I’m sitting in the sunshine as the sun rises. Pretty morning. My walk to this point has been quiet and pleasant. There was no traffic on the highway, either. If the folks in my neighborhood are a representative sample of Americans in the area, most folks who were going somewhere this weekend are gone, and those that were up late firing off various fireworks and noise makers are probably sleeping in; that shit was still going on at midnight.
A misty morning at the trailhead.
I’m enjoying the quiet and the solitude. Somewhere in the distance, I hear an occasional car pass by. My tinnitus is crazy loud this morning, and my back aches ferociously. I breathe, exhale, and relax, pulling my posture more upright. Changing my position doesn’t ease my pain in any noteworthy way, but slumping carelessly definitely tends to make it worse. Choices. I grumble silently to myself; everything seems to require a fucking effort. lol I laugh at myself for resisting the truth of it. Yes, surely things require effort. That’s just real. I sigh to myself and let it go. There’s no use fighting the effort required to do things. The best I can do is to make wise choices about what I am doing and where I’m putting my limited resources as an individual (even down to the effort involved).
Halfway “there” is just a point along the way. The journey is the destination.
…Fuck pain…
I sigh to myself and smile, thinking about yesterday. Nice evening. The Anxious Adventurer made lemon bars. Tasty. I made (a fairly simple, summertime) dinner. Nothing fancy. We enjoyed it together as a family. The weather was fairly mild and not hot, and we had turned off the AC, enjoying the natural breeze through windows open wide to the summer air.
I’ve no clear agenda for the weekend. Routine housekeeping stuff I guess. I sit watching the little birds at the edge of the meadow. I think about old friends and try to distract myself from pain. Maybe it is a good day to get out into the garden? There’s laundry to do, too. I chuckle at myself when I find myself daydreaming about doing housework as I sit here in the sunshine visualizing this or that task I know I am likely to do on a Saturday, and wondering what I can actually accomplish in practical terms. I’d rather sit with my feet up in the garden, sipping iced coffee and ignoring the tick of the clock, but time is a precious and finite resource and I have things to do. Another sigh breaks the stillness.
What next? I don’t know, yet. I’ve got options to consider. Choices to make. I’ve got my own path to walk. For the moment I am content just to be here, now, enjoying the morning sun without attachment to any particular outcome. Later, I can begin again.
My walk this morning was short, local, and drizzly. It is a drizzly morning. I walked with my thoughts, and headed home to begin the day. The drive back to the house felt peculiarly nostalgic – something about the drizzle, and the way the sheen of water on the road reflected the light of the gray skies over head – and I found myself thinking about sick days on rainy Spring mornings as a kid. How is it that all my recollections of missing school due to being sick seem to be rainy days? I guess with the average number of rainy days where I grew up being about 111 days per year, falling primarily in the months between March and November, it would be better than a 1 in 3 chance of any given sick day being a rainy one. Maybe they really all were? lol
When I started down the trail, it wasn’t raining. Change is.
I arrived home to find my Traveling Partner awake, and it was lovely to see him. I made coffee for us both, and headed to my office to begin the day. All so very ordinary, so routine that the days sometimes seem to blur together except that the precious loving moments we share stand out, each unique and worth appreciating. It’s strange that when I look back on my childhood, there are really only a small handful of recollections I can count on as “my own”, and many of those are rather archetypical – conflations of many similar events becoming just one “memory”. When I look back on the past 15 years with my Traveling Partner, it’s not that way. There are many many memories, each built on small details that linger in my recollection. I don’t know whether this is a sort of before/after contrasting what remains of my memory after my head injury with how my memory works now, but there it is; I have relatively few childhood memories, and some of those are rather suspiciously recalled “in the third person”, as though I am remembering something I was told, not really remembering something I experienced.
I think about memory awhile, and rainy sick days. I remember those almost fondly. The rainy gray drive to the doctor’s office. Bundled up at home with chicken soup, saltine crackers, and a book to read. Sitting at the dining room table playing with Play-Doh, or coloring in a favorite coloring book. Napping. Waking. Reading. Before my head injury, my sick-day recollections are mostly to do with headcolds or the flu. After my head injury they are more often about headaches. I missed quite a bit of school, even through high school, over headaches. I don’t miss much work over headaches as an adult; I’ve learned to live with them. It’s an uneasy truce, some days, and I’d for sure prefer not to have a headache at all, but since I generally do (of one sort or another), it’s probably best that I don’t just give in and quit, eh?
You’re not alone with your pain. Not really. We’ve all got some kind of pain – well, most of us, I feel fairly certain. There are no doubt those rare few individuals with charmed lives of such good fortune that pain hasn’t become a thing to endure day after day after day after day after… You know? I’m not even sure those people are to be envied; they may lack some useful perspective on endurance, and what they are truly capable of, perhaps. (I don’t know; I’ve never lived that life.) I sip my coffee and notice that my mind has wandered on to other things. The garden. The roses. Pain management. Nutrition, diet, and exercise. The shit I’ve got to get done today. The things I’m eager to do for myself once the needful tasks of the day are behind me. My garden. Work. Life. Love. I let my mind wander on for a few minutes of self-reflection before I get started on work in earnest. Sometimes self-reflection feels a little self-indulgent, but it is actually an important bit of self-care (at least for me); it tends to keep me “on my path”.
…What are you doing to care for yourself? What are you practicing?
I breathe, exhale, and relax. The clock ticks on. The rain continues to fall. I notice that it is time to begin again.
This headache is vexing me. I feel as if I’ve done all I can to ease my discomfort. Have I? A bad headache can limit my ability to think clearly and make wise self-care choices. I let my Traveling Partner know that I’ve got this pretty terrible headache. Doing so isn’t only to feel less alone with it, nor is it solely about making sure he knows if something goes seriously wrong. As much as anything else, it is to get any helpful suggestions of things to do about it that I may have over looked; thinking through the pain is difficult. I know I’m not at my best.
My beloved does indeed think of something I could do that might help some. A hot shower. That does sound soothing. Maybe a soak in the hot tub, too? I stretch – maybe movement will help. I correct my posture. I adjust the lights. I make myself relax (again). I drink more water. I have some magnesium. I eat a banana (potassium). I take an OTC headache remedy. I limit the noise in my work space. Item by item, I go down the list.
… This too will pass…
Headaches tend to be temporary. Soon enough the work day will end and I can focus on me. I’ll have that shower, a soak, maybe lay down for a few minutes. A great many of my headaches are to do with my neck. Degenerative disk disease is painful and inconvenient, and like the name says it gets progressively worse over time. I try not to think about that. The thought brings tears to my eyes and I feel suddenly helpless and childlike.
…It will pass (for most values of that idea, if only temporarily)…
Not what is generally expected of office decor, but it’s my office and I’ll decorate as I like. lol
I think about this cozy friendly welcoming space I’m in… It’s quite soft and nice and filled with colors and curves and soft places. It’s a very nice spot to lay down with a book (or a headache). It was my studio, it is my home office – my quiet space. Everywhere I look there are reminders that I am loved and valued: helpful or beautiful things my beloved has made for me, precious things collected over time, souvenirs of a life well-lived, and my own art work. It’s a nice spot to enjoy a quiet moment.
I sip my icy cold glass of water. Ice water might not be ideal for some headaches – this one doesn’t care about that. It doesn’t react to the temperature of the water at all. Noises are a bigger deal. The position I’m in matters more. I’m fairly confident this headache is coming from my neck; my left ear itches ferociously deep inside without any obvious cause. Nerve damage. It’s all quite unpleasant, but saying so is better than hiding it, and caring for this fragile vessel helps more than ignoring the pain ever could.
I sigh to myself and get back to work. The work day is nearly over – then I can begin again.
I overlooked writing at all yesterday. I mean, to be clear, I “wrote” quite a lot, as a function of the work I do for a paycheck. A lot. What I failed to do was any other sort of writing: introspective, meditative, creative, nothing of that sort. I arrived home from work wholly exhausted, brain fatigued, dragging myself along on pure willpower alone, and the awareness that if I didn’t do this or that task, no one else would either.
… I managed to hold enough in reserve to make dinner…
I’m still tired this morning. My last several nights have been restless and my sleep interrupted and full of nightmares and stressful dreams of failure, futility, and pointlessly chasing unachievable goals. Hell, Elon-fucking-Musk even made an appearance in one of my unpleasant dreams and he was just as big a clueless out-of-touch douchebag in my dream as he is reported to be in life. Bleh. G’damn I hope I sleep better tonight.
I’m in a ferocious amount of pain and filled with resentment at insurers who don’t want to cover long-term services that maintain better quality of life and reduce pain, but without “fixing” anything. My occipital neuralgia flared up some days ago after quite a long time of only dealing with it occasionally; it’s clear that the additional care I had been receiving was actually reducing my pain. “Fuckers,” I snarl quietly, but I don’t know who I am most angry with – my insurance company or the rich assholes who built this stupid entirely profit-focused system. This is a fucking dumb way to approach medicine.
I sigh quietly. Let it go. I’m paying out of pocket for the care I need, today. It’s not a sustainable choice. I can’t do it often, but I definitely need some help managing the pain right now, after three exhausting work weeks that I am happy to put behind me.
Dawn on the marsh
It’s a new day. Boots on, cane in hand, this trail isn’t going to walk itself. For now I’ve got the place all to myself, a treat for my fatigued consciousness. Solitude. No people. No need to speak or hear words. I breathe, exhale, and relax. Today, self-care first. Then, I’ll begin again.
I’m sipping my coffee and ignoring (as much as I can) the chronic pain of my osteo-arthritis, which radiates upward from my spinal fusion, which was done years ago, when the state of the art was quite different than it is today. I knew then that my surgery was a new approach to the problem, and that some outcomes were unknown. The goal was to prevent me from ending up in a wheelchair partially paralyzed, and to allow me to continue to serve on active duty (Army). I guess for most values of success, my surgeries were a great success. I’m still walking. I did continue to serve (was even deployed to war in the 90s’), after a period of convalescent “retirement”, although I got “RIF’d” after that war (which broke my heart, but is an altogether unrelated story). So, generally, I’ve nothing to regret about that surgery if I’m just thinking about those details. But…
…There were consequences – of both the injury itself, and the surgeries that followed. The arthritis started to develop in my spine about 3 years after my surgeries. I didn’t understand why I was in so much pain all the time, and it took a rather stupid amount of time for that to be appropriately diagnosed; I was young. Medical bias being a real thing, many doctors were persistently just as “mystified” as I was. What could be causing my pain? How could I have arthritis at my young age? I still feel frustration and annoyance by that lack of curiosity, and lack of diagnostic skill (or persistance). Pain they could not feel themselves did not matter to them.
Then, there were the other things… the persistent chronic itch below my left shoulder blade, that I couldn’t quite reach and that scratching didn’t ease. A “phantom itch” that still bothers me occasionally (CBT really helped with that). A chronically cramped muscle down low on my back, on the left side of my body, most likely a result of the disturbed section of musculature attaching to my spine being put back “not quite in the right place” during my surgery (to make room for the hardware that was there for a year) and which healed into a new, less than ideal, location. This, too, still bothers me, often. Most of it I had to “figure out” in pieces, with limited help from too many doctors, and a lot of study. Sexual challenges (both neurological, and also to do with practical matters like lubrication) that were awkward to discuss were another thing; I was past 60 before a physician finally said, with some surprise, “of course that’s related to your spinal injury” after looking at my records, surgical reports, and images, and listening to me with great care. She seemed so matter-of-fact about it, I ended up enraged for days that no one else had said as much. I went through some shit over that issue with more than one lover, I can tell you. Turned out it wasn’t “my fault” or “a lack of desire”, or anything I could actually do much about; I have a spinal injury. Duh. I spent a few days moping around pretty pissed off about it.
What I thought I understood.
Why am I on about this, today? It’s to do with perspective and knowledge, and how those create our understanding (or don’t). I knew coming out of my surgery all those years ago that I had a permanent “30% stenosis”, and I felt that I understood what that meant. I mean, words having meaning, and I knew the meanings of the words…so… I understand? Don’t I? I thought I “got it”. My lack of real understanding was stunning, and it would be decades before that changed. It wasn’t actually a doctor that changed my understanding. It was math – and a moment at the dining room table with my Traveling Partner; a “lightbulb moment” to do with circles, that was completely unrelated to my spine, my injury, or my pain. lol (Pay attention in school, kids – math matters, and it’s useful stuff.) Something clicked.
What I hadn’t understood, in spite of seeing the images, reading the reports, and discussing with doctors, was what my stenosis meant in my case, specifically. For many years, I imagined 30% percent stenosis as a uniform 30% reduction in a circular area. (I felt pretty stupid when my understanding changed.) Firstly, the spinal canal as a “tubular structure” is not a beautifully perfect mathematical cylinder wherein a slice would appear circular. Not at all. It’s quite different than that. Also, and more importantly, my injury (which crushed two vertebrae, and broke off a spinous process which was then forced into my spinal canal by the impact and subsequently could not be removed) and the repair of that injury did not result in anything like a uniform reduction in area all the way around. Not even close.
Geometry for the win. lol
Reality doesn’t care what we believe. Our pain doesn’t care what we think we understand about our body. Reality is. Pain is. Conditions are what they are regardless of our understanding. So, for years I had struggled with symptoms that made no sense to me – because I so poorly understood my condition – and which I could then not clearly articulate to doctors, who may also not have understood my condition, because (let’s just be real about this, eh) doctors are also human and also have limitations to their own knowledge (and limitations on the amount of time they can spend reading patient histories with the care needed). I understand more/better now, but… I’m still limited by all the things I do not know. I still live within a reality that I perhaps only partially understand because of those limits.
…And reality doesn’t care at all what I understand…
Our perspective and our knowledge limit our understanding – but reality goes on being real, regardless of what we think we know or how we think we understand the world around us.
I breathe, exhale, and relax. Living with the pain is pretty much a requirement. There is no option to live without it, at least not now, not really. I do my best. Maybe that reality will change at some point in the future? Technology changes. Medical progress is made. I’ve learned to practice fairly skillful pain management in the meantime. I’m not complaining, not really. Good self-care and skillful pain management may not add up to a “cure for pain” – but it does help.
I sip my coffee thinking about my Traveling Partner, his injury, his surgery, his progress… he’s come so far, so fast, relatively speaking (although I know it doesn’t feel that way to him). We both deal with pain, and I don’t personally see a future where that’s not a thing we deal with, each having our own experience, each doing our best. I feel fortunate to have a better understanding of my injury than I once did. I’m grateful for a conversation at the dining room table about math and circles and ratios and areas, and grateful for a partnership that understands pain and makes room for love anyway. Grateful for love. Things could be worse.
I look out the window. My mind wanders away from the pain I’m in – probably a change for the better. It doesn’t do to dwell on the pain. Don’t get me started about this fucking headache. I sigh quietly and glance at my calendar, and the clock. It’s time to begin again.
Evening Light 