Archives for posts with tag: doing my best

Nice morning. Mild. Quiet. I’m okay. I got a decent night of sleep after several restless nights of degraded sleep. I needed it. Dreams instead of nightmares. The morning started pretty well, and I’m not in much pain this morning. Manageable.

I sit quietly at the trailhead, waiting for the sun. I watch a pair of walkers hit the trail in the darkness, with a flashlight. The light swings and bobs as they disappear up the trail, the faint shapes in the darkness becoming formless shadows as they reach the first bend along the path. I don’t prefer to walk the trail in the dark. I become hyper vigilant rather quickly and it’s not much fun to walk along scanning the environment for unseen threats. I am unavoidably aware that those potential threats are not foolish imaginings; human beings can be quite dangerous.

So… I sit and wait for the sun.

I had planned to skip my walk today, to be certain of finishing the work day early enough to get home to take my Traveling Partner to physical therapy. On top of that just being a bit unnecessary, he messaged me during the wee hours; he’s not feeling up to it. Understandable. He’s tapering off a medication and the process fucks with his head, and his physical experience. I feel for him. When I saw the tapering instructions I was dismayed at how little regard appeared to be given to how the drug actually works, and it’s half-life. Doctors often seem to be fairly fucking uninformed about the psycho-pharmacology of the drugs they so casually dispense. Profit and process over people. It’s disappointing.

I am momentarily distracted by the bright lights of a freight truck rolling by on the highway. It’s decked out in so many lights! I am delighted by the display and grinning like a little kid. It’s a weirdly joyful moment. I wonder if the driver knows? Was the choice intentional? Do the lights make them smile, too?

I sit quietly awhile with my thoughts.

Daybreak soon.

This quiet time is so important for my well-being. I’m fortunate to have the will, the opportunity, and the partnership that support it. I breathe, exhale, and relax. I sit quietly, meditating, writing, and waiting for the sun. It’ll be daybreak soon, and time to begin again.

He said, almost as an afterthought, “I forget about your brain damage sometimes, because you generally handle things so well.” I don’t recall where that conversation went, now, but the remark itself lingers. A compliment? I think so…? It’s complicated, like finding the right balance between just living life and reminding people now and then that there is brain damage, and that it is very much a part of my day-to-day experience.

… I continue to think about my Traveling Partner’s loving words. Those. Others. 14 years together. We’ve been through some things. This bit of chaos, here, now? Part of the journey. Opportunities to grow, to do better, to become better partners, are plentiful right now. I hope to take advantage of many of them. I see my partner embracing those opportunities, too. We’re both very human, and this is a very human journey.

New beginnings, new perspective.

I started my walk just before sunrise, at first light. My pace is improving, my strength, too. Staying on top of my self-care requires diligence and focus. Sometimes I feel like I’d rather just… sleep.  Yesterday evening, I chose (with my partner’s encouragement) to go to bed early and get a proper night’s sleep. I woke feeling rested and started the day feeling pretty good. Yesterday I also tried a capsaicin patch for a particular pain that seems caused by my neck, and is intensely distracting at its worst. I’m surprised, but it actually did really help. (Please don’t tell me if this is a placebo effect! I’d rather have the relief.)

At some point yesterday, it was difficult to dismiss my partner’s assertion that I was “holding my breath” in response to my pain. I clearly was. I caught myself several times. Annoying. It’s not at all helpful to stop fucking breathing! As I walked this morning I focused on “staying with my breath”. It seems irritating and silly to have to practice breathing for fucks sake, but here I am. Then I laugh out loud; skillful, practiced breath work is part of so many things! Why do I even fuss about it? I sleep with a CPAP machine, because I frequently stop breathing while I sleep. Why would I expect that this concern would somehow just not be a thing simply because I am awake?

A momentary traveling companion along the way.

I breathe, exhale, and relax. My anxiety isn’t bad this morning. My recent “11” is a more manageable “2”, today. Win. I finish my walk, and prepare to begin again.

Trite but true, it is a near certainty that things could be worse. I sigh out loud, annoyed by my persistent headache when there’s so much going on and so much to do (or prepare for). Thinking, planning, and doing, while also fighting through pain has difficult moments. I struggle to maintain focus on things that matter and routinely find myself distracted by things that matter just as much. lol I try not to be overly hard on myself over it, but it does vex me, especially when the task at hand is something intended to support my Traveling Partner.

… I breathe, exhale, and relax…

A new day

When I left the house it was still quite dark. The season is changing, as seasons do. Daybreak comes much later than it did weeks ago, when spring turned to summer. I was amazed and delighted to see meteors streak across the predawn sky as I drove to the trailhead, this morning. Then I started thinking about what it might mean should some unusually large meteor actually plunge through our atmosphere intact and impact the planet directly…my anxiety surges as I consider that. Then I let that shit go.

… Letting an imagined worst case wreck a lovely lived moment is a poor practice…

I breathe, exhale, and relax. Today is final preparations for my Traveling Partner’s surgery. Tomorrow. It’s a big deal, and one with a very good prognosis. I’m more eager than nervous on my partner’s behalf, which I guess is a good thing. I feel well prepared. I hope he does, too.

I breathe, exhale, and relax. I’d meant to bring my colored pencils and my sketchbook along this morning. I forgot them. There are really only one or two places, at home, where something can be placed, that reliably get my attention on the way out in the morning. I can’t count the number of times I have forgotten to grab something I meant to take with me, because it wasn’t in one of those places. lol Generally a harmless sort of oversight, and I don’t make it a big deal this morning – because it isn’t.

… I keep promising myself more time painting. I keep not painting…

I had the trail to myself, initially, and sitting here in the morning quiet at the halfway point it manages to feel strange to hear voices and approaching footsteps. A small group of photographers walks past. Cheerful greetings are exchanged as they walk by.

My mind wanders. I distractedly check my task list and my calendar. I check the grocery list. I try to identify needful things I may have overlooked. My mind feels very busy and chaotic. I’m not here for that. There’s time for lists and tasks later.

… I breathe, exhale, and relax. I make room for this “now” moment, present, observing, breathing. Only this. I let my thoughts come and go, like the clouds overhead. (I definitely need more of this calm time spent present, simply being.) My mind wanders, this time I bring it back to my breath. My tinnitus is loud and distracts me. I bring my awareness back to my breath. For an unmeasured time I reflect and meditate, bringing my attention back to my breath each time it wanders. Good practice.

It’s a good day for a quiet moment. After a while, I get to my feet to finish my walk and begin again.

It’s chilly this morning.

I woke up quite early, ahead of my alarm. My Traveling Partner was already awake (woke me inadvertently), and in pain. We hung out for a little while before I left for work and for my morning walk. I almost left without my laptop, and did entirely overlook grabbing a fleece, sweater, or hoodie. Did I mention it’s chilly this morning?

I hate seeing my partner in pain. He hates being in the pain he’s in, and even more than that, he hates the limits pain places on his activities and cognitive abilities. There’s so little either of us can do about it. We wait together for his surgery, angry about a medical system that places so many limitations on doctors and patients and the medical care available to people in need. It’s inhumane and ineffective, inefficient and frankly terrible. We endure. Surgery soon, then the painful and annoying recovery journey can begin.

…We travel together…

Sometimes shit is hard. Sometimes less so. Life is complicated. I feel fortunate to have my Traveling Partner on life’s messy and painful journey. We’re in this together.

The morning chill caught me by surprise and I hustled down the path briskly to warm myself. There’s a mist clinging to the low places along the marsh. I walk on with my thoughts.

Misty morning.

This mortal life has limitations imposed by circumstances and events or enterprises beyond our individual control. We often place additional, unnecessary, limits on what we do, don’t do, can or can’t do, or have, or be, or experience. It’s a bit strange, isn’t it? I walk thinking about self-imposed limits. I remember a much younger me, talking myself out of trying pastels, when I was first “developing my voice” as an artist. Why? I judged myself (in advance of practical experience) to be “too messy” for pastels. I never gave them a chance, in spite of being fascinated by the luminous purity of the pigments. Life would later place other limits on my artistic endeavors, but truly? I got there first with my own. (Why?! Dunno. It’s very human, I suppose.)

I walked along thinking about the journey that life has taken me on. The journey I share with my partner. The limitations of the paths we’re on, individually and together. Sometimes it’s not at all clear where the path leads, or why we face the limits we do.

… Next weekend, some solo time on the coast, with my pastels, my tinnitus, and my thoughts. I don’t know what will come of it, and I find myself wondering if I am being a dick to go, with my Traveling Partner suffering as he is. The Anxious Adventurer will be home, and providing caregiving… But is that even reasonable to ask, really? I’m suddenly overcome with self doubt, even though I know how much I need the downtime.

… It’s an endurance race, not a sprint…

… Self-care really matters…

… I turn back up the trail to head to the car. It’s time to begin again, again… already…

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.