I’m sipping my coffee in the quiet of the office, quite early. It was raining too hard to walk in the darkness. Honestly, it was raining too hard to walk. I would not have enjoyed it, and enjoying it is at least part of my intention, each morning, each walk. So I made the drive in to the office, early. I took time to meditate. I made coffee. I had some oatmeal. I walked the halls of the building, a bit, just to stretch my legs and be in motion. I feel stiff. It’s the arthritis, most likely. My head aches. Probably my neck. My tinnitus is loud. It is what it is, eh? A very human, very mortal, experience, and I guess I’m okay with it. There are not presently “other alternatives” from which I’d care to choose something else. I’ve got this, it’s okay, and it’s enough.
I sip my coffee thinking about a note on my calendar I spotted this morning. It reminds me that 12 years ago tomorrow was the day I found out the details of my (most serious) TBI. A head injury in the 1970s that wiped most of my memory, and set back my cognitive and intellectual (and emotional) progress considerably, but which my parents sort of… “kept from me”. I don’t remember the injury itself (hell, I don’t remember most of my life from before that injury, either, mostly just a strange assortment of third person stories told to me by other family members is what I’ve got in the place where my own memory should be, and damned few of those). I do remember having to go to speech therapy. I remember suddenly needing glasses, and being profoundly light sensitive and having a lot of headaches. I remember getting terrible grades in school, when I’d always had good grades “before”.
I found out about my adolescent TBI 12 years ago, because I was in such despair that as I approached 50 taking my own life seemed a rational “solution”, but I’d made myself a promise to give therapy one more try (it was the last item on my to-do list), and I was trying to get into a PTSD clinical trial for a new treatment. In considering my application for that trial, they turned up the microfiche records of an emergency room visit and hospital admission for my (serious) head injury. It was… news to me. The new information simultaneously explained a lot, and also brought a ton of new questions with it. Pieces fell into place – which was useful – but I suddenly also felt like I “didn’t know myself”, and that the entire context of my adolescence and early adult life was completely different than I’d understood it to be. My whole sense of “who I am” felt changed.
…The information did nothing to reduce my feeling of despair, and may have actually deepened it. It also very nearly cost me my relationship with my Traveling Partner; we were neither of us certain that I was even truly competent to be in the relationship we shared at all, with this information available to us. I was so close to giving up…
A short time later, I started this blog. A short time after that, I found a new therapist, and started a new healing journey with a completely different understanding of where I stood as I began it.
The note on my calendar asks me to consider it, and some questions – a note from past me to me here, now.
- Is the knowledge still important to me?
- What does it mean to me now?
- What does the knowledge add to, or take from, my every day experience?
- How do I make use of this knowledge in a productive way, today?
- Does knowing this about myself improve how I treat myself, or other people?
Deep. Worthy of reflection. I sip my coffee and consider the questions, as I consider that past moment when I found out. The tone of compassionate regret in the voice of the woman on the phone advising me I could not be accepted into their clinical trial for a PTSD treatment because of my history of head trauma. My feeling of surprise, of curiosity, of sorrow, of deepening despair. The call to my mother later to ask about it, and that painful moment when she hung up on me rather than discuss it. The hurt. None of that feels particularly difficult or visceral now, but it was so hard to live those moments 12 years ago. Now it’s just… information. Part of the background. Historical data. A step on a path.
This particular head injury wasn’t the only head trauma I sustained (it’s tempting to say something flippant about domestic violence being a kick in the head, but it’s not actually funny, at all), but it was new information 12 years ago, and it did lead me to consider things differently, and to learn more about what the potential consequences of such things really could be. It pushed me to consider different kinds of therapy, for problems other than PTSD. It let me put other injuries and traumatic events into a bigger picture that was more complete. It let me get therapy and rehabilitative support that I’d never been offered (or able to accept) before – and never known to ask for, or seek out. I wasn’t sure it would help to try to rehabilitate a head injury that was decades old…
(tl;dr – it totally did, a lot)
…It’s a strange path that we each walk, is it not? A journey with no map, no clear destination, sometimes a poor understanding of the starting point as we begin is… a very strange thing, indeed. The journey is the destination. I feel grateful for the many chances I’ve had (and taken) to begin again. I’m grateful for every sunrise I see, and every sunset I’m fortunate to enjoy at the end of a day. There’s no knowing how much time we get in this mortal life. I’m glad I didn’t end mine prematurely; it’s been a worthy journey so far. I hope to go much further. There’s so much left to do, to see, and to feel. So many more beginnings to undertake, and practices to practice, and also… I’ve got this list of shit to do, and the holidays ahead. lol It’s time. Again. Time to begin again. Time to walk my path. Time to practice the practices that have helped me along the way for the past 12 years.
It’s been so very worth it.
Evening Light 