Archives for category: pain

Staying home yesterday was the right choice. The small amount of effort exerted happily tidying up the smallest bit, while my energy level was high in the early morning, completely wiped me out. Not a set back, specifically, but definitely a clear warning sign that I’m not yet well. By mid-day, symptoms like dizziness, and that infernal headache, had gone completely, and I didn’t need to sleep all day. (Yay!!) So… definitely feeling “better”…but… then, sometime later in the day, the coughing got going on this whole other unnecessarily annoying level…and then… ouch. The muscles supporting my ribs, along my sides, not quite around toward my back, definitely involved in coughing…and… definitely not ready for all of this coughing. Something sprung, or pinched, or tweaked, or… both sides, now, every cough, there’s also muscle pain sharp in my awareness, not quite to the torn muscle severity, but god damn it hurts when I cough. 😦 How the ever-loving-fuck do I avoid coughing as I recover from the fucking flu???

I went to bed. Slept… okay… ish. For most values of “sleep” and “okay”. I woke often. Drinking this much tea, water, coffee… it’s a given. So there’s that. And the coughing. And the pain. I so do not want to go to work today. I could get some shit done here, though… I’m up to that. So it isn’t really the work, itself, that I’m not up to at this point – it’s the environment. I’m not up to it, and it’s not really the appropriate place to bring all this fucking loud coughing. (I sound like I’m literally dying of some horrible disease of the respiratory system, it’s hard to listen to.) (Not only that, but sitting near me would also subject someone to listening to my damned lungs making percolating noises while I breathe. lol Again, not the picture of vibrant health one expects from a coworker, generally.) Nor do I wish to expose others to this (although I already have – and omg, I am so sorry!!). So… this morning, my coffee, the trip to the office to grab my laptop and back home to “go to work”. Like… double the commute. <sigh> Yes, but also… heated seats. My arthritic back does like some time on the heated seat. 🙂

I just want to be well. lol I wake up making childish bargains with the universe (“If you just let me get through today without… “) that never work out (because that’s not how life works). I’m managing to take decently good care of myself, and it was lovely waking up this morning to a tidy little place, a clean kitchen, a sense of order, and a fireplace ready for me when I want it. That was one bonus out of the day, yesterday; the landlord was on site doing winterization stuff around the duplex (and no doubt other locations in the area), and stopped in to turn on the pilot light for the gas fireplace. 😀 It was pretty nice to enjoy the evening in the glow of a merry little fire, then also just switch it off at bed time. I enjoyed it so much that before bed I put a sticky note on the switch that says “this too costs cash”. lol

Still sick. My coffee is good, though (and my sense of taste is returning). I’m decently well-rested in spite of the very interrupted night. I’m clearly in the process of “getting well”, it’s just taking rather longer than I’d like. It’s a good opportunity to bring the work laptop home, and get back to work, even if I am not ready to get back to the office… It’s just time to begin again. Slowly. With great care. 🙂

I succeeded in sleeping in this morning, until almost 8:30 am. It mattered less that I also woke basically every two hours during the night, or that I was awake for two hours, sometime around midnight, than that I was able to simply keep sleeping until the thought of being awake no longer seemed like a compromise of my most basic self-care. I was up for a couple of hours. I watched some entertaining videos. I scrolled through Facebook. I showered and handled basic hygiene and self-care tasks (most easily accomplished while I am awake).

I went back to bed, and slept through much of the afternoon, waking more or less around tea time, which is to say, around 3pm. I woke a number of times, but a quick check on my consciousness found me choosing more sleep, each time, until this last time, when I chose, at last, to wake and even to get up. I had to pee. Not getting up wasn’t really an option. I didn’t go back to bed, but mostly only because I didn’t want more sleep any more than I wanted to be awake, and since I was already awake, and up, I simply decided to continue along that path awhile. lol I’m not terrifically engaged with the moment, the fire of my natural presence flickers. Clearly I am ill. So… a fresh cup of hot tea. A new moment. I am on auto-pilot, and only barely truly awake. I am uncertain where the evening may take me.

I am hungry. The amount of work involved in feeding myself doesn’t seem at all appealing. The sorts of foods I could order? Don’t seem at all appealing. So. Here I sit. Hungry and doing nothing whatsoever about it. Thinking about taking action on the food thing, I find myself contemplating going back to bed instead… I would not notice any feelings of hunger if I were asleep… It would be easier.

I sip my tea. It is hot, bland, basically flavorless. I’m sick and nothing tastes good, really. I think about how easily I could heat up some chicken soup, though… Chicken soup, with Rick & Morty… or chicken soup with Archer… or chicken soup with Harry Potter, South Park, or Samurai Champloo… or chicken soup with a favorite book… I chuckle when I realize that I am more interested in the chicken soup itself than any accompanying entertainment. Okay, okay – chicken soup then. No problem. I’ve got plenty made. I find myself feeling somewhat buoyed by the thought of rich hot broth, chunks of chicken meat, veggies stewed in the flavorful broth, buckwheat noodles…

I lift myself from my chair with some awkwardness and stiffness. I barely notice the pain I am in, moment-to-moment, because flu symptoms suck so much, but there it is, when I move. I stand with some difficultly, and wait a few seconds to be sure of my balance, before making my way to the kitchen. Chicken soup won’t heat itself. lol One obvious downside to living alone; I’ve always got to be the one fetching tissues or mugs of tea, or heating up the soup. 🙂

Sometime shortly before bed I noticed the tickle in my throat. All night long, my snoring woke me repeatedly, and the tickle quickly became a sore throat once tender tissues had dried out, due to breathing with my mouth open. I got up again and again. Another drink of water. Had to pee again. Just couldn’t seem to maintain sleep. I finally just got up, around 2:30 am, and made a cup of soothing chamomile tea, and sipped on that until my painful sore throat wasn’t so painful and sore, and I could swallow with relative ease. I went back to bed and slept deeply for an hour.

My coffee sucks this morning. I taste only the bitterness of the brew. The hot liquid is soothing on my throat, though. I continue to choke it down; I definitely do not need the headache that would result from not having my morning coffee! I’m tired and a little dizzy, fuzzy-headed, and more interested in going back to bed than going in to work. I check my temperature. During the night it was 100 degrees. This morning it is normal. That’s something, anyway. I take stock of physical sensations, and wonder if the mild dizziness is the Benadryl? It easily could be. It could easily be the poor quality of my sleep, too. Either way, something to be aware of.

I’m annoyed to be feeling poorly. I am hopeful it will clear up quickly, as the last little bout with some unidentified ick did. I have things to do, and don’t care to be thrown off by illness… but… That’s not how these things work, is it? 🙂

I step up my self-care, and look for things I can do for myself to be more comfortable during the busy day ahead. It’ll be a weird day for it. Minutes ago I was chilly, and turned up the heat. It hasn’t even warmed up by one degree, yet, and already I am now feeling overly warm. My head aches, but it’s that viral sort of headache that often goes with a cold, and I have done what I could for that. I tuck a couple packets of instant chicken soup into my hand bag along with some tea I like when I’m sick.

I look over my “to do list”. There’s really nothing that can’t wait a day or two until I am feeling more myself, other than routine basics like dishes and taking out the trash. I plan ahead, perhaps a couple of early nights, lacking any stress, will be sufficient to get me over the worst of whatever this is?

I start this particular day looking forward, very much, to its end. lol I’ll begin again tomorrow… 😉

I woke in pain.

Damn it. A sentence that short doesn’t do the moment justice. Rainy, chilly, autumn days, and colder night-time temperatures, and here it is time again for my arthritis pain to become a serious shot-caller in my day-to-day experience. Damn, this sucks. I woke hurting, couldn’t roll over because my spine was locked up, rigid and aching, from my waist to my shoulders. I laid still with the pain for a few moments, taking time to be aware that I was able to breathe “comfortably” – for some values of “comfort” – and confirming fingers and toes move, and that I felt sensations in extremities.

Time for the winter practices, already? Yeah, looks that way. I slowly, with great determination, begin moving the bits and pieces that do seem pretty mobile. I flex fingers, arms, toes, feet, legs. I stretch anything that stretches. I find adequate leverage to roll to my back. I pull my knees to my chest one by one, and begin working on arching my back some small bit. I push-pull-rock and get rolled first to one side, then the other. Repeat all the motions on each side. Eventually, I am able to roll to my right side, push myself up on an elbow, pull myself the rest of the way using the arm on the other side, and a firm grasp on the edge of the pillow top of the mattress. Sitting up! Yes! It feels like triumph.

I sit for a few minutes, ignoring the tears – a combination of pain and relief, that spilled over as I sat up. Mornings like this one, I am “painfully aware” (lol) that one day I won’t be able to easily live alone; I’ll need help with basic things, at some point. Aging is a thing. I am definitely living that process. I sigh, and the sound fills the otherwise quiet room. Maybe a shower will help?

The long minutes lingering in a hot shower leaves my skin reddened in places, but my spine is a bit more flex-y, as a spine ideally would be. I don’t hurt quite so much. I can dress, with care, and anything to do with standing is as easy as ever, and that means – coffee. 🙂 My coffee this morning even turned out wonderfully well, and I am enjoying it with a smile that has no trace of the pain I woke in. Oh, I still hurt; it’s that sort of day. It’s more manageable now, is all, and that is enough.

I sip my coffee and think about the phone call with my Traveling Partner last night, sharing his autumn and winter travel plans with me. I think, now, about how those may/can change my own plans. I smile. The physical distance doesn’t change much for me; we talk regularly, and the specifics of distance are irrelevant in our digital experience. We see each other when circumstances and choices permit it. (Sure, I will miss him; I always miss him when he isn’t near me, but that doesn’t have to mean drama and bullshit. lol) I was planning to discuss my reluctance to plan regular visits down once the roads begin to freeze, or snow becomes a concern (even though I have chains, it’s just not my preference to tackle long drives in icy/snowy conditions); his plans are such that it just won’t actually be a concern. lol Win and good. Convenient. Stress-free mutually beneficial planning for the win! 🙂

First coffee finished, I make a second, and load a great set, from a favorite DJ who does a regular live cast on Facebook, to get me moving, and hopefully provide additional relief of my pain, and a bit more freedom of movement. Movement hurts, but it helps, too. Hard not to dance to great music.

I spend coffee #2 grooving in my chair, writing, and chatting with my Traveling Partner as we get our mornings started. A promising beginning to a leisurely Sunday. I open my “to do list” and frown at tasks I know I am not going to be able to do with any ease, and scroll through prioritizing the tasks that will be more easily handled today. I smile when I get to the line that says “get enough rest” – that’s one I can check off right now. 🙂

No idea what the day holds, but I’m here. You’re here. There’s an entire day ahead to make something of – and that’s enough. 🙂

I woke three times, all three times feeling well-rested, the first two also entirely able and willing to return to sleep – so I did. 😀 It is Saturday, and I have succeeded in doing the one thing I did plan to do today; I got the rest I needed. 🙂

Good self-care is critical to my wellness. (Yours, too, probably.) I used to suck at it completely, always over-compromising what it takes to be well and feel good by grabbing onto other experiences and choices, for…well… reasons. Reasons that seemed to make sense in the moment, but more often than not were excuses and rationalizations for “doing whatever I want” – or, actually, whatever someone else wanted. The cycle of exhaustion, meltdowns, and poor outcomes was so predictable that for many years I simply called the entire mess “hormones” and put that shit on my calendar without any particularly successful effort to mitigate or improve any of it (because… “hormones”… well… that shit can’t be fixed, though, right? Right??) (Actually, no. It turns out that conflating hormones, mental illness, a lack of emotional intelligence, poor self-care, and plain old-fashioned inconsiderate shitty behavior, assumption making, and personal bullshit leaves quite a lot of room for improvement… so… maybe rethinking your inconsiderate bullshit, at a minimum, is a good place to start? 😉 Just saying.)

I am watching, from a distance, as two relationships in my social network struggle with a partner’s mental illness. Both have been deeply committed loving relationships of decades of mutual affection, support, and shared family life. Both are struggling with the challenge of making love work, while also supporting a mentally ill person’s personal challenge with finding wellness, and juggling all the other elements of family life: work, kids, bills, grocery shopping, and even the assumptions of strangers and the well-meaning “help” and support of friends, sometimes less than ideally helpful, no doubt. (Been there.) It’s fucking hard to be mentally ill. It’s fucking hard to love someone who is mentally ill. The coping skills and rationalizations that allowed these relationships to succeed and perhaps even appear functional before mental illness finally prevented that from being a thing at all are reliably breaking down now that these mentally ill friends are seeking (and getting) treatment that may actually result in wellness. Their partners may not be much help at this point, and in fact, their hurts, anger, resentment, and emotional wellness concerns are reliably welling up and becoming problems that need to be managed. It’s when a mentally ill loved one begins the journey to wellness that everyone else’s rampant crazy bullshit comes to the forefront – along with the rationalizations, excuse-making, justifications, chronically incorrect and untested assumptions, and refusal to respect new boundaries and changes of behavior. It’s ugly and it’s hard. There are literally no “good guys”, and as soon as “the crazy one” begins to practice things that are more sane, the crazy on the other side of the relationship becomes apparent – often accompanied by utter refusal to acknowledge it, be accountable for it, accept it, or change it.

When people who are mentally ill seek treatment, find it, and begin their journey toward wellness, the first set back is often because within their once supportive network of friends and family (“I’m here for you!”) are people who are suddenly not so willing to “be there” if “there” turns out to include being aware of their own bullshit, and their continued commitment to a status quo that it turns out has favored them, and met certain needs that must now be met differently – in, oh, hey, some new healthy way. It’s hard. It’s hardest, frankly, on the mentally ill partner now responsible not only for staying focused on treatment, but now this mentally unwell person struggling with their situation is suddenly also forced to have to provide support to the adult in the room who turns out to be less than ideally adult (and sometimes fully unwilling to even be aware of that).

It’s a see-saw, people. When we love someone with a mental health challenge, over time, we make room for some weird and possibly damaging bullshit that changes who we are, ourselves, a little at a time. When someone we love who is mentally ill seeks help, and begins to make real changes, on purpose, with the intent of becoming well – our own crazy is going to well up and fight back, and our failure to be observant and aware, and also take the very best care of ourselves, for real, is likely to be the first step on the path to seeing that relationship simply end. It will end in screaming tantrums, outrage, defensiveness, accusations, and generally – a lot of needless yelling. The cause I most commonly see as obvious and avoidable is that instead of partnerships fighting mental illness together, partners become adversaries and basically forget all about the actual issue being someone who is sick, and not able to be at their best, who needs help, support, consideration, and compassion.

Reminder: getting a diagnosis does not suddenly make someone who is mentally ill magically able to not struggle with mental illness. They can’t just point to a page in their handy “So you’re depressed?” handbook or their “The basics of living with PTSD” guide and go down a list of steps to “make it all better” for some other person. Fuck you. That’s sort of one of the limitations of being unwell; there is a fairly commonly implied inability to do all the things.

I’m not saying it’s easy. I’m saying it’s fucking hard. I’m saying a great many relationships that end over mental illness don’t end because a partner is mentally ill – they end when that person seeks wellness and messes with the stable status quo that has allowed the “well” person certain… sanity privileges, that they must now give up in favor of dealing with their own unaddressed bullshit. No one in a relationship recovers from mental illness alone; everyone must deal with their bullshit. Everyone has bullshit.

When I hit that wall in my own relationship(s) I was fortunate. I chose to move into my own living space, and make a significant lifestyle change for a variety of reasons that overlapped in a useful way. I live alone. Sure, there’s bullshit, and I definitely trip over it frequently – and it’s all mine. My bullshit. My issues. My limitations. It’s also my home, my rules, my way; the failures are mine, and so are the successes. I was able to let go of my attachment to “being heard” by my partner(s), and able to comfortably take time to be heard by the woman in the mirror – because I could recognize, in the silence of solitary space, that this was in fact where the issue rested, for me. I was able to begin to sort out my bullshit from the bullshit in my relationships that wasn’t mine, and let go of trying to fix other people, or a relationship dynamic that was unavoidably damaged by my issues, and work on practicing healthier practices that support my own mental wellness… and having gained a measure of wellness, emotional resilience, and stability, then I could begin to tackle the complex challenges of “making things right” with emotionally hurt partner(s). Please note: I am not recommending my choices to anyone else. I am this person here, and my needs are what they are; I thrive living alone. You are likely someone else altogether, with different needs, and other choices may be preferable for you, personally. I’m just saying – achieving wellness may very well destroy existing relationships, and not through any failure of the mentally ill person, and in no way directly caused by their illness, but totally because they attempted to get well – and wellness did not meet the needs of that relationship. It’s totally a thing.

Prepare for change. Seeking mental health changes things. It’s a thing people know about.

Are you a “bad person” if you can’t stay in a relationship with someone who is mentally ill? I mean, you wouldn’t leave if they broke their leg, right? It’s a complicated question. Just as complicated as “Am I a bad person if I can’t stay in my relationship because my partner won’t respect new boundaries and changes in behavior as I improve my mental health?”

Helpful friends don’t feel any more comfortable than anyone else in the context of watching lovers struggle with mental health concerns. Everyone has their “good advice” to offer. People take sides without ever seeing the entirety of the dynamic. Also hard.

Every bit of all the hard stuff is 100% hardest on the person who is mentally ill, who is trying their damnedest to find emotional wellness – they are the one who is sick, people. I’m just saying. Seriously? Find some fucking perspective. Be there for a friend. Listen more than you talk, and refrain from making assumptions. Be encouraging. Be considerate. Be compassionate. If a relationship is struggling with mental illness, everyone is hurting, everyone is injured, everyone is struggling – and no one is the good guy; we’ve all got our own bullshit to deal with.

Two different relationships, two different sets of circumstances. I find myself fairly certain one relationship has already failed, and wondering if the other might manage to survive this; it’s in how they treat each other. In both cases, I see the mentally ill person doing what they must do to become well.

I notice that I have finished my second coffee, and my playlist just ended. It is a lush rainy Saturday, and I’ve got some important self-care to take care of; it’s been a long week, and I find that my own emotional wellness is very much tied to skilled self-care. 🙂 It’s time to get started on the practices that keep me well. Doing so, and staying committed to them, has changed my world, and also my relationships. I swallow one last bite of oatmeal, grateful my relationship with my Traveling Partner has endured my changes. Love matters most.