Archives for posts with tag: pain

Some thoughts about things to do with being, becoming, and connecting with people (that I’ve mostly learned the hard way):

  • Chronic negativity isn’t “humor”, nor is it a useful way to connect.
  • An uncomfortable forced laugh is less engaging than authenticity, even when that means admitting “I don’t get it”.
  • Constantly complaining about common experiences doesn’t make a person sound cool, edgy, worldly or sophisticated.
  • I haven’t been everywhere. I haven’t done everything. I don’t know all there is to know about every topic of conversation.
  • It’s a safe bet that I have something to learn, and that listening may reveal things I don’t know.
  • A lot of things aren’t about me at all. Some experiences aren’t for me. I won’t be welcome in every space. This isn’t something that needs to be “fixed”.
  • Being annoying results in being alone. A lot. (And not missed even a little bit.) It’s just not fun to be around – definitely behavior to be avoided.
  • Consideration is often overlooked and very underrated, and when practiced consistently and sincerely can seem like a super power.
  • Manners still matter.
  • Intimidation is a “cheat code” in life, and although people around someone who practices intimidation may be willing to exploit that behavior, they don’t like the person who behaves that way, except maybe in spite of it.
  • Good character has lasting value and creates a stable foundation in relationships.
  • Some people are mired in their anger (it has become a practice more than an emotion), taking that personally is neither healthy nor helpful. Being that person is a poor choice with lasting consequences.
  • Hard decisions can slow me down. It’s worth considering other opinions and new options. Ultimately the choices I make are mine, and so are the consequences. It helps to ask questions and reflect on the answers.
  • Learning is a practice. Self-care is a practice. Listening is a practice. Consideration is a practice. Respect is a practice. Authenticity is a practice. It’s all practice. There are verbs involved. Work. Effort. Self-reflection. Commitment. Getting anywhere worth going happens in increments, over time.
  • We can choose change. We can choose to become the human being we most want to be. Ultimately we are responsible for who we are, and who we choose to become.

There are some seriously unpleasant, annoying people in the world. People who lack manners and consideration. People who are unkind, mean, petty, and (or) intimidating (sometimes for personal gain, sometimes purely as a matter of poor character). It’s worth doing my best not to be one of those people, and to do my best every day to be the person I most want to be. I’m not critizing you or telling you how to live, just sharing some of my own thoughts about my own life, things I’ve learned, things I’ve observed over time, things I still struggle with. Doing better today than I did yesterday isn’t easy; it takes work. Honest self-reflection. A willingness to change.

… Trust me, I’m not smug about any of this shit. I’m working my ass off to be the person I most want to be, to learn from my mistakes, and to do better today than I did yesterday – every day.

It was afternoon when I wrote those words. I was in pain. I slacked off some housekeeping in favor of self-care. Choices. Did it help? I don’t know. I got through another day, and held on to enough energy to cook a good meal. It was enough.

The darkness before dawn.

It’s a new day, now. I’m still in pain – I nearly always am. I’m not saying that to complain, and I’m not alone with that experience. Chronic pain is pretty common, actually. Learning to enjoy life in spite of it can be a pretty difficult journey (a lot of the really worthwhile things in life are difficult). My results vary.

I woke this morning already uncomfortable and in an unpleasant mood. No idea why, really. Maybe just dealing with pain has that result, sometimes. I feel cross with myself, with the world, with the seemingly endless list of shit that needs doing. I’m tired of all of it before I even get started…

I breathe, exhale, and relax, as I sit at the trailhead waiting for enough daylight to walk the trail easily. I don’t feel like walking in the dark this morning. I remind myself to let small shit go, and not to take things personally. I take my morning medication and sip my coffee and watch the moon set through the clouds.

When my mind wanders back to things that irritate me, I bring myself back to here, now, this moment. I make a point of practicing gratitude; it’s exceedingly hard for discontent and irritability to compete with gratitude, and I do have much to be grateful for. The internal resistance to letting my mood improve and allowing myself to enjoy a better experience is frustratingly persistent, but I keep at it. We become what we practice. It won’t always be easy to follow this path, but it is a choice available to me, and it’s the choice I make. My results vary, and there are verbs involved, but over time the outcome is predictably good.

Every day is a new beginning. My path is paved with my choices. The journey is the destination – and the clock is ticking. It’s time to begin again.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

I woke tired from a restless night of strangely lively surreal dreams. My walk felt short, and rushed. My day already feels busy and “crowded” with things that must get done before daybreak tomorrow, and the start of a few days of downtime spent attending to my emotional needs, and indulging artistic inspiration. Self-care is important and worth the time commitment to get a few things done so I can be away without concern, but… good grief I feel so busy right now.

I breathe, exhale, and relax. It’s the start of the workday, and looks to be an easy one. Routine, at least. Then home early enough to take my Traveling Partner to an appointment, then a quick shopping trip, then make (and enjoy) dinner, then pack (omg I should have worked from home today) and load the car, then, if there’s still time, a little time spent just chilling with my partner enjoying the last of the evening. Yeah, it feels like a busy day, but I’ve got a plan, and it’s not really “all that” – it just feels busy. Another breath. Another moment.

I’m in so much pain lately. A few days to myself to sit with that without also feeling like I’ve got to mask it to avoid making everyone around me uncomfortable will be a nice “luxury”. There’s more stress than I want to admit in having to “put a good face on it” when I hurt like this. Pain relief measures only do so much, and I’m not willing to take (nor am I prescribed) the quantities of painkillers it would take to shut down this amount and intensity of my personal combination of arthritis and headache pain. It is what it is. I’m also not willing to let pain call my shots or totally wreck my experience; there’s more to life than the pain I’m in. I remind myself often. Sometimes it helps, sometimes it just annoys me. Sometimes being annoyed about it helps in its own way. My Traveling Partner endures his own pain. Hell, even the Anxious Adventurer deals with pain – and frankly, most people do, to some extent, I guess. The challenge is not being a dick about it, and doing the most we each can to go ahead and live a good life in spite of the pain we’re in, and to remain mindful that we can’t possibly fully understand the pain someone else is in. Ever. Even if they say. We just can’t know their experience the way they do. So…I try to manage mine, and mostly keep it to myself. It’ll be nice to have a couple days to just sit and weep over it, while I paint, if that’s where it takes me, and not be worried that anyone else will be affected by those tears, or my pain.

Beyond the pain, I’m looking forward to a couple days of watching the tide come and go, and sitting with my thoughts – and my grief – and just “getting my head right” in my own way. The holidays are coming. The first in decades that my Dear Friend won’t be part of that experience in any way. That hurts more than I expected it to. No need to think about what to send her. No need to share anecdotes or pictures. No need to message her on Giftmas morning so she doesn’t experience the morning alone. No need to delight her with my curiosity about what my Traveling Partner may have gotten me, or made me, this year. She’s just…not here. My sorrow tries to swamp me every time I remember, and I really need to get past that somehow. It’s a lot. Granny? Gone, too. And Mom. And my long-gone girlfriend, T. There are unshed tears waiting their turn to fall, and I need to allow myself time for that this year.

I’m eager to hit the road, and hit the trail. Eager to walk my own path and feel my feelings (there’s no shame in these honest tears). I’m eager to begin again on the other side; the way out is through.

I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

Well… Not literally “no words”…cuz here I am, eh? Words. I’ve got a fair few of these fuckers (words) laying about. May as well use them…but… This morning I’ve nothing much to say, really.

… I’m tired, and there’s this damned headache and this ringing in my ears…

“Anhedonia”. Now there’s a fucking word. Anhedonia is more or less simply a loss of delight, of interest, of the will to engage with pleasant and interesting things. It’s not “boredom”, and it most definitely is a “mental health issue”. Sometimes it’s simply that circumstances grind me down until I just fucking give up on a “just don’t give a shit” level that transcends even irritation, leaving me without the will to resist or try to overcome it at all. Here I am this morning.

… I’m just that tired, cognitively and emotionally…

Caregiving is hard work, and I’m learning that a great deal of the work involved is in the form of emotional labor. I have profound respect for people who are caregiving a loved one for years. I’ve only been doing it for months. It’s fucking hard, and it’s draining. 8 days until my coastal getaway, and I definitely need it, but… I’ll also need to really get away from the emotional labor of caregiving to get the rest I need so badly. Most of the brief opportunities for downtime since my Traveling Partner’s injury haven’t given me the rest I really needed, because I failed to leave the emotional labor behind, and returned home to still more. I didn’t understand that I needed to put that down, and didn’t understand what a large portion of the caregiving it really is. (I’m pretty new to taking on a caregiving role, and have never had a child.) I failed myself in this way, and by extension ended up also failing my Traveling Partner – in two ways.

1. I failed my Traveling Partner by not taking care of myself sufficiently well to ensure I am up to the challenges and requirements of caregiving over time. It’s an endurance race, not a sprint.

2. I failed my Traveling Partner by not setting clear boundaries with regard to emotional labor generally, or communicating clearly when the burden is too great for my limited human capacity.

I can see how these are both also failures of self-care, too. No wonder I’m fucking exhausted.

This morning I got to the trailhead and just sat in my car weeping quietly for some unmeasured amount of time. I really didn’t feel like walking, at all. Anhedonia is a difficult challenge to overcome, but eventually I got out of the car and trudged down the trail irritably. The rising sun only annoyed me and my sour mood followed me down the trail. I spitefully didn’t stop to sit and write in my preferred location, choosing instead to annoy myself by sitting uncomfortably elsewhere. (Good grief, really?! Fucking stupid.)

I’m sitting. Writing. Feeling irritable because my back aches, my head aches, my tinnitus is loud, and my Traveling Partner is injured. From the perspective of this moment it feels very much that there is “no end in sight”, and despair threatens to rear its head. I sigh deeply, and just let the unwanted tears fall.

This shit is hard.

…It could all be so much worse…

This shit is hard.

I breathe, exhale, and relax. Eventually, I even stop crying, and even mostly stop feeling overcome by anhedonia. I clearly need to get some downtime, some relief, a real break… Which makes me feel like an asshole; my Traveling Partner gets no break from being injured and in pain and needing my help. Fuck.

… Did I mention that this shit is hard?

I’m okay for most values of okay. My Traveling Partner is, too. He’s got surgery scheduled. This is, thankfully, a temporary situation, and we’ve got the additional help of the Anxious Adventurer now (which is greatly appreciated and very much needed). I make a point to reset my perspective, my expectations, and my awareness. It’s not helpful to become mired in pain – particularly someone else’s, and especially when I’ve also got to manage my own. It’s hard, sure, but it truly could be worse, and in some respects it isn’t even as bad as it sometimes feels. We’re fortunate: I’m employed, we have health insurance, we’ve got help, and this isn’t a terminal health issue.

If I were better at this caregiving stuff, I might be more easily able to lift my Traveling Partner from his pain-focused funk, when he gets stuck there. I sit with that thought for a few minutes. I think about the many years of therapy and skilled mental health care I’ve been fortunate to receive. I think about mindfulness practices, meditation, and CBT.

… I remind myself that I can’t do the verbs for anyone else, and that we’ve each got to walk our own hard mile…

I breathe, exhale, and relax. Sometimes the best thing I can do to care for my partner is to care for myself. I think about the day ahead, and the things I’d like to get done. I think about my partner, and what he may need today, and consider how best to be there for him.

It’s a new day. The sun is warm on my back. I hear voices coming down the trail. It’s time to begin again…