Archives for category: Brain Injury

I’m sipping my coffee in the quiet of the office before dawn on a Monday morning, listening to a favorite jazz singer crooning softly in my ears. I find myself reflecting on the last time I listened to this particular woman’s voice, before “rediscovering her” recently, searching for a particular song to share with a friend going through some things. I lived a very different life at that time. Most of the music I listened to then was jazz. That realization got me thinking about the many different “versions of me” I have lived over a lifetime, through the lens of the music I listened to.

Using music to differentiate from one version of myself to another, I can see myself change over time, through career changes, addresses, partnerships, personal philosophy and points of view, economic circumstances, the books I read, the language I used, the way I painted, and even preferences in how I dressed, and who I hung out with. Change is. I’ve grown over a lifetime of choices, opportunities, and circumstances. Some of my changes have been inflicted upon me, some were choices. In some sense, I have been many women.

“Lichen II” watercolor on paper, 8″ x 10″ 1984 (painted while listening to jazz)

That woman who listened mostly to jazz lived with domestic violence, which she carefully hid from the view of colleagues. She had few friends. She was physically beautiful – as beautiful as she would ever be, but her mind was a mess. Her values and philosophy in life reflected the strained jigsaw puzzle of thinking errors and mental gymnastics needed to rationalize her experience. She lived a strange sleepless life, traumatized and anxious, and always vigilant. Music – particularly jazz – was always “a safe topic” at home. An acceptable shared pleasure. Her home was compulsively meticulously neat, always. It had to be. She was young – in her 20s – and a soldier on active duty. Respected at work, mistreated and tormented at home, she kept people at a distance, except those occasions when she “let it all go” and hit the club looking for a moment of affection in a stranger’s embrace, when circumstances permitted. It was a life of confusion, and as her mental health eroded, her substantial collection of jazz CDs increased. I listen to that music now with mixed emotions, when I listen to it at all. I find beauty in the music, and distress in the memories. I am a lifetime away from that young woman, and a very different person. I make different choices. I think different thoughts. I believe different things and understand the world differently.

I chose change many times before I ever put myself on this path. Searching for something different, and finding differences, but not wellness, contentment, or joy. For a long time I blindly chased “happiness”, finding mostly misery.

“Communion” acrylic on canvas w/ceramic details, 24″ x 36″, 2011 (painted listening to a mix of EDM tracks)

I’d found myself mired in futility long before I met my Traveling Partner. His friendship pulled me back from the brink of despair more than once, before we were ever lovers. His love was literally “life changing” – because it changed my thinking, and my choices. I’ve come so far! I smile to myself, and change the music. I’ve “changed the music” many times in this one mortal lifetime (it’s a metaphor). I’m grateful to have had that opportunity. I smile and listen to wise words in a favorite song. We can choose change. Sometimes change is forced upon us. Change is. I’m grateful for this enduring love (and partnership) along the journey.

“Siletz Bay Pink Sunrise II” pastel on pastelbord, 7″ x 9″, 2024 (painted listening to love songs)

…The journey is the destination. There is no map. If you stray from your path, begin again.

Used to be I had major issues with sound sensitivity, particularly in the voice frequency range. That seemed to be so much less problematic the last couple years, since shortly before the pandemic, I think. I never stopped to wonder why; I attributed that change to progress through therapy. Seemed obvious. Now I’ve got these hearing aids, and my sound sensitivity is back. lol Apparently I’d just been losing my hearing in the voice frequency range. LOL G’damn it.

I’m laughing over it more than anything else. Cosmic humor for those inclined to perceive (or create) a god. Last night I went to bed just a bit early, deeply fatigued from fighting to stay relaxed and merry in spite of my serious annoyance over “every little thing” to do with a variety of human sound effects that sourced with the human beings in the room with me. It wasn’t personal. Hell, it wasn’t even out of the ordinary – it was merely audible in a whole new way. I’ve got my hearing back, so it should have been predictable that I would also regain some measure of my sound sensitivity, and irritation to do with chomping, lip-smacking, slurping, clanging of dishes and utensils, banging of dishes and pots, stomping of feet, forced laughter, dealing with congestion, needlessly loud remarks when I’m listening to something else… all the regular human stuff. Fucking hell human beings are ridiculously noisy. I made the mistake of mentioning it aloud with some surprise at the observation, and instead of any sympathy whatsoever, what I got from the Anxious Adventurer (and primary source of most of the noise) was “maybe you should turn your hearing aids down”? (“How about maybe you try to be a little quieter – or at least show some fucking consideration and understanding, ffs?” Was my unstated response.) I was surprised at the callous disregard for my experience, and my somewhat hurt feelings and notable irritation were a major part of deciding to go to bed. I just didn’t feel like dealing with being treated dismissively in my own house by a human being who I expect to care about my experience at least a little bit and who receives a fuck-ton of consideration from me day-to-day.

…I may still have some unresolved feelings about this, apparently, I should deal with that. (So much for mostly laughing about it!)

I sigh to myself. The Anxious Adventurer may legitimately “not get it”, and is in some regards still half-feral. I remind myself to be patient and kind, and to coach more often than I snarl.

So. Yeah. There’s that. It’s otherwise quite a pleasant morning. I woke up a few minutes ahead of my artificial sunrise, feeling rested and cozy and warm. My morning routine was… routine (hearing aids and all). The drive to work was pleasant and uncomplicated, and traffic was light. The office is comfortably warm and quiet. The details of the day ahead seem well-planned, and I feel relaxed and confident. All things considered, a very good day for this one individual human being.

I made the mistake of peeking at the news headlines. This terrifying new administration is already getting going with excessive zeal with their attack on immigrants, without regard to the rights of citizens, military veterans, or consideration of basic human decency – it’s appalling, and shameful. Attacks on the basic human rights of women are already beginning. Attacks on the fundamentals of democracy itself, too. The whole thing is a grotesque mockery of anything to do with America. I don’t know what I expected, and I guess I’m not surprised; when someone tells you who they are, believe them. The voters knew they were electing a misogynist xenophobic criminal fraudster in November, and they did it anyway. Horrifying, yes. Shocking, maybe. A surprise? No, not really. Maybe we’ll learn something and start providing education in emotional intelligence, and critical thinking, in K-12 education after this mess is sorted out? At least that ignorant huckster in the President’s office isn’t fucking immortal. (Note to self: don’t read the news. You know it’s terrible, already. Definitely don’t read the comments – that’s where the trolls live.)

Seriously. Just don’t. 🙂

I breathe, exhale, and relax and let that shit go. I pull myself back to this “now” moment, this place, this time. I’ve got enough to do in front of me, and plenty to take care of without getting myself all stirred up over things I can’t fix or prevent. That won’t stop me from being compassionate, aware, or speaking up when I see this bullshit going on. I make a note on my calendar to write to my elected representatives – that’s still a step worth taking, though it often feels futile. I stay committed to being frank about my thoughts on these trying times with friends, neighbors, even casual strangers when the topics come up. I refuse to pretend I don’t care, or to stand silent in the face of cruelty and injustice. I’m just not okay with that.

Another breathe. Another moment to relax and bring myself back to “now”. Trying times. I smile to myself, and give myself a moment of compassion. I’ve seen a lot in 61 years, and some of it has been bad. This too shall pass. For real; change is.

I take a phone call. Finish my writing. Begin again.

I slept badly last night. I woke to the full brightness of my artificial sunrise (which usually wakes me much sooner, in soft dim light). My routine was thrown off by the addition of putting in my new hearing aids, which I’m not yet super skilled at, and doing it felt clumsy. My long hair and glasses complicate that a bit; it’s necessary to brush my hair before I put in my hearing aids – but brushing my hair is often “the last thing I do”, and I’d set things up such that the hearing aids were “too soon” in my routine (thinking I’d put them in right after I put on my glasses). lol Being fond of routines and habits has a downside; the plan needs to account for the realities of my lived experience. So. I found myself mentally rearranging my morning routine – during my morning routine – and the end result was that I forgot my computer glasses when I left for work. Fucking hell.

…The hearing aids work very well, though, so there’s that…

The drive to the office was ordinary enough, though I’m still getting used to the “convenience” of hearing things so differently. Even car sounds, like the seatbelt warning ding, are quite different, and not just “louder”. Interesting. It’s somewhat similar to the experience of getting new glasses after needing glasses for awhile. There’s a certain awe and wonder to the level of additional detail. (I also need new glasses…)

When my Traveling Partner wakes and sends me a text message, the notification reaches me through the hearing aids, which are paired with my phone. I rather stupidly had the volume almost all the way up, because without the hearing aids, that’s what it took to get my attention – and I still missed tons of messages, because I just wasn’t noticing the notifications. Well, that’s not a problem now! I chuckled and turned the volume way down, fairly delighted that I can stop compulsively checking for missed messages, now, being able to count on hearing the notification each time.

…Pretty mundane stuff, eh?…

I sip my coffee and take a moment for myself before I start getting caught up on work. My back aches in spite of taking pain medication for that. I shrug to myself grateful that I’m not yet experiencing eye strain from wearing the wrong glasses. It’s a very human experience. This fragile vessel isn’t in the shape it once was, and various components are needing attention, or assistance. My thoughts wander briefly to “how much longer?” but I don’t linger there – I know I won’t live forever, but I’ve no desire to drag the end closer to my “now” moment. I hear the phrase “death and taxes” in my thoughts and roll my eyes; it is time to do the taxes. Apparently I’d rather think about death. LOL Humans are weird. I breathe, exhale, and relax. This moment here, with my coffee and my inbox, is quite enough for now. I pull my attention back to “now”.

It’s still quite early, and I have the office to myself for the time being. It’s pleasantly quiet, although it sounds quite different in many little ways. I listen to the ventilation, the hum of distant machinery, and the subjective “silence” of this space. It’s not silent at all. It’s not even actually “quiet” – I just perceive this experience as “quiet” because it is not filled with the chaos of human voices. I sip my coffee, content and grateful. This is enough – even with the wrong glasses on. 😀 I look out the window into the pre-dawn darkness. Daybreak soon. I turn off the office light, too better see the day begin. The light of my monitors is enough to work by.

I feel incredibly grateful and fortunate. I’ve got a partnership I can count on, with a human being I quite adore. I’ve got a good job that keeps the bills paid, and the pantry stocked. I’ve got decent healthcare, and what it doesn’t cover is mostly handled by the VA when I need something more. I’ve got good friends and good colleagues. I’ve got this pleasant moment right here, and the hope that I’ll see many many more. It adds up to a pretty good experience. I sit with that awareness awhile. It’s been a worthy journey so far – and there’s further to go.

…It’s time to begin again…

I arrive at the trailhead before dawn. Already, the sun rises earlier and I’ll likely see it as I reach the end of my hike. One last breakfast with The Author before he returns home and life settles back into something like a routine (after a flurry of doctor’s appointments). This morning is not an unpleasant one, nonetheless I feel uneasy; it is inauguration day. The start of Trump II, and I’m not reluctant to admit that I am concerned about the outcome(s).

… I have my own thoughts answering the question “how the fuck did we get here?, but I’m sure everyone does, and mine are perhaps best left for another time…

I breathe, exhale, and relax, and pull myself back to this quiet, pleasant, moment right here, on the edge of a favorite trail, a few minutes before daybreak. Another breath. I’m in a lot of pain this morning. It’s just my arthritis; the weather is quite cold and my pain is reliably worse in cold weather. (This is the likely cause – or one of them – for so many people moving to sunny warm places to spend their retirement years.) I’ve got my cane. I put on gloves and scarf. I’ll warm up as I walk. My pain will be both improved and worsened when I get back to the car. My osteoarthritis stiffness and pain will have eased some with movement. The pain in my left ankle and right knee will increase with each step. I snarl something irritable at past versions of myself for not taking better care of this fragile vessel – then remind myself to practice better self-care, myself, now, too.

…Time keeps passing. Aging is

Still. Things could be worse. I passed several homeless people walking their carts of belongings down frosted sidewalks on this icy cold morning. I am fortunate to be housed, warm and secure. I’ve got good healthcare coverage (for many values of good, though limited by our 100% craptacular US healthcare system) – I can (and should) continue to work with my (new)(good) physician to improve my health and manage my pain more effectively. My Traveling Partner’s care is also in pretty good hands, and we have each other’s support and care, too. Things could definitely be worse. We never know when they might be.

I lace my boots, and think my thoughts, before I hit the trail. Martin Luther King Jr Day, today. I wonder what that means to people… Shouldn’t it be more than just a day off from work? I think about the ways in which the world has changed since I was a child, in the early 60’s… Pretty significant changes, mostly profoundly good, but often seeming “not enough” – how is there even any discussion over the Equal Rights Amendment? It’s 2025, how are we still at war? How are poverty, disease, and inequality still major, noteworthy, progress impeding, concerns around the world? How are there still people who want to work but can’t find jobs? How are there people who want to dedicate their lives to creative endeavors but can’t find (or afford to take) the time?

I sigh to myself. I’ll walk with my thoughts awhile, solve nothing (but maybe learn something about myself), and then begin again.

So, the tl;dr on the visit to the new doctor is that I have a new doctor, and feel pretty well cared for, and one result is a renewed feeling of commitment to my health, generally, and less frustration and fewer feelings of futility about the work involved in being in good health. I’ve got a way to go, and there’s work to do. Predictably enough, I got pretty lax about things like my diet over the holiday season. Time to return to good practices and healthy choices, and there are a bunch of fucking verbs involved. lol

I spent some time this morning, over my black coffee (iced, no sugar) thinking about diet, nutrition, exercise, and cooking for a family while also staying focused on my own needs (and limitations). There are some foods I really like, that I can’t have (or have to limit very strictly), and that just has to be a practical part of the day-to-day without fussing or frustration. Examples? Cheese. Butter. Sugar. Non-nutritive carbs. Those are the biggies. I definitely enjoy cheese…and if I’m having cheese, I probably want that on a cracker… which are purely empty carbs with added sugar. So… no. Butter? Damn, I like cooking with butter. I don’t like the results with butter substitutes, and some recipes don’t turn out quite as well using oil – even healthy oil like avocado or olive. So… yeah. Butter needs to go, too, at least on my meals. Sugar? Just being real, that shit’s basically poison to me. I don’t need to be convinced. The hard part isn’t giving up gummy sweets (which I do really like) – the hard part is strictly limiting fruits to appropriate, measured, controlled, limited portions. These necessary restrictions don’t exactly leave me starving for flavorful meals. lol I’m not that fussy an eater, and I really like squash, and spinach, and eggs, and lean chicken, and broccoli, and beans, and nuts, and salads… so… yeah. Change is. I just have to do the work and demonstrate the commitment and the discipline, and I know that I feel better when I do. Choices.

So… there’s that…

Then… I need to do a little more, and do it a little faster. Basically, I need to make a point to burn those calories. lol I walk – but I’m not walking at the brisk pace I once did. I’m more… ambling along pleasantly enjoying the scenery. I’m in pain, and pushing harder isn’t easy. I’m grateful to be walking at all. Still, it’s time to pick up the pace and make real gains in strength. My doctor was frank with me, and also kind and encouraging. I know I’ve got this – it’s just that there really are verbs involved, and I’ve really got to do them for myself. Maybe that means on some days throwing in an extra walk, just around the neighborhood, at a proper quick pace with my cane and without taking pictures of flowers? I can easily get a mile or more in 20 minutes if I maintain a steady pace – and I know I should be able to do that without being breathless, at all. It’s worth doing. The more able I am, the more I’ll be able to do. More trails become attainable, greater distances become practical for a day hike. It’s worth the effort – and it’s okay that it will be an effort. That’s part of the point; doing the verbs.

This isn’t about new year’s resolutions, and these aren’t unexpected or unreasonable changes to need to make. I’ve been here before. I’m here again. That’s okay – it’s time, that’s all. The holidays are over and there’s work to do to be healthy and fit. Will I fail? Fuck yeah, probably; I’m very human. Will I begin again when I do? Definitely. I’ve got a goal, and a journey ahead, and it’s my path – I’ve got to walk it myself.

I smile and finish my coffee. I feel okay. I slept restlessly, and woke in pain, but neither of those things are out of the ordinary, nor do they cause me any particular concern, they’re just details to work around, and to cope with. It’s a very human experience. I’m feeling pretty encouraged and motivated. It’s time to begin again. Again.