Archives for posts with tag: TBI

Huh. Just for a moment I had the strange sense that I was completely wrong about the day, and that instead of the Monday I was thinking it was, as I sat here in the office, it was – perhaps – only Sunday, and I did not need to be here at all. A quick double-check of the calendar (and then my phone, and then the tiny date/time at the bottom right of my computer screen for good measure) reassured me that indeed it is Monday. I may not be overly enthused about that, on its own, but I am at least not incorrect about what day it is. lol

A perspective on some orange flowers.

The morning has been a slightly odd one. I woke much earlier than necessary, but got up and made coffee and hit the road anyway. I didn’t have quite enough time to return to sleep, and definitely did have time to make a point to remember my packed lunch, and to make myself some good coffee. Even the commute was somewhat strange and definitely not routine in any way aside from the route I took. I hit every traffic light green, and there was almost no traffic at all. I drove the speed limit, feeling unstressed, unbothered, and unhurried (which makes sense since it was quite a bit earlier than I am usually on the road). The office is chilly in a Spring sort of way, and my thoughts linger in my garden, in spite of the darkness beyond the window. Funny thing; the weekend was quite productive, and I seem to recall it feeling “busy”, but… at least for the moment, I don’t really recall anything that stands out as eventful or special. No, I’m wrong – one thing does stand out; my Traveling Partner rebuilt, refreshed, and enhanced our household automation, updating and correcting some out-of-date programming and making upgrades that had been planned before his injury. Quite successful and useful, and delightful to use. There’s that. That stands out. Nothing much that I did comes to mind at all, but damn I’m sore like I did a bunch of stuff. LOL I also didn’t do a bunch of stuff – I was supposedly “taking it easy”, but I don’t feel like I actually managed that trick. Feels like I just did other stuff, instead of the usual stuff.

Same flowers, different point of view.

I rub my eyes, yawn, and sip my coffee. I still don’t feel quite awake yet, which is strange; I’ve been awake now for almost 3 hours. Groggy. Foolish. Mind wandering. Feeling vaguely purposeless and “out of focus” and caught in a sticky web of random thoughts and distractions. My sleep was restless, interrupted, and filled with strange dreams. I may not “need” more coffee…but I’m sure going to have more! lol The morning feels a bit surreal, so far. And chilly. It’s chillier in the office than it has been. As if in response to that observation, I notice the small heater that was left in this office space at some point. I sip my coffee and consider the option to use it, without acting on the thought. I could, though… If I choose to.

A different angle on the same theme.

I sigh to myself, and try to shake off my grogginess by literally trying to shake it off. The sight, reflected back at me in the window makes me laugh. The laughter does more to wake me up than the shaking did. I sip my coffee, now at that “perfect drinking temperature”, and think about my Traveling Partner sleeping at home. I hope he gets the rest he needs – he has a day of work planned (and specific projects in mind) with the Anxious Adventurer’s help. He’s recovered from his injury and surgery to a point that he has begun “picking up where he left off” on all manner of tasks and projects that fell to the side when he got hurt, although he still has a way to go before he will be “at 100%”, maybe a long way to go (there’s quite a lot of work involved in fully recovering from a spinal injury and surgery). I feel relieved and delighted to see him doing so well. I can’t even describe how worried I was at some points, and I don’t like to think about it.

It won’t always be flowers and garden paths; sometimes it’s an uneven path, an uncertain destination, and a distant horizon.

Being a caregiver has been one of the most difficult things I’ve ever undertaken. I give myself about a “C” on that endeavor, if I’m honest. Even with all of my best effort, I lacked experience and skill, and I fucked up a lot (and I was exhausted all the time), and I could have done so much better given time and training and more practice – but that wasn’t how things went down. I did my best. I can say that, and for most values of worth, it was enough – but fucking hell I wish I could have done more/better for longer. Caregiving is fucking exhausting. If you know someone who is a caregiver (or, frankly, a parent), be appreciative, considerate, and kind; that’s a lot of fucking work they’re undertaking to do, on top of trying to live their own life and manage their own self-care, and possibly also working a full time job (especially if they are committed to doing all of it well). Fuuuuck. That’s a lot. Sometimes it can feel like an inhuman amount of effort is required, and it can feel like the stakes are “too high”. Be helpful if you can – and for sure just don’t be an insensitive jerk about the situation, most especially if you’ve never had to provide full time caregiving yourself. It’s a hard mile to walk. I worried the entire time. Worried about the future. Worried about my beloved. Worried that I wasn’t good enough or capable enough – and painfully aware that things could be still worse.

Walking my own path, one step at a time.

I breathe, exhale, and relax. It’s just a routine (mostly) Monday. Things are okay for most values of “okay”, and the day begins well (if a bit groggily). It’s time to get on with that. Another beginning. Another day. Another mile to walk on my path. Time to begin again.

Whether or not whatever is causing our stress and anxiety is “real” – the stress itself, the actual anxiety is real. Strange how that works.

I sneeze suddenly and dart across the room to the corner where I’ve tucked my handbag, and scramble frantically through the contents looking for the travel pack of tissues I know is there somewhere. Damn it! Another sneeze, and now my nose is running like crazy and I dread finding myself covered in snot. I continue scrambling through the contents of my handbag a bit panicked, finally finding the tissues after I basically dump the contents onto the top of the printer in the corner. I return to my desk, feeling relieved, then my eye falls on an actual box of tissues right there on my damned desk, unnoticed, placed there by the cleaning crew over the weekend. I sigh, amused and frustrated, and astonished at the intensity of my absolutely pointless moment of stress. The stress was real. The cause of it wasn’t real at all; it was based on a misperception, a misunderstanding, an error in thinking.

“Anxiety” 10″ x 14″ – and she feels much bigger than that, generally.

…That’s often how stress and anxiety work; we respond to something in our thoughts or perceived experience without regard to the actual factual basis of the circumstances, and the stress builds so quickly we fail to “fact check” what’s going on around us…

I take a moment to let renewed calm sink in. I breathe, exhale, and relax. It’s a new moment. I begin again.

My Traveling Partner had asked me (some time ago) to help with some paperwork. I have been dreading doing it, not because it’s actually all that big a deal, but because… stress. My own medical trauma and difficulties with some sorts of paperwork has been getting in the way of helping him out. He’s got his own challenges and anxiety to do with it, but it’s mostly been about the practical difficulties with keyboarding for long enough to get it done. He needs my help. I am happy to provide it – in the abstract – but the reality of the stress it has been causing me flared up yesterday afternoon, and I found myself in a moment of headache and pain and stressful tears over… mostly nothing. It’s just not that big a deal. It collided with my awareness of the upcoming busy Tuesday calendar (he has a couple of appointments to get to, and needs help getting to those) and my upcoming time off (which appears now to need to include Tuesday) and my headache, and I just… couldn’t get my head around all of it calmly. I found myself facing a huge feeling of pressure and imminent requirement to get it all done. Funny – not one detail of any of it is all that big a deal, so… why all the stress and agita? Why the anxiety? What the actual fuck, eh?

Humans being human. This morning it doesn’t look like all that big a deal. I look over the provided checklist for the paperwork, it’s not all that bothersome, actually. The appointments tomorrow? The Anxious Adventurer stepped up, agreeing to take his father to those appointments. I took it in stride this morning when it turned out I also have an appointment, scheduled in between my Traveling Partner’s appointments, and which would have prevented me from taking him to both of his, regardless. Busy day. The paperwork? It’s just paperwork. Needs to be done so it can join a queue of other paperwork submitted by other human beings to be considered by still other human beings at some considerably later date. Just not that big a deal, I guess. But the stress was real. That’s an important detail; managing that stress was its own thing, with its own needs and its own steps. A real concern, for a real human being – and I’m grateful that my Traveling Partner recognized the need ahead of my own acknowledgement of my stress (which was escalating and confounding my ability to reason), and helped me address it, enabling me to more easily self-soothe, and get myself back on track. No tantrum, no meltdown. The headache lingered through the evening, but even that wasn’t that big a deal once the stress had been managed. Stress complicates everything by clouding our comprehension and judgment, making everything look like a bigger deal than it may actually be.

This morning, I breathe, exhale, and relax. I slept well and deeply last night – I clearly needed the rest. I feel like my body (and mind) have finally made the adjustment to the change to the clocks (good grief I wish we’d stop doing that). I feel more settled and comfortable in my skin. Okay for most values of “okay”, and ready for a new day (and week). The Equinox is coming, and so is my time off. It’ll be nice to have a few relaxed days painting, drinking coffee, driving beautiful roads to lovely destinations, and doing some painting. It is time planned to be very low stress. I hope it actually turns out that way, although the future is not written, and I have no way to know what obstacles may be on the path ahead. lol It’s a very human experience.

I’d like to spend a little time in the garden, too. So much of my experience in life is based on what I’ve planted, what I tend to. I think awhile about my garden as a metaphor… there are weeds to pull, seedlings to nurture, and a harvest in the future. For now? It’s time to begin, again.

My garden is a special place for me – and a useful metaphor.

I slept somewhat poorly last night, restless with pain mostly. My dreams were filled with chaos and uncertainty, and the occasional random spider. Odd. I woke in the usual way, dressed and left the house, head still full of chaos. My thoughts as I drove up the highway reflected the restlessness of the night and the chaos in my head; I reflected philosophically on a variety of seemingly unrelated ideas, the only connecting thread being my own individual perspective, as I exist today. Useful? Hardly. Barely interesting, already forgotten.

I get to work, in less pain than yesterday but still feeling it as a distraction. I take my meds, get some coffee. I sigh and get things set up for the day. It’s a routine work day and I’m grateful to be working…but…

…Fucking hell life is expensive, and “enough” doesn’t always feel like “enough”. I say this acutely aware that I write from a place of relative privilege. Things could be better, yeah, but they could sure be a lot fucking worse. (And have been, in past eras of my life). My pain grates on my nerves – but so does my feeling of discontent and stress over the future. (Will I ever retire? It doesn’t seem at all likely at this point, until lack of fitness for such endeavors forces me out of the workforce to exist on whatever resources remain. A grim thought, and I try not to linger in this place.)

I breathe, exhale, and relax. Some days it is a force of will to be in a positive frame of mind. This doesn’t mean inauthentically silently screaming positive aphorisms to myself in my head or forcing a smile to the people around me while I proclaim that “everything is fine” – that doesn’t work. “Fake it till you make it” is not my way; I haven’t found success there, myself. Instead, I rely on practicing gratitude – legitimate, heartfelt appreciation for the things that are working, the things that feel good, that things I have, or do, or feel, that truly lift me up. There’s a lot to be grateful for, and generally the very temporary feelings of stress and discontent will pass if I don’t dig in and build myself a trap to fall into. So, here I am. I “feel around in my headspace” looking for a route to reclaiming my sense of self, my perspective, my feeling of being empowered… I remember I playlist I started once-upon-a-time that might be helpful right now… “No F*cks“. Hmmm… Pretty short playlist. I distract myself wondering what to add that fits the theme. I have definitely found that a “positive distraction” can help shift my mood from the dark places my thoughts sometimes wander.

“Anxiety” 10″ x 14″ acrylic on canvas w/ceramic 2011

I breathe, exhale, and relax. I catch myself wondering about the background stress and the thread of anxiety running through my thoughts. What’s up with me? Is it work? Is it life? Is it my doctor’s appointment later today? Oh. Yeah, that could be it, for sure. I sigh quietly. Aging has it’s ups and downs, and the doctor’s appointment is no big thing, but it brings my anxiety about my pain and long-term wellness concerns more to the forefront of my consciousness, where I thoughtlessly push it back in the form of anxiety. “Saving it for later.” Unproductive. I take a minute with myself. I do a quick “body scan”, and an “emotional inventory”, letting myself be more fully present and in touch with the feelings and sensations in my here and now moment. More than the usual pain, but a lot of it is still “just sore muscles”. My headache is worse than usual – and my health insurer (through their bullshit evil middleman) has decided not to reauthorize one of the few things that really actually gives me some pain relief (not a prescription drug, but a physical therapy). It “won’t fix anything”, which is their justification for denying reauthorization, and that’s certainly true – but there isn’t actually a treatment that will “fix” my degenerative disk disease, my osteo-arthritis, or the headache (at least nothing has been proposed as likely to be a real solution, so far). I would think relief and improved quality of life would be a good choice, with that in mind…? I catch myself gritting my teeth with suppressed fury. The pain is bad today, and I’m annoyed because it didn’t have to be, and it may be getting worse before it gets better. Cheaper to addict patients to powerful painkillers and shame them for being junkies than to provide care that actually eases suffering. Fuckers. Another breath, and I let that go. I can care, even if my insurer doesn’t. My Traveling Partner cares. My doctors care. Those things matter. Doesn’t make it easier, but I’m at least not traveling alone.

I let the music play in my ears, and sip my coffee. Sometimes enough has to be enough – even when it doesn’t feel like “enough”. Sufficiency is often not what I want it to be – it’s only what it is. Things could be legitimately worse – far worse. I’ll make the best of what is – because that’s the path I’ve chosen to walk. That’s the woman I most want to be. Capable. Fearlessly self-aware. Doing my best. It’s not nothing – and sometimes something is all I need to get by for awhile.

I smile to myself. I feel it still. I definitely do. It’s time to begin again anyway.

A friend asked me a question, and asked for “some steps, you know, some basic practices” because they were “freaking out with all this chaos and scary shit going on” (I know, me too, right?). I said I’d do my best. I hope it helps. ❤

Where does this path lead?

Sometimes it’s a difficult journey, this “life” thing, eh? It doesn’t have to be has difficult as it sometimes seems. It is an unfortunate truth that we often complicate our situation needlessly, sometimes through poor decision-making, sometimes through lack of clarity in our thinking, sometimes just because we have feelings and don’t reliably deal with those skillfully. But, the good news is that we do actually have choices, and tools at our disposal (like critical thinking, perspective, and non-attachment). We can take things a step at a time…

  1. Start where you are. Any journey is more difficult if you are trying to begin from somewhere other than where you actually stand. Honest self-reflection, acceptance, and making a point to test your assumptions and reality check your expectations is really useful.
  2. Breathe, exhale, relax. Maybe you don’t have “a meditation practice”. Maybe you don’t need one? It’s reliably helpful to “take a minute” to calm yourself when you are stressed out. Change your perspective or your environment, however briefly, and break out of your rumination or your stress spiral. Let small shit stay small. Let things go that you’re getting hung up on, if only for a little while. Take a break. Walk away from it.
  3. Take care of your “fragile vessel”. Such a simple thing – self-care really matters, particularly when life feels hardest. Are you getting enough rest? Are you eating healthy meals? Drinking enough water? How about a shower and some clean clothes? Have you taken prescription medications that may affect your feeling of wellness (or failed to take them)? Are you in pain – and are you doing something to ease that, if you can?
  4. No media, no doomscrolling. This one is a small thing, but a big deal; if you’re already stressed to the breaking point, feeling overwhelmed, or struggling to manage the details in your life, I promise you that reading the news, or doomscrolling endlessly through various feeds on your device(s) is not helpful. Put it down. Silence your notifications. Put the device on Do Not Disturb. Walk away from the tether that ties you to constant demands for your attention. Go outside. Take a walk. Read a book. Sit down over a cup of tea or coffee with an actual human being out in the world and have a conversation. (See point 2.)
  5. Put things into perspective. This one is both difficult and easy. Easy to say, sometimes more difficult to put into practice, just being real with you. Your perspective on a difficult moment may be filtered through the lens of the stress you feel, or prior experiences that weren’t really quite the same. You may be struggling with your chaos and damage, and past traumas may be coloring your understanding. Take a step back. (Don’t take dumb shit personally.) Consider the moment from more than one angle. This one moment, right here, is unique and unrepeatable – and it will pass (good or bad). Let it.
  6. Practice non-attachment. This is a practice that sometimes has some poignance (at least for me); let it go. Just that. Whatever it is, don’t cling to it. Let it go. If you lost the thing you cling to so tightly (whether it is an object, relationship, or sense of identity), things might change, sure, but – wouldn’t you (most likely) be okay if you allow yourself to be? We sometimes cling so tightly to something that isn’t even quite real. Some of what hurts us most we’ve completely made up – it’s safe to let that shit go.
  7. Practice gratitude. I’m not even kidding. I’m also not suggesting that being grateful for the struggle itself, or the pain you’re in, or this complicated moment is the goal. Not at all. I’m suggesting that being grateful for other things, the small wins, the pleasant moments, the little joys, the handful of things that are reliably part of your individual good fortune has real value. It’s difficult for anger, anxiety, or sorrow to compete for one’s attention with heartfelt gratitude. Authenticity matters, and gratitude can’t be “forced”, but there are likely to be quite a few little things for which you are truly grateful. Make room for those. Reflect on, and cherish those. It may give you a firm foundation to stand on before you…
  8. Take the next step. Life is a journey. Most of our path we walk alone. Sometimes we’re fortunate enough to share the journey, but it is still our journey. We’re each having our own experience. Walk on. Sure, have an eye on where you think you’d like to get to, but understand an important detail; the journey is the destination. Do your best to be the person you’d most like to be, moment to moment. Make those choices – the ones that allow you to walk your path, authentically.
  9. Be here, now. Spend less time on regret (the past is behind you) and worry (the future has not yet happened and may not be whatever you fear it might). Be present, in this moment. Now. This takes us back to point 1, you may have noticed… “start where you are”.
As with so many journeys, it isn’t always clear where the path leads.

Breathe. Exhale. Relax. You can begin again. Each time you stumble, pick yourself up, and begin again. Each time you fail, learn from that experience. You’ve got this. It’s your path, your journey, no one can handle this one better than you can.

Staying on the path is a choice, and there are verbs involved.

It’s a Friday. The headlines in my news feed are pretty horrible; more human cruelty, more corruption and greed, more vain human stupidity. I sigh and move on; I don’t have time for that bullshit. I have things to get done, a life to live, and an opportunity to do better, myself, than all of that nonsense. I decide to focus on what I can do as an individual to make life better for my family and my colleagues, and stay present here, now, and attentive to what I can do something about, personally. It feels more productive, and emotionally healthier.

…I have a list of things to do…

First things first, I take care of myself. Coffee. Meditation. A moment for reflection. Then thoughtful time spent on the household budget for the new pay period. I smile to myself, thinking of my Traveling Partner and how helpful he was when we got together, sharing his (much better) approach to such things. I’ve come a long way since then. During the time I lived alone, although we were still together, he wisely “kicked off the training wheels” and insisted I handle my own affairs financially, feeling that I was ready for that (and wanting to feel certain I could take care of myself in this way, come what may). Having a brain injury had long presented significant challenges for me in that area; managing money was hard for as long as I could remember, when I met my Traveling Partner. Making and following a budget was hard. Understanding when and how to flex on a plan was complicated. I didn’t make much money and it always seemed like I needed to stretch it further than it could go. I’d been disadvantaged by relationships with individuals willing to exploit my inexperience or my brain damage for their own benefit. I didn’t understand my worth. I am grateful to my beloved Traveling Partner whenever I sit down on a payday Friday to look over the numbers, make a plan, and prepare for another cycle of bills, expenses, and living life. Paydays used to be terrifying and filled with anxiety – now they’re just days that begin with a spreadsheet, some thoughtful choices, and some notes to share with my partner, and the chance to get his thoughts on the plan and make changes based on those. He has good ideas and we’re a team. I smile, feeling fortunate and loved.

I look over the things I need to get done over the next couple of weeks, and over the coming weekend. Pick up new glasses. Get the oil changed in my car. Grocery shop. Finish the storage move. Prepare the garden for the coming of Spring. I sigh to myself; I failed to properly winterize the garden last autumn, busy with other things that seemed a higher priority at the time. I’ll pay for that now. The Spring prep tasks will be a bit more complicated, a bit more laborious, a bit more tedious. Choices. I laugh softly to myself and sip my coffee. We make our choices and pay the price when we choose poorly. That’s just real.

…I’m excited about having new glasses, my prescription has changed and it’ll be good to see clearly again…

I sip my coffee and do a quick “personal inventory”. My tinnitus is loud in my ears this morning, but I’m not in much pain. I’m feeling the chill of morning, but I’m not especially uncomfortable. I feel relaxed and ready for the day. My chronic headache is only a 2 on a 1-10 scale, which is almost pleasant, all things considered. It’s a good start to the day. I feel rested and calm. It was probably a good choice to avoid the news feed – nothing good comes of added unnecessary stress over terrible shit I can’t change to my sense of self first thing in the morning. Being “present”, and having a sense of “where I’m at” at the start of the day is a useful practice, for me. I’m less likely to unexpectedly find myself mired in chaos and damage, or having some problematic tantrum over bullshit. I can take better care of myself when I know what I need. (That probably all seems pretty obvious…)

Daybreak comes, then dawn, and I see the suggestion of a sunrise behind dense gray clouds. A new day. Looks like a good one, so long as I don’t think about things to do with governments, politicians, billionaires, corporate greed, exploitation of vulnerable populations, or climate change. I sigh to myself and get ready to begin again.