Archives for posts with tag: pain and pain management

This morning is cold and foggy. I slept in (for some values of “sleeping in”), and still arrived at my selected trailhead well before dawn. This trail is lit for much of the distance I walk, but beyond the vineyard, near the river, I still needed my headlamp. I’ve been, and returned, and it is still quite dark, though there is a hint of daybreak on the horizon. It’s not yet visible from the lit area of the trail, or the parking lot. The new artificial lights are much too bright.

A walk through winter fog.

The morning is foggier than I expected, and somewhat warmer (still quite cold, near freezing). The fog makes everything seem quieter and more mysterious in the darkness. I see the headlights of workers arriving to a nearby construction sight, filtered through the fog, before I hear the sounds of their pick-up trucks. I’m okay with that. The dance of the lights over irregular pavement is fascinating, and I don’t care for the noise at all. I walked and watched with wonder, alone with my thoughts.

The Author arrives later this morning. 10:30 or so, though I’m not certain whether that means to the house or at the airport. I didn’t ask for clarification – I guess I’ll know soon enough. lol I’m excited about this visit from a dear long-time friend. It happens too rarely. I think of other far away friends and wonder whether to plan a trip to see some of them in the summer? I wonder whether my Traveling Partner will be up to being without me for a week…or in shape to go with me?

I sit quietly with my thoughts. The sky is beginning to be a hue of deep gray-blue, visibly no longer “night”. A new day. There are things to do, and a visit with a friend to look forward to. I consider getting a coffee somewhere nearby, but I am just as content to sit here, watching the sky slowly lighten as dawn unfolds. G’damn, sometimes I am such a simple and easily satisfied creature. I chuckle quietly to myself. I’m okay with it.

A new day begins.

… It’s time to begin again.

I woke tired from a restless night of strangely lively surreal dreams. My walk felt short, and rushed. My day already feels busy and “crowded” with things that must get done before daybreak tomorrow, and the start of a few days of downtime spent attending to my emotional needs, and indulging artistic inspiration. Self-care is important and worth the time commitment to get a few things done so I can be away without concern, but… good grief I feel so busy right now.

I breathe, exhale, and relax. It’s the start of the workday, and looks to be an easy one. Routine, at least. Then home early enough to take my Traveling Partner to an appointment, then a quick shopping trip, then make (and enjoy) dinner, then pack (omg I should have worked from home today) and load the car, then, if there’s still time, a little time spent just chilling with my partner enjoying the last of the evening. Yeah, it feels like a busy day, but I’ve got a plan, and it’s not really “all that” – it just feels busy. Another breath. Another moment.

I’m in so much pain lately. A few days to myself to sit with that without also feeling like I’ve got to mask it to avoid making everyone around me uncomfortable will be a nice “luxury”. There’s more stress than I want to admit in having to “put a good face on it” when I hurt like this. Pain relief measures only do so much, and I’m not willing to take (nor am I prescribed) the quantities of painkillers it would take to shut down this amount and intensity of my personal combination of arthritis and headache pain. It is what it is. I’m also not willing to let pain call my shots or totally wreck my experience; there’s more to life than the pain I’m in. I remind myself often. Sometimes it helps, sometimes it just annoys me. Sometimes being annoyed about it helps in its own way. My Traveling Partner endures his own pain. Hell, even the Anxious Adventurer deals with pain – and frankly, most people do, to some extent, I guess. The challenge is not being a dick about it, and doing the most we each can to go ahead and live a good life in spite of the pain we’re in, and to remain mindful that we can’t possibly fully understand the pain someone else is in. Ever. Even if they say. We just can’t know their experience the way they do. So…I try to manage mine, and mostly keep it to myself. It’ll be nice to have a couple days to just sit and weep over it, while I paint, if that’s where it takes me, and not be worried that anyone else will be affected by those tears, or my pain.

Beyond the pain, I’m looking forward to a couple days of watching the tide come and go, and sitting with my thoughts – and my grief – and just “getting my head right” in my own way. The holidays are coming. The first in decades that my Dear Friend won’t be part of that experience in any way. That hurts more than I expected it to. No need to think about what to send her. No need to share anecdotes or pictures. No need to message her on Giftmas morning so she doesn’t experience the morning alone. No need to delight her with my curiosity about what my Traveling Partner may have gotten me, or made me, this year. She’s just…not here. My sorrow tries to swamp me every time I remember, and I really need to get past that somehow. It’s a lot. Granny? Gone, too. And Mom. And my long-gone girlfriend, T. There are unshed tears waiting their turn to fall, and I need to allow myself time for that this year.

I’m eager to hit the road, and hit the trail. Eager to walk my own path and feel my feelings (there’s no shame in these honest tears). I’m eager to begin again on the other side; the way out is through.

Well, shit. Every now and then, just when I start feeling like maybe I’m “well” and whole, and not beat down by bullshit and baggage, and perhaps just maybe there’s something like a “happily ever after” potentially lurking around the next bend in the path… I have a day like today. It’s been a wild ride…

I spilled my Traveling Partner’s coffee early in the morning, mere minutes before we needed to leave for an appointment we could not risk being late for. It didn’t take long to clean up, but it disrupted my calm rather a lot.

The drive into the city got going pretty nicely, except for some reason my Traveling Partner’s phone wasn’t pairing, and once it did, it seemed all his personalized settings for the truck were gone. Annoying. Negative emotions carry a certain unfortunate contagion, too. It was less than ideal.

Traffic was routine, but the route the GPS selected, while familiar, was the most likely to be congested, and it was pretty annoying to drive past a turn that could have taken me down pleasant country roads. That’s on me though, eh? I know GPS is not “AI” – no intelligence, no understanding, no context to the decision-making. I could have chosen differently, but decided against it. My reasoning was poor, and I paid for that.

We got to the appointment in plenty of time, but in the process of getting the truck parked…well…I… Let me start by pointing out that a) I never measured the height of the truck with the tire on the roof rack, and also b) the height wasn’t noted anywhere obvious as I pulled in. Yep. I entered the parking garage, and as I turned around the bend to the next level up…I scraped the roof rack, tire and all, right off the top of the truck. 😦 Well, shit. Fuck.

…Not my best moment, not my best day…

…It could have been ever so much worse, and both the truck and I are entirely fine. The roof rack? Not so much.

My Traveling Partner got to his appointment. We managed to also get safely home, mostly in pretty good spirits. I went on with the day, dropping pill containers (shit!), knocking over books, bottles, objects… it’s just been that sort of day. Also… it’s been hot. Like seriously fucking hot, and I am grateful that the day was such that I got to spend most of it indoors, in A/C. Like I said, could have been so much worse.

Yeah. Fucking rough. Some days are. My pain is pretty well managed. Things have calmed down. It’s evening. The house is comfortable, and quiet. I’m fine, for most values of fine… and it’s enough. Tomorrow? Yeah, of course, obviously – I’ll begin again. (Again.)

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.

I got my walk in early. I started just at daybreak on this mild Spring morning. I walked a bit aggressively, lost in my own thoughts, eyes fixed on some point ahead,  but without really seeing. I felt cross about the way my morning started (with my Traveling Partner’s aggravation over being wakened and struggling to breathe, as I finished dressing to leave).

…Took me awhile to let it go…

I had wished him well and expressed my hope that he could get back to sleep. He didn’t seem to think he would and expressed that in a way that kept our exchange on my mind as I walked along, over-thinking it unsatisyingly.

…I seriously could have done a better job of letting it go, and letting small shit stay small…

I didn’t really begin to enjoy my walk or adjust my attitude until after he pinged me a cute sticker of a little cat tucked in for sleep, indicating he was going back to bed. Damn, I love that guy. At that point, I was easily able to settle down and sort myself out, with a sigh and a smile and a feeling of gratitude. Shit could be a lot g’damn worse in life (and love).

…We’re each having our own experience…

When I sat down to write, I took a quick look at the “page stats” for this blog (it’s not about numbers so much as insights into what people choose to read, and I often find new relevance in old writing). I found myself re-reading a post from almost 18 months ago, and reflecting further on perspective, change,  and the importance of self-care. It gave me real clarity on the morning, and restored my sense of perspective generally, and how good things truly are. Reading a relevant older post is another way to “be there for myself”, and practice good self-care, and another way to regain perspective. (I say a silent “thank you” to the reader who read that post yesterday; reading it this morning was helpful.)

…My Traveling Partner is on his own journey, having his own experience, and taking that at all personally isn’t a helpful approach to partnership…

Here. Now. Perspective. Sufficiency.

I breathe, exhale, and relax. It’s a pretty morning. The temperature here is a comfortable 50°F or so. The sunshine lights the blades of grass and the trunks of the oaks in the grove where I sit perched on a picnic table enjoying the sunrise. It’s still quite early and I am not rushing back to the house. I’ve got a cup of coffee and this quiet moment to myself and I am enjoying it.

…Sometimes the best thing I can do to take care of myself is to simply take a few quiet minutes to breathe and reflect…

Later today I will take my Traveling Partner to an appointment with a specialist. I hope there is promising news about what can be done and what the long term prognosis for his recovery from his December injury may be. It’s hard watching him suffer and struggle. I feel so helpless so often. I definitely want to do more to alleviate his pain and discomfort than I seem able to. It’s not about me, though; I just want this human being I love so dearly to be okay.

I sigh out loud and catch myself picking at my cuticles anxiously. Yeah… still human. Still prone to worry and stress. I breathe the fresh Spring air deeply and exhale slowly. I can smell the hedge roses that are on the other side of the parking lot adjacent to this park where I am sitting, and the scent of recently cut meadow grass. I enjoy the smell of Spring, grateful that my seasonal allergies are nothing like as severe as my Mother’s allergies, or my Traveling Partner’s. They’re mostly pretty mild, and seem very specific to certain local flowering trees. That time of year is already beginning to pass.

I am in rather a lot of pain this morning. It’s been an issue all week. I take the medication I have for it. I cope the best I can. I remain unwilling to let my pain call my shots and I try to “just live my life” in spite of it. My results vary. I make a point of not complaining much about it, to the point of generally mentioning it only in passing, if I mention it at all, in conversation. It’s not that I find this to be a helpful strategy, it’s just that there’s nothing to do about it, really, that I’m not already doing, and I am very much aware that my partner is in a great deal more pain than I am. I don’t want to make that about me. I just want to do my best to support and care for him while he’s injured and working on recovering. He knows I am in pain, it’s a chronic condition. No point making that “a thing” – right now it’s just a distraction.

I sit with my coffee and my thoughts awhile longer. Soon enough it will be time to begin again.