Archives for posts with tag: TBI

I slept badly last night. I woke to the full brightness of my artificial sunrise (which usually wakes me much sooner, in soft dim light). My routine was thrown off by the addition of putting in my new hearing aids, which I’m not yet super skilled at, and doing it felt clumsy. My long hair and glasses complicate that a bit; it’s necessary to brush my hair before I put in my hearing aids – but brushing my hair is often “the last thing I do”, and I’d set things up such that the hearing aids were “too soon” in my routine (thinking I’d put them in right after I put on my glasses). lol Being fond of routines and habits has a downside; the plan needs to account for the realities of my lived experience. So. I found myself mentally rearranging my morning routine – during my morning routine – and the end result was that I forgot my computer glasses when I left for work. Fucking hell.

…The hearing aids work very well, though, so there’s that…

The drive to the office was ordinary enough, though I’m still getting used to the “convenience” of hearing things so differently. Even car sounds, like the seatbelt warning ding, are quite different, and not just “louder”. Interesting. It’s somewhat similar to the experience of getting new glasses after needing glasses for awhile. There’s a certain awe and wonder to the level of additional detail. (I also need new glasses…)

When my Traveling Partner wakes and sends me a text message, the notification reaches me through the hearing aids, which are paired with my phone. I rather stupidly had the volume almost all the way up, because without the hearing aids, that’s what it took to get my attention – and I still missed tons of messages, because I just wasn’t noticing the notifications. Well, that’s not a problem now! I chuckled and turned the volume way down, fairly delighted that I can stop compulsively checking for missed messages, now, being able to count on hearing the notification each time.

…Pretty mundane stuff, eh?…

I sip my coffee and take a moment for myself before I start getting caught up on work. My back aches in spite of taking pain medication for that. I shrug to myself grateful that I’m not yet experiencing eye strain from wearing the wrong glasses. It’s a very human experience. This fragile vessel isn’t in the shape it once was, and various components are needing attention, or assistance. My thoughts wander briefly to “how much longer?” but I don’t linger there – I know I won’t live forever, but I’ve no desire to drag the end closer to my “now” moment. I hear the phrase “death and taxes” in my thoughts and roll my eyes; it is time to do the taxes. Apparently I’d rather think about death. LOL Humans are weird. I breathe, exhale, and relax. This moment here, with my coffee and my inbox, is quite enough for now. I pull my attention back to “now”.

It’s still quite early, and I have the office to myself for the time being. It’s pleasantly quiet, although it sounds quite different in many little ways. I listen to the ventilation, the hum of distant machinery, and the subjective “silence” of this space. It’s not silent at all. It’s not even actually “quiet” – I just perceive this experience as “quiet” because it is not filled with the chaos of human voices. I sip my coffee, content and grateful. This is enough – even with the wrong glasses on. 😀 I look out the window into the pre-dawn darkness. Daybreak soon. I turn off the office light, too better see the day begin. The light of my monitors is enough to work by.

I feel incredibly grateful and fortunate. I’ve got a partnership I can count on, with a human being I quite adore. I’ve got a good job that keeps the bills paid, and the pantry stocked. I’ve got decent healthcare, and what it doesn’t cover is mostly handled by the VA when I need something more. I’ve got good friends and good colleagues. I’ve got this pleasant moment right here, and the hope that I’ll see many many more. It adds up to a pretty good experience. I sit with that awareness awhile. It’s been a worthy journey so far – and there’s further to go.

…It’s time to begin again…

I am sitting quietly, listening to the woosh of the ventilation and the zing and buzz of my tinnitus. Just that, nothing more. Some minutes pass before I consider my keyboard or my thoughts. I just sit awhile, with this infinite seeming moment. It’s isn’t though; it’s quite finite and mortal and limited by this space and whatever time and attention I give it. Just a moment. Sometimes a moment seems so fragile and fleeting. A metaphorical drop in the bucket of a lifetime of moments…but…how big is that bucket, anyway?

I breathe, exhale, and relax. I sip my coffee. I give a bit of attention to the pain in my neck, my back, my headache, and then move on; my thoughts are elsewhere. Here. Now. Just being. I’m not doing anything right now – other than making a point of noticing the stillness, and this moment, and writing a few words before letting stillness and quiet overtake me again. I exhale slowly, hearing my breath and noticing that the sounds of the ventilation, my breath, and my tinnitus all seem quite “the same volume”. I’m not certain they are, particularly considering the “sound” of my tinnitus isn’t a “real” sound at all – no one hears that but me.

I stretch, and sigh, and adjust the way I’m sitting in this rather uncomfortable office chair. It’ll be a day of it, though a short one. I see a new doctor today. For a moment I wonder how that will go, and whether I’ve chosen well or poorly. I put all that aside, again; the time is not now. “Now” is just this moment, here. Quiet. Still. Alone. It’s quite pleasant and… something else. Fulfilling? Satisfying? Peaceful. For a moment (this moment) there is no chaos. This is a chosen, deliberate, willful thing. I am choosing peace and order in this solitary moment. It isn’t much, as peace and order goes, and it surely does nothing noteworthy to improve the state of our messy chaotic terrifying world – but it is here, and now, and it is real. (No one is dying in this moment, in this place. Real peace. I’m choosing it. You can too. So can “they” – and by “they” I mean all those beyond these walls who are choosing to kill, or to send others to fight and kill and die. Those are most definitely choices and could be handled quite differently.)

I sigh quietly, annoyed to have let my thoughts slip from this moment to other moments, other places – other intentions. I pull my mind back, and begin again. Here. Now. This moment. This place. This feeling of peace and contentment and stillness.

Later this week The Author will visit me and my Traveling Partner, and I am eager to see him – it’s been too long. 2016? 2017? Something like that, I think. I remember his visit to help me move into #59… or was it the duplex? Was it both? He’s a good friend – willing to help with a move. Hell, he helped me move to Portland from Fresno, both of us driving vehicles not ideally up for that challenge. That’s friendship, right there. This has been an enduring friendship since we first met… 1996? I think so. He has visited me. I have visited him (though less often). I think about making a trip down his way maybe this Spring – if my Traveling Partner is up to being without me for a few days when that time comes. Could be fun. A chance to see many old friends, and renew those with shared moments and new memories. A worthwhile endeavor.

I smile and my thoughts move on. I look at the time, reluctantly. The work day calls for my attention. My coffee is almost gone. Daybreak is visible on the horizon, beyond the windows. It’s time to begin again.

I woke abruptly shortly before my silent alarm lit the room. I lay still and quiet, wondering what woke me, and still sensing the lingering remnants of my dreams. There was, rather oddly, an old Juice Newton song stuck in my head – not music I listen to, nor have I heard it recently. Peculiar, especially knowing I have not heard it recently (on background music in the grocery store or something of that sort). 1981 – I was finishing high school and preparing to head to basic training that year. It was a year of a lot of change. I was 17.

By the time I reached the office, the music in my head had shifted. 1975 – 10cc. Weird way to time travel, eh? I’d have been… 11? 12? Not long after my (most significant) TBI. It was a strange time, and I still lived at home, with my family of origin. I guess I could just say “with my family” – but that means different things to different people these days, and I’m specifically referencing my mother, father, and my two sisters, in this case. As I settled in to work, the music in my head moved on with the years… Alice CooperVan HalenAC/DC… I listen to songs from other times, still loving them, still moved by them, and just a little astonished by how much my tastes have changed over the years, with moods, with moments, with circumstances, and with relationships. I shake off a moment of soft sorrow, and choose a playlist from a more recent time, more upbeat, associated with happier memories and easier times. “A better groove“. Music is almost a kind of magic, I sometimes think – a way of casting a spell over ourselves, and carrying our heart back to another time, a different place.

I grin to myself and think of my beloved Traveling Partner and his exceptional gift for creating an emotional moment using music. He has inspired me so often, and moved me to laughter, to tears, to passion, so many times. I remember that I don’t have to sit with my pain just because a song plays… I can change the music.

It doesn’t do to dwell on sorrow and pain, and it’s very much a choice I can make – to let that go, to control the mood in the moment, to grab the wheel and drive. It’s my journey, after all.

I breathe, exhale, and relax. There’s a horizon in the distance, and a journey to make between here and there. It’s time to begin again.

I’m sipping my coffee. Just that. I’m taking a moment of time out of the day to simply sit, quietly. Not only is there no “shame” in taking this time for myself, between doing the budget for this pay period and starting the workday, it’s quite necessary for me to thrive that I take this time to simply be. No pressure to perform. No agenda. Nothing that must be done right this minute. There are opportunities to make room for stillness throughout any given day – for all of us – it’s a matter of taking that time and making it one’s own. It does require an act of will, particularly on a busy or stressful day. A moment spent just being… not fixing things, not ruminating over the latest stressful detail, not troubleshooting nor planning, simply a moment of stillness spent… being. I breathe, exhale, and relax.

…I could be doing a thing, my busy brain reminds me somewhat anxiously…

Another breath, another sip of coffee. I look out the window onto the morning. It’s not yet daybreak, and there is no hurry. There’s only this moment, and me, some stillness, and this coffee. It’s enough. More than that, it’s quite necessary.

…Metaphorically speaking…

I sit contentedly for some time before I turn back to my computer to write these few words about that simple experience. It does require a choice. Recognition that I am deserving of my own time and attention for this little while. The willingness to make inaction the action I am choosing to indulge for some little while. Purposeful contented stillness in the midst of a busy day feels… luxurious. No shame, guilt, nor reqret, just a lovely moment spent on… quietly being.

I am reading Vita Contemplativa by Byung-Chul Han. A worthy read about the pursuit and value of inactivity. The luxury of leisure. The worthiness of stillness to fuel creativity and thought. Another quite slim, small volume filled with big thoughts. I’m having to take it in small moments to give myself the chance to reflect and consider what I’ve read – and I am inspired. These notions about the value of stillness, inactivity, and rest really resonate with me.

I consider my dueling nature; the artist and the analyst. The girl who can read for hours and the woman who is aware there is yet more housekeeping to do. The daydreamer whiling away the day and the purposeful individual completing tasks on a list one by one. The driver heading for the horizon without a destination, and the one with a carefully planned route to a place that must be reached. The woman with a deadline and the one who does not care about time. What matters most, I wonder? Who am I when I am alone with the woman in the mirror?

I smile to myself. Having succeeded in taking a few minutes to just be, and to enjoy that moment without anxiety – or purpose – really refreshed and energized me. I feel “ready for the day” in some way that I don’t reach any other way. Is this “real” or an illusion? Does that even matter, if this is the experience I am having?

I glance at the time and finish my writing. I’ll finish, here, then finish my coffee without hurrying the moment. Stillness and time to reflect and simply be, first – I can begin again sometime after that. My calendar and my list will still be waiting there for me.

Where does this path lead?

12 years ago I started this blog. It was a difficult time in my life, in spite of having a lot of the ingredients available for contentment, emotional security, and joy. I was deeply unhappy, and mentally unwell. I was teetering on the edge of making very final, very poor decision about my life that I wouldn’t have been able to revoke. Things felt incredibly bleak and I was “trapped in the mire“. When I considered starting this blog, I didn’t have a clear idea of what I was seeking from it and I could not see my path ahead. I was wandering in darkness, metaphorically.

Sometimes our path is illuminated. Sometimes we walk our mile in darkness.

I sought encouragement from one of my partners at the time, asking her thoughts regarding beginning a blog. I had kept a pen & ink journal for many decades, I just wasn’t certain I had something to say that was worth “sharing with the world”. She had a blog, and I hoped that she would have words of encouragement and maybe some insights. No, she did not have that. Instead, I received a valuable lesson regarding the likelihood that any given person has any interests but their own in mind, and a reminder that regardless of the relationship, however close I may think someone is, there’s a real chance that they do not have my needs and interests in mind at all. She smirked at me with a certain smugness, and told me rather dismissively that it probably wasn’t worth it for me to write a blog, and that chances were that no one would ever read it anyway, and I probably wouldn’t be able to “keep it up” more than a couple days. I was… hurt. I felt “invisible” and misunderstood. I felt exactly what she intended; dismissed and diminished. Then the anger – did she even know me? (She did not.) It was a lesson worth learning, and although I am fortunate to be so well-loved by my Traveling Partner in my current relationship, I have also learned to take care of myself, and to be the one meeting my emotional needs, first and reliably, as much as I know how to do.

Wherever it leads, the path we choose in life isn’t going to walk itself.

That first blog post was barely a beginning – but it was a beginning. Since then, I’ve had so many beginnings, and so many words of encouragement from so many people dear to me. I’ve shared my voice: my thoughts, my fears, my ideas, my astonishment, my affection, and my anger – and so many emotions and experiences on this path. I’ve practiced practices, and shared those here. I’ve failed and started over, and shared that too. Once a year, I am reminded of her dismissive words so long ago, and I smile and sip my coffee; she definitely didn’t know me. lol (As it turned out, I didn’t know her either, but I soon learned all I needed to know.)

Where does this path lead?

Since I wrote that first post, I’ve written 3111 3112 blog posts, with an average of 163k words each year (about 750 words each time I post, sometimes more, sometimes less), posting an average of 258 days per year. Consistency has worked for me. I’ve found my way into the inboxes of a couple hundred long-time subscribers (thank you), and turned up in more than 5 thousand searches and every search engine I’d ever heard of, and a few that were new to me. More than 34k people in 123 different countries have found their way here (I’m not surprised that most of my readers are in the United States, Canada, and the UK). I’m not “famous” (and not seeking fame), and I wouldn’t consider this blog wildly popular, but I’m definitely glad I started writing here – and grateful that you’re reading. I hope my musings have been helpful in some way, and if not helpful, I hope you’ve at least been entertained for some little while. Thank you for reading.

I’ve still got to walk my own path.

I’ll also say this; you have value. You have something to say in the world, something to contribute. Don’t let someone else’s opinion hold you back. If you’re inspired to write, or sing, or dance, or sculpt, or film, or share who you are with the world in some way, begin! If it doesn’t work out easily – begin again! We become what we practice. What you have to say matters – maybe a lot. We all want to be heard. It’s easy to become discouraged when someone whose opinion matters to us doesn’t support our enthusiasm when we expect it – don’t let that hold you back. We’re each having our own experience, and they have reasons of their own for not giving you the support you want and need, and those may have nothing to do with you at all. Let that shit go. Walk your own path. Find the traveling companions on life’s journey who are actually “going your way” for a while, and walk with them. Sometimes the journey is difficult, but that doesn’t make it less worthy.

Each step along this path has been worthy in it’s own distinct way, although I don’t always see it at the time I take the step.

It’s been 12 years since I began this blog. It’s been worthwhile to write each day that I did so. It’s been helpful more than once to look back on my own thoughts and words, myself, and seek my own council from the woman in the mirror. It’s buoyed my spirits when I felt low to read your comments, and know that I am “being heard”, and to feel that something I’ve said may have helped light the path for some other traveler.

The path isn’t always easy, but it’s mine, and I’ll continue to walk it. It’s time to begin again. Again.

It’s time to see what’s around the next bend…