Archives for posts with tag: pain management

It’s shortly after midnight. I’m awake, not because it’s Friday night and I stayed up late doing something. Nope. I went to bed a bit early, in spite of the somewhat noisier Friday night guests, and crashed pretty hard. I slept deeply for a little while, but woke several times to discover I’d pulled my CPAP mask off in my sleep. Weird. I’m not surprised that woke me each time that it did; I struggle to fall asleep without the mask these days, in spite of it giving me occasional nightmares of having to wear MOPP gear. Not an experience I ever enjoyed, and not a bad dream I want to have. Tonight wasn’t about that, though, it was just weird. lol

I woke a little while ago, and my consciousness roused sufficiently to recognize more than that I had removed my CPAP mask – I recognized the likely cause(s). Acid reflux. Headache. Osteoarthritis. The exceptionally quiet darkness after a rather noisy evening. Now I’m awake. I took an antacid. I got a drink of water. I put on a capsaicin patch where my pain was worst. I took something for my headache. I got up and stood on the balcony looking out into the velvety dark night, out across the bay, feeling the cool air on my skin, and looking out into the night for some little while. No moon. Few stars – fog? Mist? Clouds? Across the bay, most of the homes along the Salishan Spit are dark tonight, which surprises me at this relatively early hour. No bobbing lights of shallow bottom boats on the bay. The tide is coming in. I stand awhile, listening, watching, embracing the solitude and the darkness.

It’s been a good couple days of painting. I’ve got another day of it, tomorrow. I miss my Traveling Partner – I’ll be happy to head home Sunday. I stand in the quiet darkness wondering how to bring “more of this” to my experience of life at home. I often wake during the night, at home, but rarely get up or doing anything much about it. Shared living subtly discourages it; I don’t want to wake anyone else. When I live alone, I often do something more than roll over and go back to sleep. Funny thing is, when I’m living alone, I don’t easily “just go back to sleep” – so getting up makes sense, and I do. No stress to it, just a way of living. When I am sharing a living arrangement, I tend not to be awake enough long enough to bother. I go back to sleep because going back to sleep makes sense. There’s no effort to it, these days, and no anxiety to being awake. I don’t actually know why there’s a difference in these experiences (for me). Perhaps living with my Traveling Partner simply finds me feeling somehow safer when I wake in the night, and more able to return to sleep because of it. I don’t generally “toss and turn” if I wake… I just go back to sleep, maybe after getting up to pee, or get a drink of water. Weird. I chuckle quietly to myself, that’s a known thing; humans are weird. lol

…The “more of this”, though, that I’d like to bring home with me, isn’t about the wakefulness in the night. I’m satisfied to roll over and go back to sleep, at home, in my own bed. I’m not grousing about that at all. It’s more… the art, the sense of creative presence and inspiration, the subtle feeling of freedom to “do whatever I want” in all the minutes of my day. Perhaps this really is best left to vacations and time away, alone… it sounds pretty “selfish” on paper, and a somewhat adolescent perspective on adult freedom – untethered from the very real responsibilities of adulthood that most definitely exist. I sit with the thought awhile, after I step back in from the chilly darkness of the balcony. I think about compromise. I think about choices.

I’ll go back to bed soon. I’m already both tired and sleepy. I’m only awake because my thoughts continue to meander wakefully, and I’m honestly sort of encouraging that, in spite of my awareness that sleep could easily overtaken me, given a chance. It feels like a luxury to enjoy the quiet of the night. The world sleeps, the moment is mine…

I’m awake in the wee hours. “The bottom of the night”, I used to call it – it’s just minutes shy of 03:00 a.m. Why the hell am I awake? I feel… sleepy… but I’m not asleep. I toss restlessly for a few minutes. I get up to pee, take an antacid, and go back to bed. Sleep chases me, but doesn’t catch me. lol

I finally just get up. Why not? I’ve got this hotel room to myself, and the world sleeps around me. Beach campfires that were lit in the darkness, visible in the distance, are extinguished now. The lights of late-night beachcombers are gone. Dinghies and fisherman, too, have all gone. There’s nothing but darkness beyond the balcony and across the bay. So quiet. My right knee aches for no particular reason – is that what’s keeping me from going back to sleep? Pain? How commonplace! I pour a glass of cold water and turn on a light. My back aches… more pain. Ridiculous. I’m annoyed by the pain, mostly because it seems such a stupid thing to be dealing with when I could be asleep, dreaming, resting, healing to take on a new day.

…Pain is part of the human condition, and most people have some, whether we see it or not…

I sip my water and let my mind move on. It’s late for it, and it may make me wakeful, but I don’t have to work, and if I chose to do so, I could nap all day tomorrow simply by choosing to… so… why would I sit here suffering? I mean, aside from suffering also being part of the human condition? lol I put a capsaicin patch on my knee. It helps.

…Now I’ve got fucking hiccups…

I breathe, exhale, and relax. The quiet is pleasant and uninterrupted by any concern about waking anyone else. I feel relaxed and contented, if not physically comfortable. Small win, but I’ll take it – it’s nice to be wakeful in the night with no hint of anxiety. Sure, sure, I could be sleeping right now, but I’m not, and that’s okay, too. I’m okay for all observed values of okay, aside from a bit of physical pain – and let’s not kid ourselves, eh? A lot of people have it worse right now, at this very moment, dealing with pain, sorrow, disadvantage, hardship, anxiety…fucking actual bombs… there are so many things that can and do go wrong in a human lifetime. I’m grateful that the only thing amiss for me in this moment is that I’m awake at 03:00 a.m. I’ve got this… (If you know, you know – if it’s 3 a.m. as you read this, I recommend headphones before you click the link. lol).

Time is eternal

G’damn, I should fucking go back to bed. I laugh quietly. Now I’m not only awake, I’m managing to have a good time with it, feeling merry, feeling… joyful. A great playlist and Bluetooth headphones; I am untethered and free, dancing in the darkness. lol Good grief, humans are weird. I smile to myself, enjoying the moment, aware that somewhere “out there” on the fringes of the many people I have known, and lives once lived, the Party People are probably also dancing, wrecking themselves midst the house-parties that never end, in some un-named trap house somewhere far away. My recollections connect me to them by a mere thread between the recalled “then” and the lived “now”. I’m okay with that – I’m not about that life. lol I do love the music…

The music plays, and I dance on. Eventually, I’ll sleep, wake, and begin again.

This morning an enormous full moon hung overhead as I left the house. I tried to get a good picture of it, which is to say a picture that looked like what I was seeing. This proved quite difficult. The camera “wasn’t seeing it right” – or at least it wasn’t capturing my perspective well, at all. Funny thing is, the camera only sees what’s there. It’s my perspective that’s giving me the beautiful view I’ve got. My brain changes what I see, providing undetected foreshortening, changing the scale based on what seems important to a human primate, things like that. I see a fantastically luminous full moon, very large overhead. The camera shows me what was actually there. I think this is worth thinking about. We create a lot of our experience and what we see and understand about the world. Our perspective may not reliably reflect what reality actually presents.

… Perspective is very personal. We’re each having our own experience…

So, I find myself thinking about the lens through which I view the world. It’s probably worth thinking about.

In the darkness, a man approaches my parked car unexpectedly. This is a first at this trailhead. He appears to be wearing jeans and a T-shirt, which seems strange for the chill of the morning. He begins asking, breathlessly, if I would give him a ride home, and says he’s run six miles, which also seems very strange – running at this hour? Along the highway? I firmly reject the request without opening my window and direct his attention to a nearby bus stop. I double check that my car door is locked, though I know it is. The lens through which I view the world tells me this individual is more likely to be dangerous than not.

Daybreak comes soon, but I’ve become reluctant to walk the trail in the early morning twilight. I examine the feeling more closely, as one might examine a watch under a jeweler’s loupe. Am I overreacting? Being ridiculous? Responding to a non-existent threat? Relying too heavily on past experiences with dangerous strangers? Perhaps, perhaps not. Sometimes we only get one chance to be wrong about something like that.

I sit with my thoughts awhile. I think, too, of my Traveling Partner, and the way our experiences with other lovers, in other relationships, informs our responses to each other in some moment of stress or conflict. We’re each having our own experience. Always have been, whether the experience is shared or not. We see the world through a different lens. Our perspective is our own. Even taking a much closer look may not reveal additional commonality so much as blow up our fears or doubts way beyond what they deserve… but it’s quite difficult to remain aware of it in the moment.

Between daylight and darkness.

I see the silhouette of the stranger in the darkness, lingering between the nearby bus stop and the trailhead parking lot. Why? I feel grateful for the techniques I learned for seeing things in the darkness that I learned as a soldier. So many things I have learned in a lifetime have had lasting utility. Unable to ascertain the stranger’s intentions and uncomfortable with his proximity, I move the car into the more distant parking lot as soon as the gate opens. I wait for daylight. I wait for the sunrise. I wait for a different perspective and more information. It’s nothing personal or even directly to do with that stranger; I’m choosing to silence the alarm bells clanging away along my nerves by reducing the potential threat. Feels like the safer choice.

Strange morning. Nothing really wrong, exactly. Good morning to think about perspective and the lenses through which we view the world. How accurate are those, really? I suppose only as accurate as our experiences hone and polish them to be. Probably not very accurate at all – how could they be, if we’re each having our own experience?

I think about conversations with my Traveling Partner yesterday. Some of those went incredibly poorly. Some were contentious, others loving. There were numerous miscommunications and misunderstandings. We don’t reliably see the world (or our shared experience) through the same lens. We’re different people, having our own experience, lived through our own perspective. It’s complicated by my brain damage. It’s complicated by the medication he’s presently on. It’s complicated simply because being human can be so complicated all by itself.

I breathe, exhale, and relax. Today is a new day.  I am fortunate to love so deeply and to be loved deeply in return. I have an opportunity to do better, to be kinder, to listen more deeply and to practice non-attachment. Perspective does matter, and so does giving people the freedom to have their own (and to have that respected). Another breath. Daylight comes. There’s no sign of the stranger who approached me in the darkness earlier. I feel a sense of relief.

It’s time to begin again.

I woke gently after a restful night. I made coffee for my still-sleeping Traveling Partner, and slipped away quietly into the pre-dawn darkness, headed to the trailhead and another walk at sunrise.

Not quite daybreak, still a new day.

My Traveling Partner wakes before dawn, and pings me a question. This is two mornings in a row that abrupt communication without any sort of greeting or preamble have interrupted my only reliable opportunity to take a little quiet time for myself that doesn’t require me to take that time away from some other purpose or person. I’m momentarily irritated that I’m not important enough in the moment to at least rate a greeting or a “good morning” before questions and complaints. I’m feeling moody over the lack of consideration for this precious self-care time and puzzled by the lack of awareness that I need this for me. None of my partner’s questions or concerns seem so urgent that they couldn’t have waited until after my walk. I sit quietly after the conversation ends, wondering whether to bring it up, and how I could do so without making drama. Is it worth the potential discord? I could have chosen to ignore the pings until later… seems rude to do that when I know he’s home recovering from surgery and could need help. I feel a bit trapped between circumstances and manners.

…He sets boundaries so easily. Why is it so hard for me…?

I breathe, exhale, and relax, and work on getting back to me, after our conversation ends. This quiet time, meditating, reflecting, writing, and walking, is very much part of how I care for myself and maintain my emotional wellness, and build resilience. It has become comfortably routine, and almost “non-negotiable”. Yesterday’s lack of a walk ended up being something I felt all day.

Daybreak comes, and an opportunity to begin again.

I sigh to myself as I lace up my boots. No colorful sunrise this morning, I guess. The sky is cloudy, and hues of blue and gray. The air is mild and scented with meadow grasses and wildflowers, a very particular fragrance both spicy and sweetly floral. I enjoy it. It reminds me of Oregon, which doesn’t surprise me; that’s where I am.

… I head down the trail, intending to finish this at the halfway point…

I get to a nice spot to sit for a little while. It’s a quiet morning and I have the trail all to myself – a pleasant luxury, and rare on a Saturday, even so early. My neck aches ferociously, and my headache is an 11 on a 1-10 scale this morning. I am grateful to have an appointment with a skilled practitioner later this morning. I’d like to enjoy the day without being in this much pain. It’s very distracting. It pulls my focus away from these words and this world again and again. Most unpleasant.

I thought I had something of more substance to write about this morning. It had begun to take shape as I drove to this place, but distractions and conversation with my Traveling Partner caused my thoughts to unravel too quickly to capture even a loose idea of what was on my mind at the time. No matter; I began again. I tend to “write where I am”. Whether that perspective is geographical, metaphysical, or emotional isn’t all that important. In any case, it is the moment I find myself in.

I sit awhile with my thoughts, not writing, and without any particular direction or theme. Pain sucks. I have difficulty recalling a time when I was living pain free more days than not… How long ago…?  I think I would have to measure in decades. The arthritis in my spine set in sometime in my mid-twenties. It’s been with me awhile – much longer than my headache. I distractedly rub my irritated neck. 9 or 10 years for the neck, I think… Fuck pain. G’damn there’s too much of that in the world. I snarl quietly to myself and yield to the demands of my pain, and take an Rx pain reliever earlier than I usually do. I glare at the cloudy sky thinking it’s likely the weather making the pain worse somehow. I laugh at the thought; it sounds stupidly primitive and superstitious, and not very rational. What do I know about it? I’m just a fucking human primate trying to cope with my pain any way I safely can.

I hear voices up the trail. By the time I get back to the car, it’ll be time to head to the city for my appointment. I think about my Traveling Partner, and remind myself to stop by the pharmacy for his prescriptions on my way home. I feel like I am forgetting something, but I don’t know what. I’d love to spend the day painting, but I don’t see that happening today… I hurt, and I’d just as soon go back to bed.  “Fuck pain.” I say out loud to myself. I don’t want to give in to it. There’s so much I’d like to do.

I get to my feet, and stretch, and rest my weight on my cane for a moment, making certain I’ve “got my feet under me” before I head back up the trail. It’s already time to begin again.

I’m drinking my coffee and catching up on work. It feels an eternity since I’ve logged into work tools, but it’s been more or less a long weekend, just busy and about as far removed from my professional work as it could possibly be. Feels strange, and oddly comforting to be back to work.

My headache woke with me, and it is ferocious this morning. My sleep was interrupted at scheduled intervals through the night to provide my Traveling Partner with care as he recovers from his surgery. The surgery went well. So far the recovery is going well, too, it seems. It’s complicated by volatile emotions on all sides, and the quantity of potentially mind-altering prescription drugs involved doesn’t make that “easier”, at all. Whether tempers or tears, when feelings flare up and escalate, I keep finding my way (unsteadily, awkwardly, doggedly) back to some sort of calm – which feels like progress. I don’t think I could have managed this as well as I am ten years ago. I bet I could manage it better another 10 years from now. Progress. Incremental change over time. We become what we practice.

…I’ll say that one again, because it’s super super important; we become what we practice. If your default is tears, tantrums, and drama, I promise you’ll get very skilled at those behaviors, and those will be the increasingly common outcomes. If you practice calm, you become calm. It’s that simple. (Which is not to say that it is “easy” – it’s isn’t easy at all, and it requires a lot of practice, and persistence.) For me, the hardest part is breaking old habitual behaviors and reactions. I’ve become pretty hard to provoke in the context of my professional life, which is great. I’m often still quite vulnerable to provocation in the context of intimate relationships. (That’s probably pretty commonplace.) Lately, all of it is further complicated by this fucking headache that follows me everywhere.

I breathe, exhale, and relax. I’ve taken my meds, had a big glass of water, and I’ve got this excellent cup of coffee. No walk today, which feels weird, but I need to be here at specific times to care for my Traveling Partner. I’m tired – it’s something to be mindful of, because it holds the risk of volatility as my fatigue deepens later in the day. Maybe I’ll get a walk in later? I notice that my thoughts are less than ideally well organized. I’m distracted by my headache, and by my awareness that my partner is in the other room; I’m alert for the sound of his voice expressing a need or a want, or some opportunity to provide him with support. Competing priorities on top of this headache and my fatigue…I could be a mess right now, but I think I’m mostly okay, which is nice to be able to count on, today.

Don’t forget to slow down and enjoy the journey.

Sometimes it feels like the journey from hell to some better place is endless…but…so much of this human experience is relative. I think back on other experiences, other days, other moments. I reflect on the Parable of the Mire. It wasn’t all that long ago that I was truly mired, myself. It has been a long journey – a worthy journey. A “heroes journey”, in a sense. I mean…I am having my own experience, and this is my journey, my tale, my adventure. I have another sip of coffee and think another thought. I reflect on the “wrong notes” and recent missteps, and what I could have done differently. I rehearse “better” (more desirable) behavior in my head, playing out dialogue that went wrong with different words, different reactions, “practicing” different “scripts” for better results more closely aligned with my values, hoping to do a better job of being the woman I most want to be “next time” (there’s always a next time). I remind myself that it isn’t all about me, and that I can’t control the behavior or reactions of others. I think about the importance of non-attachment, and the risk of becoming “fused” with someone else’s emotional experience, and how best to avoid that risk.

…We become what we practice…

…Fuck, I hope the typing doesn’t prevent my partner getting the rest he needs (it’s a pretty quiet keyboard, though)…

I take a moment to think about recent successes. Small things like my Traveling Partner thanking me for good caregiving matter a lot, and they add up over time. I think, too, about progress toward personal goals, like losing some weight (20lbs or so now), and clearing my task list. I give myself some time to sit with successes, joys, and pleasant recollections. (A useful practice for building a more positive general experience and attitude toward life.)

I put my focus back on work. It’s time to begin again.