Archives for category: pain

I woke in pain.

Damn it. A sentence that short doesn’t do the moment justice. Rainy, chilly, autumn days, and colder night-time temperatures, and here it is time again for my arthritis pain to become a serious shot-caller in my day-to-day experience. Damn, this sucks. I woke hurting, couldn’t roll over because my spine was locked up, rigid and aching, from my waist to my shoulders. I laid still with the pain for a few moments, taking time to be aware that I was able to breathe “comfortably” – for some values of “comfort” – and confirming fingers and toes move, and that I felt sensations in extremities.

Time for the winter practices, already? Yeah, looks that way. I slowly, with great determination, begin moving the bits and pieces that do seem pretty mobile. I flex fingers, arms, toes, feet, legs. I stretch anything that stretches. I find adequate leverage to roll to my back. I pull my knees to my chest one by one, and begin working on arching my back some small bit. I push-pull-rock and get rolled first to one side, then the other. Repeat all the motions on each side. Eventually, I am able to roll to my right side, push myself up on an elbow, pull myself the rest of the way using the arm on the other side, and a firm grasp on the edge of the pillow top of the mattress. Sitting up! Yes! It feels like triumph.

I sit for a few minutes, ignoring the tears – a combination of pain and relief, that spilled over as I sat up. Mornings like this one, I am “painfully aware” (lol) that one day I won’t be able to easily live alone; I’ll need help with basic things, at some point. Aging is a thing. I am definitely living that process. I sigh, and the sound fills the otherwise quiet room. Maybe a shower will help?

The long minutes lingering in a hot shower leaves my skin reddened in places, but my spine is a bit more flex-y, as a spine ideally would be. I don’t hurt quite so much. I can dress, with care, and anything to do with standing is as easy as ever, and that means – coffee. πŸ™‚ My coffee this morning even turned out wonderfully well, and I am enjoying it with a smile that has no trace of the pain I woke in. Oh, I still hurt; it’s that sort of day. It’s more manageable now, is all, and that is enough.

I sip my coffee and think about the phone call with my Traveling Partner last night, sharing his autumn and winter travel plans with me. I think, now, about how those may/can change my own plans. I smile. The physical distance doesn’t change much for me; we talk regularly, and the specifics of distance are irrelevant in our digital experience. We see each other when circumstances and choices permit it. (Sure, I will miss him; I always miss him when he isn’t near me, but that doesn’t have to mean drama and bullshit. lol) I was planning to discuss my reluctance to plan regular visits down once the roads begin to freeze, or snow becomes a concern (even though I have chains, it’s just not my preference to tackle long drives in icy/snowy conditions); his plans are such that it just won’t actually be a concern. lol Win and good. Convenient. Stress-free mutually beneficial planning for the win! πŸ™‚

First coffee finished, I make a second, and load a great set,Β from a favorite DJ who does a regular live cast on Facebook, to get me moving, and hopefully provide additional relief of my pain, and a bit more freedom of movement. Movement hurts, but it helps, too. Hard not to dance to great music.

I spend coffee #2 grooving in my chair, writing, and chatting with my Traveling Partner as we get our mornings started. A promising beginning to a leisurely Sunday. I open my “to do list” and frown at tasks I know I am not going to be able to do with any ease, and scroll through prioritizing the tasks that will be more easily handled today. I smile when I get to the line that says “get enough rest” – that’s one I can check off right now. πŸ™‚

No idea what the day holds, but I’m here. You’re here. There’s an entire day ahead to make something of – and that’s enough. πŸ™‚

I woke three times, all three times feeling well-rested, the first two also entirely able and willing to return to sleep – so I did. πŸ˜€ It is Saturday, and I have succeeded in doing the one thing I did plan to do today; I got the rest I needed. πŸ™‚

Good self-care is critical to my wellness. (Yours, too, probably.) I used to suck at it completely, always over-compromising what it takes to be well and feel good by grabbing onto other experiences and choices, for…well… reasons. Reasons that seemed to make sense in the moment, but more often than not were excuses and rationalizations for “doing whatever I want” – or, actually, whatever someone else wanted. The cycle of exhaustion, meltdowns, and poor outcomes was so predictable that for many years I simply called the entire mess “hormones” and put that shit on my calendar without any particularly successful effort to mitigate or improve any of it (because… “hormones”… well… that shit can’t be fixed, though, right? Right??) (Actually, no. It turns out that conflating hormones, mental illness, a lack of emotional intelligence, poor self-care, and plain old-fashioned inconsiderate shitty behavior, assumption making, and personal bullshit leaves quite a lot of room for improvement… so… maybe rethinking your inconsiderate bullshit, at a minimum, is a good place to start? πŸ˜‰ Just saying.)

I am watching, from a distance, as two relationships in my social network struggle with a partner’s mental illness. Both have been deeply committed loving relationships of decades of mutual affection, support, and shared family life. Both are struggling with the challenge of making love work, while also supporting a mentally ill person’s personal challenge with finding wellness, and juggling all the other elements of family life: work, kids, bills, grocery shopping, and even the assumptions of strangers and the well-meaning “help” and support of friends, sometimes less than ideally helpful, no doubt. (Been there.) It’s fucking hard to be mentally ill. It’s fucking hard to love someone who is mentally ill. The coping skills and rationalizations that allowed these relationships to succeed and perhaps even appear functional before mental illness finally prevented that from being a thing at all are reliably breaking down now that these mentally ill friends are seeking (and getting) treatment that may actually result in wellness. Their partners may not be much help at this point, and in fact, their hurts, anger, resentment, and emotional wellness concerns are reliably welling up and becoming problems that need to be managed. It’s when a mentally ill loved one begins the journey to wellness that everyone else’s rampant crazy bullshit comes to the forefront – along with the rationalizations, excuse-making, justifications, chronically incorrect and untested assumptions, and refusal to respect new boundaries and changes of behavior. It’s ugly and it’s hard. There are literally no “good guys”, and as soon as “the crazy one” begins to practice things that are more sane, the crazy on the other side of the relationship becomes apparent – often accompanied by utter refusal to acknowledge it, be accountable for it, accept it, or change it.

When people who are mentally ill seek treatment, find it, and begin their journey toward wellness, the first set back is often because within their once supportive network of friends and family (“I’m here for you!”) are people who are suddenly not so willing to “be there” if “there” turns out to include being aware of their own bullshit, and their continued commitment to a status quo that it turns out has favored them, and met certain needs that must now be met differently – in, oh, hey, some new healthy way. It’s hard. It’s hardest, frankly, on the mentally ill partner now responsible not only for staying focused on treatment, but now this mentally unwell person struggling with their situation is suddenly also forced to have to provide support to the adult in the room who turns out to be less than ideally adult (and sometimes fully unwilling to even be aware of that).

It’s a see-saw, people. When we love someone with a mental health challenge, over time, we make room for some weird and possibly damaging bullshit that changes who we are, ourselves, a little at a time. When someone we love who is mentally ill seeks help, and begins to make real changes, on purpose, with the intent of becoming well – our own crazy is going to well up and fight back, and our failure to be observant and aware, and also take the very best care of ourselves, for real, is likely to be the first step on the path to seeing that relationship simply end. It will end in screaming tantrums, outrage, defensiveness, accusations, and generally – a lot of needless yelling. The cause I most commonly see as obvious and avoidable is that instead of partnerships fighting mental illness together, partners become adversaries and basically forget all about the actual issue being someone who is sick, and not able to be at their best, who needs help, support, consideration, and compassion.

Reminder: getting a diagnosis does not suddenly make someone who is mentally ill magically able to not struggle with mental illness. They can’t just point to a page in their handy “So you’re depressed?” handbook or their “The basics of living with PTSD” guide and go down a list of steps to “make it all better” for some other person. Fuck you. That’s sort of one of the limitations of being unwell; there is a fairly commonly implied inability to do all the things.

I’m not saying it’s easy. I’m saying it’s fucking hard. I’m saying a great many relationships that end over mental illness don’t end because a partner is mentally ill – they end when that person seeks wellness and messes with the stable status quo that has allowed the “well” person certain… sanity privileges, that they must now give up in favor of dealing with their own unaddressed bullshit. No one in a relationship recovers from mental illness alone; everyone must deal with their bullshit. Everyone has bullshit.

When I hit that wall in my own relationship(s) I was fortunate. I chose to move into my own living space, and make a significant lifestyle change for a variety of reasons that overlapped in a useful way. I live alone. Sure, there’s bullshit, and I definitely trip over it frequently – and it’s all mine. My bullshit. My issues. My limitations. It’s also my home, my rules, my way; the failures are mine, and so are the successes. I was able to let go of my attachment to “being heard” by my partner(s), and able to comfortably take time to be heard by the woman in the mirror – because I could recognize, in the silence of solitary space, that this was in fact where the issue rested, for me. I was able to begin to sort out my bullshit from the bullshit in my relationships that wasn’t mine, and let go of trying to fix other people, or a relationship dynamic that was unavoidably damaged by my issues, and work on practicing healthier practices that support my own mental wellness… and having gained a measure of wellness, emotional resilience, and stability, then I could begin to tackle the complex challenges of “making things right” with emotionally hurt partner(s). Please note: I am not recommending my choices to anyone else. I am this person here, and my needs are what they are; I thrive living alone. You are likely someone else altogether, with different needs, and other choices may be preferable for you, personally. I’m just saying – achieving wellness may very well destroy existing relationships, and not through any failure of the mentally ill person, and in no way directly caused by their illness, but totally because they attempted to get well – and wellness did not meet the needs of that relationship. It’s totally a thing.

Prepare for change. Seeking mental health changes things. It’s a thing people know about.

Are you a “bad person” if you can’t stay in a relationship with someone who is mentally ill? I mean, you wouldn’t leave if they broke their leg, right? It’s a complicated question. Just as complicated as “Am I a bad person if I can’t stay in my relationship because my partner won’t respect new boundaries and changes in behavior as I improve my mental health?”

Helpful friends don’t feel any more comfortable than anyone else in the context of watching lovers struggle with mental health concerns. Everyone has their “good advice” to offer. People take sides without ever seeing the entirety of the dynamic. Also hard.

Every bit of all the hard stuff is 100% hardest on the person who is mentally ill, who is trying their damnedest to find emotional wellness – they are the one who is sick, people. I’m just saying. Seriously? Find some fucking perspective. Be there for a friend. Listen more than you talk, and refrain from making assumptions. Be encouraging. Be considerate. Be compassionate. If a relationship is struggling with mental illness, everyone is hurting, everyone is injured, everyone is struggling – and no one is the good guy; we’ve all got our own bullshit to deal with.

Two different relationships, two different sets of circumstances. I find myself fairly certain one relationship has already failed, and wondering if the other might manage to survive this; it’s in how they treat each other. In both cases, I see the mentally ill person doing what they must do to become well.

I notice that I have finished my second coffee, and my playlist just ended. It is a lush rainy Saturday, and I’ve got some important self-care to take care of; it’s been a long week, and I find that my own emotional wellness is very much tied to skilled self-care. πŸ™‚ It’s time to get started on the practices that keep me well. Doing so, and staying committed to them, has changed my world, and also my relationships. I swallow one last bite of oatmeal, grateful my relationship with my Traveling Partner has endured my changes. Love matters most.

My busy week has been nothing like “routine”. I’m still smiling. I did not see my Traveling Partner last night, as we’d planned, the hour of evening was later than we’d figured when my hair appointment ended, I’d started the day quite tired already, and my partner considerately suggested I get the rest I needed and embrace the late Thursday night ahead without additional fatigue. Good idea. I agreed. I’m still smiling. I’m alert. Rested. In no particular pain in spite of the rainy morning. I am ready for a late night! Bring it!

It’s been a busy week, sure. It has, however, been more ups than downs. More successes than failures. More challenges overcome, than challenges that thwarted me. More wins than losses. More beautiful moments than aggravating ones. I suspect that this is the truth of life, generally, much of the time, for most of us – if we can find the sweet spot in our perspective from which to view our experience.

This morning I sip my coffee and practice a favorite practice – I take the things I need to practice it with me everywhere I go: memory, experiences, presence, and a kindly disposition toward my very human self. I start simply enough, by remembering something, maybe looking through my recent photographs, or contemplating a moment, conversation, or experience – one that felt really good. That’s the important bit; start with something that feels amazing, before working towards transforming the perspective on a less comfortable moment. Because that’s totally possible too, and does not require compromising my values, telling myself pretty lies, ignoring painful truths, or constructing a fake narrative, it just takes some understanding, some compassion – and some practice. (I learned to transform some painful, awkward, or uncomfortable recollections into recollections with positive value more or less by accident, through the practice of “taking in the good“, and I don’t have “steps” to offer to make that a reliable thing; it requires practice, no avoiding that.)

Did the phrase “working towards” cause you to lose interest? Yeah… You’re probably going to have to get over that. Just saying. There are verbs involved. The effort must, in fact, and unavoidably, be your own. πŸ˜‰

A beautiful way to say thank you (to me) (because I like flowers) (in vases) (and being appreciated). Flowers from colleagues. My work space smells like a garden. πŸ˜€

The complicated week has been dimpled with beautiful moments. A promotion. An appreciative gift of flowers. Smiles from colleagues in moments of shared success and celebration. A festive dinner out with my Traveling Partner and a dear friend. A delightful outcome on new hair color. It’s not even over yet – and there’s still more to appreciate, to pause for, to savor, to relish, to sit with in gentle contemplation over a great cup of coffee, too early in the morning. πŸ™‚

So look, my life isn’t “perfect” (and that’s not a thing, so let that go now!) – my arthritis pain has been kicking my ass all this rainy chilly week, and I’ve had an on again/off again headache that has chased me for days. My schedule is a so far off routine at this point it is wreckage, calendar in useless tatters, which is deeply uncomfortable for me. My sleep, until last night, has been of exceedingly poor quality, offering little rest. A wee fish in my aquarium died. The first time my Traveling Partner ever saw my new place, my bed wasn’t made – which bugs me. The powerful “Me, Too.” meme unfolded on Facebook and Twitter, which although powerful and extraordinary, was also painful, uncomfortable, and saddening. Life is not about perfection.Β We are human. So human. Pain is a thing. Sickness is a thing. Emotional anguish is a thing. Running late is a thing. Being ditched is a thing. Disappointment is a thing. Setting ourselves up for failure is a thing. Learned helplessness is a thing. This is a “choose your own adventure” sort of experience – and you have choices. But…

It isn’t “easy”. It does take practice. It is utterly necessary to “do something” about “that” – whatever it is. πŸ™‚ One thing at a time, and it’s okay to take it slow, to fumble, to get it wrong, and to have to begin again…

…like…

…a bunch of times.

This is your experience. The craftsmanship involved in making it a “good one” (defined by you) is yours.

This morning I’m fortunate to be sitting in the sweet spot. It’s been a busy week. I’m still smiling. That’s enough. πŸ™‚

I woke to the alarm. My coffee this morning is a tasty Americano. I am wrapped in modest comfort, and feel safe, cared-for, and content. It’s a nice start to a Wednesday.

I hadn’t been up long before I started feeling that weird nagging sensation that is my half-aware recognition that there’s something I meant to do… right. Chickens. I mean, I’d said I would send my chicken references to Her. (Damn, She really needs a better nickname here…) I was delighted to hear her say she’d like to have chickens (me too!!). It felt like a connection, as much as a shared interest.

I put aside my writing to fulfill this commitment, and email over the links to vendors, resources, references, catalogs, and feel warmed by participating in something we share. I remember her asking about pets… I find myself not recalling why, at first, then – her dogs. Of course. πŸ™‚ Chickens – any livestock, really – are pets enough for me. I like creatures. The small wild lizards everywhere there delight me. The inquisitive jays and wily crows make me smile. Her dogs are fun and friendly. What else could I want? Chickens. LOL It’s a small thing to share an interest with another human being. We are so many, and so many of us share interests. It feels good to connect with another person. Get their views. Hear their thoughts. Share my own. Practice listening more than talking, while I’m at it. lol (Still so human.)

I hit send. Finish my coffee. Contemplate the brief remainder of the work week. It was rainy yesterday. There is rain in the forecast for the rest of the week. I’m okay with that. My arthritis is less okay with it. I think about the climate “down there”… “at home”? (Can I say that? I want to. It is a vision of one possible future that I do find very enticing.) My arthritis didn’t bother me pain-wise the entire weekend I was down visiting my Traveling Partner and Her. (Fuck. I need a better name for Her. Something playful and fond.) I still dealt with the stiffness, some, but it wasn’t so bad. The weekend here is likely to be rainy. I’m likely to be in pain. Still… there is much to do and to enjoy.

It’s a good time to winterize the deck and the potted garden.

It’s a good time to give the place a thorough cleaning in preparation for the holidays to come.

It’s a good time to light the pilot light on the gas fireplace for the cool autumn nights and cold winter days ahead.

It’s a good time for a last visit to the Farmer’s Market – maybe the big one downtown?

It’s a good time for long autumn hikes through colorful fall forest along unexplored trails.

There’s nothing fancy on my calendar this week; this one’s for me. A simple enough quiet weekend at home. Laundry, dishes, vacuuming, tidying up, reading a book with my feet up by the fire, sipping coffee in the afternoon…

“WhatΒ  are you doing this weekend?”

Everything. This precious mortal lifetime won’t just live itself. πŸ˜€

 

What a week. Glad it’s behind me. Relieved to feel satisfied, pleased, and accomplished, instead of terrified, anxious and regretful. It could have gone differently. I am content with the outcome.

Stress is a weird thing, though, right? I mean… once I’m stressed about A, then it’s far more likely that unrelated experiences B, C, or D may also feel more stressful, or seem to be cause for concern. I crashed out last night feeling terribly blue, struggling in a sticky web of anxiety-lies and insecurities being launched at me from within, by an anxious, stressed, fatigued brain. I wept. For the world? It seemed so at moments. Other moments, I just felt “cracked open” and unable to hold anything back however small, however simple – even some lovely tender moments felt like pure heartbreak, and I cried, merely because there was too much emotion to hold back any longer. My executive function limitations hit me in my emotional life pretty hard. This week that was more obvious than most weeks in recent months. It’s been a peculiarly emotionally stable year.

I went to bed worried, even, about my relationship with my Traveling Partner. No reason for it, really. At least, nothing I could easily identify. I woke this morning without that insecurity or doubt, feeling rested, anxiety gone; I’m excited about the road trip ahead of me. 3 day weekend with my lover? Yes, please! Sign me up. πŸ™‚Β 

Fuck, I am so glad my “default setting” is no longer despair. I feel fortunate to have survived the first 50 years of my lifetime. Emotions come and go. Like weather. “Who we are” is less volatile, less mutable, and sometimes feels rather… permanent. It isn’t. It’s more like climate; tends to be what it is, but still changeable over time. We become what we practice. No kidding. It’s a slow thing to change the climate – but it can be done. Choose wisely. πŸ™‚

Are you unhappy? Make changes. There’s no map on this journey… it’s rather like setting off on a road trip to see someone you love, unclear of specifically where they are, but with a direction in mind… generally. lol This may help. πŸ™‚ It’s a favorite of mine for reinforcing healthy basics; do the opposite of everything it suggests. lol (Here’s a follow-up on that…)

Maybe something simple this morning? One thing that could be easily improved by one little change in your decision-making, habits, or actions? Start small – committing to a marathon, while breathless from walking across the street may be a bit unmanageable. It’s so easy to become discouraged. I’ve been there…

After years of frustration, despair, and inactivity, I decided to go to the Farmer’s Market, one year. My feet hurt all the time, stupefying medication and unmanaged pain had pretty much nailed me to my couch between work shifts. Doing so would mean a two block walk uphill (barely) from the light rail station. I look back astonished (because I regularly go to the Farmer’s Market quite easily and comfortably, now, and often walk miles, not just blocks) – it seemed hard then. It required effort. Commitment. Patience with myself.

I don’t look at it the same way now, at all. My perspective has changed with my experience over time. Incremental change over time; it wasn’t easy the first time, the second or third times, the fourth time… but eventually, it sure didn’t seem hard, and then… at some point… almost unnoticed, it became quite the natural thing to easily and comfortably do. (For my less physically able readers out there, I’m using an example familiar to me, only, and part of my personal experience, no intention of falling short of being inclusive, but I see where my example could be. I regret any aggravation, or sense of being left out of my consideration that this may cause. Start small, is all I’m saying. πŸ™‚ )

It’s a good reminder for me, too. There is further to go. There is more to do. I still struggle with my weight, health, and fitness. There are changes to make. There is future progress out there on the horizon to be experienced. Incremental change over time takes both time – and verbs. A lot of fucking verbs.

Oh hey, look at the time! It’s definitely time to begin again. This journey won’t make itself. πŸ˜‰