Archives for posts with tag: osteoarthritis

My tinnitus is super loud this morning. Distracting. Annoying. I breathe, exhale, and relax, as I absentmindedly rub my left trapezius muscle, up near my neck… Or is it my sternocleidomastoid? That general area. Feels like it is carved of stone and most of the time also a prominent source of day-to-day pain. I see one of my care providers today. He’s very skilled and I am hopeful that I’ll have a few hours or a couple days of real relief before my fucked up neck recreates the painful circumstances all over again. I’ve grown resigned to accepting that it is simply the byproduct of an old neck injury, combined with progressing degenerative disk disease (C3-C4 mostly and cervical arthritis from C5 on up to C1). It sucks and it’s painful, but, and this is important and real, it could be worse.

I walked down the trail listening to the crunch of boots on pea gravel, and I focused on the external sounds around me; it helps push the tinnitus into the background some. I got to a pleasant spot along the river to sit for a moment. The world is quiet and from here I can’t hear the traffic on the nearby highway at all. Whether this is an atmospheric phenomenon, a lack of traffic, or hearing loss is not clear to me, and maybe not even relevant to this pleasant moment. There’s a strip of color, not quite orange, on the eastern horizon, peeking between hillsides, silhouetting the trees on the far bank where the river bends. I have the trail and the park to myself this morning, alone with my thoughts (and my tinnitus, and my pain). Well… mostly…

I sit quietly as a rather large raccoon waddles past. She gives me a look and hesitates a moment before proceeding. I sit still and watch her discreetly from my peripheral vision hoping not to discourage her and choking back a laugh remembering the desk sign my Traveling Partner made for me (“most likely to be eaten by something she shouldn’t be petting”). As the raccoon continues past she’s followed by 2…3…4…5 chubby fuzzy youngsters, one of whom appears eager to get a closer look at me. Mom looks back and lifts herself on her back legs and makes sounds that clearly manage to communicate “Damn it, leave that human alone, you have no idea where that thing has been! Come on, we don’t have time for this.” It’s super hard not to giggle but I really don’t want to alarm Mama Raccoon – she’s pretty big, and I’m definitely not up for defending myself from an angry or frightened raccoon; they are not to be trifled with.

She walks on with her youngsters following, heading down the river bank. I walk on, too, heading back up the trail toward the parking lot. It’s daybreak. Good time to begin again.

I’m sitting quietly at the trailhead, waiting for the sun. The car parked behind me is rather annoyingly playing their radio loud. Talk radio. Super annoying. I mean, I sure don’t care that they’re passing the time listening to their radio, but for real? Turn that crap down so no one else has to listen. I’m not here for that.

I sigh quietly and think about what it takes to “find peace”. It isn’t really a “finding”, is it? It’s more of a creating, building, and sustaining. There are verbs involved, rather a lot of them. I breathe, exhale, and relax. I focus on me, and this quiet moment. I listen to the passing cars on the highway. I chuckle when I think about “instant pudding” as an analogy. The point being that it isn’t actually “instant”, at all – just pretty quick, and relatively easy. (It’s also not very good.) I sit with that thought awhile.

My thoughts wander to my Traveling Partner, and I wonder if he finally managed to get some good sleep? He’s been progressively reducing the dosage on medications he’s working on discontinuing, and the process sometimes leaves him restless, cross, or unable to rest (or all of those things together). What a shitty experience! Night after restless night… I often wake briefly when he wakes, but last night the only thing waking me was myself, when I changed positions and inadvertently wrapped my CPAP hose around myself awkwardly.

The first hint of daybreak begins to light the edge of the eastern horizon; a new day. I sigh contentedly and, grateful to move away from the noise of the parked car behind me, I drive through the now-open gate, up the hill and park there instead. Time to swap soft shoes for supportive boots, and grab my cane. My knees have been giving me grief recently, and my ankle aches with every step more often than not. I don’t risk the walk without the cane these days. I’m still walking, though, and I am grateful.

I think of the powerful lesson of my late Dear Friend’s example; walking can prove to be a regretfully “use it or lose it” sort of thing, and over time, she lost her ability to walk with any ease, which discouraged her and caused her to walk less (and shorter distances), which caused the situation to worsen. That’s an oversimplification, and surely there’s more to it than that. Aging. Injury. Illness. Nonetheless, I think of her often, and our conversations about the lasting value of “staying on my feet”, and the very real risk if I were to stop walking. I keep walking, in spite of pain.

I lace up my boots, sighing and resenting the pain I’m in, as I stare at the smudgy beginning of this morning’s sunrise. I “turn my head wrong” and my headache reminds me rather quickly how rarely it’s not there. Fuck this headache. I’m grateful that I have an appointment for some care of my neck, later this morning. I know it helps.

I think about my Traveling Partner again, and hope that he’s sleeping. No good morning ping, yet. Rare for this time of morning, recently, and it seems an encouraging sign… but it could just mean he’s awake and grumpy as fuck and just not wanting to interact at all. Maybe he’s up, but only long enough to take medication before going back to bed? I wonder, and the wondering serves as an excuse to think longer about my beloved, though I don’t really need an excuse.

I sigh and stretch and look towards the horizon. It’s definitely time to begin again.

Hello sunrise. Hello new beginning.

I woke gently after a restful night. I made coffee for my still-sleeping Traveling Partner, and slipped away quietly into the pre-dawn darkness, headed to the trailhead and another walk at sunrise.

Not quite daybreak, still a new day.

My Traveling Partner wakes before dawn, and pings me a question. This is two mornings in a row that abrupt communication without any sort of greeting or preamble have interrupted my only reliable opportunity to take a little quiet time for myself that doesn’t require me to take that time away from some other purpose or person. I’m momentarily irritated that I’m not important enough in the moment to at least rate a greeting or a “good morning” before questions and complaints. I’m feeling moody over the lack of consideration for this precious self-care time and puzzled by the lack of awareness that I need this for me. None of my partner’s questions or concerns seem so urgent that they couldn’t have waited until after my walk. I sit quietly after the conversation ends, wondering whether to bring it up, and how I could do so without making drama. Is it worth the potential discord? I could have chosen to ignore the pings until later… seems rude to do that when I know he’s home recovering from surgery and could need help. I feel a bit trapped between circumstances and manners.

…He sets boundaries so easily. Why is it so hard for me…?

I breathe, exhale, and relax, and work on getting back to me, after our conversation ends. This quiet time, meditating, reflecting, writing, and walking, is very much part of how I care for myself and maintain my emotional wellness, and build resilience. It has become comfortably routine, and almost “non-negotiable”. Yesterday’s lack of a walk ended up being something I felt all day.

Daybreak comes, and an opportunity to begin again.

I sigh to myself as I lace up my boots. No colorful sunrise this morning, I guess. The sky is cloudy, and hues of blue and gray. The air is mild and scented with meadow grasses and wildflowers, a very particular fragrance both spicy and sweetly floral. I enjoy it. It reminds me of Oregon, which doesn’t surprise me; that’s where I am.

… I head down the trail, intending to finish this at the halfway point…

I get to a nice spot to sit for a little while. It’s a quiet morning and I have the trail all to myself – a pleasant luxury, and rare on a Saturday, even so early. My neck aches ferociously, and my headache is an 11 on a 1-10 scale this morning. I am grateful to have an appointment with a skilled practitioner later this morning. I’d like to enjoy the day without being in this much pain. It’s very distracting. It pulls my focus away from these words and this world again and again. Most unpleasant.

I thought I had something of more substance to write about this morning. It had begun to take shape as I drove to this place, but distractions and conversation with my Traveling Partner caused my thoughts to unravel too quickly to capture even a loose idea of what was on my mind at the time. No matter; I began again. I tend to “write where I am”. Whether that perspective is geographical, metaphysical, or emotional isn’t all that important. In any case, it is the moment I find myself in.

I sit awhile with my thoughts, not writing, and without any particular direction or theme. Pain sucks. I have difficulty recalling a time when I was living pain free more days than not… How long ago…?  I think I would have to measure in decades. The arthritis in my spine set in sometime in my mid-twenties. It’s been with me awhile – much longer than my headache. I distractedly rub my irritated neck. 9 or 10 years for the neck, I think… Fuck pain. G’damn there’s too much of that in the world. I snarl quietly to myself and yield to the demands of my pain, and take an Rx pain reliever earlier than I usually do. I glare at the cloudy sky thinking it’s likely the weather making the pain worse somehow. I laugh at the thought; it sounds stupidly primitive and superstitious, and not very rational. What do I know about it? I’m just a fucking human primate trying to cope with my pain any way I safely can.

I hear voices up the trail. By the time I get back to the car, it’ll be time to head to the city for my appointment. I think about my Traveling Partner, and remind myself to stop by the pharmacy for his prescriptions on my way home. I feel like I am forgetting something, but I don’t know what. I’d love to spend the day painting, but I don’t see that happening today… I hurt, and I’d just as soon go back to bed.  “Fuck pain.” I say out loud to myself. I don’t want to give in to it. There’s so much I’d like to do.

I get to my feet, and stretch, and rest my weight on my cane for a moment, making certain I’ve “got my feet under me” before I head back up the trail. It’s already time to begin again.

Many many years ago, in what now feels like an altogether different life, lived as if by an entirely different person, I made a choice to “save my own life” through extreme means (in that moment). My ex-husband was coming after me with a very large knife, in a small apartment in Germany. The front door was locked from the inside, and I could not open that door to escape down the stairwell. I dashed to the patio, barely ahead of him, and rolled over the balcony rail. He reached me as I dangled there in that moment between actions, and his face wore a look of astonishment and alarm, “Don’t!” he demanded urgently. “I have to,” I said quietly, and then I let go.

I hit the slick paved patio below quite hard. My ears rang, I felt something snap. I “saw” an explosion of lights behind closed eyes. I felt nauseatingly dizzy. I saw him looking down, then retreating from the balcony rail quickly – I knew he was on his way and I panicked. I jumped up from the pavement, disregarding all sensations, and climbed a fence and a hedge to get to the nearest neighbor whose lights were on. I couldn’t remember a word of German in that moment other than “polizei”, and so that’s who they called. The police arrived, locked and loaded, and told the neighbors (whose English was better than my German) that an ambulance from the American hospital had been called. The police went after my ex husband, and once they found him he was arrested.

When the ambulance arrived, the medics quickly determined I’d likely broken my back (and there I was sitting upright in a lawn chair, flexing my spine uncomfortably and commenting that I could not figure out why I was so “uncomfortable” – I didn’t understand that I was in shock). They insisted I be still. They put me on a back board, and on a stretcher, and rushed me to the ER. I wasn’t there long, barely long enough for X-rays, and for the Military Police investigators to arrive to interview me, while the doctor reminded them that I was heavily medicated and badly injured, and to keep their questions to a minimum. A helicopter arrived, and I was medevacked to the big regional Army hospital to the north, where there was a larger team more capable of treating spinal injuries. That was when I realized I was actually badly injured. The flight was short, and the strange air mattress they had me on was more comfortable than the back board or the hospital bed. When we arrived at the big hospital ER, they went to take me off that air mattress (I guess it belonged with the helicopter) and I cried and pleaded that they please let me stay on it. I still didn’t know “how bad it was” (or wasn’t) and I was starting to feel pain, again.

…It was pretty bad. My back was broken in two places, a spinous process from one smashed vertebrae had gotten shoved into my spinal canal, and I had a concussion and a broken wrist. I’d be in that hospital for a couple of months after 16+ continuous hours of surgery to fuse the damaged vertebrae and install bizarre and uncomfortable hardware to hold those surgical sites still while healing happened. (A year later, that hardware would all come out… except for a ferrous surgical wire that to this day prevents me having an MRI; the wire was woven through the fusion to hold things together.) I’ve got a long scar down my spine, a visible reminder, and an uglier, shorter one on my left hip where the bone grafts were taken to build my fusion. I don’t care about the scars; I lived. I’m still walking.

Funny thing about all of this; the longer term consequences were not within view. I had no idea that I would struggle to form healthy attachments or build trust with lovers, possibly ever again. I didn’t know that the nightmares would plague me for decades to come – some to do with the domestic violence, some to do with the medical terror of the surgery itself, during which the medical team had to wake me up to verify that I was responding to stimuli. There have been few things more openly terrifying in my life than being awake during spinal surgery, intubated, on life support, surgical incisions open, and being asked questions that required answers. There have been other consequences… the pain of my arthritis reminds me regularly of the choice I made. A choice to live, sure, but also… a choice that came with profound consequences. I paid a high price for this life of mine.

I pause for a moment to reflect on the value of a life. This life. My life. The choice I made to keep it, to trudge on, to try again, reaches so far back beyond that despairing moment in 2013 when I thought to abandon it. It has been a worthy journey, consequences and all. Sometimes it’s hard. Sometimes it’s easy.

…Some nights I still have nightmares. Some mornings I still wake up in pain. When I look back, though, I don’t regret that terrible lonely desperate choice to let go of a balcony rail and fall to my… freedom. Some choices just extract a big price. It’s a question I think few of us ask or answer before we choose; will the price be worth it? It’s hard to know, isn’t it? It’s probably worth wondering, for at least a moment… but there’s no map on this journey. We’re each walking our own hard mile.

Choose your adventure. Pay your price. Begin again. The journey is the destination.

I’m relaxing. Enjoying the evening. I’ll probably be up rather late; I collapsed into a foggy, dreamy, lush nap shortly after I got home from work (and after making a short trip to a favorite local pie spot to pick up a pie – why not? I like pie…). I woke refreshed, and found my Traveling Partner had slept through the time I was napping, himself, relaxing on the couch. We must have needed the sleep. Dinner was simple, nothing fancy.

…There’s nothing about this that is significant, important, or, probably, even interesting. It’s just a quiet evening with nothing much going on. It’s pleasant, and that’s enough.

I’m in a lot of pain tonight. It’s not “new pain”. Just my arthritis. Chronic. Predictable. But not new. I mean, shit, I first started feeling the twinges of what would become my “constant companion” in… 1988? 1989? Something like that. About 35 years ago. At first I thought there was “something seriously wrong” with my spinal fusion – no one explicitly warned me about the likelihood that osteoarthritis might set in, in the adjacent vertebrae, or gave me any idea what to expect when it did… until after it was part of my experience. Not much of a fucking “warning”, but what could have been done? It’s not like a warning about arthritis would have caused me to decline the surgery that lets me walk, stand, and get around as well (and go as far) as I do. So… I hurt. I mostly don’t mention it out loud to other people. I probably minimize it more often than I should when I’m talking to my Traveling Partner. I don’t like him to worry, or stress over it, and for fucks sake, what could he even do about it? Basically nothing. So… why bitch? I just deal with it and try to move on. Take medication when I need it. Keep myself moving (because being too still too much of the time definitely makes things worse over time – a lesson learned decades ago). Sometimes it’s hard. Life, too. So… yeah. So what?

I distract myself with entertaining videos. I write. I listen to music. Play video games. Read books. I enjoy life. It’s already likely to seem far too short. 🙂

No one likes to hurt. Pain sucks. I remind myself how common it is that we do. For sure there are people who have it much worse, more of the time, than I do. Perspective; it is so much more profound to experience contentment and joy, because I definitely do know what it feels like to be mired in pain and misery. Maybe it’s enough.

…Be kind to people. It’s not always obvious how much pain someone is in, and how it defines their experience. We’re all just people. Pain is part of being human.

Live. Work. Sleep. Wake. Repeat.

It’s time to begin again.