Archives for posts with tag: TBI

Well, damn. That’s more than a little embarrassing…

Yesterday was quite a lovely day. I mean, it was definitely tending to be so, and I was relaxed and enjoying the day. Work was busy, complicated, and still quite fun. The day ended well, and I just had one errand to run to finish the week and call it the weekend. Easy. Routine.

… Right?.. Right?!..

It’s pretty easy to forget, when things are going well, that I do legitimately have some… “issues”. I start feeling as if I’m “past all that”. Feeling like my chaos is neatly tidied up, the damage repaired. “Nothing to see here.” It’s a pleasantly comfortable feeling, complacency, isn’t it? Which makes it all suck so much worse when shit goes sideways in some horrifically catastrophic feeling way that scatters shards of lingering trauma, broken bits of emotional baggage, and the wreckage of good intentions everywhere. It’s pretty horrible. The emotional damage done to loved ones dealing with it is embarrassing, inexcusable, and inflicts further trauma. It’s hard to make an adequate apology, making amends is even more difficult, and the fucking embarrassment, g’damn. The shame is a heavy burden to bear, and it can be complicated to prevent that from flaring up later as still more emotional bullshit. Fuuuuuuck.

So human.

Yesterday? Yesterday went sideways over a fucking product return. Yep. That was enough to push me entirely over the edge in actual seconds, and I may never truly understand why, let alone ever be able to explain it. It was bad. I lost my temper, my grip on reality, my ability to manage my emotions or even communicate clearly at all. My Traveling Partner was trying to help, but was immediately triggered, himself by my batshit-crazy bullshit, and wholly disadvantaged by also being medicated in a way that limited his ability to manage his own emotions or to support mine. It was (emotionally) messy. Ugly. Unpleasant. And it was over a fucking package. Over a moment of confusion and doubt regarding whether I understood which specific package it was and what return code belonged to it. Fucking stupid shit. Un-fucking-believable and a completely inexcusable overreaction to the circumstances.

No, apologies aren’t always adequate, which sucks. I still apologize. I’m still sincerely contrite and regretful. The damage is done and it may take time to rebuild a sense of emotional safety and trust. The whole messy business amounts to a powerful reminder regarding complacency. A reminder that mental illness is a real thing and the practices I practice to keep my shit together and foster mental and emotional wellness are not “a cure”. I still very much have to remain alert and self-aware.

…Well, shit…

I feel bad for the Anxious Adventurer. I wanted to set clearer expectations about my mental health and what challenges living in my home could present. My Traveling Partner shut that down, at the time. (I never asked why and don’t know.) What a shitty experience all around.

Here’s the thing though…

Waiting for the sun.

… Today is a new day. I can (and will) begin again. Yes, flare ups of mental illness suck. They’re scary and embarrassing. It’s horrible to understand how I have hurt those dear to me (and it doesn’t lessen the pain or the damage done that I’m talking about emotional violence not physical violence). I’ve still got to acknowledge the circumstances honestly. Reflect on things with calm self-awareness after the fact. Restore lost order. Make apologies and amends – and also move on and let it go.

Begin again.

It’s a new day. New challenges. New opportunities. A fresh set of moments, choices, and experiences. The day begins well, as I sit at the trailhead waiting for the sun. I started a new medication yesterday, intended to ease my occipital neuralgia and possibly reduce the pain of my cervicogenic headache. Will it be effective? Don’t know yet, but so far I am tolerating well, and it seems to have a pleasantly calming effect without knocking me out. In spite of numerous interruptions to my sleep last night, I slept well and deeply. The day begins well.

…I wonder where this path leads..?

Daybreak brings a new beginning.

Scattered plump raindrops greet me as I step onto the trail. I grab my rain poncho “just in case”. The trail stretches ahead, familiar, but also unknown; each new day is different.

I breathe, exhale, and relax. It’s time to get to it. We’ve each got to walk our own mile. The trail isn’t always smooth, but the choices (and consequences) are my own. When I stumble, I know I can begin again.

I have some quiet time in the middle of this lovely Saturday. It’s pleasant. The day looks likely to be a hot one, and there’s the air show… Any time now, the background experience will become so so noisy. I’m not looking forward to it. My Traveling Partner sleeps, for now. That won’t last. I sigh quietly. There’s pleasant music playing quietly in the background. Quite a lovely moment for reflection.

I think over the tasks on my list of things to get done this weekend, all of it on top of the everyday effort to be the person I most want to be, moment-by-moment. That’s sometimes like a whole extra job. LOL I give myself a moment to acknowledge that although it sometimes feels as if it’s truly an uphill climb to make progress some days, progress does get made. It’s a journey, and the journey itself is the destination. It’s about being, and it’s about becoming. There is always more to do. There is effort involved, and practice, and my results vary. I’m very human.

I breathe, exhale, and relax. This is a pleasant morning. I’ve finished most of the basic household stuff I’d planned to do. I’ve done the trip to the store, and figured out what to do, later, about dinner. Now I’ve got some time for me. Paint? Nap? I don’t know. This headache may make the decision for me, and I’ll be honest that I resent the fuck out of that. lol

…Still…perhaps it will be easier to begin again on the other side of this stupid headache, anyway…

If you have PTSD or cPTSD, what follows may be painfully familiar, and I’m sorry in advance. Maybe skip this one? I don’t want to cause harm. Consider this a trigger warning (I’ll be talking about PTSD and domestic violence).

… I honestly don’t know whether to begin “at the beginning”, or quite when that beginning might actually be. I’m writing while also still triggered, slowly working through my anxiety and stress, and trying to find my way to a calmer place. I have the tools to manage the moment, and I feel pretty confident in the potential that I can, but it’s no easy thing. My heart is still pounding, and I can feel that my breathing is irregular, shallow, somewhere between hyperventilating and struggling to breathe. The first mile of my walk passed quickly, feet hitting the pavement too hard, pace unsustainably aggressive. I finally stop, sit, and work on properly calming myself.

For some context, after a week of providing approximately 24/7 caregiving to my Traveling Partner recovering from surgery, with few breaks, and no opportunity for deep restful sleep (or even more than 2-4 hours at a time, simply due to the timing of medication), I was exhausted, struggling with short-term memory and moments of confusion. I was also dealing with grief, having lost a cherished family member mid-week, and reconfronting the loss of my Dear Friend in the spring on the date of her celebration of life. My self-care was coming up short in places, just due to distractions and fatigue-driven stupidity.

In the evening last night, my Traveling Partner very kindly proposed that he felt up to making sure to take his medication through the night, and suggested I just get some sleep. Beyond grateful (and feeling very loved) I accepted. I even set my wake up time for a little later than usual, to be sure to get the rest I needed. I didn’t manage to sleep through the night, still waking briefly each time my partner woke up and got out of bed, and once because a laxative I had taken decided to do its thing at 04:00 in the morning. (I got a lot more sleep than I’ve been getting for the past 10 days or so, and it seems enough.)

I was soundly deeply asleep when I heard a soft voice ask me to join him in the bathroom. In my sleeping state, the voice sounded “sweetly menacing”, and seemed to me to be the voice of my first husband. A cold chill descended over me, my mouth went dry even as I immediately began getting out of bed. I don’t recall whether I replied or what I said. My consciousness felt paralyzed with dread. (Had I only dreamt my life with my Traveling Partner? Was I still trapped in a living nightmare?) I was already triggered before my Traveling Partner could even speak to me. He was stressed out, himself; one of his meds had just run out completely, which he discovered while preparing his meds for the day ahead. On a Sunday. He was panicking and needed my support – but I was also responsible for him running out of the medication! I’d been tasked with – and accepted responsibility for – ensuring his meds were timely, and available, and that he takes them. His panic expressed itself as anger, or that’s how it reached my still disoriented brain. Triggered and unsure where/when I was, I panicked, too. I fled. I took immediate action in the direction of getting that Rx filled, somehow. I wasn’t thinking efficiently or clearly.

He phoned me feeling angry and left without care. Reasonable, frankly. He gently asked me to come back, make coffee, and make a clear plan, together. I did that, dragging myself through every step, still thoroughly triggered and drenched in stress, dread, terror… None of it “real”. (No one likes being yelled at first thing when they wake, and also, no one wants to begin a Sunday discovering their partner allowed a critical medication to run out!) Nothing about the actual lived experience today actually justifies the headspace I find myself in; this is mental illness. PTSD. I’m a domestic violence survivor. Managing that these days sometimes feels like an afterthought, but this morning it’s way too fucking real.

I made coffee for my Traveling Partner, we settle on an action plan, and I leave the house, again. I’m definitely a threat to his calm and healing time in the condition I’m presently in, and I need time and space to calm myself and get re-anchored to “now”. My stress and anxiety multiply with my shame over failing my partner.

… The pharmacy opens at 10:00…

I hit the trail hard. Aggressive footsteps slamming the ground at an unsustainable (for me, now) pace. I walk myself breathless. I can’t tell if my heart is pounding with the exertion or my anxiety. My first mile passes quickly, unnoticed. I’m stuck in my own head.

I stop, finally, and sit for a minute. Breathe. Breathe. Breathe. “Be here now.” I remind myself. For most values of “okay”, I am okay right now. No one is chasing me. There is no imminent threat. Fuck PTSD. I hate this shit. How am I so terrified right now?

… I remind myself how rare it is to have to face this crap, these days…

I write a while. Meditate. Breathe. Work on calming myself. I reflect on the relationship I have with my Traveling Partner, his gentleness, his love, and our life together. “Be here now.” Now is okay. No physical violence. No being awakened in the night to be beaten. No torture. For most values of okay, I am okay right now. I save my draft and walk on, realizing I really need to pee.

I walk on more gently. I’m still seeking calm. I’m still pretty fucked in the head. My heart is heavy with the stress and hurt that I have caused my partner. It’s incredibly difficult to make amends for this sort of thing and it’s hard to overstate the damage it can do.

I breathe, exhale, and relax (well, I try; I’m still working on that).

I notice the sunshine, the blue sky, the birdsong. I notice the swarm of rally cars in the parking lot as I reach the trailhead. I think about how far I’ve come and how much time has actually passed since my living nightmare ended… 30 years? Hasn’t it been long enough to really let it go?

Brain damage and PTSD… That’s a lot to ask a partner to deal with. I find myself wondering why he stays, and can’t help recognizing that he must love me deeply to endure so much. I’ve managed to fail him too often over these months of injury (and now recovery), and it doesn’t seem fair to him. Good intentions aren’t enough, and sometimes doing my best won’t get the job done. That’s fucking awful and way too g’damned real. I curse my ex under my breath as I walk… but the responsibility for doing more/better now is mine, 100%.

I walk and think and prepare to begin again.

The past 48 hours are mostly a blur of smudgy unclear recollections and emotional impressions. Keeping up with my Traveling Partner’s care, particularly making sure medications are all taken on time, at proper intervals and dosages, is keeping me pretty busy. Juggling those details with work, and the self-care required to keep up with “all the things” has resulted in interrupted sleep, emotionality, and a generous helping of “stupid” moments. This too will pass; it’s a temporary situation. It’s generally enough to do my best.

… The tl;dr is that I’m tired, so tired, and haven’t slept well, deeply, or for more than a couple hours at a time these past couple of days…

Sunrise and a new beginning.

I woke ahead of my alarm this morning and watered the lawn, and helped my partner with his medication. I’d have rather gone directly back to bed and tried to get more sleep, but I also knew my partner had a difficult night of interrupted sleep himself. Better for his ability to rest for me to give him some quiet time. I slipped away to catch the sunrise on the trail, and the Anxious Adventurer left for work moments later.

… And here I am…

The sun rose a bold magenta betwixt thunder clouds. Once or twice lightning flashed across the sky. By the time I got here to the trailhead, thunder was breaking the quiet of the morning, frequently. No rain. Not right now, anyway, though it appears that some rain fell during the night. I find myself wishing for rain. (Thunder storms without rain this time of year are a deadly threat of wildfires.) I sit for a moment before lacing up my boots for a walk.

My head aches ferociously this morning, a combination of my “usual” headache, and lack of rest. I breathe, exhale, and relax. It’s less than ideal to let it become the focus of my day; I have too much shit to do.

My longtime friend, The Author, had planned to visit this weekend, but got COVID and if he makes it at all, the timing is yet to be determined. Disappointing. My Dear Friend’s celebration of life memorial is today, but I won’t make it; I’m not up to the long drive at the last minute, and regardless, my Traveling Partner needs my care and support. While I am considering these circumstances, a drenching tropical sort of rain begins to pound the car (I pull my feet back into the car and close the door). I think about the recent (Wednesday, 3 days ago) death of my Aunt…

…Then the tears begin to fall, with the rain…

Sometimes it just all feels like too much. I sigh, letting the tears fall without taking them personally. No reason to fight the moment. This is “my time”, and if this is what I need right now, okay. After some minutes, I blow my nose and just sit listening to the thunder and the rain, wondering about the lightning strike risk on the trail… It wouldn’t do to get hit by lightning today, I just don’t have time. lol

This morning I feel very mortal and very much aware how temporary it all really is. Life. So brief. So precious.

… I didn’t come prepared to walk through a drenching downpour, but I am sure enjoying just sitting here listening to the storm…

A different sort of quiet moment.

I sit listening to the rain, fighting the confusion and dimwittedness of fatigue. I could probably get a couple things done, since it doesn’t look like I’ll be walking… My mind feels numb. What is on my list, anyway? I scrounge around in my consciousness rather halfheartedly, instead of just looking at my damned list. The growl and loud crack of thunder along with a dazzling flash of very close lightning startles me. It seemed “just over there”, visibly, identifiably nearby. Scary. Distracting.

G’damn beginning again is easier when I get the rest I need… I don’t quite manage to laugh, and sigh again instead. I decide to quietly take my time sorting myself out, before tackling some task or another. There’s no reason to rush. I’ve got time to take care of myself. Self-care matters, too.

I sit for some unmeasured amount of time, reflecting on gratitude and joy. Thinking over the best of recent moments and savoring the recollections. I feel so grateful for my Traveling Partner, and the enduring love we share. It gets us through a lot. We’ve managed to snarl at each other far too often the last few days, as pain, fatigue, and frustration overcame our good nature in some difficult moment. We get past it. Exchange apologies. Make amends when we can. Our hearts know the way, even when we go astray – very human. All things considered, I guess we’re doing pretty well, generally. It’s hard sometimes, but there’s no lack of love. Humans being human; sometimes it’s complicated.

It’s probably time to begin again, but…

… I’m enjoying listening to the rain fall. That’s okay too.

Sometimes, regardless of your attempted attention to detail, your willingness to do more, better, your drive to improve and grow, or the hours of work and study you’ve put into being your best self, it won’t be enough (for someone, or for some circumstance). That’s frustrating (maddening), and real. It’s a harsh truth in life that while we’re walking our own hard mile one step at a time, someone else is also walking theirs, and conflict, confusion, or miscommunication can make just about any endeavor contentious and unpleasant. Humans being human. Some people are truly doing their best. Some people maybe not so much. It’s not really obvious which are which. There’s likely always going to be someone around who just doesn’t think you’re doing enough. There will be someone who thinks you’re doing it “wrong” (often simply because you’re not doing things the way they would). There may even be travelers along the way who earnestly hope to see you fail, though it will be rare for them to say so explicitly.

…We’re each having our own experience…

Points of view differ. Individual perspectives on shared events are sometimes at odds with each other. Personal values may not be shared. People are quite individual, and often we don’t even share the same understanding of the basic meanings of the most common words we use. Recollections of even the most recent events may be quite different among individuals who shared the experience. None of this makes communication easier, quite the contrary.

It can be helpful sometimes, I find, to be very open to the possibility that I’m incorrect. Mistaken. Flat out wrong. It’s helpful to really listen to what someone else is saying about their experience or perspective. This isn’t always easy; I may disagree. I may find my own thinking at odds with theirs. I may recall events quite differently. We may have different values, or place importance on different details. Being open enough to really listen and humble enough to accept that I could be wrong can make a lot of difference and create an emotionally safe environment to sort things out more easily. It takes practice (a lot), and I can’t honestly say I’m “good at it” (yet). I keep practicing.

All of this sounds good “on paper”, but it’s not “easy”, and it really does take a lot of practice, commitment, willingness to fail (and to begin again), and a steadfast refusal to take someone else’s emotions personally, and to refuse to internalize their frustration, anger, or criticism. Listen, yes. Hear them out, yes. Understand their point of view, yes. Be open and compassionate, yes. And refuse to allow their frustration, anger, or criticism to dictate “who you are”, nonetheless. Be the person you most want to be. Make room for them to be who they are, also. Becoming the best version of yourself, the person you most want to be, may bring you into conflict with people who are walking a very different path – their own path. Whatever you choose to do about that, it matters that you still live your values, take care of yourself, and treat people with kindness, compassion, and consideration.

…You’re probably going to fail, a lot…

Keep practicing. Savor the wins, however small. Learn from your mistakes, and avoid allowing them to bring you to despair. This shit isn’t easy, but it’s worthwhile. Change takes time. Time, practice, effort, commitment – and beginning again. Often. Sometimes it’s especially hard, like a barefooted walk on blistered feet down a gravel path. Sometimes it’s easy, like a firm level trail through a sun-dappled forest on a mild summer day. You’ll choose – sometimes poorly. You’ll face anger, frustration, disappointment, and grief. It’s not personal, just part of the human experience. Learn, grow, and walk on.

I sit sipping my coffee, re-reading these words. This one’s for me, from… me. I need the encouragement today, tomorrow, maybe always. It helps to reflect on what works, and to remind myself that it is a complicated journey. It is useful to consider missteps, and to learn and grow, and try again.

Keep walking.

Yesterday my sister messaged me to let me know a favorite aunt had died after a lingering illness. (COVID is still taking lives, people, be safe, be considerate, be vaccinated.) It seems like I’m now in a place in life when the losses come more frequently. We are mortal creatures. I will always remember my Aunt fondly. She opened her home to me more than once when I needed a place to heal. She was peculiar, and special, and interesting, and the first adult who would sit and talk with me for hours about all manner of things, into the wee hours of the morning. Some of who I am developed sitting by her kitchen table in Baltimore on summer evenings, talking about life, love, music, reality… I’ll miss her.

I breathe, exhale, and relax. I don’t know what’s around the next bend on this path. I don’t know how far this path goes, or where it may ultimately lead. I don’t know how long this mortal life will last, or how many moments of joy I can wring from it along the way, nor how many tears I may need to dry from my cheeks. It’s a very human journey.

…It’s time to begin again…

New day, new beginning.