Archives for posts with tag: pain and pain management

Huh. Just for a moment I had the strange sense that I was completely wrong about the day, and that instead of the Monday I was thinking it was, as I sat here in the office, it was – perhaps – only Sunday, and I did not need to be here at all. A quick double-check of the calendar (and then my phone, and then the tiny date/time at the bottom right of my computer screen for good measure) reassured me that indeed it is Monday. I may not be overly enthused about that, on its own, but I am at least not incorrect about what day it is. lol

A perspective on some orange flowers.

The morning has been a slightly odd one. I woke much earlier than necessary, but got up and made coffee and hit the road anyway. I didn’t have quite enough time to return to sleep, and definitely did have time to make a point to remember my packed lunch, and to make myself some good coffee. Even the commute was somewhat strange and definitely not routine in any way aside from the route I took. I hit every traffic light green, and there was almost no traffic at all. I drove the speed limit, feeling unstressed, unbothered, and unhurried (which makes sense since it was quite a bit earlier than I am usually on the road). The office is chilly in a Spring sort of way, and my thoughts linger in my garden, in spite of the darkness beyond the window. Funny thing; the weekend was quite productive, and I seem to recall it feeling “busy”, but… at least for the moment, I don’t really recall anything that stands out as eventful or special. No, I’m wrong – one thing does stand out; my Traveling Partner rebuilt, refreshed, and enhanced our household automation, updating and correcting some out-of-date programming and making upgrades that had been planned before his injury. Quite successful and useful, and delightful to use. There’s that. That stands out. Nothing much that I did comes to mind at all, but damn I’m sore like I did a bunch of stuff. LOL I also didn’t do a bunch of stuff – I was supposedly “taking it easy”, but I don’t feel like I actually managed that trick. Feels like I just did other stuff, instead of the usual stuff.

Same flowers, different point of view.

I rub my eyes, yawn, and sip my coffee. I still don’t feel quite awake yet, which is strange; I’ve been awake now for almost 3 hours. Groggy. Foolish. Mind wandering. Feeling vaguely purposeless and “out of focus” and caught in a sticky web of random thoughts and distractions. My sleep was restless, interrupted, and filled with strange dreams. I may not “need” more coffee…but I’m sure going to have more! lol The morning feels a bit surreal, so far. And chilly. It’s chillier in the office than it has been. As if in response to that observation, I notice the small heater that was left in this office space at some point. I sip my coffee and consider the option to use it, without acting on the thought. I could, though… If I choose to.

A different angle on the same theme.

I sigh to myself, and try to shake off my grogginess by literally trying to shake it off. The sight, reflected back at me in the window makes me laugh. The laughter does more to wake me up than the shaking did. I sip my coffee, now at that “perfect drinking temperature”, and think about my Traveling Partner sleeping at home. I hope he gets the rest he needs – he has a day of work planned (and specific projects in mind) with the Anxious Adventurer’s help. He’s recovered from his injury and surgery to a point that he has begun “picking up where he left off” on all manner of tasks and projects that fell to the side when he got hurt, although he still has a way to go before he will be “at 100%”, maybe a long way to go (there’s quite a lot of work involved in fully recovering from a spinal injury and surgery). I feel relieved and delighted to see him doing so well. I can’t even describe how worried I was at some points, and I don’t like to think about it.

It won’t always be flowers and garden paths; sometimes it’s an uneven path, an uncertain destination, and a distant horizon.

Being a caregiver has been one of the most difficult things I’ve ever undertaken. I give myself about a “C” on that endeavor, if I’m honest. Even with all of my best effort, I lacked experience and skill, and I fucked up a lot (and I was exhausted all the time), and I could have done so much better given time and training and more practice – but that wasn’t how things went down. I did my best. I can say that, and for most values of worth, it was enough – but fucking hell I wish I could have done more/better for longer. Caregiving is fucking exhausting. If you know someone who is a caregiver (or, frankly, a parent), be appreciative, considerate, and kind; that’s a lot of fucking work they’re undertaking to do, on top of trying to live their own life and manage their own self-care, and possibly also working a full time job (especially if they are committed to doing all of it well). Fuuuuck. That’s a lot. Sometimes it can feel like an inhuman amount of effort is required, and it can feel like the stakes are “too high”. Be helpful if you can – and for sure just don’t be an insensitive jerk about the situation, most especially if you’ve never had to provide full time caregiving yourself. It’s a hard mile to walk. I worried the entire time. Worried about the future. Worried about my beloved. Worried that I wasn’t good enough or capable enough – and painfully aware that things could be still worse.

Walking my own path, one step at a time.

I breathe, exhale, and relax. It’s just a routine (mostly) Monday. Things are okay for most values of “okay”, and the day begins well (if a bit groggily). It’s time to get on with that. Another beginning. Another day. Another mile to walk on my path. Time to begin again.

I slept somewhat poorly last night, restless with pain mostly. My dreams were filled with chaos and uncertainty, and the occasional random spider. Odd. I woke in the usual way, dressed and left the house, head still full of chaos. My thoughts as I drove up the highway reflected the restlessness of the night and the chaos in my head; I reflected philosophically on a variety of seemingly unrelated ideas, the only connecting thread being my own individual perspective, as I exist today. Useful? Hardly. Barely interesting, already forgotten.

I get to work, in less pain than yesterday but still feeling it as a distraction. I take my meds, get some coffee. I sigh and get things set up for the day. It’s a routine work day and I’m grateful to be working…but…

…Fucking hell life is expensive, and “enough” doesn’t always feel like “enough”. I say this acutely aware that I write from a place of relative privilege. Things could be better, yeah, but they could sure be a lot fucking worse. (And have been, in past eras of my life). My pain grates on my nerves – but so does my feeling of discontent and stress over the future. (Will I ever retire? It doesn’t seem at all likely at this point, until lack of fitness for such endeavors forces me out of the workforce to exist on whatever resources remain. A grim thought, and I try not to linger in this place.)

I breathe, exhale, and relax. Some days it is a force of will to be in a positive frame of mind. This doesn’t mean inauthentically silently screaming positive aphorisms to myself in my head or forcing a smile to the people around me while I proclaim that “everything is fine” – that doesn’t work. “Fake it till you make it” is not my way; I haven’t found success there, myself. Instead, I rely on practicing gratitude – legitimate, heartfelt appreciation for the things that are working, the things that feel good, that things I have, or do, or feel, that truly lift me up. There’s a lot to be grateful for, and generally the very temporary feelings of stress and discontent will pass if I don’t dig in and build myself a trap to fall into. So, here I am. I “feel around in my headspace” looking for a route to reclaiming my sense of self, my perspective, my feeling of being empowered… I remember I playlist I started once-upon-a-time that might be helpful right now… “No F*cks“. Hmmm… Pretty short playlist. I distract myself wondering what to add that fits the theme. I have definitely found that a “positive distraction” can help shift my mood from the dark places my thoughts sometimes wander.

“Anxiety” 10″ x 14″ acrylic on canvas w/ceramic 2011

I breathe, exhale, and relax. I catch myself wondering about the background stress and the thread of anxiety running through my thoughts. What’s up with me? Is it work? Is it life? Is it my doctor’s appointment later today? Oh. Yeah, that could be it, for sure. I sigh quietly. Aging has it’s ups and downs, and the doctor’s appointment is no big thing, but it brings my anxiety about my pain and long-term wellness concerns more to the forefront of my consciousness, where I thoughtlessly push it back in the form of anxiety. “Saving it for later.” Unproductive. I take a minute with myself. I do a quick “body scan”, and an “emotional inventory”, letting myself be more fully present and in touch with the feelings and sensations in my here and now moment. More than the usual pain, but a lot of it is still “just sore muscles”. My headache is worse than usual – and my health insurer (through their bullshit evil middleman) has decided not to reauthorize one of the few things that really actually gives me some pain relief (not a prescription drug, but a physical therapy). It “won’t fix anything”, which is their justification for denying reauthorization, and that’s certainly true – but there isn’t actually a treatment that will “fix” my degenerative disk disease, my osteo-arthritis, or the headache (at least nothing has been proposed as likely to be a real solution, so far). I would think relief and improved quality of life would be a good choice, with that in mind…? I catch myself gritting my teeth with suppressed fury. The pain is bad today, and I’m annoyed because it didn’t have to be, and it may be getting worse before it gets better. Cheaper to addict patients to powerful painkillers and shame them for being junkies than to provide care that actually eases suffering. Fuckers. Another breath, and I let that go. I can care, even if my insurer doesn’t. My Traveling Partner cares. My doctors care. Those things matter. Doesn’t make it easier, but I’m at least not traveling alone.

I let the music play in my ears, and sip my coffee. Sometimes enough has to be enough – even when it doesn’t feel like “enough”. Sufficiency is often not what I want it to be – it’s only what it is. Things could be legitimately worse – far worse. I’ll make the best of what is – because that’s the path I’ve chosen to walk. That’s the woman I most want to be. Capable. Fearlessly self-aware. Doing my best. It’s not nothing – and sometimes something is all I need to get by for awhile.

I smile to myself. I feel it still. I definitely do. It’s time to begin again anyway.

It is a gray morning on the edge of winter’s end. Spring soon, and this morning hints at that, mild and wet and so very gray.

Early on a morning in March

I sit quietly for a moment before I head down the trail. I listen to the flocks of geese overhead and the sound of traffic on the highway beyond the nature park. Everything is muddy. Marshy. So gray. My head aches ferociously. My arthritis pain is a serious distraction. Still, I’ve got my boots on, and I’m here. This trail won’t walk itself. I sigh quietly and try not to anticipate the pain of every step ahead.

… I’ve just got to actually begin…

Yesterday afternoon I spent time in the garden. It was lovely. Time well spent. I’m paying for it now, I suspect, the bending and reaching is not ideal for my spine. It’s okay, though; the garden needed attention. If we don’t tend our garden, we surely can’t complain that all we have are weeds! The roses are pruned and ready for spring. I put down some fertilizer for the hungriest ones. I got started on cleaning up the veggie bed, too. Weather permitting, I’ll finish that today. After my walk, I remind myself, I can stop at the garden supply store and pick up soil amendments , or at least look around and put myself in the mood.

Another sigh. Another moment. It isn’t always easy to get started down the path, even when I have an idea where I’m going. Sometimes it’s more a matter of will than enthusiasm. It’s still a beginning. It’s still time. I push myself off from the side of the car, where I’ve been leaning, ready but not yet going. I look down the trail a little unenthusiastically, and get started. It’s time to begin again.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

Last week’s snowstorm feels like a long time ago, not the short 4 days that it was. The long weekend I was so fortunate to enjoy stretched time and gave me an opportunity to really rest, to get a few things done, to enjoy my Traveling Partner (and my life) – and I took full advantage of it. I stayed up later. I slept in a couple times. I even took an afternoon to dive into a long-waiting personal project to do with sorting and filing and tidying up my many digital images of my art work. That was incredibly satisfying. I cooked a couple of really good meals. I enjoyed breakfast or brunch with my beloved each morning. Time well-spent. It wasn’t “fancy” or costly or exotic, it was just… mine. I needed that.

This morning I woke to my artificial sunrise and prepared to head to the office. I didn’t notice until I was almost half way into my commute that I had somehow set my wake up time to… 04:00. Good grief, really?? I definitely did not need to be up that early. No traffic, though… pleasant, quiet drive.

Now I’m at my desk, drinking my coffee, trying to stretch enough to feel… different than I do. I don’t know what I’m going for, maybe, but I think “comfortable” would be good. I feel unexpectedly sleepy, in spite of the coffee (because of it?). I didn’t sleep particularly well last night. I am paying for that, and the early wake up, in physical discomfort and restless sleepiness. My back aches with my osteo-arthritis. My neck aches from degenerative disk disease. My headache is with me this morning, too. My shoulders feel tight in spite of adjusting the height of this adjustable desk several times. The delicious relaxation of the weekend gives way to the subtle tension of the work week. I stay away from the news; it’s all pretty bad, and none of it is “new information”. It’s all stories about shitty people doing terrible things to make a name or profit for themselves, in some cases out of nothing more than pettiness and spite, other people standing around wringing their hands and not doing much of anything helpful about any of it. The usual. Human suffering. Human greed. Human cruelty. No superheroes.

…And I’m fairly fucking over hearing about Elon-fucking-Musk. I mean, seriously? That fucking guy. How he’s managed to con so many otherwise rational-seeming people is just beyond me. Why keep giving him more money for products he will not ever make? Can we not also let him tear down our fucking government? Are his substantial and obvious conflicts of interest not enough to make that clearly a terrible idea?! Fucking hell. Just how fucking stupid and gullible are we?

I pause my writing to hunt for a tissue in the quiet empty office. Noticing how good it feels to actually move around, I wander a bit, and take a walk around the building, outside, stretching, and taking deep breaths as I walk. I bring my attention back to “now” – where I am. This moment, here. Daybreak has come, dawn is here, the sunrise is imminent. It is a new day, filled with new opportunities. I amuse myself with observations of how good self-care sometimes feels. Funny that it can feel so hard to make time for those practices…

I sigh to myself and return to my desk, along with my aches and pains. Typical shit. Most of us deal with some measure of pain, some of us deal with more. It’s part of the human condition, and I try not to take it personally, and also do something about it and get on with my day. I smile fondly when my thoughts return to my Traveling Partner. I hope he gets the rest he needs. (He’s also been sleeping poorly.) I look at my calendar, check over my email, plan my workload for the day… It’s time to begin again.