Archives for posts with tag: chronic pain

Some thoughts about things to do with being, becoming, and connecting with people (that I’ve mostly learned the hard way):

  • Chronic negativity isn’t “humor”, nor is it a useful way to connect.
  • An uncomfortable forced laugh is less engaging than authenticity, even when that means admitting “I don’t get it”.
  • Constantly complaining about common experiences doesn’t make a person sound cool, edgy, worldly or sophisticated.
  • I haven’t been everywhere. I haven’t done everything. I don’t know all there is to know about every topic of conversation.
  • It’s a safe bet that I have something to learn, and that listening may reveal things I don’t know.
  • A lot of things aren’t about me at all. Some experiences aren’t for me. I won’t be welcome in every space. This isn’t something that needs to be “fixed”.
  • Being annoying results in being alone. A lot. (And not missed even a little bit.) It’s just not fun to be around – definitely behavior to be avoided.
  • Consideration is often overlooked and very underrated, and when practiced consistently and sincerely can seem like a super power.
  • Manners still matter.
  • Intimidation is a “cheat code” in life, and although people around someone who practices intimidation may be willing to exploit that behavior, they don’t like the person who behaves that way, except maybe in spite of it.
  • Good character has lasting value and creates a stable foundation in relationships.
  • Some people are mired in their anger (it has become a practice more than an emotion), taking that personally is neither healthy nor helpful. Being that person is a poor choice with lasting consequences.
  • Hard decisions can slow me down. It’s worth considering other opinions and new options. Ultimately the choices I make are mine, and so are the consequences. It helps to ask questions and reflect on the answers.
  • Learning is a practice. Self-care is a practice. Listening is a practice. Consideration is a practice. Respect is a practice. Authenticity is a practice. It’s all practice. There are verbs involved. Work. Effort. Self-reflection. Commitment. Getting anywhere worth going happens in increments, over time.
  • We can choose change. We can choose to become the human being we most want to be. Ultimately we are responsible for who we are, and who we choose to become.

There are some seriously unpleasant, annoying people in the world. People who lack manners and consideration. People who are unkind, mean, petty, and (or) intimidating (sometimes for personal gain, sometimes purely as a matter of poor character). It’s worth doing my best not to be one of those people, and to do my best every day to be the person I most want to be. I’m not critizing you or telling you how to live, just sharing some of my own thoughts about my own life, things I’ve learned, things I’ve observed over time, things I still struggle with. Doing better today than I did yesterday isn’t easy; it takes work. Honest self-reflection. A willingness to change.

… Trust me, I’m not smug about any of this shit. I’m working my ass off to be the person I most want to be, to learn from my mistakes, and to do better today than I did yesterday – every day.

It was afternoon when I wrote those words. I was in pain. I slacked off some housekeeping in favor of self-care. Choices. Did it help? I don’t know. I got through another day, and held on to enough energy to cook a good meal. It was enough.

The darkness before dawn.

It’s a new day, now. I’m still in pain – I nearly always am. I’m not saying that to complain, and I’m not alone with that experience. Chronic pain is pretty common, actually. Learning to enjoy life in spite of it can be a pretty difficult journey (a lot of the really worthwhile things in life are difficult). My results vary.

I woke this morning already uncomfortable and in an unpleasant mood. No idea why, really. Maybe just dealing with pain has that result, sometimes. I feel cross with myself, with the world, with the seemingly endless list of shit that needs doing. I’m tired of all of it before I even get started…

I breathe, exhale, and relax, as I sit at the trailhead waiting for enough daylight to walk the trail easily. I don’t feel like walking in the dark this morning. I remind myself to let small shit go, and not to take things personally. I take my morning medication and sip my coffee and watch the moon set through the clouds.

When my mind wanders back to things that irritate me, I bring myself back to here, now, this moment. I make a point of practicing gratitude; it’s exceedingly hard for discontent and irritability to compete with gratitude, and I do have much to be grateful for. The internal resistance to letting my mood improve and allowing myself to enjoy a better experience is frustratingly persistent, but I keep at it. We become what we practice. It won’t always be easy to follow this path, but it is a choice available to me, and it’s the choice I make. My results vary, and there are verbs involved, but over time the outcome is predictably good.

Every day is a new beginning. My path is paved with my choices. The journey is the destination – and the clock is ticking. It’s time to begin again.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

My tinnitus is super loud this morning. Distracting. Annoying. I breathe, exhale, and relax, as I absentmindedly rub my left trapezius muscle, up near my neck… Or is it my sternocleidomastoid? That general area. Feels like it is carved of stone and most of the time also a prominent source of day-to-day pain. I see one of my care providers today. He’s very skilled and I am hopeful that I’ll have a few hours or a couple days of real relief before my fucked up neck recreates the painful circumstances all over again. I’ve grown resigned to accepting that it is simply the byproduct of an old neck injury, combined with progressing degenerative disk disease (C3-C4 mostly and cervical arthritis from C5 on up to C1). It sucks and it’s painful, but, and this is important and real, it could be worse.

I walked down the trail listening to the crunch of boots on pea gravel, and I focused on the external sounds around me; it helps push the tinnitus into the background some. I got to a pleasant spot along the river to sit for a moment. The world is quiet and from here I can’t hear the traffic on the nearby highway at all. Whether this is an atmospheric phenomenon, a lack of traffic, or hearing loss is not clear to me, and maybe not even relevant to this pleasant moment. There’s a strip of color, not quite orange, on the eastern horizon, peeking between hillsides, silhouetting the trees on the far bank where the river bends. I have the trail and the park to myself this morning, alone with my thoughts (and my tinnitus, and my pain). Well… mostly…

I sit quietly as a rather large raccoon waddles past. She gives me a look and hesitates a moment before proceeding. I sit still and watch her discreetly from my peripheral vision hoping not to discourage her and choking back a laugh remembering the desk sign my Traveling Partner made for me (“most likely to be eaten by something she shouldn’t be petting”). As the raccoon continues past she’s followed by 2…3…4…5 chubby fuzzy youngsters, one of whom appears eager to get a closer look at me. Mom looks back and lifts herself on her back legs and makes sounds that clearly manage to communicate “Damn it, leave that human alone, you have no idea where that thing has been! Come on, we don’t have time for this.” It’s super hard not to giggle but I really don’t want to alarm Mama Raccoon – she’s pretty big, and I’m definitely not up for defending myself from an angry or frightened raccoon; they are not to be trifled with.

She walks on with her youngsters following, heading down the river bank. I walk on, too, heading back up the trail toward the parking lot. It’s daybreak. Good time to begin again.

I woke tired from a restless night of strangely lively surreal dreams. My walk felt short, and rushed. My day already feels busy and “crowded” with things that must get done before daybreak tomorrow, and the start of a few days of downtime spent attending to my emotional needs, and indulging artistic inspiration. Self-care is important and worth the time commitment to get a few things done so I can be away without concern, but… good grief I feel so busy right now.

I breathe, exhale, and relax. It’s the start of the workday, and looks to be an easy one. Routine, at least. Then home early enough to take my Traveling Partner to an appointment, then a quick shopping trip, then make (and enjoy) dinner, then pack (omg I should have worked from home today) and load the car, then, if there’s still time, a little time spent just chilling with my partner enjoying the last of the evening. Yeah, it feels like a busy day, but I’ve got a plan, and it’s not really “all that” – it just feels busy. Another breath. Another moment.

I’m in so much pain lately. A few days to myself to sit with that without also feeling like I’ve got to mask it to avoid making everyone around me uncomfortable will be a nice “luxury”. There’s more stress than I want to admit in having to “put a good face on it” when I hurt like this. Pain relief measures only do so much, and I’m not willing to take (nor am I prescribed) the quantities of painkillers it would take to shut down this amount and intensity of my personal combination of arthritis and headache pain. It is what it is. I’m also not willing to let pain call my shots or totally wreck my experience; there’s more to life than the pain I’m in. I remind myself often. Sometimes it helps, sometimes it just annoys me. Sometimes being annoyed about it helps in its own way. My Traveling Partner endures his own pain. Hell, even the Anxious Adventurer deals with pain – and frankly, most people do, to some extent, I guess. The challenge is not being a dick about it, and doing the most we each can to go ahead and live a good life in spite of the pain we’re in, and to remain mindful that we can’t possibly fully understand the pain someone else is in. Ever. Even if they say. We just can’t know their experience the way they do. So…I try to manage mine, and mostly keep it to myself. It’ll be nice to have a couple days to just sit and weep over it, while I paint, if that’s where it takes me, and not be worried that anyone else will be affected by those tears, or my pain.

Beyond the pain, I’m looking forward to a couple days of watching the tide come and go, and sitting with my thoughts – and my grief – and just “getting my head right” in my own way. The holidays are coming. The first in decades that my Dear Friend won’t be part of that experience in any way. That hurts more than I expected it to. No need to think about what to send her. No need to share anecdotes or pictures. No need to message her on Giftmas morning so she doesn’t experience the morning alone. No need to delight her with my curiosity about what my Traveling Partner may have gotten me, or made me, this year. She’s just…not here. My sorrow tries to swamp me every time I remember, and I really need to get past that somehow. It’s a lot. Granny? Gone, too. And Mom. And my long-gone girlfriend, T. There are unshed tears waiting their turn to fall, and I need to allow myself time for that this year.

I’m eager to hit the road, and hit the trail. Eager to walk my own path and feel my feelings (there’s no shame in these honest tears). I’m eager to begin again on the other side; the way out is through.

I’m waiting. It’s quite early, before daybreak. I’m parked at a local trail near home. I’m waiting for enough daylight to walk. I’m waiting for the grocery store to open. I’m waiting for my Traveling Partner to wake and start his day. I’m waiting to begin my long weekend and short trip to the coast. It’s not a bad time for waiting. The world seems quiet and peaceful, and although that’s an illusion (the “peaceful” bit is very local), it’s a pleasant moment with which to begin the day.

My head aches ferociously. My neck, too, aches horribly. It’s more likely than not a byproduct of yesterday’s physical therapy, which isn’t unusual but is usually less intense. Progress? Hell, I don’t know.

Subjectively, I feel as if my range of motion is improving. The symptoms of occipital neuralgia seem reduced in frequency and intensity. Those are promising changes, but g’damn the pain persists, it’s just located differently. lol Learning to deal with pain emotionally has been as important as anything I’ve done to attempt to reduce it. I fully expect pain to continue to be a thing that is part of my day-to-day experience, and it’s no good letting it call the shots (anytime I have a choice to do otherwise). My results vary.

The ringing in my ears is… loud. I’m looking forward to being by the ocean. The sound of ocean waves and seaside breezes is one of the very few things that drowns out my tinnitus almost entirely. It’s a delightful break from the maddening din that no one else hears. For a couple days it’ll be rather as if there’s no tinnitus at all. This experience is one of the reasons I go to the coast when I need some time to myself, the chance to escape the noise of my tinnitus for a short time. Another is the feeling that being oceanside connects me more closely to my Granny and my recently departed dear friend,  both of whom felt a strong connection to the sea.

It won’t be long now until mountain and forest places are warm enough for camping and hiking, too. I enjoy the forest most of all,  myself, and that’s a lifelong love. I enjoy the seaside places. I enjoy the broad plains and vast expanses of high desert skies. I love the forest. My reluctance to camp in early Spring is to do with physical comfort, only. My arthritis makes sleeping on the ground in chilly weather uncomfortable, and the more frequent Spring rains make hiking muddy and more treacherous, so I just don’t. Choices.

…I sit quietly for some moments, feeling grateful to have the luxury and privilege of choices…

Daybreak comes. The morning sky stays pretty dark, and streaks of blue hint at daylight to come, through stormy clouds. It’s not raining though, and it looks like a good morning for a walk. I remind myself to check my paint box for blues and grays and colors I might use for stormy skies…

Soon there will be enough light to walk the trail. I grab my boots to make the change from sneakers, and get ready to head down the trail. It’s already time to begin again.

Walking my own path, I start where I am.