catching up” on an entire day’s work, and planning the remainder of the week, besides. Feels good. I feel capable, which is not always how I feel.

Change is. Sometimes the journey is difficult, sometimes it is easy – it rarely stays the way it is for very long. Storms come and go. There are sunny days and cloudy days. (Weather makes a pretty good metaphor for change.) I sip my coffee and reflect on the value I have found in practicing non-attachment, and learning to “be here, now”, more easily, more often. Quality of life varies with our circumstances, sure, but it also varies based on how we deal with our circumstances, how we care for ourselves, and whether we’re finding whatever joy there may be, even in the toughest of times. Not one word about any of this being “easy” or coming naturally to me (or anyone) as a human being. I just keep walking my path, doing my best, and greeting each sunrise as an entirely new day, full of promise and moments that may never be repeated. That’s a pretty good place to begin a day, I find.

I smile to myself remembering something that occured to me this morning; this anniversary coming up for my Traveling Partner and I is significant in a very special way (to me). This anniversary marks this relationship being the longest of my long-term relationships. Hell, it’s even longer than the years I lived with my family of origin. Wow. I hope it lasts many years more. “Forever”, maybe, whatever that means in a human lifetime. I often do feel as if we’ve “always” been together in some strange way. We seem so deeply connected. Even when we’re cross with each other, I’m not feeling inclined to “head for the door”, other than maybe to go take a walk and put my mind on other things until I cool off. Deep, enduring love seems a rare thing. I’m glad I have this to enjoy and experience. I’m glad my Traveling Partner is sharing a portion of his journey with me (and mine with him). I thought about how best to celebrate this special anniversary with him, as I drove to the office. I didn’t come up with anything besides sharing the day. I don’t want an expensive trinket or token of his affection; I am wrapped in his love every day. I can’t think of a single thing to make for him or give to him that would say more about my love that the life we share already says. I just want to be with him. I guess I should take that day off work, then, eh? lol

I spent the weekend in the garden. It was lovely time, well-spent. “Soul-nourishing” time. Healing time. Productive time. Time spent gazing at flowers and working in the soil. Time spent sipping coffee and thinking about what to plant where, next, and pulling weeds. I hope I can maintain the momentum through the summer months! Last year I fell short of my goals (like, a lot) because caring for my beloved took much more of my time and energy that I expected (having had no experience with caregiving, previously). I wouldn’t change that; he needed me, and I love him far too much to put my garden ahead of him in my priorities under such circumstances.

I sip my coffee grateful to enjoy it. Grateful to enjoy love. Grateful that I don’t hurt as much today as I did yesterday. Grateful to have this wee suburban home and my little garden, and a few sunny days to spend there. I smile at the blue morning sky beyond the window. The clock is ticking – but it seems to tick a bit more slowly when I am enjoying the time. I think about that for a moment, and then begin again.

I’m sitting quietly at the trailhead, waiting for the sun. The car parked behind me is rather annoyingly playing their radio loud. Talk radio. Super annoying. I mean, I sure don’t care that they’re passing the time listening to their radio, but for real? Turn that crap down so no one else has to listen. I’m not here for that.

I sigh quietly and think about what it takes to “find peace”. It isn’t really a “finding”, is it? It’s more of a creating, building, and sustaining. There are verbs involved, rather a lot of them. I breathe, exhale, and relax. I focus on me, and this quiet moment. I listen to the passing cars on the highway. I chuckle when I think about “instant pudding” as an analogy. The point being that it isn’t actually “instant”, at all – just pretty quick, and relatively easy. (It’s also not very good.) I sit with that thought awhile.

My thoughts wander to my Traveling Partner, and I wonder if he finally managed to get some good sleep? He’s been progressively reducing the dosage on medications he’s working on discontinuing, and the process sometimes leaves him restless, cross, or unable to rest (or all of those things together). What a shitty experience! Night after restless night… I often wake briefly when he wakes, but last night the only thing waking me was myself, when I changed positions and inadvertently wrapped my CPAP hose around myself awkwardly.

The first hint of daybreak begins to light the edge of the eastern horizon; a new day. I sigh contentedly and, grateful to move away from the noise of the parked car behind me, I drive through the now-open gate, up the hill and park there instead. Time to swap soft shoes for supportive boots, and grab my cane. My knees have been giving me grief recently, and my ankle aches with every step more often than not. I don’t risk the walk without the cane these days. I’m still walking, though, and I am grateful.

I think of the powerful lesson of my late Dear Friend’s example; walking can prove to be a regretfully “use it or lose it” sort of thing, and over time, she lost her ability to walk with any ease, which discouraged her and caused her to walk less (and shorter distances), which caused the situation to worsen. That’s an oversimplification, and surely there’s more to it than that. Aging. Injury. Illness. Nonetheless, I think of her often, and our conversations about the lasting value of “staying on my feet”, and the very real risk if I were to stop walking. I keep walking, in spite of pain.

I lace up my boots, sighing and resenting the pain I’m in, as I stare at the smudgy beginning of this morning’s sunrise. I “turn my head wrong” and my headache reminds me rather quickly how rarely it’s not there. Fuck this headache. I’m grateful that I have an appointment for some care of my neck, later this morning. I know it helps.

I think about my Traveling Partner again, and hope that he’s sleeping. No good morning ping, yet. Rare for this time of morning, recently, and it seems an encouraging sign… but it could just mean he’s awake and grumpy as fuck and just not wanting to interact at all. Maybe he’s up, but only long enough to take medication before going back to bed? I wonder, and the wondering serves as an excuse to think longer about my beloved, though I don’t really need an excuse.

I sigh and stretch and look towards the horizon. It’s definitely time to begin again.

Hello sunrise. Hello new beginning.

The past 48 hours are mostly a blur of smudgy unclear recollections and emotional impressions. Keeping up with my Traveling Partner’s care, particularly making sure medications are all taken on time, at proper intervals and dosages, is keeping me pretty busy. Juggling those details with work, and the self-care required to keep up with “all the things” has resulted in interrupted sleep, emotionality, and a generous helping of “stupid” moments. This too will pass; it’s a temporary situation. It’s generally enough to do my best.

… The tl;dr is that I’m tired, so tired, and haven’t slept well, deeply, or for more than a couple hours at a time these past couple of days…

Sunrise and a new beginning.

I woke ahead of my alarm this morning and watered the lawn, and helped my partner with his medication. I’d have rather gone directly back to bed and tried to get more sleep, but I also knew my partner had a difficult night of interrupted sleep himself. Better for his ability to rest for me to give him some quiet time. I slipped away to catch the sunrise on the trail, and the Anxious Adventurer left for work moments later.

… And here I am…

The sun rose a bold magenta betwixt thunder clouds. Once or twice lightning flashed across the sky. By the time I got here to the trailhead, thunder was breaking the quiet of the morning, frequently. No rain. Not right now, anyway, though it appears that some rain fell during the night. I find myself wishing for rain. (Thunder storms without rain this time of year are a deadly threat of wildfires.) I sit for a moment before lacing up my boots for a walk.

My head aches ferociously this morning, a combination of my “usual” headache, and lack of rest. I breathe, exhale, and relax. It’s less than ideal to let it become the focus of my day; I have too much shit to do.

My longtime friend, The Author, had planned to visit this weekend, but got COVID and if he makes it at all, the timing is yet to be determined. Disappointing. My Dear Friend’s celebration of life memorial is today, but I won’t make it; I’m not up to the long drive at the last minute, and regardless, my Traveling Partner needs my care and support. While I am considering these circumstances, a drenching tropical sort of rain begins to pound the car (I pull my feet back into the car and close the door). I think about the recent (Wednesday, 3 days ago) death of my Aunt…

…Then the tears begin to fall, with the rain…

Sometimes it just all feels like too much. I sigh, letting the tears fall without taking them personally. No reason to fight the moment. This is “my time”, and if this is what I need right now, okay. After some minutes, I blow my nose and just sit listening to the thunder and the rain, wondering about the lightning strike risk on the trail… It wouldn’t do to get hit by lightning today, I just don’t have time. lol

This morning I feel very mortal and very much aware how temporary it all really is. Life. So brief. So precious.

… I didn’t come prepared to walk through a drenching downpour, but I am sure enjoying just sitting here listening to the storm…

A different sort of quiet moment.

I sit listening to the rain, fighting the confusion and dimwittedness of fatigue. I could probably get a couple things done, since it doesn’t look like I’ll be walking… My mind feels numb. What is on my list, anyway? I scrounge around in my consciousness rather halfheartedly, instead of just looking at my damned list. The growl and loud crack of thunder along with a dazzling flash of very close lightning startles me. It seemed “just over there”, visibly, identifiably nearby. Scary. Distracting.

G’damn beginning again is easier when I get the rest I need… I don’t quite manage to laugh, and sigh again instead. I decide to quietly take my time sorting myself out, before tackling some task or another. There’s no reason to rush. I’ve got time to take care of myself. Self-care matters, too.

I sit for some unmeasured amount of time, reflecting on gratitude and joy. Thinking over the best of recent moments and savoring the recollections. I feel so grateful for my Traveling Partner, and the enduring love we share. It gets us through a lot. We’ve managed to snarl at each other far too often the last few days, as pain, fatigue, and frustration overcame our good nature in some difficult moment. We get past it. Exchange apologies. Make amends when we can. Our hearts know the way, even when we go astray – very human. All things considered, I guess we’re doing pretty well, generally. It’s hard sometimes, but there’s no lack of love. Humans being human; sometimes it’s complicated.

It’s probably time to begin again, but…

… I’m enjoying listening to the rain fall. That’s okay too.