Archives for posts with tag: caregiving

In spite of it having rained through the night, this picnic table I’m sitting on had a dry spot pretty much just the right size to comfortably sit for a few minutes. I can see the full moon peeking from the clouds as they drift past, under this natural awning of evergreen boughs. Nice spot to sit awhile in the pre-dawn darkness. I turn off my headlamp and enjoy the quiet moment. Somewhere in the distance I hear traffic, and the sound of human endeavors.

“Enjoy it while you can.” I think to myself. The world is messy and complicated and frankly a little scary. Talk of curtailing banking regulations that explicitly protect consumers and the potential withdrawal of approval of the fucking polio vaccine just terrify me. (Why would anyone even want these kinds of terrible changes?!) Not gonna lie – these are trying times, and I feel it. I make a point to take time to sit, to reflect on the things in life that matter and bring me joy, and to feel gratitude for the many advances humanity has made. The risks and problems that plague us all too often get all the attention.

… It’s important to give myself a break from all that…

I grin in the darkness, swinging my feet like an excited child when I think about Giftmas. The holiday is almost here! The shopping is done. Presents are wrapped and waiting under the tree. I’m eager to share that joy with my Traveling Partner. It’s good to see his progress as he continues to recover from his injury and subsequent surgery. I find myself “missing the man that he was” much less often, because I find him standing beside me once again so much more often, now. Feels good. Feels safe and encouraging. I fucking love this man, and he has become part of me. I’ve been tremendously worried for the past year, and it feels good to finally feel some relief from my fear and worry, and to feel truly hopeful again.

The moon appears again, fat and round and luminous, as if to say “I see you”. A spattering of raindrops fall from the branches overhead, shaken loose by the breeze. My heart feels full of goodness and hope and gratitude, and it’s a lovely feeling to start the day with. I glance at the time. It’s a work day. Time to get back on the path and head back to the car. Time to begin again.

Cold morning. Above freezing, though, and I’m dressed warmly. I walk the trail in the pre-dawn darkness, grateful for the circle of light cast by my headlamp bobbing along with my steps. It rained during the night and the trail is slick with wet leaves in some spots, and in others there are puddles to avoid. I step along with care, feeling the cold, grateful for gloves and a scarf, and my warm fleece over a favorite sweater.

Clouds illuminated by city lights before dawn.

… This morning writing would wait until I’m back at the car…

It was a good walk. It’s a Monday morning. I’m in the kind of pain that only seems to come around in cold damp weather, unpleasant for sure, but I’m more angry about it than suffering from it. I resent the imposition on my abilities and my will. I’ve got shit to do, and a life to live. “Fuck pain,” I snarl quietly to myself as I warm up in the car after my walk.

Monday isn’t my busiest workday, generally, but today any sense of ease has been overcome by errands that need to be run, which bookend my day; early errands to drop off items being returned, and packages being posted, and at the other end, running my Traveling Partner over to his PT appointment. In between? Work, yes, but since I’m working from home, also anything else I can wedge into the day… taking out recycling, laundry, dishes… sometimes the notion of “a day off” dissipates like fog as the sun rises. I breathe, exhale, and relax. There’s no point being mad about it; I’m the one doing it to myself, and could certainly do a better job of managing my time and setting boundaries. It takes practice.

…I keep practicing…

… I’m tired as the holidays hurtle towards me on the calendar.

The VA sent me a “sound machine” after my audiology appointment. It arrived yesterday. It’s supposed to help with my tinnitus. I wonder if it will? Am I noticing any improvement after one night? I don’t know. I don’t think so? But, the shrieking of my tinnitus in my ears wasn’t the first thing that had my attention this morning, and when I got up to pee during the night, it didn’t keep me awake. So… maybe? How is success measured? I found the sound I selected very pleasant as background noise for sleeping… maybe that’s enough?

… I’m more eager to get my hearing aids…

I laugh at myself when I realize I’ve projected myself into a future moment only to feel discontent that it is not now. That’s just fucking dumb. A waste of precious mortal lifetime for sure. I pull myself back to now. This moment right here is quite a pleasant satisfying one, deserving to be enjoyed. I reflect for a moment on how easily I allow some new momentary difficulty to create chaos in my experience by letting it overwhelm a very pleasant moment I’ve been enjoying. That’s the entire point of practicing savoring each small joy and pleasant moment; to learn to refrain from twisting chaotically with every little thing, and to build emotional resilience.

I breathe, exhale, and relax. Lovely moment, this one. I take time to enjoy it. To meditate. To enjoy the steady progress towards the soggy sunrise before I begin the work day. It’s useful to let each new beginning be preceded by a quiet moment of reflection. So… I do that. Then I’ll begin again.

I slept like crap last night. My sleep was restless and disturbed by strange unsettling dreams. Not exactly nightmares, I guess, but my dreams were peculiar and distressing enough to wake me. I woke a bit more than a half hour early for the day to begin, too, feeling restless and fussy. My Traveling Partner was already up, rather oddly, and as soon as I entered the living room he said “now I can go back to bed”, or something of the sort (I was still pretty groggy). It was weird.

Later, after I was long gone and out on this trail in the fog and darkness, he pinged me, awake again (still), and told me about his restless night. Rough. I send him my love and some affectionate stickers and emoji. Probably not very helpful, but hopefully he at least knows I care. Before I can share the love song that has been stuck in my head since I woke this morning, he’s headed back to bed. I hope he finally sleeps.

I pause on the trail in the cold to write a few words and gaze at the sliver of moon in the east through the fog, before I finish my walk and head to the office. Today feels “too busy” and I’m short on rest. I’ll do my best. What else is there to do?

It’s Thanksgiving week, of course it feels busy. I laugh to myself. Human challenges. Human limitations. I breathe exhale and relax. I meditate for a few moments, unconcerned with the cold. It’s not quite freezing. I’m glad I wore warm layers, and my scarf and gloves! I think about sitting by the fireplace, cozy and warm. Winter soon.

“Fireside” pastel 2024

I look at the time, in the pre-dawn gloom. Daydreaming can wait. It’s time to begin again. The day is waiting.

My sleep was restless and disturbed by strange vivid dreams. I woke several times during the night, but seemed to have gotten enough rest to get through another day. I woke to find an irritated message from my Traveling Partner, a reminder about a preference regarding housekeeping. Although I appreciate the reminder for what it is, I could do without the “tone”.

… I remind myself it’s difficult for an able, skilled, adult man to find himself so thoroughly dependent on his partner’s assistance and cut him some slack…

I’m working my ass off day-to-day to keep shit caught up, and meet all the complex needs of the household… and I’m feeling pretty cross this morning. The lack of basic consideration being shown to me by everyone counting on me for so much seems lacking – inappropriately so. I remind myself everyone is human and that my efforts are appreciated… but fucking hell I do wish they were reciprocated more often! Particularly where housekeeping and cooking are concerned. I know my Traveling Partner’s limitations legitimately hold him back, for the time being, but the Anxious Adventurer has no such limitations and seems unaware just how much extra work I do that I’d like some fucking help with. Being fair, he’s generally helpful when I ask, but g’damn there’s a fucking ton of everyday shit that is obvious and right in front of him. Dishes. Cooking dinner. Picking up the mail. Laundering towels.

… I shouldn’t bitch; he does quite a bit of project stuff I can’t get to at all because of everything else. I’m just tired. I need a break, and I’m getting one very soon. I relax when I think about it. Day after tomorrow. 😀

I guess it mostly just aggravates me that it often feels like I’m the only one actively putting effort – a lot of effort – into quality of life basics (like dishes, and counter tops). It’s probably not an accurate perception. Perhaps I’m feeling resentful of how little time is left to take care of myself or do anything fun that I want to do for myself, once everyone else’s needs are met? I should figure out how to speak up about that before the pressure builds to some ridiculous emotional explosion.

… It’s especially nice to come home to the dishes being done. It’s rare. I’d love to hear someone offer to take care of the evening meal so I don’t have to. Also exceedingly rare. I can ask for these kinds of things, but that leaves 100% of the mental work of having it in mind still on me. That sucks. I’d rather be thinking about art. lol Waaaah! Adulting is hard!

I breathe exhale and relax. I need a break and I’m taking one. Then I can begin again.

Yesterday was… difficult. My Traveling Partner was in pain after PT the previous day and feeling really uncomfortable and cross with the world. Understandable, and honestly, I generally wouldn’t mention it in any specific way, but the results affected me quite directly. The peace of my morning was quickly wrecked, and before midday I was seriously wondering if I’m even cut out for being in a relationship or enduring cohabitation at all. It was that kind of day.

… Caregiving is hard…

I love (adore) my Traveling Partner with an abiding passion that can be described pretty accurately as “ridiculous”. It makes no damned sense that I love him so. Hard days are hard. Bad moods feel…bad. Hurt feelings hurt. Love isn’t some magical effortless fairytale condition that leaps from eye contact to happily ever after. There are verbs involved. Effort. Real work. Personal growth over time. Compromises and changes. Fucking hell, it’s an unreasonable bit of work involved in deepening and maintaining intimacy, especially under trying circumstances. G’damn it’s worth it though, and most of the time that’s obvious.

I breathe, exhale, and relax. The day ended pretty well, though my beloved was still cross and miserable. We talked over the things that mattered. We sorted some stuff out. We called it a night in a good place with each other, in spite of his continued pain and discomfort. It’s a new day, today. A new chance to begin again. Love is worth the effort we make.

I stare into the foggy autumn darkness. It’s awhile yet until daybreak, but the work day begins pretty soon. I lace up my boots and add gloves and a scarf. It’s chilly this morning. I’ve got my cane and my headlamp. I finish my coffee. It’s time to begin again. Again.