Archives for posts with tag: TBI

So far pretty nearly everything this morning has gone at least a little bit wrong, starting with the restless night of poor quality sleep that preceded the start of the day. Realistically, I know to expect some days will be like this, and this one is certainly one of those.

I woke up on time, and even remembered the errand my Traveling Partner asked me to handle before I went to the office (getting the mail), while kindly expressing reservations about asking me to do more, out of concern for my fatigue and the amount of pain I’ve been in day-to-day. That was a pretty good start, and I would leave it there and overlook the smaller stuff (I tried), but as shit started going wrong, it got harder…

… I’d failed to lay out clothes for the work day and stumbled through my morning routine self-conscious about the noise I was obviously making…

… I spilled iced tea all over the floor while setting up my partner’s morning beverages…

…as I was picking up the mail, i dropped it into the street as I returned to the car and then shut my hand in the car door while trying to put my seatbelt on, to return the mail to the house…

… the coffee place I prefer (lowest price, best black coffee) was closed – the opening barista never showed up…

… the backup coffee stand was slow, and the coffee is pretty awful…

… traffic was bad and I got stuck behind a line of cars all stuck behind a truck going 40 mph on the highway during the commuter “rush”…

…I got to the trailhead too late to get a walk in at all (or write)…

… my medication alarm went off as I prepared to give up on my routine altogether, startling me, and my shaking hands fumbled my pillbox, tossing my entire day’s meds all over the floor of the car, much of which I never did find at all…

The drive to the office was thankfully entirely uneventful in every way. I’m not sure I could have endured another misstep this morning!

A less than ideal start to the day, for sure, and I’m “still dealing with it”, like ripples on a pond after throwing a rock into still water. I breathe, exhale, and relax. The office is quiet – and also uncomfortably cold. G’damn, what is with this day?? I sigh, and think of my Traveling Partner’s voice, saying “I’m worried about you. I depend on you. Slow down. Take care of you.” He’d be right to suggest that I slow down, although I don’t feel any sense of moving quickly, it surely couldn’t hurt to slow down and be measured and considerate with my movements, decisions, and even my thoughts.

I take the time to make a pour-over in the office break kitchen – a properly good cup of coffee will help, just by being a comforting ritual, and a pleasant moment. I remind myself, for perspective, that there will be other sunrises, other walks, and more pleasant easier other mornings – no need to take this one so personally. It definitely isn’t personal, just circumstances. Another breath, and a renewed commitment to non-attachment is also helpful. I make time to meditate, and let the morning’s aggravation fall away. It’s behind me now. I can begin again. It’s so easy to burn through limited emotional resilience in a few minutes of aggravation over small shit – and it can be challenging to restore what has been lost, but it’s for sure not impossible. I slow down, slower, and let myself have a few minutes to write and reflect and gain perspective. I breathe, exhale, and relax – and repeat as needed. I make a point to notice that I arrived at the office very much “on time” in every sense of the word, and in theory this puts the whole day back on track, aside from the spilled pills.

…No use crying over spilled milk pills…

I smile, and feel some of my tension dissolve; I’ve got a small assortment of “back up meds” that I keep in the office, mostly to ensure I don’t miss them if I forget to grab the day’s medication on my way out of the house some morning. Part of coping with a brain injury is an assortment of “tactical practices” that anticipate common challenges. My results vary – but I’m familiar with my most common “fail points”, and it’s a small thing to plan ahead for such occurences, so I do. (I mean, I try; my results vary.) My sense of “timing” still feels a little off, and somehow this cup of coffee tastes vaguely like curry (which is super weird, but fortunately I don’t find that to be an unpleasant flavor). I’m okay for most values of “okay”, and restarting the day feels within reach.

…So I do that…

It’s a new day. There are no bombs dropping on my town. There are no wildfires burning nearby. The autumn weather is relatively mild and rather pleasant. My pain seems to be at a relatively ordinary and rather manageable level today. I missed my walk, sure, but the sun will rise shortly, and the office is in a safe neighborhood; I can walk over my lunch break. I have a good sense of what I need to get done today at work, and that feels manageable, too. I make some oatmeal, sip my weird coffee, and begin again.

I’ve always liked my appearance seen as a reflection in a window. I don’t know why this is, somehow it just seems to be “the best view” of myself, a little diluted, a little less specific somehow, softened a bit… less “real”. I almost always find myself quite beautiful as a reflection in a window. I don’t see myself quite that way in a mirror, or a photograph. Peculiar. Today is no different. I see my reflection and marvel at that woman, there, seen as if through the trees beyond the window, somehow younger than my years, and no hint of the tears in my eyes, or on my face.

…Crying in my office, again? What is this, the 00s??

Things seem harder than necessary lately. By “lately”, I mean most of the last year, honestly. It comes and goes. It’s been the worst since late February, since my Dear Friend died. Yeah, okay, so – grieving is hard. We don’t control how that goes, it just goes. I’m learning more about actual loneliness than I ever imagined I could. I wasn’t particularly prone to feelings of loneliness, before. I’m so very very prone to them now. With my Traveling Partner having the challenges he is, and the one woman I’d have felt free to discuss it with, without reservations, simply… gone… I feel so incredibly alone, now. I chastise myself for a moment; I could have done a better job of maintaining other cherished friendships and preserving more closeness with more dear friends than I have. I enjoy my solitude, and I’ve taken too much for granted. I still enjoy my solitude…but when I need someone, I’m often going to find myself going it alone nonetheless. Often. I’m not bitching – it’s not a bad life, and things could be so much worse. I’m just feeling my years, and feeling lonely as I face inevitable mortality, seeing some vague younger version of me reflected in a window, and wondering what the point of any of this actually is… yeesh. Grim. I ache with it. And also just with pain, physical pain. Fucking hell that just blows. Fuck pain.

…Oh, right… I maxed out all my pain management medication yesterday and here I am today, managing on less, and not hurting quite so much, but… now my mind is altered, and I’m feeling very blue, partly because I did so much yesterday to attempt to manage yesterday’s pain, and I’m paying the price emotionally, now. So… am I actually feeling “lonely”, or is this just “the down” from opiate pain management? Fuck. This shit is complicated. I simultaneously want very much to simply be entirely alone with this crap, and also very much miss someone to talk to about it – and about life, and how difficult some of this very human crap very much is. Too real. Fuck pain. Fuck drama. Fuck this particular moment, right here.

I put my head down on my desk and cry for awhile. This too will pass. Feelings are feelings, only that. Emotional weather. Small frustrations pile on top of other small frustrations and assorted inconveniences; it feels like a big pile. Heavy. Tears flow after other tears. Moments follow other moments. The clock is ticking. Eventually tears dry. Eventually, I can begin again.

This morning I walked in the dark, with the light of my headlamp making a small visible circle ahead of me, bobbing along with my steps. I walked with my thoughts, and not much else. I was thinking about a question I’d proposed to myself recently (“How does my partner see me, in the abstract, and how does this differ from the woman I am?”), but this morning, I flipped it around and asked myself “who do I understand my Traveling Partner to be, in my recollections, when we are not together, and how does that differ from my lived experience with him when we are together?” It seems useful to understand the variances that may exist, and maybe where those may come from, and what purpose they serve (or problems they may create). Am I holding space for my Traveling Partner to be the man he truly is? Do I love that man, or just a fantasy of who I think he may be? Do I give him the freedom (and support) to change over time and become the man he most wants to be? Do I have an opportunity to be a better lover, friend and partner through understanding him more…accurately? Am I making it more difficult for us to really enjoy each other by holding on to romanticized adolescent notions of the man he is – or worse perhaps, not recognizing his real self with gratitude and delight because I’ve “got baggage”? These seem to be worthwhile questions. I walked along reflecting on them.

The days continue to shorten, and I finished my walk in darkness and hustled on to the office to start the work day. Writing had to wait on a later moment; there were more important things to do, and to think about, as I began this day. I never saw the sun rise, and when it eventually did it rose on a gray cloudy day that looks like it might rain. I wouldn’t call it “bland and uninteresting”, but it wasn’t the colorful display of recent mornings, at all.

Yesterday, I was still pretty under the weather, and I had managed to pass on the ick to my Traveling Partner, likely by way of my happy-to-be-home kiss and embrace on Sunday morning, just based on timing. I’m already pretty much over it – sufficiently so to feel comfortable going in to the office today. I’m hopeful that he’ll soon be over it, too. It sucked having to reschedule his appointments, around which my away plans had been built in the first place. lol Change is. Reality does not give a shit about my damned plans.

…Later…

I took a break. Enjoyed a moment to catch up with a colleague I rarely see in person. Exchanged some cute “stickers” via messaging with my Traveling Partner. Tackled some priority workload. Finally found myself once again in this other here and now, feeling just a bit as if it is a sort of “alternate reality” in which I am always relaxed, thoughtful, and contented. lol. “Living the dream.”

How is it already time to begin again…?

I’m sipping my coffee, waiting for the sun. I’ll enjoy the sunrise, finish loading the car, and then head for home. I miss my Traveling Partner, and it’s time. My coffee is quite good this morning; it’s left from yesterday’s very excellent coffee, purchased on my way to a beach walk not too far away. I knew I’d want a good cup of coffee this morning, early, and it was honestly too late in the morning for coffee drinking when I bought it – so I got a 20 oz Americano, black, and enjoyed something less than half of that with the plan of saving the rest for this morning. It has proven to be a good plan. 😀

I’m more or less packed. I’m showered. Dressed. There’s no particular reason to linger, besides this handful of words, a moment for meditation, and the coming sunrise. Very low stress, as mornings go. I’d intended to get a bit closer to sleeping in, but my eagerness to see my partner overcame any potential for further sleep around 05:00 a.m.. LOL Hardly counts as sleeping in, but whatever. I’m rested. I’m content to enjoy my coffee, and this quiet moment.

A productive weekend, creatively.

The time away has been well-spent, creatively speaking. 9 new pastels, a couple of them exceed my expectations and quite delight me. All of them are adequately satisfying to meet my needs. Another 9 hours or so, over 3 evenings, spent studying the art of pastel and a variety of techniques commonly used. 4 or 5 hours spent walking the beaches. An hour or so spent getting my hair cut. Unmeasured time spent chatting with my Traveling Partner because we often miss each other more than I enjoy my solitude. Time well-spent, indeed.

…Not one single nap, at all, how strange…

… I’m wrong. lol I forgot about my unexpected early evening nap the night I checked in. Good grief, I was sooo tired.

…Now it’s time to begin again, to go home, and hopefully to take with me renewed enthusiasm for the day-to-day, and restored resilience for the things that will go wrong – because things definitely will. lol It’s a very human experience.

I reflect on the days now behind me. Did I get what I was looking for? What I needed? I think so, yeah. I breathe, exhale, and relax. Now I’m just waiting for the sunrise, and drinking my coffee. I’m ready to begin again.

It’s shortly after midnight. I’m awake, not because it’s Friday night and I stayed up late doing something. Nope. I went to bed a bit early, in spite of the somewhat noisier Friday night guests, and crashed pretty hard. I slept deeply for a little while, but woke several times to discover I’d pulled my CPAP mask off in my sleep. Weird. I’m not surprised that woke me each time that it did; I struggle to fall asleep without the mask these days, in spite of it giving me occasional nightmares of having to wear MOPP gear. Not an experience I ever enjoyed, and not a bad dream I want to have. Tonight wasn’t about that, though, it was just weird. lol

I woke a little while ago, and my consciousness roused sufficiently to recognize more than that I had removed my CPAP mask – I recognized the likely cause(s). Acid reflux. Headache. Osteoarthritis. The exceptionally quiet darkness after a rather noisy evening. Now I’m awake. I took an antacid. I got a drink of water. I put on a capsaicin patch where my pain was worst. I took something for my headache. I got up and stood on the balcony looking out into the velvety dark night, out across the bay, feeling the cool air on my skin, and looking out into the night for some little while. No moon. Few stars – fog? Mist? Clouds? Across the bay, most of the homes along the Salishan Spit are dark tonight, which surprises me at this relatively early hour. No bobbing lights of shallow bottom boats on the bay. The tide is coming in. I stand awhile, listening, watching, embracing the solitude and the darkness.

It’s been a good couple days of painting. I’ve got another day of it, tomorrow. I miss my Traveling Partner – I’ll be happy to head home Sunday. I stand in the quiet darkness wondering how to bring “more of this” to my experience of life at home. I often wake during the night, at home, but rarely get up or doing anything much about it. Shared living subtly discourages it; I don’t want to wake anyone else. When I live alone, I often do something more than roll over and go back to sleep. Funny thing is, when I’m living alone, I don’t easily “just go back to sleep” – so getting up makes sense, and I do. No stress to it, just a way of living. When I am sharing a living arrangement, I tend not to be awake enough long enough to bother. I go back to sleep because going back to sleep makes sense. There’s no effort to it, these days, and no anxiety to being awake. I don’t actually know why there’s a difference in these experiences (for me). Perhaps living with my Traveling Partner simply finds me feeling somehow safer when I wake in the night, and more able to return to sleep because of it. I don’t generally “toss and turn” if I wake… I just go back to sleep, maybe after getting up to pee, or get a drink of water. Weird. I chuckle quietly to myself, that’s a known thing; humans are weird. lol

…The “more of this”, though, that I’d like to bring home with me, isn’t about the wakefulness in the night. I’m satisfied to roll over and go back to sleep, at home, in my own bed. I’m not grousing about that at all. It’s more… the art, the sense of creative presence and inspiration, the subtle feeling of freedom to “do whatever I want” in all the minutes of my day. Perhaps this really is best left to vacations and time away, alone… it sounds pretty “selfish” on paper, and a somewhat adolescent perspective on adult freedom – untethered from the very real responsibilities of adulthood that most definitely exist. I sit with the thought awhile, after I step back in from the chilly darkness of the balcony. I think about compromise. I think about choices.

I’ll go back to bed soon. I’m already both tired and sleepy. I’m only awake because my thoughts continue to meander wakefully, and I’m honestly sort of encouraging that, in spite of my awareness that sleep could easily overtaken me, given a chance. It feels like a luxury to enjoy the quiet of the night. The world sleeps, the moment is mine…