Archives for posts with tag: TBI

This morning I woke up feeling subtly different about “things”, generally. It wasn’t a huge obvious change of heart or significant shift in mindset, but there was definitely a hint of a sense of purpose that feels more focused. I like having a plan. A bit of self-reflection can go a long way toward “lighting the path ahead” – like wearing a headlamp on a dark trail. It’s no substitute for sunlight, but it’s better than wandering around in the dark.

I’m sipping my coffee and taking a look at my notes from yesterday. It’s not a detailed plan, just a handful of notes. Something more like a notion of what landmarks to look for on a memorized route than an actual map. For example, “read more bound books” isn’t very specific at all – but I also have an actual stack of books to read, and a list for more that I’d like to read once I’ve finished the stack I’ve got. Now that’s a plan. Well… no. That’s an intention, backed up by physical tools to get the thing done. My plan is to take advantage of quiet time in the evenings to read a bit, and on weekend mornings when my Traveling Partner is sleeping in (when I can’t quite start on housekeeping chores and such because I’d make too much noise), those are good times for reading. If I wake during the night, I’ve got another good opportunity to read a chapter or two, before returning to sleep. That’s a plan. Making it all come together is about the actual actions, and as I said, this morning I woke feeling focused and purposeful – and not just about reading more bound books, there’s more to my notes than that, more that I’d like to do, to live, and to change. So… there are definitely verbs involved. Life to live. Choices to make. We become what we practice, and I’ve plenty of practice ahead of me in the new year.

This morning I am feeling hopeful and encouraged about life, in spite of the chaos of the world. Yes, there’s a lot of distressing horrible shit going on in the world, but very little of that is happening in my little town, and none of it in my home or at my job, and I don’t mean to be selfish or self-centered about this, I’m just saying there’s more to life than the outrage machinery of the media, or the horrors of foreign wars. It’s okay to also embrace hope, and enjoy… joy. In fact, it’s probably healthy, and helpful. So, I make a point of it. I’m not ignoring the shit that needs changing in the world – I’m merely “filling the tank” so that I have the endurance for this race, and the resolve to speak truth to power, and the will to do what I can to make positive changes, even if that is only raising my voice without shame to say “this is wrong, we can do better”.

I breathe, exhale, and relax. I’m already thinking about distant trails, and afternoons camping in forested places. It’s winter now, but Spring will come again. I think about my Dear Friend for a moment. She “gave up” too soon, I’ve often thought. A great many things that we human beings do are more than a little “use it or lose it” in practice. You can love hiking, but if you don’t hike, it slowly becomes more difficult until it’s not easily done at all. This is true even of movement, generally. I don’t want to follow that path, myself, don’t want to “give up” too soon – so I keep walking. I keep camping. I keep working in my garden. (Well, that last is presently a bit aspirational; my untended garden full of weeds vexes me every time I walk past. I can do better. It’s on my list.) It’s easy to feel the fatigue and the pain and to want to just… rest. It’s a risky choice to rest too often for too long. It can too easily become a sedentary life of inactivity and malaise. I keep walking. I keep beginning again. One more step. One more task. Another project. Life is full of verbs.

I look at my calendar – I see a new physician next week. The week after that, an old friend (The Author) will visit – I’m excited about that. I haven’t seen him since… 2016? 2017? 2018. It’s been too long. The week after that I get my hearing aids. Busy January. The path ahead unfolds step by step. I look over my notes; it’s not about “ticking boxes”. It’s my life. I want to live it. I’m enjoying making time for more reading. I’m enjoying refreshing my Czech language skills. I’ll try out a new recipe tonight – probably. I skipped my walk this morning, and it serves as a powerful reminder that consistency is also a practice. (Every day that I don’t walk a trail is a day that reduces the likelihood of hitting that 1k trail mile target, I remind myself unnecessarily.)

I sigh quietly to myself, and stretch. I’m 61 as I sit here – 62 in June. How much time do I have left? What do I want to do with it? How do I live my best life for the longest amount of remaining time? What matters most? I don’t “feel old” – but I also don’t feel young. Today’s a pretty good day – I’m not in a lot of pain (call it a 3 on a 1-10 scale, which is honestly pretty good for me). There’s more yet to do – and doing it from a perspective of presence and mindful awareness changes the experience for the better. I smile and sip my coffee and push up my sleeves. It’s time to begin. Again.

I’m sipping my coffee, reflecting on the year behind me and thinking ahead to the year that has newly begun. “The journey is the destination.” So it’s said. So I hear. I accept that as a given, actually, after walking my path awhile. It’s the first “proper Monday” of the new year as I sit here at my desk, and I’ve a pen and a small notebook at hand. I make notes as I reflect on my life and my achievements, missed opportunities, and occasional disappointments of the year behind me. The notes are in two columns this time around; “stepping stones” and “pitfalls”. The stepping stones are things I can adopt or continue as practices that will tend to build the life I want to live, and help me become the woman I most want to be. The pitfalls are those things that may tend to hold me back or undermine my progress. Simple stuff.

I’ve given my year a “theme”, intended to represent a destination of sorts, on which I can anchor my intentions, goals, and priorities. This year my theme is “living a quality life”, which I am defining as living my best life without exhausting myself (or my resources).

My list of stepping stones is quite practical, and seems very achievable. It’s not even long, and is made up mostly of things I greatly enjoy. How handy is that? This is by intention; it’s easier to practice things that are either very enjoyable or which have an immediate “pay off”. There are only two wholly conceptual items, but they are important ideas for the year ahead: presence, and consistency. I see them as being necessary to the success of everything else on my list.

  • Learn a language (I’m already working on this one, by working on rebuilding and improving my Czech language skills, which are quite rusty)
  • Read more bound books (I’ve got a stack of them, and I’ve already finished one – but it’s not a race, and comprehension is a key part of the experience)
  • Paint more (this one is a bigger deal than two small words imply, and meets many needs)
  • Walk more/further (788 trail miles in 2024 – can I hit 1000 in 2025? Self-care? Meditation? Fitness? A bit of all that and more.)
  • More strength training (an important part of fitness and health as I age, and utterly necessary as I continue to lose weight and use semaglutide to manage my blood sugar.)
  • Food/diet – explore new recipes and skills (and write down the successes in the new family recipe binder my Traveling Partner gifted me this year! The semaglutide being what it is, food has become a very intentional thing, which seems healthier, too.)
  • Drink more water (the science says it really matters – and I definitely feel better when I do.)

My list of pitfalls is surprisingly short, but each item on that list is a potential chasm – a sinkhole more than a pothole on life’s journey. Self-reflection lets me get down to basics in a way that prevents me from petty self-criticism or negative rumination, and provides me with positive observations I can really work with to limit poor behavioral choices, and to develop better practices that are themselves in line with my “presence” and “consistency” stepping stones. Win!

  • Autopilot (no lie, I like things easy, and I rely on habit and routine to stay the course with some healthy practices, but leaving things on “autopilot” is the literal opposite of being present, and it comes with some troubling negative consequences. It’s worth learning to remain present, aware, and mindful even when being consistent with some routine practice – and potentially more joyful.)
  • Failed practices (being human, failure is a thing and there’s no dodging that, but healthy practices need… practice. Resuming a valued practice that has momentarily failed is a matter of beginning again. Worth the effort.)
  • The fallow garden (literal and metaphorical; 2024 was a terrible year for my garden. My Traveling Partner needed more from me than I truly had to give, and that wasn’t negotiable from my perspective – other things, particularly my garden, fell by the wayside and need new resolve and attention in the year to come.)
  • Malaise (it’s easy to let fatigue push me to failure through exhausted inaction, it’s hard to overcome, but good self-care and careful management of time and energy are worthy tools to prevent falling into this trap)
  • Resentment (another all-to-human trap, this one is avoided through connection, openness, skillful communication and boundary-setting, and reliably consistent self-care)
  • Sugar! (Just keeping it real, this shit is like poison for me.)

This stuff isn’t complicated. Just some notes taken as I reflect on my life and consider what I want out of it. What do I want? I want joy and contentment. I want improved wellness. I want improved intimacy and connection in my relationship(s). I want satisfaction in life and “order from chaos”. I want to live on principles of sufficiency, within my resources. As I said – it’s not complicated stuff, and mostly seems pretty doable. It’s not “fancy”, and as goals go these seem rather more “within reach” than grandly aspirational. I still have to really work at all of this, though. I’m quite human.

I make a point to “set myself up for success”. I’m not looking at the calendar telling myself I need to be a size 8 by next Thanksgiving, or that I’ll be fit to run a marathon by the 4th of July. I’m not making a long list of weighty tomes and demanding that I finish them all before the next new year. In fact, these mostly don’t adhere to “SMART” goals at all. (SMART goals are specific, measurable, achievable, relevant, and time-based, great for professional project management.) My life is not a corporate entity with a 5 year plan and key performance indicators that must be reached to qualify as a success. lol I’m not saying SMART goals are not worthwhile in a great many use-cases. It’s more that I’m a human being, living a life that I’d like to enjoy. My mortal time is finite and precious. So… these are my goals, approached my way. The success is defined by me, based on my values. This works for me. It’s enough.

Speaking of limited time… it’s already time to begin again. I make myself a calendar entry to remind me to look back on this moment of self-reflection later, and see how I did when this year ends. (I do find purposeful self-reflection very useful.)

…I wonder where this path leads…

Seems to be very effective so far… probably doesn’t hurt that the path is mine, and that I choose it myself.

Odd morning. Not a bad one at all, just a profound departure from the routine. For one thing, I overslept my artificial sunrise, and woke to the full brightness of the lights in the room, 10 minutes or so later than intended, and far later than typical. I woke in considerable pain, and very stiff, feeling like I’d been sleeping in the same strange position “all night”, with a stiff neck and back. Awkward. I moved slowly through my morning routine, almost leaving the house without putting my shoes on. I arrived at the trailhead emotionally prepared to walk, but feeling less than ideally eager to do so – the crick in my neck was still really super painful (and still is). Rough. I got a short walk in, then headed to the office to… work?

First I sipped coffee. Then I read my email. I watched a couple videos without really paying attention, then listened to some music. It’s been a weird morning. I pulled my attention back to work, and got some things done, now I’m distracted and a bit irritable because somewhere, someone is vacuuming something rather loudly, and the noise is carried through the building – a high pitched whine that I could seriously do without. What a peculiar morning.

I make another cup of coffee. The noise of the vacuuming finally stops. My neck still aches, but I’m not in a bad mood over it. I look at the picture of the Giftmas tree that I snapped this morning on my way to work for some reason – just pure childlike delight, I suppose. I grin to myself happily in spite of the pain in my neck. It’ll pass, eventually. I breathe, exhale, and relax. Only two days to the Winter Solstice. Only a week until Giftmas. Just 13 days to an entirely new year year. Wow. 2025 already here? How the hell did that happen “so fast”? Was I just distracted with the work of worrying and caregiving all year long? Damn. Life feels pretty good right now. This moment right here? Quite a nice one. I smile and take it all in, and sit with these positive hopeful feelings awhile. Soon enough, it’ll be time to begin again, practicing practices, and walking my path. For now though, this moment is enough.

Damn, yesterday ended up being a tough one. It wasn’t that anything particular went wrong, or that there were challenges I couldn’t face. Hell, I wasn’t exactly in a bad mood, even. The day went askew in a strangely emotional way when the office background music began to play “I’ll Be Home for Christmas” in the holiday music mix. Multiple times. Multiple versions. Various singers. No question, an American holiday classic, and it reliably comes up this time of year, sooner or later. For me, it’s simply the saddest and most poignant holiday song ever. It’s a war era (WW II) song, and I reliably hear it sung in the voices of those who will never come home to another holiday. It’s mournful (for me). It’s one holiday song I can’t sing along to; I choke up before I even get the first line sung, and the tears come. I missed an entire holiday season deployed to a war zone myself. We sang this song together, and others, around the diesel stove on winter evenings, fighting off our blues, hoping that we would indeed one day go home for those holidays once more. Some of us don’t ever come home from war. Some of us who do make it home are forever changed by experiences no civilian loved ones can share or truly understand. War is horrible stuff, and the price paid along the way in lives and limbs and souls is far too high. I thought of Gaza. I thought of Ukraine. I thought of Syria. Global conflict. Genocide. The horrors of war. We should maybe stop doing that shit – and I’ll probably always cry when I hear this song. It has real meaning for me. Soldiers kill. Soldiers die. I’ve lost people along the way. My nightmares persist.

…It “broke” my yesterday…

By the time I got home from work, I was pretty much a mess (emotionally) and feeling really low. My Traveling Partner did his best to lift my mood, and together with the Anxious Adventurer we sat around watching “fail videos” and little bits of comic this-n-that, and taking things lightly. I gotta say, my beloved partner’s “emotional slight of hand” was masterful, last night. I had tried to say something about being set off by “I’ll Be Home For Christmas”, and the Anxious Adventurer tried (in a well-intended way) to commiserate by sharing how annoying he finds that one particularly notable Mariah Carey holiday song. Understand me, please, I was not “annoyed”, I was grieving and feeling heart-broken over experiences few civilians share, and that I can’t seem to forget. Before I could flare up, irritable and angry over misperceptions of being “dismissed” or not understood seriously, my Traveling Partner put things on a comic footing in a wholesome loving understanding way, easily distracting me long enough for my unreasonable anger to be defused, unnoticed. No harm done. Fuck I love that man. He can make me laugh when I’m hurting. He can make me cry when I’ve grown jaded.

This morning the first words from my Traveling Partner were words of love and fondness and adoration. He tells me I am precious to him. He tells me he loves me. I feel it. I’m moved and my morning feels… merry. A new beginning. He understands, better than most people, where I’ve been and what I’ve been through. We’ve shared a few years together. We’ve had shared experiences, separately, that are not so commonplace for people generally. He “gets me”, mostly. More so than anyone else has. I feel loved.

I breathe, exhale, and relax. I’m in a different place this morning, although I am sitting in the same chair. I’m wrapped in love. It matters.

Be kind to the veterans in your life, and the survivors of war – you don’t have to know the details of what they’ve been through to care, and to be there as a friend. It matters that you care. It’s enough. Help each other begin again, when things get tough. Share the journey. Hell, just be kind, generally – we’re all going through some shit. It’s a very human experience.

I look at the clock. It’s clearly time to begin again. 14 days to a new year – already? Damn. The time passes so quickly…

I’m sipping my coffee in the quiet of the office, quite early. It was raining too hard to walk in the darkness. Honestly, it was raining too hard to walk. I would not have enjoyed it, and enjoying it is at least part of my intention, each morning, each walk. So I made the drive in to the office, early. I took time to meditate. I made coffee. I had some oatmeal. I walked the halls of the building, a bit, just to stretch my legs and be in motion. I feel stiff. It’s the arthritis, most likely. My head aches. Probably my neck. My tinnitus is loud. It is what it is, eh? A very human, very mortal, experience, and I guess I’m okay with it. There are not presently “other alternatives” from which I’d care to choose something else. I’ve got this, it’s okay, and it’s enough.

I sip my coffee thinking about a note on my calendar I spotted this morning. It reminds me that 12 years ago tomorrow was the day I found out the details of my (most serious) TBI. A head injury in the 1970s that wiped most of my memory, and set back my cognitive and intellectual (and emotional) progress considerably, but which my parents sort of… “kept from me”. I don’t remember the injury itself (hell, I don’t remember most of my life from before that injury, either, mostly just a strange assortment of third person stories told to me by other family members is what I’ve got in the place where my own memory should be, and damned few of those). I do remember having to go to speech therapy. I remember suddenly needing glasses, and being profoundly light sensitive and having a lot of headaches. I remember getting terrible grades in school, when I’d always had good grades “before”.

I found out about my adolescent TBI 12 years ago, because I was in such despair that as I approached 50 taking my own life seemed a rational “solution”, but I’d made myself a promise to give therapy one more try (it was the last item on my to-do list), and I was trying to get into a PTSD clinical trial for a new treatment. In considering my application for that trial, they turned up the microfiche records of an emergency room visit and hospital admission for my (serious) head injury. It was… news to me. The new information simultaneously explained a lot, and also brought a ton of new questions with it. Pieces fell into place – which was useful – but I suddenly also felt like I “didn’t know myself”, and that the entire context of my adolescence and early adult life was completely different than I’d understood it to be. My whole sense of “who I am” felt changed.

…The information did nothing to reduce my feeling of despair, and may have actually deepened it. It also very nearly cost me my relationship with my Traveling Partner; we were neither of us certain that I was even truly competent to be in the relationship we shared at all, with this information available to us. I was so close to giving up…

A short time later, I started this blog. A short time after that, I found a new therapist, and started a new healing journey with a completely different understanding of where I stood as I began it.

The note on my calendar asks me to consider it, and some questions – a note from past me to me here, now.

  1. Is the knowledge still important to me?
  2. What does it mean to me now?
  3. What does the knowledge add to, or take from, my every day experience?
  4. How do I make use of this knowledge in a productive way, today?
  5. Does knowing this about myself improve how I treat myself, or other people?

Deep. Worthy of reflection. I sip my coffee and consider the questions, as I consider that past moment when I found out. The tone of compassionate regret in the voice of the woman on the phone advising me I could not be accepted into their clinical trial for a PTSD treatment because of my history of head trauma. My feeling of surprise, of curiosity, of sorrow, of deepening despair. The call to my mother later to ask about it, and that painful moment when she hung up on me rather than discuss it. The hurt. None of that feels particularly difficult or visceral now, but it was so hard to live those moments 12 years ago. Now it’s just… information. Part of the background. Historical data. A step on a path.

This particular head injury wasn’t the only head trauma I sustained (it’s tempting to say something flippant about domestic violence being a kick in the head, but it’s not actually funny, at all), but it was new information 12 years ago, and it did lead me to consider things differently, and to learn more about what the potential consequences of such things really could be. It pushed me to consider different kinds of therapy, for problems other than PTSD. It let me put other injuries and traumatic events into a bigger picture that was more complete. It let me get therapy and rehabilitative support that I’d never been offered (or able to accept) before – and never known to ask for, or seek out. I wasn’t sure it would help to try to rehabilitate a head injury that was decades old…

(tl;dr – it totally did, a lot)

…It’s a strange path that we each walk, is it not? A journey with no map, no clear destination, sometimes a poor understanding of the starting point as we begin is… a very strange thing, indeed. The journey is the destination. I feel grateful for the many chances I’ve had (and taken) to begin again. I’m grateful for every sunrise I see, and every sunset I’m fortunate to enjoy at the end of a day. There’s no knowing how much time we get in this mortal life. I’m glad I didn’t end mine prematurely; it’s been a worthy journey so far. I hope to go much further. There’s so much left to do, to see, and to feel. So many more beginnings to undertake, and practices to practice, and also… I’ve got this list of shit to do, and the holidays ahead. lol It’s time. Again. Time to begin again. Time to walk my path. Time to practice the practices that have helped me along the way for the past 12 years.

It’s been so very worth it.