Archives for category: more than a little bit of bitching

It’s chilly this morning.

I woke up quite early, ahead of my alarm. My Traveling Partner was already awake (woke me inadvertently), and in pain. We hung out for a little while before I left for work and for my morning walk. I almost left without my laptop, and did entirely overlook grabbing a fleece, sweater, or hoodie. Did I mention it’s chilly this morning?

I hate seeing my partner in pain. He hates being in the pain he’s in, and even more than that, he hates the limits pain places on his activities and cognitive abilities. There’s so little either of us can do about it. We wait together for his surgery, angry about a medical system that places so many limitations on doctors and patients and the medical care available to people in need. It’s inhumane and ineffective, inefficient and frankly terrible. We endure. Surgery soon, then the painful and annoying recovery journey can begin.

…We travel together…

Sometimes shit is hard. Sometimes less so. Life is complicated. I feel fortunate to have my Traveling Partner on life’s messy and painful journey. We’re in this together.

The morning chill caught me by surprise and I hustled down the path briskly to warm myself. There’s a mist clinging to the low places along the marsh. I walk on with my thoughts.

Misty morning.

This mortal life has limitations imposed by circumstances and events or enterprises beyond our individual control. We often place additional, unnecessary, limits on what we do, don’t do, can or can’t do, or have, or be, or experience. It’s a bit strange, isn’t it? I walk thinking about self-imposed limits. I remember a much younger me, talking myself out of trying pastels, when I was first “developing my voice” as an artist. Why? I judged myself (in advance of practical experience) to be “too messy” for pastels. I never gave them a chance, in spite of being fascinated by the luminous purity of the pigments. Life would later place other limits on my artistic endeavors, but truly? I got there first with my own. (Why?! Dunno. It’s very human, I suppose.)

I walked along thinking about the journey that life has taken me on. The journey I share with my partner. The limitations of the paths we’re on, individually and together. Sometimes it’s not at all clear where the path leads, or why we face the limits we do.

… Next weekend, some solo time on the coast, with my pastels, my tinnitus, and my thoughts. I don’t know what will come of it, and I find myself wondering if I am being a dick to go, with my Traveling Partner suffering as he is. The Anxious Adventurer will be home, and providing caregiving… But is that even reasonable to ask, really? I’m suddenly overcome with self doubt, even though I know how much I need the downtime.

… It’s an endurance race, not a sprint…

… Self-care really matters…

… I turn back up the trail to head to the car. It’s time to begin again, again… already…

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.

Well… Not literally “no words”…cuz here I am, eh? Words. I’ve got a fair few of these fuckers (words) laying about. May as well use them…but… This morning I’ve nothing much to say, really.

… I’m tired, and there’s this damned headache and this ringing in my ears…

“Anhedonia”. Now there’s a fucking word. Anhedonia is more or less simply a loss of delight, of interest, of the will to engage with pleasant and interesting things. It’s not “boredom”, and it most definitely is a “mental health issue”. Sometimes it’s simply that circumstances grind me down until I just fucking give up on a “just don’t give a shit” level that transcends even irritation, leaving me without the will to resist or try to overcome it at all. Here I am this morning.

… I’m just that tired, cognitively and emotionally…

Caregiving is hard work, and I’m learning that a great deal of the work involved is in the form of emotional labor. I have profound respect for people who are caregiving a loved one for years. I’ve only been doing it for months. It’s fucking hard, and it’s draining. 8 days until my coastal getaway, and I definitely need it, but… I’ll also need to really get away from the emotional labor of caregiving to get the rest I need so badly. Most of the brief opportunities for downtime since my Traveling Partner’s injury haven’t given me the rest I really needed, because I failed to leave the emotional labor behind, and returned home to still more. I didn’t understand that I needed to put that down, and didn’t understand what a large portion of the caregiving it really is. (I’m pretty new to taking on a caregiving role, and have never had a child.) I failed myself in this way, and by extension ended up also failing my Traveling Partner – in two ways.

1. I failed my Traveling Partner by not taking care of myself sufficiently well to ensure I am up to the challenges and requirements of caregiving over time. It’s an endurance race, not a sprint.

2. I failed my Traveling Partner by not setting clear boundaries with regard to emotional labor generally, or communicating clearly when the burden is too great for my limited human capacity.

I can see how these are both also failures of self-care, too. No wonder I’m fucking exhausted.

This morning I got to the trailhead and just sat in my car weeping quietly for some unmeasured amount of time. I really didn’t feel like walking, at all. Anhedonia is a difficult challenge to overcome, but eventually I got out of the car and trudged down the trail irritably. The rising sun only annoyed me and my sour mood followed me down the trail. I spitefully didn’t stop to sit and write in my preferred location, choosing instead to annoy myself by sitting uncomfortably elsewhere. (Good grief, really?! Fucking stupid.)

I’m sitting. Writing. Feeling irritable because my back aches, my head aches, my tinnitus is loud, and my Traveling Partner is injured. From the perspective of this moment it feels very much that there is “no end in sight”, and despair threatens to rear its head. I sigh deeply, and just let the unwanted tears fall.

This shit is hard.

…It could all be so much worse…

This shit is hard.

I breathe, exhale, and relax. Eventually, I even stop crying, and even mostly stop feeling overcome by anhedonia. I clearly need to get some downtime, some relief, a real break… Which makes me feel like an asshole; my Traveling Partner gets no break from being injured and in pain and needing my help. Fuck.

… Did I mention that this shit is hard?

I’m okay for most values of okay. My Traveling Partner is, too. He’s got surgery scheduled. This is, thankfully, a temporary situation, and we’ve got the additional help of the Anxious Adventurer now (which is greatly appreciated and very much needed). I make a point to reset my perspective, my expectations, and my awareness. It’s not helpful to become mired in pain – particularly someone else’s, and especially when I’ve also got to manage my own. It’s hard, sure, but it truly could be worse, and in some respects it isn’t even as bad as it sometimes feels. We’re fortunate: I’m employed, we have health insurance, we’ve got help, and this isn’t a terminal health issue.

If I were better at this caregiving stuff, I might be more easily able to lift my Traveling Partner from his pain-focused funk, when he gets stuck there. I sit with that thought for a few minutes. I think about the many years of therapy and skilled mental health care I’ve been fortunate to receive. I think about mindfulness practices, meditation, and CBT.

… I remind myself that I can’t do the verbs for anyone else, and that we’ve each got to walk our own hard mile…

I breathe, exhale, and relax. Sometimes the best thing I can do to care for my partner is to care for myself. I think about the day ahead, and the things I’d like to get done. I think about my partner, and what he may need today, and consider how best to be there for him.

It’s a new day. The sun is warm on my back. I hear voices coming down the trail. It’s time to begin again…

Beautiful sunrise. Good morning to get a walk in. I’ve had the trail to myself, and watched the sunrise as I walked. Lovely.

Every day, every journey, begins somewhere.

The weather forecast indicates there is an extreme heat warning for the latter portion of the week, possibly record-breaking. I checked with my Traveling Partner about whether there were steps we might need to take to stay comfortable and ensure our AC functions properly. I’ll make a point to stock additional beverages and cold foods, so we won’t be required to cook using the oven or stovetop for long periods of time. I’ll drink more water.

…”Drink more water” is excellent hot weather advice, but there’s something quite limited about even the very best to bits of advice; it only works when actually taken. There are verbs involved. If we receive great advice but choose to disregard it, instead of applying it, our failures and misadventures thereby are of our own making. No one to blame but the person in the mirror. We for sure can’t claim we didn’t have guidance or that the advice was ineffective. lol

Why do people get great advice and then choose not to follow it? I don’t have an answer, I’m just wondering. I mean, actually, I can come up with several possible answers, but I don’t at all know which are likely to be most correct. Maybe we don’t trust the advice to be accurate? Maybe we don’t find the source to be credible? Maybe we think we’re a special case and the norms don’t apply to us? Maybe… maybe mostly… we’re just not really listening in the first place? That seems likely… people are pretty crappy at listening to someone else talking.

… Maybe sometimes there’s too much new information to process…

Are you listening to the good advice you’re given? Do you use it?

My neck aches ferociously this morning. I think I “slept on it wrong”. Ouch. The pain colors my experience unpleasantly. When the time comes, I take my morning medication, grateful to be able to add prescription pain relief, grateful to have it available, hopeful that it will bring some relief. I stopped on the trail several times trying to “work the kinks out” by practicing the release and self-massage techniques my chiropractor taught me. These are often quite helpful, this morning they are less so. I still make the effort. The headache that rises from the pain in my neck spreads like flames across the left side of my face. Occipital neuralgia. Fuuuuuuck. “Just kill me now”, I snarl quietly to myself, though I don’t mean it literally. I just hurt. I stretch. I breathe. I keep walking. This too will pass.

I reach my halfway point and keep walking, lost in my thoughts and preoccupied by my pain. This trail is a loop. Though I often walk out and back, a shorter distance, the full distance of the loop isn’t unreasonably far. I laugh at myself; looks like I’m going the distance this morning. I have time. Anyway, I’d be shit to be around this morning, and my Traveling Partner was already up when I left. No reason to rush back with my bitchy cross mood intact. I sigh as I walk.

… I should probably begin again. That’s pretty good advice…

The air was still fresh from the drenching rain during the night when I stepped out of the car at the trailhead. Drops falling from the trees occasionally spattered my face and hoodie, which I sensibly wore thinking it might be a cool morning. I breathed deeply, filling my lungs with the rain-fresh air. I walked briskly, alone with my thoughts, my arthritis pain, and my headache. Only one of these things mattered much to me, the rest I did my best to ignore as inconsequential.

Yesterday’s appointments, first with my therapist, and later with my physician, were an interesting study in perspective. I showed up to both prepared to discuss stress and anxiety and how best to manage these lingering mental health concerns, only to be firmly told by both that my levels of stress and anxiety, at least under the current circumstances, seem quite reasonable and even appropriate. Well… Shit. I’m not nearly as well-practiced at managing reasonable-not-a-sign-of-mental-illness stress and anxiety. lol In each conversation it’s agreed that similar techniques and continued practice are helpful. No change to medications or recommendations. Just… Keep managing. Keep up self-care efforts properly. Keep breathing and keep cutting myself some fucking slack, eh? It’s still a lot to handle, but apparently that’s pretty fucking reasonable under the circumstances. It was peculiarly helpful to hear that.

…It doesn’t make things any easier…but it does take a bit of pressure off…

I’ve been hard on myself a lot lately. Sometimes my self-talk is pretty negative, even though I know how cruel and unhelpful that is. I’ve carried some shame and disappointment that I am not a more skilled caregiver for my Traveling Partner, when he needs so much from me while he’s been injured. I’ve labored under the additional burden of my disappointment with myself over not having more energy, more capacity to labor on, more ability to get everything done, every day. I’ve been angry with myself just for not being younger, more able, and for needing rest and care, myself.

…My Traveling Partner, on the other hand, has been kind and appreciative, and generally far more impressed and grateful for my help every day, so this shit is definitely me…

I breathe and keep walking. My Traveling Partner pings me, letting me know he’s awake. I stop on the trail and exchange a few messages before continuing. Time to head back to the car and start the work day. There’s a lot to do, and it sounds like my partner’s son will arrive later, sometime this evening.

Fuck, I’m so tired… A good night’s sleep doesn’t restore my energy these days and every day seems to start with a longer list of shit that needs attention… And I keep putting myself last on my list! Not helpful. lol No wonder I’ve been stressed and anxious. I breathe, exhale, relax… And get ready to begin again.

This is all pretty real stuff. Life. Sometimes it’s a bit much, but it’s better than the current alternatives. I breathe, exhale, relax, and walk on. I’ll get where I am going, eventually. It’s a journey. Incremental progress is still progress. One step forward is still forward momentum. Making a point of being kind to myself doesn’t take any time or cost any money. Worth doing and I’m sure it’ll be helpful stress-management-wise.

… This too will pass…

… It’s time to begin again.