Archives for posts with tag: TBI

I woke to the overhead light above the bed shining in my eyes. My “alarm” went off without waking me, the lights reaching full brightness before I finally woke. This is rare for me. I shook off my grogginess, literally shaking my head, then shimmying my shoulders, trying to shake off the last remaining sleepiness. I dressed and headed for the door. My Traveling Partner was already awake, already drinking coffeee. We exchanged pleasant words, and I kissed him before leaving the house to head up the road to the more distant co-work space. It’ll be more suited to the meetings I’ve got today, and I’m grateful to have the option.

The morning is a mild one, damp with recent rain, and chilly but not cold. The sky is cloudy, with stars peaking through in places. No sign of the northern lights this morning, but I do look. Ordinary enough, and an unremarkable beginning to a new day.

I turn onto the highway, and find myself in thick fog. Visibility is obscured such that even the big pick-ups with fancy extra lights at full brightness are not revealed in the oncoming lane until they are about 50 feet away. Fairly hazardous driving conditions, and I make a point to drive safely, and at a reasonable speed for conditions. Somehow, I still manage to find myself ahead of all the traffic, out in the foggy darkness. The world looked surreal, unformed, and ready to be created by pure will and imagination. I entertained myself with fanciful notions of “making the world”, as I drove through the fog and the darkness.

…So much is obscured by the fog…

I get to the office, get set up and settled in, and the day begins. I sigh to myself. This feels comfortable. I like things routine and familiar. I like things easy. I don’t think these preferences are unusual, but I have also learned that although I am not alone in having these preferences, they are not at all “the only way”. Embracing change has done a lot to free me from the terror (no fooling), anxiety, and stress of enduring other people’s choices, preferences, and chosen paths. One example? I like to get moved into a place, figure out where things go, and then fucking leave them there… for years. I don’t have a personal need to rotate the displayed art, or move the furniture around based on the circumstances, or change how the kitchen is organized. If there’s no clear and obvious need to make a change in my surroundings… I don’t.

I like having a clear mental map of my living space. I like being able to navigate in the dark during the night without stubbing a toe, or banging a shin, on some object I didn’t expect to be where it was. I am adaptable enough – I can get used to such changes with relative ease, and I try not to bitch about changes that really don’t matter. I’m not actually particularly spontaneous or interested in purposefully making changes for the sake of novelty or “just because”… But some people are. Even some people dear to me. We’re each having our own experience. We’re each walking our own path. My household may not be a democracy – but it’s also not an autocracy or a dictatorship. It’s more a… merry band of chaotic anarchists trying to avoid violating personal boundaries and doing what we can to live together harmoniously, with occasional outbreaks of “my house/my way” occuring on occasions of frayed nerves or in stressful times. I mean… that’s my perspective on it. My Traveling Partner and the Anxious Adventurer likely have their own perspective, and surely have their own experience. We’re all doing our best, and trying not to be dicks to each other.

I don’t like change. Yep. I’m one of those people. On the other hand, I recognize that change is. Change doesn’t give a fuck about whether I like it or not. My Traveling Partner has learned to be kind and considerate and to discuss his ideas for switching things up in shared space before acting on them. (I’m pretty sure he’d happily rearrange all the furniture in the house some afternoons just to see how something might look, on a whim, multiple times in a given year, were it not that he truly cares about my mental health.) I’ve learned to be open to discussing how things could be different or better with some change, and to be open to trying things out. It’s been healthy for me, although sometimes stressful. When my beloved got hurt, and change was necessary to accommodate his needs, I made a point to remain open, to adapt, to keep my stress to myself long enough to allow change to have its way with me in the moment, and to accept that change was helpful and necessary. None of that is to say it was easy. There were verbs involved. I had to work at it. I sometimes cried privately over silly things that stressed me out and were of no real consequence. I also survived all of it quite easily. There was a lot to learn there for me. I’m still processing some of it, and now that my beloved is back on his feet, and beginning to make the kind of progress that puts him back to work in the shop, happily puttering and doing projects, and beginning to return to some kind of normal… there is more change. More opportunity to be open. More practicing required to manage my stress and anxiety.

It was this morning that I realized that some of my anxiety is due to my Traveling Partner’s increasingly rapid improvements, and the return of more and more of his capabilities. I’m relieved, yes, definitely. I’m grateful and encouraged. I’m delighted. I’m proud of him. I’m also having to deal with the anxiety that I experience in the face of specific kinds of change. He’s now able to reconsider some of the accommodations we’d made when he was most disabled… and to consider others that would be better for him now. He’s also able to just go ahead and do most of it himself, and some of my anxiety is part of letting go of more and more of the caregiving. I don’t get why that would cause me stress, but there it is; some of my anxiety is coming from this gradual resetting (again) of shared expectations of ability, capability, and limitations. New boundaries. New needs. Differences. I feel unsettled in spite of how much I wanted to see this day come.

Human primates are weird.

I breathe, exhale, and relax. It’s a new day. It’s a new beginning. We’re each having our own experience. We’re each walking our own path. Some people like to step on all the cracks on a sidewalk, other people hop over them, still others think any such foolishness is unnecessary and a waste of time. Humans being human. I smile to myself, grateful to see my beloved making progress. I set down some of my baggage, and feel lighter for having done so. It’s time to begin again.

I take a breath and exhale completely. So far, it’s a good morning. Honestly, not really all that different from most other mornings, as far as the circumstances and practical factual details go. Most mornings start out pretty well, generally, in my experience. It’s the little things that make the difference; moments of aggravation or inconvenience, some little vexing interaction, a stubbed toe, a forgotten item only noticed on the other end of a long drive, miscommunication, mismatched expectations, some little disapppointment – any of these can result in the feeling of a crappy morning. How bad is it really, though, on any given day? I sip my coffee and think about that awhile.

I haven’t looked at the news today. There’s hardly any point, it’ll probably fit neatly into one of a small number of unimpressive categories: sponsored content, straight up advertising, “official” missives from the government that amount to actual fucking gaslighting, repeats of yesterday’s news copied again and again and spit out as AI slop, and opinion articles sharing the opinions of people whose opinions have no value to me. There is no point in immersing myself in that nonsense at all. I’d be better off reading Proust, by far. lol (If you think your attention span has been impaired by device use over time, making it hard to watch a 2-hour movie, get yourself situated – In Search of Lost Time, by Marcel Proust is 7 g’damned volumes of poetic prose maunderings. It’s a commitment. Still better than doomscrolling the news.)

I sigh quietly and smile. I’ve started reading Proust several times. I’ve yet to get past the first volume before wandering off to do other things and live life, and coming back to it after so much time has passed that I’ve got to start over. LOL Still manages to be a more worthwhile endeavor than doomscrolling some feed clogged with AI slop, by far.

I sip my coffee contentedly, grateful to have coffee at all, with the world in the state it is in right now. I breathe, exhale, and relax, and let that shit go, again. Now is not the time, really, and when it comes to being stressed out over distant events and people that we have no influence over, and whose actions barely touch our lives, well, that’s as pointless as expecting to read Proust “cover to cover” in an afternoon. It’s not a practical expectation, nor an efficient use of time. lol Instead, I take time for gratitude, and little things. It is a pleasant way to prolong a lovely morning, and to set up my day in a positive way. It is a practice well-suited to beginnings. With Thanksgiving (in the US) coming up pretty soon, it’s a strong step forward to make time for gratitude. It can be difficult to begin being grateful, if I’m vexed or irritated in some moment, but worthwhile then too; sincere gratitude quickly crowds out irritability, frustration, and anger. Handy sometimes.

It is the little things I’m often most grateful for, and the modern conveniences that I may sometimes take for granted even though elsewhere in the world (rather shamefully) they may be luxuries. Like… healthy food to eat, clean drinking water, indoor plumbing, high speed internet connectivity, wifi, and even this laptop from which I work each day – these all seem like relatively practical “necessities” in modern life, but I promise you they truly are not. I sip my coffee and reflect on my good fortune and my privileged circumstances. I’m lucky, indeed. Even luckier to have the partnership I do, and the cozy little home we share. I grateful for the skills that are valued by employers who have roles suited to my skills and my nature, such that I’m able to work – and even to work remotely, from home or wherever, and often on my own terms. I’ve got a lot to be thankful for. I’m grateful that my Traveling Partner’s healing has come so far, and that he is able to work in his shop again. I’m grateful for the housekeeping and help with chores that I get from the Anxious Adventurer each week. I’m grateful that my partner and his son both give me the space I need when I need it most, too. That’s a pretty big deal for me.

I smile to myself, feeling “filled up” on gratitude and ready to begin a new day. I’m walking my own path, and the circumstances and choices are my own – and I’m fortunate to enjoy the validation and agency that I do (unfortunately unusual even in the US). This path has brought me so far in such a (relatively) short time, and there is further to go. I’m grateful for that, too, and I’m ready to begin again. 😀

In spite of taking some weekend time to properly relax and rest, and in spite of sleeping decently well lately, and in spite of having some help and rearranging things to reduce my day-to-day workload, I’m tired. Not the physical fatigue of effort exerted, instead it is the consuming, distracting, encroaching loss of will and focus that comes from “too much for too long” and I really need a break from… everything. It’s dumb. I feel as if I am literally fatigued by living life. I’ve got to do a better job of self-care, before I face legitimate burnout.

…Seems like there is always another chore to do, or another errand to run…

I start the morning already tired, already feeling “over it”, and the work day hasn’t even started. It’s raining at the trailhead, and I’m in pain before I even start my walk. I’m going to walk, anyway, it is a favorite self-care practice, and it is in the very nature of a practice to be practiced. I sigh to myself, feeling annoyed by everything but the solitude, and start down the path, one step at a time.

Eventually, I reach my halfway point. As I stop, the rain stops too. My rain poncho, which has been flapping against my legs as I walk, or wrapping annoyingly around me in the wind, becomes something to be grateful for; it’s keeping me dry, sitting here on this very wet bench. My sour mood is sweetened a bit by the moment of sincere gratitude. I sit with that feeling for s little while. It’s better than being cranky, by far.

The morning is still dark, and I persist in yearning for a weekend that is still days away. It’s time to plan the Thanksgiving dinner. Time to figure out the holidays generally. Life feels ludicrously busy. No wonder I’m tired. I rarely give my mind enough rest. I breathe, exhale, and relax. These quiet moments in the mornings are so necessary to my mental health overall – but they are not enough to prevent me from exhausting myself over time. I need to do a better job of setting boundaries, and pacing myself – and asking for (and accepting) help.

…It is proving to be quite difficult to adjust from full-time caregiving back to a more evenly balanced partnership, even though it’s timely, appropriate, and necessary…

I sit listening to the rain sprinkling the leaves that still cling to the trees, and spattering my poncho. I enjoy the delicate not quite random percussion. I breathe the rain-fresh autumn air. My tinnitus is crazy loud this morning, so I don’t hear much in the predawn quiet, besides the zing and buzz of tinnitus, the pattering of raindrops, and my breathing. As if to call me a liar (or to expand my perspective), an HVAC system somewhere nearby comes on, and adds its tones to the background noise. I chuckle to myself; it’s definitely not personal. It’s just noise.

Daybreak comes. It is a gray rainy morning under a soggy overcast sky. A deer startles me walking past. I didn’t see her approach. I twitch, startled. My movement startles her in turn, and she gives a little jump then runs off to the side, into the trees. As she disappears, I see that she was not alone, and wonder how long I sat quietly, surrounded by the herd (three does, four fawns, and a stately buck with branching antlers), before they began to walk on. Do they recognize me? (“Mama, that weird creature is back.” “Don’t get to close to that thing, you don’t know where it’s been.”) I wonder if they mind the rain?

I don’t much feel like getting on with the day, really, but there are chores, and errands, and work to be done, and all these damned practices aren’t going to practice themselves. I laugh at my eagerness to do nothing at all…or maybe to paint… either way, now is not that time. The weekend ahead is a long one (for me), for the Veterans Day holiday. I’m looking forward to that. Right now though, it’s time to begin again, and I get to my feet to head on down the path ahead, one foot ahead of the other, a step at a time. (That’s how progress is made, after all.)

I take a lot of pictures. I mean, since I got my first camera with a phone in it phone with a camera feature, I do. That was back in… 2010? I guess so, that sounds about right. The same year that I got together with my Traveling Partner. Wow. 15 years ago, I got my first smartphone with a camera. I still love “real photography”, but film and film processing were crazy expensive, and my tendency to take a lot of pictures to get one good shot made 35mm photography too costly to bother with, other than vacations and occasions. Now, I am out and about everywhere with a good quality camera in my hand. “A picture is worth a thousand words” is a common enough saying. It’s harder to describe a thing than to see it first hand and “get it” in a glance. Not only that, there are so many interesting and useful metaphors that can be found in an image, and so many interesting sights to see that I might want to look at longer or really study! So, yeah, I take a lot of pictures.

Autumn leaves on the lawn after a rainstorm.

…I am not “a photographer” in any but the most literal sense of “a person who takes photographs”, at least “photographer” is not part of my own sense of identity. I’m an artist, and writer, and even a poet… but my artistic endeavors are generally to do with paint or pastels, my writing is… right here… and my poetry… yet to be published because I am just that g’damned lazy. lol I truly do like things “easy” as much as possible, and I am prone to walking away from an unfinished project entirely if I am too frustrated by it. I’m not bragging – I consider my laziness a pretty noteworthy character flaw, frankly. But, and this is maybe more important, I also recognize how incredibly tired I often am, and how relatively unimportant some projects actually are, and I do try to put self-care ahead of “busy work” as much as possible. The woman in the mirror is generally doing her best to balance the demands of adult life with the needs of her “inner child” in a way that feels successful, reasonable, and productive. I sip my coffee and think about that for a few minutes. I am taking this time for me.

Halloween is over, and all the pumpkins go on clearance. Is there a metaphor here?

I breathe, exhale, and relax. Busy work day ahead. I got the rest I needed, but I am definitely yearning for more sleep. I chuckle to myself – humans are weird. I catch myself daydreaming about sleep, as I sip my morning coffee. A new morning, a new day, a new beginning – sleep is not even on the agenda for many hours to come.

Small town living, dressed up for the holidays ahead.

I let my mind wander to the holidays ahead. The stores are already full of Giftmas merchandise, and online retailers are already making their “Black Friday Deals” known. I’m not generally interested in Black Friday shopping because it’s typically limited to heavily advertised, marked-up goods that get marked down ahead of the holidays so the sales feel “special”, and the intent is to drive people to buy a lot of stuff they may not even actually need, but the price looks like a deal (and in difficult times, that’s quite a lot of incentive to buy). Mass-market trade goods of various sorts are not usually what I’m looking for, so the Black Friday hoopla is not “for me”. I’m okay with paying a reasonable price for the things I actually want or need, and shopping with intention and care in local shops.

…G’damn things are expensive right now, though, aren’t they? Fuuuuuuck…

I feel my anxiety level begin to rise, thinking about money. That’s not strange. I suspect most people are anxious over money matters these days. Furloughs, lay-offs, unpaid involuntary labor (um… isn’t that “slavery”?) – with the government shutdown lasting weeks, folks are not just feeling a pinch because there’s a gap in their pay – they are facing real hardships, because there’s no money for food, heat, rent, bills, medical care… you know, life. It’s hard to believe that something as fucking stupid as partisan loyalties to political parties is enough to pit Americans against each other, most especially when their fucking job is running the g’damned government. Assholes. (Sorry, this really vexes me, I guess. You, too?)

Happy holidays may be ahead; you have choices.

I sigh to myself. I love the winter holidays so much. I love the lavish sparkle of lights and ornaments, and the festive packages under the tree. It’s not so much about the money, though it does come at a cost each year, it’s purely about the delight. My Traveling Partner and I have already discussed setting clear limits and scaling way back this year, due to the high cost of … everything. That doesn’t subtract from the joy or the warmth or the delight, just means finding the shining center of that holiday spirit in something other than purchased goods. Easy enough. I’ve got recipes – books and books of them – and the basic ingredients for holidays baked goods are available, and mostly sort of affordable, with wise decision-making. It’s certainly not a good year for careless spending. (Maybe it never is?)

I think about my disappointment when I saw that the assorted old-fashioned glass Shiny Brite ornaments are all marked “made in China”. I remember when that was not the case. I remember buying beautiful glass ornaments that were made in Germany, in the Czech Republic, and in Pennsylvania. I sigh to myself. Fortunately, I’ve got so many ornaments already that there simply is no reason to buy more, other than to commemorate the year, and my beloved Traveling Partner has been making those for us each year for a few years now. 😀 Nothing lost, and my moment of disappointment is built on nostalgia, not any kind of legitimate hardship or change that affects me in some practical way. I let it go.

I look over other pictures of recent things and places, and smile. It’s nice to hold on to a memory in the form of a photograph. It feels so real.

Places and memories, captured in photographs.

I breathe, exhale, and relax. I sip my coffee and think my thoughts. I prepare for the day ahead. It’s time to begin again.

The work day ended gently, and it’s been productive. which surprises me. The morning passed pretty quickly, but the minutes became prolonged and tedious as the afternoon began, and by 13:00 I was definitely aware that I’m ill. The headache that seemed to have diminished during the night is very much back. My sinuses feel weirdly dry and irritated, in spite of my drippy nose. I finally noticed that I had forgotten to remove my shoes after running a brief errand… then still managed to forget about them entirely until some minutes ago. I ache all over, although the chills and sweats seem to be over with. I’m “tired” – but not the healthy tiredness of the end of a long day at hard work, nor the anticipated tiredness of bedtime. Just feeling generally rundown. The malaise of illness seems so utterly mundane. But…

…I’m okay for nearly all values of “okay”, presently, in spite of being sick. It’s just a headcold. Pretty commonplace, and very ordinary. Hell, it’s that time of year, anyway, eh? I sigh, and let that go. It’s not really worth bitching about, and I’m snug at home and cared for…

My Traveling Partner asks me, every so often, if I’m feeling better. I mean… mostly? Sort of. Some? A little bit? As with the way I often answer questions, the answer isn’t helpful at all, and fails to communicate anything worth knowing. It’s a challenge I deal with often, and I know it frustrates people. What frustrates me is how often people who know I have brain damage either completely forget that there are some very specific things that result from that (which affect communication in some cases) that I can’t reliably do much about, or behave as though it is as simple as doing things differently. Practicing doing some particular thing in some very particular way can be helpful over time, but (most especially) when my executive function and communication impairments are most severe (like, when I’m sick, or deeply fatigued), there’s often damned little I can actually do about it in any practical way. I just have to deal with the experience of struggling to communicate, when it happens. Frustrating all around.

I take a break with my Traveling Partner. He’s working on a project in the shop. He’s having his own experience with frustration and shares details with me. He offers to show me something he’s working on, or something to do with the thing frustrating him. I’m aware that I’m too sick to be sharp enough to appreciate and value the experience, putting us both at risk of still more frustration – so I decline in favor of more self-care, and maybe laying down for awhile. This fucking headache is kicking my ass, and has now partnered with my “everyday headache” to bring real oomph to my headache experience. I sigh to myself, alone in this comfortable space. My headache is not eased by whatever the fuck that low frequency whine outside is. A leaf-blower? A distant train engine idling on a siding? One of those vacuum or carpet cleaning trucks over at the apartment complex on the other side of the creek? It could be any number of things. One thing it definitely is, is incredibly irritating and I’ve got a fucking headache. I snarl quietly to myself, then remind myself it isn’t personal, at all. It’s just noise.

…This headache, though…

I breathe, exhale, and relax. I’m not at risk of death. I’m not headed to the ER. I’m not immobilized. I’ve got a headcold. Some random virus going around the community at the start of flu season caught up to me. I could have rolled d20 and predicted the outcome, most likely. Annoyingly mundane and not at all interesting. (Sorry.)

I sit quietly for a moment, appreciating the other details. The good stuff. I pull my focus back to this moment, this relationship, this little house situated between town and farm. There’s a lot to be grateful for. I’m grateful that the Anxious Adventurer is willing to make dinner, and that I had ingredients on hand to make that relatively easy on him. I’m grateful to have the means to quickly go to the pharmacy for cold remedies, and the freedom to do so at my convenience, even on a work day. I’m grateful that I can afford to do so, without worrying about trade-offs. I’m grateful for the good quality well-roasted sustainably sourced fair trade coffee beans from which I made my morning coffee. I’m grateful to have the opportunity to make that choice. I’m grateful to have become the kind of person who cares about the other human beings in the supply chain for the things I want or need in life, and the sort who makes choices that are informed by that caring nature. I’m grateful to recognize my relative privilege in life, in spite of the tough times I’ve endured along the way. I’m grateful for the computer that sits here on my desk; my Traveling Partner built it with my needs in mind, and it suits me so well! I’m grateful to be so well-loved by such a very interesting and delightful human being, one that I love so well. I’m grateful that my problems in life aren’t worse than they are – and that I am aware of my good fortune.

…Even when I’m sick, a few minutes of sincere gratitude is a powerful mood-lifter…

When I’m sick, my emotions are often very much “at the surface” of my awareness. This puts me at risk of losing my temper, or weeping over nonsense. In addition to those risks, though, it also puts me in touch with the softer subtler emotions, the little joys, the childlike delight over something that sparkles, the pure radiant happiness of a hug. It’s a weird time. I’m tired, but energized and restless. I’m volatile, but capable of beautiful moments of great joy, love, and delight. I’m kind of stupid, but barely matters because I’m also feeling accepted and safe and cared-for. Being human is peculiarly complicated. Nuanced. I try not to take it personally. If things go sideways, I know I’m loved anyway. I smile to myself and finish my tea. The work day is behind me. I can begin again tomorrow – for now, I’ll just take care of myself.