Archives for posts with tag: occipital neuralgia

Enjoying the Journey

April 21, 2025 //
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It won’t always be this way – whatever way it happens to be at the moment. I do my best to enjoy the journey, in spite of pain, in spite of bad weather, in spite of pitfalls, challenges, and the consequences of poor choices. I do my best to enjoy the journey when it is easy to enjoy it (which seems pretty obvious, but turns out it sometimes isn’t), and also when it is difficult. I’m not suggesting bullshit affirmations and inauthentic enthusiasm, it’s more a matter of “doing my best”, and staying true to the path I’ve chosen. Sometimes it’s hard.

Last night was one of those times. I was in so much pain. My neck was hurting, and my occipital neuralgia had flared up. My headache was worse than usual and the left side of my body was a mess of knots, and cramps, and discomfort. It was pretty awful – bad enough that my beloved Traveling Partner (who could do nothing to ease my suffering) could not bear to be in my company. That was its own sort of misery, and I finally just gave up and went to bed early. I didn’t sleep, not right away, but I was also in no shape to enjoy a new video game I’ve started, and too distracted by pain to read anything new. I got as comfortable as I could, prepared for sleep, and picked up a book so familiar to me it may as well be stories from my own life. lol Stale and boring? No. Comforting and easy. Eventually I slept, and when I woke, there was my Kindle, standing where it had been. It turned itself off at some point after I stopped turning digital pages. Convenient.

A strawberry blossom in my garden, a metaphor for change, and joy – and impermance.

This morning is a new day. I woke feeling refreshed. Headache as near to gone as it ever gets these days. The left side of my body feels substantially the same as the right side. My neck is “only” stiff, and I don’t fuck with it, hoping to enjoy this brief reprieve from discomfort as long as it may last. My occipital neuralgia has died away on its own – probably the greatest relief of yesterday’s pain that I could ask for, today. There’s just no arguing with nerve pain, and so far nothing I’ve been prescribed works well enough to justify overlooking the side-effects (which, in one case, was suicidal despair – I mean, seriously? Fuck that shit, I’d rather spend the rest of my life with my face feeling like it is on fire). This morning is a happy relief and I got to the office feeling incredibly purposeful and productive. I wasted no time “catching up” on an entire day’s work, and planning the remainder of the week, besides. Feels good. I feel capable, which is not always how I feel.

Change is. Sometimes the journey is difficult, sometimes it is easy – it rarely stays the way it is for very long. Storms come and go. There are sunny days and cloudy days. (Weather makes a pretty good metaphor for change.) I sip my coffee and reflect on the value I have found in practicing non-attachment, and learning to “be here, now”, more easily, more often. Quality of life varies with our circumstances, sure, but it also varies based on how we deal with our circumstances, how we care for ourselves, and whether we’re finding whatever joy there may be, even in the toughest of times. Not one word about any of this being “easy” or coming naturally to me (or anyone) as a human being. I just keep walking my path, doing my best, and greeting each sunrise as an entirely new day, full of promise and moments that may never be repeated. That’s a pretty good place to begin a day, I find.

I smile to myself remembering something that occured to me this morning; this anniversary coming up for my Traveling Partner and I is significant in a very special way (to me). This anniversary marks this relationship being the longest of my long-term relationships. Hell, it’s even longer than the years I lived with my family of origin. Wow. I hope it lasts many years more. “Forever”, maybe, whatever that means in a human lifetime. I often do feel as if we’ve “always” been together in some strange way. We seem so deeply connected. Even when we’re cross with each other, I’m not feeling inclined to “head for the door”, other than maybe to go take a walk and put my mind on other things until I cool off. Deep, enduring love seems a rare thing. I’m glad I have this to enjoy and experience. I’m glad my Traveling Partner is sharing a portion of his journey with me (and mine with him). I thought about how best to celebrate this special anniversary with him, as I drove to the office. I didn’t come up with anything besides sharing the day. I don’t want an expensive trinket or token of his affection; I am wrapped in his love every day. I can’t think of a single thing to make for him or give to him that would say more about my love that the life we share already says. I just want to be with him. I guess I should take that day off work, then, eh? lol

I spent the weekend in the garden. It was lovely time, well-spent. “Soul-nourishing” time. Healing time. Productive time. Time spent gazing at flowers and working in the soil. Time spent sipping coffee and thinking about what to plant where, next, and pulling weeds. I hope I can maintain the momentum through the summer months! Last year I fell short of my goals (like, a lot) because caring for my beloved took much more of my time and energy that I expected (having had no experience with caregiving, previously). I wouldn’t change that; he needed me, and I love him far too much to put my garden ahead of him in my priorities under such circumstances.

I sip my coffee grateful to enjoy it. Grateful to enjoy love. Grateful that I don’t hurt as much today as I did yesterday. Grateful to have this wee suburban home and my little garden, and a few sunny days to spend there. I smile at the blue morning sky beyond the window. The clock is ticking – but it seems to tick a bit more slowly when I am enjoying the time. I think about that for a moment, and then begin again.

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Categories Allegories, Brain Injury, breathe, Free Will, gardening, gratitude, health, Healthy Living, joy, Love, meditation, Metaphors, Mindfulness, Moments, pain, Perspective, Practices, Relationships, Spring, The Art of Being

It Could Be Worse

August 11, 2024 //
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Trite but true, it is a near certainty that things could be worse. I sigh out loud, annoyed by my persistent headache when there’s so much going on and so much to do (or prepare for). Thinking, planning, and doing, while also fighting through pain has difficult moments. I struggle to maintain focus on things that matter and routinely find myself distracted by things that matter just as much. lol I try not to be overly hard on myself over it, but it does vex me, especially when the task at hand is something intended to support my Traveling Partner.

… I breathe, exhale, and relax…

A new day

When I left the house it was still quite dark. The season is changing, as seasons do. Daybreak comes much later than it did weeks ago, when spring turned to summer. I was amazed and delighted to see meteors streak across the predawn sky as I drove to the trailhead, this morning. Then I started thinking about what it might mean should some unusually large meteor actually plunge through our atmosphere intact and impact the planet directly…my anxiety surges as I consider that. Then I let that shit go.

… Letting an imagined worst case wreck a lovely lived moment is a poor practice…

I breathe, exhale, and relax. Today is final preparations for my Traveling Partner’s surgery. Tomorrow. It’s a big deal, and one with a very good prognosis. I’m more eager than nervous on my partner’s behalf, which I guess is a good thing. I feel well prepared. I hope he does, too.

I breathe, exhale, and relax. I’d meant to bring my colored pencils and my sketchbook along this morning. I forgot them. There are really only one or two places, at home, where something can be placed, that reliably get my attention on the way out in the morning. I can’t count the number of times I have forgotten to grab something I meant to take with me, because it wasn’t in one of those places. lol Generally a harmless sort of oversight, and I don’t make it a big deal this morning – because it isn’t.

… I keep promising myself more time painting. I keep not painting…

I had the trail to myself, initially, and sitting here in the morning quiet at the halfway point it manages to feel strange to hear voices and approaching footsteps. A small group of photographers walks past. Cheerful greetings are exchanged as they walk by.

My mind wanders. I distractedly check my task list and my calendar. I check the grocery list. I try to identify needful things I may have overlooked. My mind feels very busy and chaotic. I’m not here for that. There’s time for lists and tasks later.

… I breathe, exhale, and relax. I make room for this “now” moment, present, observing, breathing. Only this. I let my thoughts come and go, like the clouds overhead. (I definitely need more of this calm time spent present, simply being.) My mind wanders, this time I bring it back to my breath. My tinnitus is loud and distracts me. I bring my awareness back to my breath. For an unmeasured time I reflect and meditate, bringing my attention back to my breath each time it wanders. Good practice.

It’s a good day for a quiet moment. After a while, I get to my feet to finish my walk and begin again.

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Categories Allegories, Anxiety, breathe, Free Will, gratitude, health, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, Oregon Trails, pain, Perspective, Practices, solo hiking, Summer, The Art of Being

Nothing to See Here

August 10, 2024 //
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The sun seems to rise slowly against the pastel shades of pink and peach. The sky is hazy with the disbursed smoke of far away wildfires. Summer. Fire season.

Outcome to be determined.

I walked with my headache, my tinnitus, and my thoughts. The sounds of traffic on the highway nearby, and construction somewhere, create a “fuzzy” nothing sort of background noise. My thoughts are not important, nor are they particularly coherent. I’m just walking and thinking. I let the thoughts come and go. I stop at a favorite view point to sit, meditate, write, and watch the sun rise. I’ve got the trail and the park alone this morning, so far. I breathe the meadow-sweet morning air contentedly. I enjoy this moment; whatever else the day may throw at me, I’ve got this lovely peaceful moment to enjoy.

Yesterday was a strange mix of pleasant and difficult moments. Very human. I don’t stay focused on the difficulties; those things were sorted out yesterday. Resolved. Corrected. I do reflect further on the pleasant moments, letting them fill my thoughts for some little while. Savoring those moments because they matter most. I let my heart fill with recollections of joy, love, and laughter. I smile. I have a good sense of what matters most (these days, to me).

The yellow and white meadow flowers bobbing back and forth in the slight breeze atop brown summer stems are a pleasantly fragrant distraction from my headache. I watch small birds picking at the ground next to the trail. The sun continues its slow journey upwards from the horizon. Mornings hold so much promise. I sit quietly thinking about the day ahead without forcing it to become more than this moment, here. The future is unwritten, undetermined, and full of potential. I let it remain so. I watch the sun rise.

Every journey, every new beginning, starts where I am.

I experience a moment of sorrow, and a stray tear wells up and spills over. I am missing people who are dear to me, now gone. It’s a lonely sort of moment; there is so much to share, so much that I would talk about… I quietly say “I miss you” out loud, to no one in particular, and cry a little. Poignant. Human.

…The journey is the destination. Loss is part of the human experience…

I breathe, exhale, and relax. I let go of my sorrow. It’s a new day, and it’s time to begin again. I get to my feet and stretch, and turn back up the trail…

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Categories Allegories, breathe, forgiveness, Free Will, gratitude, Healthy Living, inspiration, meditation, Metaphors, Mindfulness, Moments, Oregon Trails, pain, Perspective, Practices, solo hiking, Summer, The Art of Being

The Best Advice

July 3, 2024 //
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Beautiful sunrise. Good morning to get a walk in. I’ve had the trail to myself, and watched the sunrise as I walked. Lovely.

Every day, every journey, begins somewhere.

The weather forecast indicates there is an extreme heat warning for the latter portion of the week, possibly record-breaking. I checked with my Traveling Partner about whether there were steps we might need to take to stay comfortable and ensure our AC functions properly. I’ll make a point to stock additional beverages and cold foods, so we won’t be required to cook using the oven or stovetop for long periods of time. I’ll drink more water.

…”Drink more water” is excellent hot weather advice, but there’s something quite limited about even the very best to bits of advice; it only works when actually taken. There are verbs involved. If we receive great advice but choose to disregard it, instead of applying it, our failures and misadventures thereby are of our own making. No one to blame but the person in the mirror. We for sure can’t claim we didn’t have guidance or that the advice was ineffective. lol

Why do people get great advice and then choose not to follow it? I don’t have an answer, I’m just wondering. I mean, actually, I can come up with several possible answers, but I don’t at all know which are likely to be most correct. Maybe we don’t trust the advice to be accurate? Maybe we don’t find the source to be credible? Maybe we think we’re a special case and the norms don’t apply to us? Maybe… maybe mostly… we’re just not really listening in the first place? That seems likely… people are pretty crappy at listening to someone else talking.

… Maybe sometimes there’s too much new information to process…

Are you listening to the good advice you’re given? Do you use it?

My neck aches ferociously this morning. I think I “slept on it wrong”. Ouch. The pain colors my experience unpleasantly. When the time comes, I take my morning medication, grateful to be able to add prescription pain relief, grateful to have it available, hopeful that it will bring some relief. I stopped on the trail several times trying to “work the kinks out” by practicing the release and self-massage techniques my chiropractor taught me. These are often quite helpful, this morning they are less so. I still make the effort. The headache that rises from the pain in my neck spreads like flames across the left side of my face. Occipital neuralgia. Fuuuuuuck. “Just kill me now”, I snarl quietly to myself, though I don’t mean it literally. I just hurt. I stretch. I breathe. I keep walking. This too will pass.

I reach my halfway point and keep walking, lost in my thoughts and preoccupied by my pain. This trail is a loop. Though I often walk out and back, a shorter distance, the full distance of the loop isn’t unreasonably far. I laugh at myself; looks like I’m going the distance this morning. I have time. Anyway, I’d be shit to be around this morning, and my Traveling Partner was already up when I left. No reason to rush back with my bitchy cross mood intact. I sigh as I walk.

… I should probably begin again. That’s pretty good advice…

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Categories Allegories, breathe, Free Will, gratitude, health, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Practices, solo hiking, Summer, The Art of Being, turning 60, women

…I’m Not Dead Yet

April 6, 2018 //
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Nothing like spending 8 hours of precious limited lifetime in the freakin’ ER to remind me how much I enjoy doing just about anything else. LOL

I’m okay. Just middle-aged. 😉

I resented the request to go to the ER, in the first place. I negotiated with my primary care physician like I was making a deal with the devil, when I finally spoke to her. I made work more important than my health and went in to the office yesterday still dealing with the ferocious headache that continues to plague me. The nurse in Neurology finally reached me directly yesterday mid-morning, and was fairly firm about seeing me immediately if possible. Damn it. I interrupted a productive work day figuring I’d go/come back, no problem…

8 hours, 2 blood draws, 2 IV insertions (1 failed), and 3 separate CT scans later… we ruled out most of the scariest stuff for adults in my age group worried about a headache. We’ve narrowed it down to… a headache. <sigh> No, for real? Back to Neurology. I can’t be mad. I got some first-rate care (and one failed attempt at an IV insertion that was both painful, and hurt like fire when imaging attempted to make use of it), and a chance to enjoy “Hospital ER” as a sort of live-action drama with all the pettiness human beings can bring to bear, as I quietly eavesdropped the conversations from the tiny treatment room I spent most of my time in.

Luck of the draw – I got a really good young doctor in residency. Because he’s a psychiatric resident, he “got me” on an entirely other level, and was able to do more to support me as a patient. The noise and lights and aggressively purposeful busy-ness of the ER aggravated other symptoms a lot (a lot), and that could have been a distraction for an MD who didn’t fully understand what seeing a c-PTSD diagnosis in my charts could mean. This one did. I wish he would be my full-time primary care doctor! By the time he actually saw me I was literally in tears from the noise; he took steps to ease it, first thing (ear plugs, a closed door, another closed door). Suddenly the experience was so much easier. I gotta say, hospital ERs are not actually designed to “heal” people as much as “repair” them. The noise, the actual moment-to-moment callousness (seriously, just watch, you’ll see it) of being entirely practical and attempting to be efficient, too, while serving as many customers as possible as quickly as feasible. The bright lights and infernal beeping of machinery and grinding or sliding of automatic doors. The repetitive nature of all of it just hammers at my consciousness – no stillness. Even the waiting is noisy. Nothing soothing. And for a place of healing? Holy crap they are going at such a breakneck pace that simple self-care stuff is entirely overlooked. They keep people there for hours and hours without calories or drinking water. lol Fuuuuuuck. Hospital ERs are no place for the ill.

Today is a whole new day. I’m definitely ready to begin again. LOL

 

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Categories Anxiety, Brain Injury, Free Will, health, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Spring