Archives for category: Sleepless Nights
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This One’s Difficult

August 13, 2024 //
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I’m sitting at the trailhead. I meant to be walking, but as I set off, my right leg buckled at the knee. I didn’t fall; I had my cane in my hand and steadied myself… but for the moment, I don’t trust my legs. Life, too, feels suddenly unsteady and unpredictable. I mean, I guess that makes sense; it is.

My thoughts careen through my consciousness. I didn’t sleep well last night. My Traveling Partner needed care during the night and woke me. I was groggy and stupid and not very helpful. I didn’t understand what was needed. Hell, I barely understood where I was in the first place. When my worthless efforts were abruptly dismissed, I attempted to return to sleep… It was nightmares, pain, and wakefulness from there. Less than ideal for the day ahead, which I took off from work to care for my Traveling Partner as he recovers from surgery. My consciousness is scattered, fragmented, and chaotic. I’m tired and fragile.

… I’m also doing my best…

I remind myself that this is only a moment. Temporary. It will pass, and change is. Nonetheless I feel low, beat down, and sorrowful. I’m tired and triggered, reminded of a time long ago and a very different earlier relationship, from which I am grateful to have escaped alive. This isn’t that, it’s just a challenging time and sometimes it’s hard to do the needful sufficiently well. I feel grateful for so many other things – I focus on the gratitude, the positives, and the kind, gracious and appreciative words my partner has shared over recent months. I breathe, exhale, and relax.

… Some things in life just aren’t about me at all…

My tinnitus rings loudly in my ears. My head aches. I observe the discomfort and let my mind move on. It doesn’t alleviate my pain to do so, it just prevents me from making my pain my whole world, for a little while, sometimes. My results vary.

I breathe, exhale, and relax. I sit quietly wondering what the future may hold, and where this path leads. I consider and reconsider what I really want in life, and contemplate whether the path ahead of me leads to that outcome at all… There are things I’d like to change. There are things I regret saying or doing (and not saying or not doing). It’s a very human journey.

… I think quietly about my Traveling Partner on this journey…

My partner pings me, frustrated, tired, and hurting. He can’t sleep and struggles to find any way to be comfortable after surgery. He’s pretty hard to live with right now (understandable), and has insisted that both the Anxious Adventurer and I leave so he can rest. We reluctantly do. What else can we do?

… Fucking hell, caregiving is hard…

I sit quietly, recalling my Traveling Partner before his injury, before his pain became unmanageable. I think about him – and us – in the “beginning”. I wonder how to go about restoring that beautiful vibe, and wonder if it will slowly return because it’s who we are and how we love, or if life has changed us “too much” over time and circumstances? I remind myself, too, that my mood and thinking are colored by recent events and present fatigue and stress. I breathe and let go.

I make room for gratitude, and think about things that have gone well. Doing this is often enough to lift me out of a funk, maybe it will today?

…In any case, I definitely need to begin again.

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Categories Allegories, anger, Anxiety, breathe, forgiveness, Free Will, Frustration, gratitude, health, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, Summer, The Art of Being, The Big 5

And Now a Few Words From Another Perspective

August 1, 2024 //
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Well, shit. Every now and then, just when I start feeling like maybe I’m “well” and whole, and not beat down by bullshit and baggage, and perhaps just maybe there’s something like a “happily ever after” potentially lurking around the next bend in the path… I have a day like today. It’s been a wild ride…

I spilled my Traveling Partner’s coffee early in the morning, mere minutes before we needed to leave for an appointment we could not risk being late for. It didn’t take long to clean up, but it disrupted my calm rather a lot.

The drive into the city got going pretty nicely, except for some reason my Traveling Partner’s phone wasn’t pairing, and once it did, it seemed all his personalized settings for the truck were gone. Annoying. Negative emotions carry a certain unfortunate contagion, too. It was less than ideal.

Traffic was routine, but the route the GPS selected, while familiar, was the most likely to be congested, and it was pretty annoying to drive past a turn that could have taken me down pleasant country roads. That’s on me though, eh? I know GPS is not “AI” – no intelligence, no understanding, no context to the decision-making. I could have chosen differently, but decided against it. My reasoning was poor, and I paid for that.

We got to the appointment in plenty of time, but in the process of getting the truck parked…well…I… Let me start by pointing out that a) I never measured the height of the truck with the tire on the roof rack, and also b) the height wasn’t noted anywhere obvious as I pulled in. Yep. I entered the parking garage, and as I turned around the bend to the next level up…I scraped the roof rack, tire and all, right off the top of the truck. 😦 Well, shit. Fuck.

…Not my best moment, not my best day…

…It could have been ever so much worse, and both the truck and I are entirely fine. The roof rack? Not so much.

My Traveling Partner got to his appointment. We managed to also get safely home, mostly in pretty good spirits. I went on with the day, dropping pill containers (shit!), knocking over books, bottles, objects… it’s just been that sort of day. Also… it’s been hot. Like seriously fucking hot, and I am grateful that the day was such that I got to spend most of it indoors, in A/C. Like I said, could have been so much worse.

Yeah. Fucking rough. Some days are. My pain is pretty well managed. Things have calmed down. It’s evening. The house is comfortable, and quiet. I’m fine, for most values of fine… and it’s enough. Tomorrow? Yeah, of course, obviously – I’ll begin again. (Again.)

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Categories Allegories, anger, Anxiety, Brain Injury, breathe, forgiveness, Free Will, Frustration, gratitude, health, Healthy Living, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, Summer, The Art of Being

An Ending, A Beginning

July 31, 2024 //
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I woke from a restless interrupted sleep, head aching. I slept on something wrong, and I woke with mild vertigo, which is taking its sweet damned time passing. I woke with my guts in a knot, and drenched in a sticky sweat. I drag myself through something like a morning routine, eager to get to the part where I’ve made coffee, and get to drink it. It doesn’t really help (or hasn’t yet), but it feels comforting and familiar.

I got through the noisy bit of the night by sleeping with noise-canceling headphones on for a while. I woke, again, some hours later and the noisy bathroom fan in an adjacent room had finally been silenced. I thought I’d return to a better, deeper sleep, but instead the remainder of my sleep was filled with restless worried dreams that I no longer remember.

…This cup of coffee is pretty good…

I look around the room and sigh. I have to pack, and it’s time to go home. I’m less than eager to do the packing part, but I’m definitely ready to return home. I miss my Traveling Partner, and I am eager to be in his arms and in his good company again, although we really weren’t ever entirely out of touch. That’s a level of cruelty I don’t aspire to, even when I most need time alone. It’s nice that my partner misses me when I am away, and likes to stay in touch. I feel loved.

I gaze out the open balcony door into the peculiar gray sky. It’s almost sunrise, but it’s another one that I won’t actually see, obscured by dense clouds. I think about getting a walk in, but this morning I just want to drink my coffee, write, watch the sky, pack, and return home. (I’ll probably still get a walk in, after this first cup of coffee…) I think about how pleasant a shower will feel, and wonder whether to do that before or after I pack? Like other thoughts, this one surfaces, I consider it without really engaging with it more directly, and let it pass by like one of the gulls beyond the balcony gliding over the emptied bay. I spend a moment contemplating the bay’s changing views, mud flats at low tide, filled by the incoming tide and looking very much like a proper bay once the tide has filled it again. I could watch this view for days – and do, every time I come here. How many times now? A dozen? More? A reliably satisfying getaway, whether I go to rest and read, or to paint, or to walk the beach and take pictures.

I breathe, exhale, and relax. I’ve enjoyed this quiet self-care time. I feel rested and ready to resume caregiving… and a good thing, too! It’s already time to begin again.

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Categories Allegories, breathe, Free Will, gratitude, health, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, pain, Perspective, Practices, Relationships, Sleepless Nights, Summer, The Art of Being

Expectations Go So Wrong

July 31, 2024 //
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It’s late. Or, it’s early. I suppose it’s a matter of perspective – and expectations. I expected to be asleep right now. From my perspective, it’s quite late. Too early to be awake, by far. It’s just a bit after midnight. I could be sleeping right now… I expected to be sleeping right now… I am not sleeping.

The guest in the room next door (or perhaps directly above me, it’s hard to tell) has left the fan on in their bathroom for what now seems an unreasonable amount of very noisy time. It surprises me that anyone could be sleeping through this ridiculously noisy fan. I’m certainly not. I’m quite wide awake.

I breathe, exhale, relax… and try to “get used to” the noise so I can maybe go back to sleep… (Am I even actually still tired, after “sleeping in” yesterday, and multiple delightful naps today?) I’m not adding annoyance or any particular amount of stress to being wakeful over the noise of a bathroom fan that is not mine, so… I could potentially go back to sleep at any point, once I’ve managed to get past being wakened by this noise. By itself, the noise could be super aggravating (once upon a time definitely would have been). For now, it’s just… well, I’m awake. That’s it. lol I’m awake, and I expected to be asleep.

I sip on a bottle of icy cold water. It’s refreshing. Eventually, I’ll go back to sleep. A couple more hours of sleep, and I’ll wake, shower, have coffee, have breakfast, and get packing to return home. I miss my Traveling Partner. I’m eager to be home. I feel rested and recharged, and were it not for this rather annoyingly timed bit of human misadventure, my away time has been quite nearly perfect (from my perspective). Fucking hell, I do wish someone would turn that fan off, though. LOL I keep sipping on this bottle of water; it is both too late and too early for more coffee.

I stepped outside on the balcony for some air, and it was delightful. I could see the stars – so many stars – and even the Milky Way. Wow. I stood there quietly, breathing in the cool ocean air, listening to the waves.

…Why is there always some asshole leaving a bathroom fan on in a hotel room??…

I sigh, and let go of my expectations. I breathe, exhale, and relax. I’m here. Now. Yeah, there’s a fan going, and that’s not ideal, but it will, eventually, pass. Probably. Maybe. Or I’ll get used to it vibrating noisily in the background. I laugh to myself, and put on my noise canceling headphones for a while. I could probably sleep in these, they’re pretty comfortable…

…I’ll try this sleep thing again…

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Categories Allegories, Brain Injury, breathe, forgiveness, Frustration, gratitude, Metaphors, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Practices, Sleepless Nights, Summer, The Art of Being

Pain and Practices

July 22, 2024 //
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My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.

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Categories breathe, forgiveness, Free Will, Frustration, health, Love, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Practices, Relationships, Sleepless Nights, solo hiking, Summer, The Art of Being, The Big 5
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