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Perspective on Lived Experience

July 25, 2024 //
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I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

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Categories Allegories, Anxiety, breathe, forgiveness, Free Will, Frustration, gratitude, health, Healthy Living, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being, The Big 5

Limits and Journeys

July 23, 2024 //
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It’s chilly this morning.

I woke up quite early, ahead of my alarm. My Traveling Partner was already awake (woke me inadvertently), and in pain. We hung out for a little while before I left for work and for my morning walk. I almost left without my laptop, and did entirely overlook grabbing a fleece, sweater, or hoodie. Did I mention it’s chilly this morning?

I hate seeing my partner in pain. He hates being in the pain he’s in, and even more than that, he hates the limits pain places on his activities and cognitive abilities. There’s so little either of us can do about it. We wait together for his surgery, angry about a medical system that places so many limitations on doctors and patients and the medical care available to people in need. It’s inhumane and ineffective, inefficient and frankly terrible. We endure. Surgery soon, then the painful and annoying recovery journey can begin.

…We travel together…

Sometimes shit is hard. Sometimes less so. Life is complicated. I feel fortunate to have my Traveling Partner on life’s messy and painful journey. We’re in this together.

The morning chill caught me by surprise and I hustled down the path briskly to warm myself. There’s a mist clinging to the low places along the marsh. I walk on with my thoughts.

Misty morning.

This mortal life has limitations imposed by circumstances and events or enterprises beyond our individual control. We often place additional, unnecessary, limits on what we do, don’t do, can or can’t do, or have, or be, or experience. It’s a bit strange, isn’t it? I walk thinking about self-imposed limits. I remember a much younger me, talking myself out of trying pastels, when I was first “developing my voice” as an artist. Why? I judged myself (in advance of practical experience) to be “too messy” for pastels. I never gave them a chance, in spite of being fascinated by the luminous purity of the pigments. Life would later place other limits on my artistic endeavors, but truly? I got there first with my own. (Why?! Dunno. It’s very human, I suppose.)

I walked along thinking about the journey that life has taken me on. The journey I share with my partner. The limitations of the paths we’re on, individually and together. Sometimes it’s not at all clear where the path leads, or why we face the limits we do.

… Next weekend, some solo time on the coast, with my pastels, my tinnitus, and my thoughts. I don’t know what will come of it, and I find myself wondering if I am being a dick to go, with my Traveling Partner suffering as he is. The Anxious Adventurer will be home, and providing caregiving… But is that even reasonable to ask, really? I’m suddenly overcome with self doubt, even though I know how much I need the downtime.

… It’s an endurance race, not a sprint…

… Self-care really matters…

… I turn back up the trail to head to the car. It’s time to begin again, again… already…

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Categories Allegories, art and the artist, breathe, Free Will, gratitude, Love, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being

No Words

July 20, 2024 //
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Well… Not literally “no words”…cuz here I am, eh? Words. I’ve got a fair few of these fuckers (words) laying about. May as well use them…but… This morning I’ve nothing much to say, really.

… I’m tired, and there’s this damned headache and this ringing in my ears…

“Anhedonia”. Now there’s a fucking word. Anhedonia is more or less simply a loss of delight, of interest, of the will to engage with pleasant and interesting things. It’s not “boredom”, and it most definitely is a “mental health issue”. Sometimes it’s simply that circumstances grind me down until I just fucking give up on a “just don’t give a shit” level that transcends even irritation, leaving me without the will to resist or try to overcome it at all. Here I am this morning.

… I’m just that tired, cognitively and emotionally…

Caregiving is hard work, and I’m learning that a great deal of the work involved is in the form of emotional labor. I have profound respect for people who are caregiving a loved one for years. I’ve only been doing it for months. It’s fucking hard, and it’s draining. 8 days until my coastal getaway, and I definitely need it, but… I’ll also need to really get away from the emotional labor of caregiving to get the rest I need so badly. Most of the brief opportunities for downtime since my Traveling Partner’s injury haven’t given me the rest I really needed, because I failed to leave the emotional labor behind, and returned home to still more. I didn’t understand that I needed to put that down, and didn’t understand what a large portion of the caregiving it really is. (I’m pretty new to taking on a caregiving role, and have never had a child.) I failed myself in this way, and by extension ended up also failing my Traveling Partner – in two ways.

1. I failed my Traveling Partner by not taking care of myself sufficiently well to ensure I am up to the challenges and requirements of caregiving over time. It’s an endurance race, not a sprint.

2. I failed my Traveling Partner by not setting clear boundaries with regard to emotional labor generally, or communicating clearly when the burden is too great for my limited human capacity.

I can see how these are both also failures of self-care, too. No wonder I’m fucking exhausted.

This morning I got to the trailhead and just sat in my car weeping quietly for some unmeasured amount of time. I really didn’t feel like walking, at all. Anhedonia is a difficult challenge to overcome, but eventually I got out of the car and trudged down the trail irritably. The rising sun only annoyed me and my sour mood followed me down the trail. I spitefully didn’t stop to sit and write in my preferred location, choosing instead to annoy myself by sitting uncomfortably elsewhere. (Good grief, really?! Fucking stupid.)

I’m sitting. Writing. Feeling irritable because my back aches, my head aches, my tinnitus is loud, and my Traveling Partner is injured. From the perspective of this moment it feels very much that there is “no end in sight”, and despair threatens to rear its head. I sigh deeply, and just let the unwanted tears fall.

This shit is hard.

…It could all be so much worse…

This shit is hard.

I breathe, exhale, and relax. Eventually, I even stop crying, and even mostly stop feeling overcome by anhedonia. I clearly need to get some downtime, some relief, a real break… Which makes me feel like an asshole; my Traveling Partner gets no break from being injured and in pain and needing my help. Fuck.

… Did I mention that this shit is hard?

I’m okay for most values of okay. My Traveling Partner is, too. He’s got surgery scheduled. This is, thankfully, a temporary situation, and we’ve got the additional help of the Anxious Adventurer now (which is greatly appreciated and very much needed). I make a point to reset my perspective, my expectations, and my awareness. It’s not helpful to become mired in pain – particularly someone else’s, and especially when I’ve also got to manage my own. It’s hard, sure, but it truly could be worse, and in some respects it isn’t even as bad as it sometimes feels. We’re fortunate: I’m employed, we have health insurance, we’ve got help, and this isn’t a terminal health issue.

If I were better at this caregiving stuff, I might be more easily able to lift my Traveling Partner from his pain-focused funk, when he gets stuck there. I sit with that thought for a few minutes. I think about the many years of therapy and skilled mental health care I’ve been fortunate to receive. I think about mindfulness practices, meditation, and CBT.

… I remind myself that I can’t do the verbs for anyone else, and that we’ve each got to walk our own hard mile…

I breathe, exhale, and relax. Sometimes the best thing I can do to care for my partner is to care for myself. I think about the day ahead, and the things I’d like to get done. I think about my partner, and what he may need today, and consider how best to be there for him.

It’s a new day. The sun is warm on my back. I hear voices coming down the trail. It’s time to begin again…

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Categories Allegories, anhedonia, Anxiety, breathe, forgiveness, Free Will, gratitude, grief, health, loneliness, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being

Steps

July 16, 2024 //
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Yesterday was a good day, pretty much from the time I woke until I went to bed. I enjoyed the day, my work, and the companionship of my Traveling Partner. I sit with the recollection of my experience for a few moments, at the halfway point of my morning walk.

Today starts well, though I woke with a headache after a difficult night. My sleep was interrupted by my Traveling Partner’s restlessness. I had no difficulty returning to sleep, but I woke often, and when the night finally gave way to a new day, I woke feeling groggy and stupid. S’ok. It’s fine. I’m fine.

I stepped through my morning routine in much the same dogged persistent fashion as I later stepped down the trail; one foot after the other. It’s a practice. A process. If I just keep at it, eventually I get somewhere. In a few minutes, my steps will take me back up the trail to the truck (I offered the Anxious Adventurer the use of my car for work on these hottest days, since his has no AC), and then on to work. I yawn and rub my eyes. I still don’t feel quite awake yet, in spite of the sunshine making my eyes water when I carelessly look too closely at it.

… Sometimes persistence is more useful than enthusiasm…

I sigh to myself. I glance at the time, and count the days until my coastal getaway…12 days… I watch the shadows shift as the sun rises. Pretty morning… I guess I will get on with the day. Feels like a good time to begin again.

Another summer morning, another opportunity to be the person I most want to be.
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Categories Allegories, breathe, Free Will, gratitude, health, Healthy Living, meditation, Metaphors, Mindfulness, Moments, Oregon Trails, pain, Perspective, Practices, Sleepless Nights, solo hiking, Summer, The Art of Being

The Best Advice

July 3, 2024 //
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Beautiful sunrise. Good morning to get a walk in. I’ve had the trail to myself, and watched the sunrise as I walked. Lovely.

Every day, every journey, begins somewhere.

The weather forecast indicates there is an extreme heat warning for the latter portion of the week, possibly record-breaking. I checked with my Traveling Partner about whether there were steps we might need to take to stay comfortable and ensure our AC functions properly. I’ll make a point to stock additional beverages and cold foods, so we won’t be required to cook using the oven or stovetop for long periods of time. I’ll drink more water.

…”Drink more water” is excellent hot weather advice, but there’s something quite limited about even the very best to bits of advice; it only works when actually taken. There are verbs involved. If we receive great advice but choose to disregard it, instead of applying it, our failures and misadventures thereby are of our own making. No one to blame but the person in the mirror. We for sure can’t claim we didn’t have guidance or that the advice was ineffective. lol

Why do people get great advice and then choose not to follow it? I don’t have an answer, I’m just wondering. I mean, actually, I can come up with several possible answers, but I don’t at all know which are likely to be most correct. Maybe we don’t trust the advice to be accurate? Maybe we don’t find the source to be credible? Maybe we think we’re a special case and the norms don’t apply to us? Maybe… maybe mostly… we’re just not really listening in the first place? That seems likely… people are pretty crappy at listening to someone else talking.

… Maybe sometimes there’s too much new information to process…

Are you listening to the good advice you’re given? Do you use it?

My neck aches ferociously this morning. I think I “slept on it wrong”. Ouch. The pain colors my experience unpleasantly. When the time comes, I take my morning medication, grateful to be able to add prescription pain relief, grateful to have it available, hopeful that it will bring some relief. I stopped on the trail several times trying to “work the kinks out” by practicing the release and self-massage techniques my chiropractor taught me. These are often quite helpful, this morning they are less so. I still make the effort. The headache that rises from the pain in my neck spreads like flames across the left side of my face. Occipital neuralgia. Fuuuuuuck. “Just kill me now”, I snarl quietly to myself, though I don’t mean it literally. I just hurt. I stretch. I breathe. I keep walking. This too will pass.

I reach my halfway point and keep walking, lost in my thoughts and preoccupied by my pain. This trail is a loop. Though I often walk out and back, a shorter distance, the full distance of the loop isn’t unreasonably far. I laugh at myself; looks like I’m going the distance this morning. I have time. Anyway, I’d be shit to be around this morning, and my Traveling Partner was already up when I left. No reason to rush back with my bitchy cross mood intact. I sigh as I walk.

… I should probably begin again. That’s pretty good advice…

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Categories Allegories, breathe, Free Will, gratitude, health, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Practices, solo hiking, Summer, The Art of Being, turning 60, women
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