Archives for posts with tag: osteoarthritis

I am waiting for the sun, at a local trailhead. I’m not in any hurry, and it is a calm, quiet morning. The forecast says maybe it’ll rain, later. For now, I amuse myself wondering if that’s lightning I just saw. What I definitely saw was a brief very bright diffuse flash of light somewhere beyond the clouds obscuring the predawn sky, and then, later, another. I didn’t hear thunder, so I guess that if it was lightning (what else would it be?) it must be quite far away.

In the darkness, before dawn, it’s easy to wonder.

Another work day. Nothing much to say about that.

My tinnitus is crazy loud in my ears. My spine is a column of pure pain; I tell myself it’s “only” arthritis. It’s an unhelpful bit of exaggeration, but I count on it to persuade me that the pain can safely be ignored. I take my morning medications, which include prescription pain relief. It helps some, but only serves to “take the edge off”. It’s been a long time since it was any more effective than that.

I sigh to myself and grab my cane. I’ve got enough daylight now to walk this trail safely. I get started…

… I walk, lost in my own thoughts, and find that I’ve gone down and around and back to my starting point, already. It’s still early, barely daybreak. I decide to walk the loop again (it’s only about a mile and a half)…

I stop at a favorite resting point, when I reach it. My mind wants to dart ahead, to focus on work, but it is not yet time for that, and I pull myself back to this moment, here. The sky is gray, and cloudy, with the look of a sky that might rain, maybe. The air smells of rain, too. Another flash of distant lightning, another hint at rain.

Weather…or not.

The hills far to the west are hazy, looking more like a watercolor impression of hills on the horizon, and a bit unreal. This moment even feels a little unreal. Too quiet. Too still. The darkness of the trees between me and the river beyond seem vaguely spooky, although they have no secrets. It’s just a row of trees along the river bank. I walk here often.

I watch the sky continue to lighten, as daybreak becomes dawn, and an unseen sun rises somewhere beyond the clouds. The sky shifts from night black, to the deep blue of dawn, to the gray and cloudy sky I see now, and hints of pale blue behind the clouds peeking through where the clouds shred slowly as they move… north? North. I breathe, exhale, and relax. Somewhere nearby, the noise of a trash truck interrupts the stillness.

I sigh to myself as I get to my feet to finish my walk and head to work. Whether or not it actually rains, there’s still weather of some sort. Whether or not my path takes me where I expect to go, it still leads me somewhere. Having the experience is what matters most – the being and doing are the point. The journey is the destination. Isn’t that enough? I think about that as I stretch. The clock is ticking, and it’s time to begin.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

My tinnitus is super loud this morning. Distracting. Annoying. I breathe, exhale, and relax, as I absentmindedly rub my left trapezius muscle, up near my neck… Or is it my sternocleidomastoid? That general area. Feels like it is carved of stone and most of the time also a prominent source of day-to-day pain. I see one of my care providers today. He’s very skilled and I am hopeful that I’ll have a few hours or a couple days of real relief before my fucked up neck recreates the painful circumstances all over again. I’ve grown resigned to accepting that it is simply the byproduct of an old neck injury, combined with progressing degenerative disk disease (C3-C4 mostly and cervical arthritis from C5 on up to C1). It sucks and it’s painful, but, and this is important and real, it could be worse.

I walked down the trail listening to the crunch of boots on pea gravel, and I focused on the external sounds around me; it helps push the tinnitus into the background some. I got to a pleasant spot along the river to sit for a moment. The world is quiet and from here I can’t hear the traffic on the nearby highway at all. Whether this is an atmospheric phenomenon, a lack of traffic, or hearing loss is not clear to me, and maybe not even relevant to this pleasant moment. There’s a strip of color, not quite orange, on the eastern horizon, peeking between hillsides, silhouetting the trees on the far bank where the river bends. I have the trail and the park to myself this morning, alone with my thoughts (and my tinnitus, and my pain). Well… mostly…

I sit quietly as a rather large raccoon waddles past. She gives me a look and hesitates a moment before proceeding. I sit still and watch her discreetly from my peripheral vision hoping not to discourage her and choking back a laugh remembering the desk sign my Traveling Partner made for me (“most likely to be eaten by something she shouldn’t be petting”). As the raccoon continues past she’s followed by 2…3…4…5 chubby fuzzy youngsters, one of whom appears eager to get a closer look at me. Mom looks back and lifts herself on her back legs and makes sounds that clearly manage to communicate “Damn it, leave that human alone, you have no idea where that thing has been! Come on, we don’t have time for this.” It’s super hard not to giggle but I really don’t want to alarm Mama Raccoon – she’s pretty big, and I’m definitely not up for defending myself from an angry or frightened raccoon; they are not to be trifled with.

She walks on with her youngsters following, heading down the river bank. I walk on, too, heading back up the trail toward the parking lot. It’s daybreak. Good time to begin again.

I’m sitting quietly at the trailhead, waiting for the sun. The car parked behind me is rather annoyingly playing their radio loud. Talk radio. Super annoying. I mean, I sure don’t care that they’re passing the time listening to their radio, but for real? Turn that crap down so no one else has to listen. I’m not here for that.

I sigh quietly and think about what it takes to “find peace”. It isn’t really a “finding”, is it? It’s more of a creating, building, and sustaining. There are verbs involved, rather a lot of them. I breathe, exhale, and relax. I focus on me, and this quiet moment. I listen to the passing cars on the highway. I chuckle when I think about “instant pudding” as an analogy. The point being that it isn’t actually “instant”, at all – just pretty quick, and relatively easy. (It’s also not very good.) I sit with that thought awhile.

My thoughts wander to my Traveling Partner, and I wonder if he finally managed to get some good sleep? He’s been progressively reducing the dosage on medications he’s working on discontinuing, and the process sometimes leaves him restless, cross, or unable to rest (or all of those things together). What a shitty experience! Night after restless night… I often wake briefly when he wakes, but last night the only thing waking me was myself, when I changed positions and inadvertently wrapped my CPAP hose around myself awkwardly.

The first hint of daybreak begins to light the edge of the eastern horizon; a new day. I sigh contentedly and, grateful to move away from the noise of the parked car behind me, I drive through the now-open gate, up the hill and park there instead. Time to swap soft shoes for supportive boots, and grab my cane. My knees have been giving me grief recently, and my ankle aches with every step more often than not. I don’t risk the walk without the cane these days. I’m still walking, though, and I am grateful.

I think of the powerful lesson of my late Dear Friend’s example; walking can prove to be a regretfully “use it or lose it” sort of thing, and over time, she lost her ability to walk with any ease, which discouraged her and caused her to walk less (and shorter distances), which caused the situation to worsen. That’s an oversimplification, and surely there’s more to it than that. Aging. Injury. Illness. Nonetheless, I think of her often, and our conversations about the lasting value of “staying on my feet”, and the very real risk if I were to stop walking. I keep walking, in spite of pain.

I lace up my boots, sighing and resenting the pain I’m in, as I stare at the smudgy beginning of this morning’s sunrise. I “turn my head wrong” and my headache reminds me rather quickly how rarely it’s not there. Fuck this headache. I’m grateful that I have an appointment for some care of my neck, later this morning. I know it helps.

I think about my Traveling Partner again, and hope that he’s sleeping. No good morning ping, yet. Rare for this time of morning, recently, and it seems an encouraging sign… but it could just mean he’s awake and grumpy as fuck and just not wanting to interact at all. Maybe he’s up, but only long enough to take medication before going back to bed? I wonder, and the wondering serves as an excuse to think longer about my beloved, though I don’t really need an excuse.

I sigh and stretch and look towards the horizon. It’s definitely time to begin again.

Hello sunrise. Hello new beginning.

I woke gently after a restful night. I made coffee for my still-sleeping Traveling Partner, and slipped away quietly into the pre-dawn darkness, headed to the trailhead and another walk at sunrise.

Not quite daybreak, still a new day.

My Traveling Partner wakes before dawn, and pings me a question. This is two mornings in a row that abrupt communication without any sort of greeting or preamble have interrupted my only reliable opportunity to take a little quiet time for myself that doesn’t require me to take that time away from some other purpose or person. I’m momentarily irritated that I’m not important enough in the moment to at least rate a greeting or a “good morning” before questions and complaints. I’m feeling moody over the lack of consideration for this precious self-care time and puzzled by the lack of awareness that I need this for me. None of my partner’s questions or concerns seem so urgent that they couldn’t have waited until after my walk. I sit quietly after the conversation ends, wondering whether to bring it up, and how I could do so without making drama. Is it worth the potential discord? I could have chosen to ignore the pings until later… seems rude to do that when I know he’s home recovering from surgery and could need help. I feel a bit trapped between circumstances and manners.

…He sets boundaries so easily. Why is it so hard for me…?

I breathe, exhale, and relax, and work on getting back to me, after our conversation ends. This quiet time, meditating, reflecting, writing, and walking, is very much part of how I care for myself and maintain my emotional wellness, and build resilience. It has become comfortably routine, and almost “non-negotiable”. Yesterday’s lack of a walk ended up being something I felt all day.

Daybreak comes, and an opportunity to begin again.

I sigh to myself as I lace up my boots. No colorful sunrise this morning, I guess. The sky is cloudy, and hues of blue and gray. The air is mild and scented with meadow grasses and wildflowers, a very particular fragrance both spicy and sweetly floral. I enjoy it. It reminds me of Oregon, which doesn’t surprise me; that’s where I am.

… I head down the trail, intending to finish this at the halfway point…

I get to a nice spot to sit for a little while. It’s a quiet morning and I have the trail all to myself – a pleasant luxury, and rare on a Saturday, even so early. My neck aches ferociously, and my headache is an 11 on a 1-10 scale this morning. I am grateful to have an appointment with a skilled practitioner later this morning. I’d like to enjoy the day without being in this much pain. It’s very distracting. It pulls my focus away from these words and this world again and again. Most unpleasant.

I thought I had something of more substance to write about this morning. It had begun to take shape as I drove to this place, but distractions and conversation with my Traveling Partner caused my thoughts to unravel too quickly to capture even a loose idea of what was on my mind at the time. No matter; I began again. I tend to “write where I am”. Whether that perspective is geographical, metaphysical, or emotional isn’t all that important. In any case, it is the moment I find myself in.

I sit awhile with my thoughts, not writing, and without any particular direction or theme. Pain sucks. I have difficulty recalling a time when I was living pain free more days than not… How long ago…?  I think I would have to measure in decades. The arthritis in my spine set in sometime in my mid-twenties. It’s been with me awhile – much longer than my headache. I distractedly rub my irritated neck. 9 or 10 years for the neck, I think… Fuck pain. G’damn there’s too much of that in the world. I snarl quietly to myself and yield to the demands of my pain, and take an Rx pain reliever earlier than I usually do. I glare at the cloudy sky thinking it’s likely the weather making the pain worse somehow. I laugh at the thought; it sounds stupidly primitive and superstitious, and not very rational. What do I know about it? I’m just a fucking human primate trying to cope with my pain any way I safely can.

I hear voices up the trail. By the time I get back to the car, it’ll be time to head to the city for my appointment. I think about my Traveling Partner, and remind myself to stop by the pharmacy for his prescriptions on my way home. I feel like I am forgetting something, but I don’t know what. I’d love to spend the day painting, but I don’t see that happening today… I hurt, and I’d just as soon go back to bed.  “Fuck pain.” I say out loud to myself. I don’t want to give in to it. There’s so much I’d like to do.

I get to my feet, and stretch, and rest my weight on my cane for a moment, making certain I’ve “got my feet under me” before I head back up the trail. It’s already time to begin again.