Archives for category: Brain Injury

Some thoughts about things to do with being, becoming, and connecting with people (that I’ve mostly learned the hard way):

  • Chronic negativity isn’t “humor”, nor is it a useful way to connect.
  • An uncomfortable forced laugh is less engaging than authenticity, even when that means admitting “I don’t get it”.
  • Constantly complaining about common experiences doesn’t make a person sound cool, edgy, worldly or sophisticated.
  • I haven’t been everywhere. I haven’t done everything. I don’t know all there is to know about every topic of conversation.
  • It’s a safe bet that I have something to learn, and that listening may reveal things I don’t know.
  • A lot of things aren’t about me at all. Some experiences aren’t for me. I won’t be welcome in every space. This isn’t something that needs to be “fixed”.
  • Being annoying results in being alone. A lot. (And not missed even a little bit.) It’s just not fun to be around – definitely behavior to be avoided.
  • Consideration is often overlooked and very underrated, and when practiced consistently and sincerely can seem like a super power.
  • Manners still matter.
  • Intimidation is a “cheat code” in life, and although people around someone who practices intimidation may be willing to exploit that behavior, they don’t like the person who behaves that way, except maybe in spite of it.
  • Good character has lasting value and creates a stable foundation in relationships.
  • Some people are mired in their anger (it has become a practice more than an emotion), taking that personally is neither healthy nor helpful. Being that person is a poor choice with lasting consequences.
  • Hard decisions can slow me down. It’s worth considering other opinions and new options. Ultimately the choices I make are mine, and so are the consequences. It helps to ask questions and reflect on the answers.
  • Learning is a practice. Self-care is a practice. Listening is a practice. Consideration is a practice. Respect is a practice. Authenticity is a practice. It’s all practice. There are verbs involved. Work. Effort. Self-reflection. Commitment. Getting anywhere worth going happens in increments, over time.
  • We can choose change. We can choose to become the human being we most want to be. Ultimately we are responsible for who we are, and who we choose to become.

There are some seriously unpleasant, annoying people in the world. People who lack manners and consideration. People who are unkind, mean, petty, and (or) intimidating (sometimes for personal gain, sometimes purely as a matter of poor character). It’s worth doing my best not to be one of those people, and to do my best every day to be the person I most want to be. I’m not critizing you or telling you how to live, just sharing some of my own thoughts about my own life, things I’ve learned, things I’ve observed over time, things I still struggle with. Doing better today than I did yesterday isn’t easy; it takes work. Honest self-reflection. A willingness to change.

… Trust me, I’m not smug about any of this shit. I’m working my ass off to be the person I most want to be, to learn from my mistakes, and to do better today than I did yesterday – every day.

It was afternoon when I wrote those words. I was in pain. I slacked off some housekeeping in favor of self-care. Choices. Did it help? I don’t know. I got through another day, and held on to enough energy to cook a good meal. It was enough.

The darkness before dawn.

It’s a new day, now. I’m still in pain – I nearly always am. I’m not saying that to complain, and I’m not alone with that experience. Chronic pain is pretty common, actually. Learning to enjoy life in spite of it can be a pretty difficult journey (a lot of the really worthwhile things in life are difficult). My results vary.

I woke this morning already uncomfortable and in an unpleasant mood. No idea why, really. Maybe just dealing with pain has that result, sometimes. I feel cross with myself, with the world, with the seemingly endless list of shit that needs doing. I’m tired of all of it before I even get started…

I breathe, exhale, and relax, as I sit at the trailhead waiting for enough daylight to walk the trail easily. I don’t feel like walking in the dark this morning. I remind myself to let small shit go, and not to take things personally. I take my morning medication and sip my coffee and watch the moon set through the clouds.

When my mind wanders back to things that irritate me, I bring myself back to here, now, this moment. I make a point of practicing gratitude; it’s exceedingly hard for discontent and irritability to compete with gratitude, and I do have much to be grateful for. The internal resistance to letting my mood improve and allowing myself to enjoy a better experience is frustratingly persistent, but I keep at it. We become what we practice. It won’t always be easy to follow this path, but it is a choice available to me, and it’s the choice I make. My results vary, and there are verbs involved, but over time the outcome is predictably good.

Every day is a new beginning. My path is paved with my choices. The journey is the destination – and the clock is ticking. It’s time to begin again.

The clock says 06:14, and I’m sitting at the trailhead waiting for daybreak. Daylight Savings Time began, again, today. I dislike DST fiercely. I don’t think that is unreasonable; twice yearly my timing and my body are given an additional helping of chaos and discomfort for no good reason. The seasons are what they are. DST doesn’t actually change the length of a day. The change to the clocks, though, is legitimately disruptive.

I set my alarm this morning, rather cleverly I thought, for 05:45 – an hour later than usual, so, for the usual time. It’s a Sunday, and I have no need to be up earlier. Figured I’d give myself a break from the chaos and start dealing with it on the other end of the day. The clock said 05:00 when I woke to… a noise? The sound of a voice, puzzled or bewildered? Something. Shit. Okay, I went ahead and dragged myself through my routine, although my body and brain insisted it was only 04:00 and I could have tried to sleep a bit longer. I was awake, for most values of “awake”. (Ah, DST, my old nemesis, you got me again!)

… I don’t actually care that I’m up so early. I often am…

I’ve got plenty of time.

As I drove up the road, I caught a glimpse of the moon half full, low on the horizon and quite huge. Beautiful and strangely golden in hue, I was tempted to pull over and watch her set, but chose to drive on. I regretted my choice almost immediately, it was just that beautiful and rare a sight to see. The morning is peculiarly spooky at the trailhead. There is a clear sky overhead, planets twinkling, shining brightly enough to be visible in spite of the glare of urban lights below, and there’s a dense mist clinging low to the ground here at the edge of the marsh. It’s an interesting effect. Chilly morning. I sit waiting quietly, feeling sort of sleepy, thinking thoughts.

I sit with my thoughts, sipping the coffee I picked up on the way, grateful to have it. Grateful for the quiet moment. Grateful generally, if I’m being honest. I’ve got a list of things to do later, but none of it needs my attention now, and I’m not in much pain today, so far. Win. I meditate. Sip my coffee. Let these quiet minutes tick by gently. I watch the sky begin to lighten ever so slowly as the mist thickens, obscuring other details.

Daybreak comes.

I breathe, exhale, and relax. Soon enough, it will be time to begin again.

I slept somewhat poorly last night, restless with pain mostly. My dreams were filled with chaos and uncertainty, and the occasional random spider. Odd. I woke in the usual way, dressed and left the house, head still full of chaos. My thoughts as I drove up the highway reflected the restlessness of the night and the chaos in my head; I reflected philosophically on a variety of seemingly unrelated ideas, the only connecting thread being my own individual perspective, as I exist today. Useful? Hardly. Barely interesting, already forgotten.

I get to work, in less pain than yesterday but still feeling it as a distraction. I take my meds, get some coffee. I sigh and get things set up for the day. It’s a routine work day and I’m grateful to be working…but…

…Fucking hell life is expensive, and “enough” doesn’t always feel like “enough”. I say this acutely aware that I write from a place of relative privilege. Things could be better, yeah, but they could sure be a lot fucking worse. (And have been, in past eras of my life). My pain grates on my nerves – but so does my feeling of discontent and stress over the future. (Will I ever retire? It doesn’t seem at all likely at this point, until lack of fitness for such endeavors forces me out of the workforce to exist on whatever resources remain. A grim thought, and I try not to linger in this place.)

I breathe, exhale, and relax. Some days it is a force of will to be in a positive frame of mind. This doesn’t mean inauthentically silently screaming positive aphorisms to myself in my head or forcing a smile to the people around me while I proclaim that “everything is fine” – that doesn’t work. “Fake it till you make it” is not my way; I haven’t found success there, myself. Instead, I rely on practicing gratitude – legitimate, heartfelt appreciation for the things that are working, the things that feel good, that things I have, or do, or feel, that truly lift me up. There’s a lot to be grateful for, and generally the very temporary feelings of stress and discontent will pass if I don’t dig in and build myself a trap to fall into. So, here I am. I “feel around in my headspace” looking for a route to reclaiming my sense of self, my perspective, my feeling of being empowered… I remember I playlist I started once-upon-a-time that might be helpful right now… “No F*cks“. Hmmm… Pretty short playlist. I distract myself wondering what to add that fits the theme. I have definitely found that a “positive distraction” can help shift my mood from the dark places my thoughts sometimes wander.

“Anxiety” 10″ x 14″ acrylic on canvas w/ceramic 2011

I breathe, exhale, and relax. I catch myself wondering about the background stress and the thread of anxiety running through my thoughts. What’s up with me? Is it work? Is it life? Is it my doctor’s appointment later today? Oh. Yeah, that could be it, for sure. I sigh quietly. Aging has it’s ups and downs, and the doctor’s appointment is no big thing, but it brings my anxiety about my pain and long-term wellness concerns more to the forefront of my consciousness, where I thoughtlessly push it back in the form of anxiety. “Saving it for later.” Unproductive. I take a minute with myself. I do a quick “body scan”, and an “emotional inventory”, letting myself be more fully present and in touch with the feelings and sensations in my here and now moment. More than the usual pain, but a lot of it is still “just sore muscles”. My headache is worse than usual – and my health insurer (through their bullshit evil middleman) has decided not to reauthorize one of the few things that really actually gives me some pain relief (not a prescription drug, but a physical therapy). It “won’t fix anything”, which is their justification for denying reauthorization, and that’s certainly true – but there isn’t actually a treatment that will “fix” my degenerative disk disease, my osteo-arthritis, or the headache (at least nothing has been proposed as likely to be a real solution, so far). I would think relief and improved quality of life would be a good choice, with that in mind…? I catch myself gritting my teeth with suppressed fury. The pain is bad today, and I’m annoyed because it didn’t have to be, and it may be getting worse before it gets better. Cheaper to addict patients to powerful painkillers and shame them for being junkies than to provide care that actually eases suffering. Fuckers. Another breath, and I let that go. I can care, even if my insurer doesn’t. My Traveling Partner cares. My doctors care. Those things matter. Doesn’t make it easier, but I’m at least not traveling alone.

I let the music play in my ears, and sip my coffee. Sometimes enough has to be enough – even when it doesn’t feel like “enough”. Sufficiency is often not what I want it to be – it’s only what it is. Things could be legitimately worse – far worse. I’ll make the best of what is – because that’s the path I’ve chosen to walk. That’s the woman I most want to be. Capable. Fearlessly self-aware. Doing my best. It’s not nothing – and sometimes something is all I need to get by for awhile.

I smile to myself. I feel it still. I definitely do. It’s time to begin again anyway.

A friend asked me a question, and asked for “some steps, you know, some basic practices” because they were “freaking out with all this chaos and scary shit going on” (I know, me too, right?). I said I’d do my best. I hope it helps. ❤

Where does this path lead?

Sometimes it’s a difficult journey, this “life” thing, eh? It doesn’t have to be has difficult as it sometimes seems. It is an unfortunate truth that we often complicate our situation needlessly, sometimes through poor decision-making, sometimes through lack of clarity in our thinking, sometimes just because we have feelings and don’t reliably deal with those skillfully. But, the good news is that we do actually have choices, and tools at our disposal (like critical thinking, perspective, and non-attachment). We can take things a step at a time…

  1. Start where you are. Any journey is more difficult if you are trying to begin from somewhere other than where you actually stand. Honest self-reflection, acceptance, and making a point to test your assumptions and reality check your expectations is really useful.
  2. Breathe, exhale, relax. Maybe you don’t have “a meditation practice”. Maybe you don’t need one? It’s reliably helpful to “take a minute” to calm yourself when you are stressed out. Change your perspective or your environment, however briefly, and break out of your rumination or your stress spiral. Let small shit stay small. Let things go that you’re getting hung up on, if only for a little while. Take a break. Walk away from it.
  3. Take care of your “fragile vessel”. Such a simple thing – self-care really matters, particularly when life feels hardest. Are you getting enough rest? Are you eating healthy meals? Drinking enough water? How about a shower and some clean clothes? Have you taken prescription medications that may affect your feeling of wellness (or failed to take them)? Are you in pain – and are you doing something to ease that, if you can?
  4. No media, no doomscrolling. This one is a small thing, but a big deal; if you’re already stressed to the breaking point, feeling overwhelmed, or struggling to manage the details in your life, I promise you that reading the news, or doomscrolling endlessly through various feeds on your device(s) is not helpful. Put it down. Silence your notifications. Put the device on Do Not Disturb. Walk away from the tether that ties you to constant demands for your attention. Go outside. Take a walk. Read a book. Sit down over a cup of tea or coffee with an actual human being out in the world and have a conversation. (See point 2.)
  5. Put things into perspective. This one is both difficult and easy. Easy to say, sometimes more difficult to put into practice, just being real with you. Your perspective on a difficult moment may be filtered through the lens of the stress you feel, or prior experiences that weren’t really quite the same. You may be struggling with your chaos and damage, and past traumas may be coloring your understanding. Take a step back. (Don’t take dumb shit personally.) Consider the moment from more than one angle. This one moment, right here, is unique and unrepeatable – and it will pass (good or bad). Let it.
  6. Practice non-attachment. This is a practice that sometimes has some poignance (at least for me); let it go. Just that. Whatever it is, don’t cling to it. Let it go. If you lost the thing you cling to so tightly (whether it is an object, relationship, or sense of identity), things might change, sure, but – wouldn’t you (most likely) be okay if you allow yourself to be? We sometimes cling so tightly to something that isn’t even quite real. Some of what hurts us most we’ve completely made up – it’s safe to let that shit go.
  7. Practice gratitude. I’m not even kidding. I’m also not suggesting that being grateful for the struggle itself, or the pain you’re in, or this complicated moment is the goal. Not at all. I’m suggesting that being grateful for other things, the small wins, the pleasant moments, the little joys, the handful of things that are reliably part of your individual good fortune has real value. It’s difficult for anger, anxiety, or sorrow to compete for one’s attention with heartfelt gratitude. Authenticity matters, and gratitude can’t be “forced”, but there are likely to be quite a few little things for which you are truly grateful. Make room for those. Reflect on, and cherish those. It may give you a firm foundation to stand on before you…
  8. Take the next step. Life is a journey. Most of our path we walk alone. Sometimes we’re fortunate enough to share the journey, but it is still our journey. We’re each having our own experience. Walk on. Sure, have an eye on where you think you’d like to get to, but understand an important detail; the journey is the destination. Do your best to be the person you’d most like to be, moment to moment. Make those choices – the ones that allow you to walk your path, authentically.
  9. Be here, now. Spend less time on regret (the past is behind you) and worry (the future has not yet happened and may not be whatever you fear it might). Be present, in this moment. Now. This takes us back to point 1, you may have noticed… “start where you are”.
As with so many journeys, it isn’t always clear where the path leads.

Breathe. Exhale. Relax. You can begin again. Each time you stumble, pick yourself up, and begin again. Each time you fail, learn from that experience. You’ve got this. It’s your path, your journey, no one can handle this one better than you can.

Staying on the path is a choice, and there are verbs involved.

It’s a Friday. The headlines in my news feed are pretty horrible; more human cruelty, more corruption and greed, more vain human stupidity. I sigh and move on; I don’t have time for that bullshit. I have things to get done, a life to live, and an opportunity to do better, myself, than all of that nonsense. I decide to focus on what I can do as an individual to make life better for my family and my colleagues, and stay present here, now, and attentive to what I can do something about, personally. It feels more productive, and emotionally healthier.

…I have a list of things to do…

First things first, I take care of myself. Coffee. Meditation. A moment for reflection. Then thoughtful time spent on the household budget for the new pay period. I smile to myself, thinking of my Traveling Partner and how helpful he was when we got together, sharing his (much better) approach to such things. I’ve come a long way since then. During the time I lived alone, although we were still together, he wisely “kicked off the training wheels” and insisted I handle my own affairs financially, feeling that I was ready for that (and wanting to feel certain I could take care of myself in this way, come what may). Having a brain injury had long presented significant challenges for me in that area; managing money was hard for as long as I could remember, when I met my Traveling Partner. Making and following a budget was hard. Understanding when and how to flex on a plan was complicated. I didn’t make much money and it always seemed like I needed to stretch it further than it could go. I’d been disadvantaged by relationships with individuals willing to exploit my inexperience or my brain damage for their own benefit. I didn’t understand my worth. I am grateful to my beloved Traveling Partner whenever I sit down on a payday Friday to look over the numbers, make a plan, and prepare for another cycle of bills, expenses, and living life. Paydays used to be terrifying and filled with anxiety – now they’re just days that begin with a spreadsheet, some thoughtful choices, and some notes to share with my partner, and the chance to get his thoughts on the plan and make changes based on those. He has good ideas and we’re a team. I smile, feeling fortunate and loved.

I look over the things I need to get done over the next couple of weeks, and over the coming weekend. Pick up new glasses. Get the oil changed in my car. Grocery shop. Finish the storage move. Prepare the garden for the coming of Spring. I sigh to myself; I failed to properly winterize the garden last autumn, busy with other things that seemed a higher priority at the time. I’ll pay for that now. The Spring prep tasks will be a bit more complicated, a bit more laborious, a bit more tedious. Choices. I laugh softly to myself and sip my coffee. We make our choices and pay the price when we choose poorly. That’s just real.

…I’m excited about having new glasses, my prescription has changed and it’ll be good to see clearly again…

I sip my coffee and do a quick “personal inventory”. My tinnitus is loud in my ears this morning, but I’m not in much pain. I’m feeling the chill of morning, but I’m not especially uncomfortable. I feel relaxed and ready for the day. My chronic headache is only a 2 on a 1-10 scale, which is almost pleasant, all things considered. It’s a good start to the day. I feel rested and calm. It was probably a good choice to avoid the news feed – nothing good comes of added unnecessary stress over terrible shit I can’t change to my sense of self first thing in the morning. Being “present”, and having a sense of “where I’m at” at the start of the day is a useful practice, for me. I’m less likely to unexpectedly find myself mired in chaos and damage, or having some problematic tantrum over bullshit. I can take better care of myself when I know what I need. (That probably all seems pretty obvious…)

Daybreak comes, then dawn, and I see the suggestion of a sunrise behind dense gray clouds. A new day. Looks like a good one, so long as I don’t think about things to do with governments, politicians, billionaires, corporate greed, exploitation of vulnerable populations, or climate change. I sigh to myself and get ready to begin again.