Archives for posts with tag: chronic fatigue
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One Foot In Front Of The Other

November 5, 2025 //
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In spite of taking some weekend time to properly relax and rest, and in spite of sleeping decently well lately, and in spite of having some help and rearranging things to reduce my day-to-day workload, I’m tired. Not the physical fatigue of effort exerted, instead it is the consuming, distracting, encroaching loss of will and focus that comes from “too much for too long” and I really need a break from… everything. It’s dumb. I feel as if I am literally fatigued by living life. I’ve got to do a better job of self-care, before I face legitimate burnout.

…Seems like there is always another chore to do, or another errand to run…

I start the morning already tired, already feeling “over it”, and the work day hasn’t even started. It’s raining at the trailhead, and I’m in pain before I even start my walk. I’m going to walk, anyway, it is a favorite self-care practice, and it is in the very nature of a practice to be practiced. I sigh to myself, feeling annoyed by everything but the solitude, and start down the path, one step at a time.

Eventually, I reach my halfway point. As I stop, the rain stops too. My rain poncho, which has been flapping against my legs as I walk, or wrapping annoyingly around me in the wind, becomes something to be grateful for; it’s keeping me dry, sitting here on this very wet bench. My sour mood is sweetened a bit by the moment of sincere gratitude. I sit with that feeling for s little while. It’s better than being cranky, by far.

The morning is still dark, and I persist in yearning for a weekend that is still days away. It’s time to plan the Thanksgiving dinner. Time to figure out the holidays generally. Life feels ludicrously busy. No wonder I’m tired. I rarely give my mind enough rest. I breathe, exhale, and relax. These quiet moments in the mornings are so necessary to my mental health overall – but they are not enough to prevent me from exhausting myself over time. I need to do a better job of setting boundaries, and pacing myself – and asking for (and accepting) help.

…It is proving to be quite difficult to adjust from full-time caregiving back to a more evenly balanced partnership, even though it’s timely, appropriate, and necessary…

I sit listening to the rain sprinkling the leaves that still cling to the trees, and spattering my poncho. I enjoy the delicate not quite random percussion. I breathe the rain-fresh autumn air. My tinnitus is crazy loud this morning, so I don’t hear much in the predawn quiet, besides the zing and buzz of tinnitus, the pattering of raindrops, and my breathing. As if to call me a liar (or to expand my perspective), an HVAC system somewhere nearby comes on, and adds its tones to the background noise. I chuckle to myself; it’s definitely not personal. It’s just noise.

Daybreak comes. It is a gray rainy morning under a soggy overcast sky. A deer startles me walking past. I didn’t see her approach. I twitch, startled. My movement startles her in turn, and she gives a little jump then runs off to the side, into the trees. As she disappears, I see that she was not alone, and wonder how long I sat quietly, surrounded by the herd (three does, four fawns, and a stately buck with branching antlers), before they began to walk on. Do they recognize me? (“Mama, that weird creature is back.” “Don’t get to close to that thing, you don’t know where it’s been.”) I wonder if they mind the rain?

I don’t much feel like getting on with the day, really, but there are chores, and errands, and work to be done, and all these damned practices aren’t going to practice themselves. I laugh at my eagerness to do nothing at all…or maybe to paint… either way, now is not that time. The weekend ahead is a long one (for me), for the Veterans Day holiday. I’m looking forward to that. Right now though, it’s time to begin again, and I get to my feet to head on down the path ahead, one foot ahead of the other, a step at a time. (That’s how progress is made, after all.)

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Categories Allegories, anhedonia, Anxiety, autumn, Brain Injury, breathe, Free Will, gratitude, health, Healthy Living, meditation, Metaphors, Mindfulness, Moments, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, solo hiking, The Art of Being

It’s Like That

October 22, 2025 //
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Sometimes life feels easy. Mostly life does not feel easy, at all (for me). Stress comes and goes. Uncertainty. Doubt. Worry over this or that new challenge. Circumstances that are a poor fit for the life we want to live. It’s not always a money thing. Sometimes it is. It’s not always about trauma, chaos, and damage. Sometimes it is. One thing I’m pretty clear on, these days; we’re each having our own experience, colored by our expectations and assumptions, filtered through our experiences, and understood using an internal dictionary it is highly likely no one else really shares. We bitch about left and right, about right and wrong, ignoring the likelihood that whoever is listening means something a bit different by those terms than we do, ourselves. We default to speaking in sound bites and slogans, even when we know how empty those may be. Human primates are weird. We treat each other poorly, even though our relationships with each other are the single most important thing about our individual experiences.

I sigh to myself. I’m in the co-work space getting settled in to begin the work day. The commute into the office was easy to the point of being surreal; I hit all the traffic signals along the way green, and there was never a car ahead of me going slower than I was, nor anyone creeping up on me from behind wanting to go faster. I hope the entire day feels like that. Seems unlikely; I slept poorly, and I’m already feeling signs of fatigue (or, perhaps, not quite fully awake, yet).

If someone asked me, right now, how I’m doing, I would say “not bad”, and the realization that such a conversation would go that way makes me roll my eyes and sigh softly with some measure of impatience and frustration. That sort of negative turn of phrase suits me, creatively, but isn’t ideal for communication. It was one of the first things my Traveling Partner ever asked me to consider changing, when we were getting to know each other. Hilariously, I misunderstood that request so thoroughly, I proceeded down a path of personal growth that wasn’t the intention, and became someone far more positive in general than I’d ever been previously. I have no comment whether this is – or was – a change for the better. I suppose, probably, and I am more content and joyful in life, but I don’t know that there is a causal relationship between that change and this experience. It’s just an interesting, mildly amusing recollection, as I start my day.

…I’m tired, and my mind wanders…

No walk this morning. Maybe later? It is a lovely autumn morning, and daybreak is just beginning. I smile and stretch, and think about recent other walks, and other mornings.

The colors of fall inspire me, and I think about paintings I have not yet painted.

I think about walking my path, as a metaphor for progress, growth, and forward momentum – changes over time, step by step, along a journey without a map. This life thing has so many options, choices, and “side quests”, it is sometimes difficult to imagine it as a single path. It twists, turns, and detours through experiences I hadn’t considered, or even imagined. The menu in The Strange Diner is vast.

I enjoy the routine of walking a familiar path, but change is often waiting for me somewhere along the way.

I find myself missing the library desk from which I most often work, these days. My “happy place” is not some fixed point of geography. It is my office & studio at home. It is in my garden. It is on the trail at dawn, watching the sun rise. It is in a quiet moment with my Traveling Partner. It is in a library, perhaps most of all. The library was one of the first places where I felt truly safe, surrounded by stacks of books, and rows of shelves, the air still and quiet and smelling of… history? Smelling of stories and narratives and the printed word, and seeming almost infinitely grand and somehow limitless. I love libraries. Small libraries in modest homes, big university libraries, legendary libraries that have stood the test of time over actual centuries – they each have that “library quality”.

How can someone be bored, in a library, when every shelf holds unexplored knowledge and infinite adventure?

I let my mind wander awhile longer. I’m okay for most values of “okay”. It’s an ordinary work day, in a fairly ordinary life – and that’s entirely fine. It’s enough. I glance at the clock, and notice the time. I breathe, exhale, and relax, before I begin again.

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Categories Allegories, Anxiety, autumn, Brain Injury, breathe, Free Will, gratitude, Healthy Living, inspiration, joy, meditation, Metaphors, Mindfulness, Moments, Perspective, Post Traumatic Stress, Practices, Relationships, The Art of Being, Words

Too Early, Too Much

October 20, 2025 //
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I woke around 03:00, to some noise most likely, or perhaps my Traveling Partner’s wakefulness, though when I returned to bed from the bathroom, he seemed to be snoring softly, asleep. I hope he gets the rest he needs. I sure didn’t, not last night. Took me some time to fall asleep, and I was awakened abruptly at some point by raised voices. I returned to sleep shortly after waking, but my dreams were restless, irritated, and unsettling. I was tired when I finally woke, too early, but I couldn’t find sleep again, and gave up – hopefully before my restlessness woke everyone else.

…I got up, dressed, and slipped away quietly…

I don’t much feel like walking, this morning. Aches and pains and bullshit, nothing of real consequence. I sit with my thoughts, perched on a picnic table near the trail, ready to walk if I get past my moody and irritable moment of ennui. I listen to the background noise of machinery, traffic, HVAC systems on nearby buildings… the sounds of humanity mismanaging a planet. There is a glow along the western horizon, the clouds overhead being illuminated by the city below. Pretty mundane stuff. I sigh quietly. My ankle aches, even within the comfortable security of my hiking boots. My left hip hurts in a way that suggests arthritis may be developing there. My head aches, feels mostly like fatigue and the studious, focused, effort to maintain top down control in spite of it. I catch myself gritting my teeth, and purposefully relax my jaw and let go of that bit of stress. My tinnitus is shrieking and whining in my ears. I’m not bitching about any of it, just noticing each detail, as I inventory my sensations and experience the moment with as much presence and awareness as I can.

… And I still don’t feel like walking…

I had an excellent brunch with a colleague on Sunday. Feels like, potentially, a real friendship forming. Maybe. Harder to be sure than it might have seemed when I was younger…or… before the pandemic, although I’m not at all sure how that is relevant. I really enjoyed the conversation. The food was good, too, but that clearly wasn’t the nourishment I was seeking – or what I found. It was more about the human connection. We talked about doing it every month, and talked about having some kind of holiday get together with our families, in December. That might be a lot of fun.

I sit enjoying the morning quiet. I think about love and my Traveling Partner, and how much faster his recovery is going these days. He’s able to do so much more now, and more every week. It’s a relief to feel some measure of day-to-day work being reduced as my beloved begins to resume tasks that he was handling routinely before his injury. Out of habit, I sometimes forget to give him the opportunity to do for himself. I’ve got to knock that shit off, for myself as much as for him.

I breathe, exhale, and relax. I meditate in the chilly autumn darkness before dawn comes. For a moment, the world seems peculiarly peaceful and undisturbed. I find that it often does in these solitary moments. The world’s chaos and hardship is almost entirely created by the human primates clinging to the surface of this mud ball hurtling through space. I almost sympathize with the “burn it all down and start over” cynics and nihilists. I was once among them, a like-minded sort, but it seems like a wasteful approach to problems that could be solved quite differently, and with a greater good in mind. Another distracting argument keeping us all preoccupied while billionaire grifters empty our bank accounts in exchange for empty promises.

…I sigh and let that go, too…

There is still no hint of daybreak, yet. The clock is ticking, though, and this moment is finite. I get to my feet with an impatient sigh, feeling more resigned than purposeful. I commit to dragging myself along the trail again this morning. I’ll feel better once I’ve gotten a walk in, I know. I just don’t happen to “feel like it”, but I also decide not to let that stop me.

…Fuck, I really want a nap. 😂 Instead, I begin again.

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Categories Allegories, anhedonia, Anxiety, Brain Injury, breathe, Free Will, health, Healthy Living, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, solo hiking, The Art of Being, War and News of War, Words

Drowning in the Details

October 14, 2025 //
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G’damn life feels too busy. Appointments. Meetings. Calls to make. Errands. Laundry. Household upkeep. Caregiving. Working for a living. Self-care. Sometimes doing the needful feels like an unreasonable amount of work, and this year I’ve rarely found myself able to make time for painting, gardening, reading, or writing (aside from this one sliver of my day early in the morning, when I can indulge myself in solitude and write these few words). I’m exhausted at the end of most days, barely able to stand by the time I take those last steps down the hall to bed.

… I feel like I’m working three or four full-time jobs…

Each morning I get up and do it again. Each day, I get my ass to work. Each day I tackle the errands on my list. Each day I give as much of myself as I can to caregiving tasks, and housekeeping chores. Each day I compromise on some detail of my self-care – because I just can’t do everything, and something has to be put aside for another day.  I’m grateful to enjoy the life I do. I’m grateful to have such a strong and loving partnership. I’m annoyed with myself for griping about how much work life is, when I’ve got it so good, generally speaking. For sure there are people who have it far worse and would happily trade places with me.

I’m tired, I guess. I’ve sustained this for too long. I do make attempts to treat myself a bit better than I often do, but it’s not uncommon to return from a camping trip, or a day spent in solitary meditation, to a whole new list of errands to run, or chores that need doing. I almost immediately use up any reserves I may have built. It seems neverending… because it mostly is. It’s life, and there’s a lot to do.

… It’s only Tuesday…

I sigh quietly to myself, sitting at the halfway point on my morning trek around a favorite local trail. It’s still dark. I don’t mind. Is it my preference to walk in the dark? No. It’s the time I have, though, so it is the time I walk. I feel fortunate to still have my legs under me, and that I can still walk these trails on my own. That’s something worth a moment of appreciation and gratitude; it wasn’t a given that things would turn out so well after I broke my back in the early 80’s. There was a real chance I’d never walk again, at all. I’m deeply grateful my surgeries turned out so well. I keep walking.

I sit with my thoughts awhile. I can remember how difficult it was to understand how fortunate I really am. Understanding my relative privilege and general good fortune in life was hard – complicated by a deeply subjective perspective on life that focused on the trauma, the chaos and damage, the lifetime of hurt and anger. For a long time I was “trapped in the mire“. Resetting my own expectations was a complicated journey of its own. I keep working at it. It’s too easy to resent how much fucking work life requires for that to be “the right answer” (or even a right answer). I breathe, exhale, and relax. I’m grateful for this simple practice (meditation) that does so much to give me the calm and resilience to just keep at it, day after day after day. It’s not “everything”, and life still needs a lot of real work to “run smoothly”, but… it’s something, and mostly it’s enough.

The sky has lightened a bit. It is a deep charcoal gray, barely lighter than the darkness of night, but now I see the treeline silhouetted, where moments ago was only darkness. Meditation and self-reflection work that way for me; slowly illuminating my way, over time. Worthwhile, reliably restorative practices that bring a sense of balance and perspective are few – and worth the effort to cultivate them.

I sit watching the horizon. Daybreak soon. It’s almost time to begin again.

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Categories Allegories, Anxiety, art and the artist, autumn, Brain Injury, breathe, Free Will, Frustration, gardening, gratitude, health, Healthy Living, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, solo hiking, The Art of Being, War and News of War, Words

Well, Now

September 17, 2025 //
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It’s a strange morning, although I can’t put my finger on why exactly it feels so strange. I feel “caught between moments”, I suppose, and not sure what to do about it, or even whether anything I do about will make any difference at all. I feel vaguely disconnected from the many details of a busy adult life, and struggling to care about that. I’d rather drive out to the coast, park somewhere with a view of the beach and the tide, and just… sit awhile with my thoughts. Perhaps clarity would come if only I weren’t listening to my tinnitus, loud, shrill, and grating on my nerves?

… When I am at the seashore, I can’t hear my tinnitus at all, it’s drowned out completely by the sounds of the wind and the waves breaking on the shore. Maybe I just need a break?…

“You lack discipline!” some stern voice in my head says, unyieldingly. “Do your best”, is the kinder recommendation I offer myself. I’m tired. Oh, well-rested enough for the work day ahead, and tonight I’m not also having to cook dinner, but still, I am chronically, persistently fatigued from decades of working. Sometimes the fatigue becomes hard to overlook, and I’m sitting here feeling it – and feeling both a little sorry for myself, and also seriously annoyed about that. It will pass. So will my awareness of my persistent fatigue. Some days are better.

My head aches, and the headache is vexing me. I breathe, exhale, and relax, hoping that the fresh chilly morning air will lift my mood. I watch the sun begin to rise, from a favorite vantage point along a favorite local trail. It could be worse.

I sigh to myself, thinking about life, and the way the path we take can have so little resemblance to the path we planned to take. I’m not filled with regrets or overcome by sorrow or some gloomy feeling of futility, it’s not that at all. I’m just tired. Often. So many things take real work, and require more of me than may be apparent. My little family counts on me for so much… I’m not always sure I have enough to give. I’m doing my best. That’s all I’ve got.

I stretch and get to my feet, eyeing the path that leads back along the riverbank, around the vineyard, and back to the parking lot. It’s already time to begin again, I’ve only got to take that first step to get going…

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Categories Allegories, anhedonia, autumn, Brain Injury, breathe, health, Healthy Living, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, solo hiking, The Art of Being, War and News of War, Words
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