Archives for posts with tag: get help

My tinnitus is super loud this morning. Distracting. Annoying. I breathe, exhale, and relax, as I absentmindedly rub my left trapezius muscle, up near my neck… Or is it my sternocleidomastoid? That general area. Feels like it is carved of stone and most of the time also a prominent source of day-to-day pain. I see one of my care providers today. He’s very skilled and I am hopeful that I’ll have a few hours or a couple days of real relief before my fucked up neck recreates the painful circumstances all over again. I’ve grown resigned to accepting that it is simply the byproduct of an old neck injury, combined with progressing degenerative disk disease (C3-C4 mostly and cervical arthritis from C5 on up to C1). It sucks and it’s painful, but, and this is important and real, it could be worse.

I walked down the trail listening to the crunch of boots on pea gravel, and I focused on the external sounds around me; it helps push the tinnitus into the background some. I got to a pleasant spot along the river to sit for a moment. The world is quiet and from here I can’t hear the traffic on the nearby highway at all. Whether this is an atmospheric phenomenon, a lack of traffic, or hearing loss is not clear to me, and maybe not even relevant to this pleasant moment. There’s a strip of color, not quite orange, on the eastern horizon, peeking between hillsides, silhouetting the trees on the far bank where the river bends. I have the trail and the park to myself this morning, alone with my thoughts (and my tinnitus, and my pain). Well… mostly…

I sit quietly as a rather large raccoon waddles past. She gives me a look and hesitates a moment before proceeding. I sit still and watch her discreetly from my peripheral vision hoping not to discourage her and choking back a laugh remembering the desk sign my Traveling Partner made for me (“most likely to be eaten by something she shouldn’t be petting”). As the raccoon continues past she’s followed by 2…3…4…5 chubby fuzzy youngsters, one of whom appears eager to get a closer look at me. Mom looks back and lifts herself on her back legs and makes sounds that clearly manage to communicate “Damn it, leave that human alone, you have no idea where that thing has been! Come on, we don’t have time for this.” It’s super hard not to giggle but I really don’t want to alarm Mama Raccoon – she’s pretty big, and I’m definitely not up for defending myself from an angry or frightened raccoon; they are not to be trifled with.

She walks on with her youngsters following, heading down the river bank. I walk on, too, heading back up the trail toward the parking lot. It’s daybreak. Good time to begin again.

I’m sipping my coffee in the quiet of the office, quite early. It was raining too hard to walk in the darkness. Honestly, it was raining too hard to walk. I would not have enjoyed it, and enjoying it is at least part of my intention, each morning, each walk. So I made the drive in to the office, early. I took time to meditate. I made coffee. I had some oatmeal. I walked the halls of the building, a bit, just to stretch my legs and be in motion. I feel stiff. It’s the arthritis, most likely. My head aches. Probably my neck. My tinnitus is loud. It is what it is, eh? A very human, very mortal, experience, and I guess I’m okay with it. There are not presently “other alternatives” from which I’d care to choose something else. I’ve got this, it’s okay, and it’s enough.

I sip my coffee thinking about a note on my calendar I spotted this morning. It reminds me that 12 years ago tomorrow was the day I found out the details of my (most serious) TBI. A head injury in the 1970s that wiped most of my memory, and set back my cognitive and intellectual (and emotional) progress considerably, but which my parents sort of… “kept from me”. I don’t remember the injury itself (hell, I don’t remember most of my life from before that injury, either, mostly just a strange assortment of third person stories told to me by other family members is what I’ve got in the place where my own memory should be, and damned few of those). I do remember having to go to speech therapy. I remember suddenly needing glasses, and being profoundly light sensitive and having a lot of headaches. I remember getting terrible grades in school, when I’d always had good grades “before”.

I found out about my adolescent TBI 12 years ago, because I was in such despair that as I approached 50 taking my own life seemed a rational “solution”, but I’d made myself a promise to give therapy one more try (it was the last item on my to-do list), and I was trying to get into a PTSD clinical trial for a new treatment. In considering my application for that trial, they turned up the microfiche records of an emergency room visit and hospital admission for my (serious) head injury. It was… news to me. The new information simultaneously explained a lot, and also brought a ton of new questions with it. Pieces fell into place – which was useful – but I suddenly also felt like I “didn’t know myself”, and that the entire context of my adolescence and early adult life was completely different than I’d understood it to be. My whole sense of “who I am” felt changed.

…The information did nothing to reduce my feeling of despair, and may have actually deepened it. It also very nearly cost me my relationship with my Traveling Partner; we were neither of us certain that I was even truly competent to be in the relationship we shared at all, with this information available to us. I was so close to giving up…

A short time later, I started this blog. A short time after that, I found a new therapist, and started a new healing journey with a completely different understanding of where I stood as I began it.

The note on my calendar asks me to consider it, and some questions – a note from past me to me here, now.

  1. Is the knowledge still important to me?
  2. What does it mean to me now?
  3. What does the knowledge add to, or take from, my every day experience?
  4. How do I make use of this knowledge in a productive way, today?
  5. Does knowing this about myself improve how I treat myself, or other people?

Deep. Worthy of reflection. I sip my coffee and consider the questions, as I consider that past moment when I found out. The tone of compassionate regret in the voice of the woman on the phone advising me I could not be accepted into their clinical trial for a PTSD treatment because of my history of head trauma. My feeling of surprise, of curiosity, of sorrow, of deepening despair. The call to my mother later to ask about it, and that painful moment when she hung up on me rather than discuss it. The hurt. None of that feels particularly difficult or visceral now, but it was so hard to live those moments 12 years ago. Now it’s just… information. Part of the background. Historical data. A step on a path.

This particular head injury wasn’t the only head trauma I sustained (it’s tempting to say something flippant about domestic violence being a kick in the head, but it’s not actually funny, at all), but it was new information 12 years ago, and it did lead me to consider things differently, and to learn more about what the potential consequences of such things really could be. It pushed me to consider different kinds of therapy, for problems other than PTSD. It let me put other injuries and traumatic events into a bigger picture that was more complete. It let me get therapy and rehabilitative support that I’d never been offered (or able to accept) before – and never known to ask for, or seek out. I wasn’t sure it would help to try to rehabilitate a head injury that was decades old…

(tl;dr – it totally did, a lot)

…It’s a strange path that we each walk, is it not? A journey with no map, no clear destination, sometimes a poor understanding of the starting point as we begin is… a very strange thing, indeed. The journey is the destination. I feel grateful for the many chances I’ve had (and taken) to begin again. I’m grateful for every sunrise I see, and every sunset I’m fortunate to enjoy at the end of a day. There’s no knowing how much time we get in this mortal life. I’m glad I didn’t end mine prematurely; it’s been a worthy journey so far. I hope to go much further. There’s so much left to do, to see, and to feel. So many more beginnings to undertake, and practices to practice, and also… I’ve got this list of shit to do, and the holidays ahead. lol It’s time. Again. Time to begin again. Time to walk my path. Time to practice the practices that have helped me along the way for the past 12 years.

It’s been so very worth it.

It’s raining at the trailhead. Still dark, too. I decide to give it a few minutes. Maybe the rain will stop? I’m here earlier than I planned, anyway. My wakeful Traveling Partner woke me early with his wakefulness, and rather than keep him awake once I was awake, I dressed and made coffee and slipped away into the predawn drizzle.

… Now I wait…

We chat online for a few minutes, before my beloved returns to bed, and hopefully to sleep. The morning is quiet and calm. The rain is misty and not enough to prevent me from walking. The morning is a pleasantly mild one, the temperature a relatively comfortable 42°F. I had dressed for freezing weather; I’m definitely comfortable. The misty droplets covering the windshield glitter like scattered gems as passing headlights sweep over them from the nearby highway. Pretty.

… Nice morning…

The holiday shopping is done. Too late to change any of that now, although there are still packages arriving and gifts to wrap. There are still holiday sweets to buy for stockings and groceries to buy for holiday meals. So much yet be to do, but things also feel somehow “done”. Ready. There’s a plan in place and that’s enough. I feel content and mostly comfortable. The only discomfort I do have is purely physical and there’s nothing much to do about that besides taking care of myself properly. I double-check my shopping list to confirm I’d added capsaicin patches; they help some and I’m nearly out.

This is all such mundane stuff, isn’t it? It’s also enough. More than enough maybe; I feel fortunate. I do work at it – at the contentment and the quiet joy. I work at embracing sufficiency (chasing excess has only ever hurt me). I work at achieving and maintaining perspective. I work at non-attachment and at not taking shit personally. There are verbs involved, and practice, and my results vary – but over time I find myself quietly calm, contented, and joyful so much more often, I might even say these feelings have become characteristic of my day-to-day experience. That’s a pretty profound change from chaos, misery, and madness. There are few manic highs, these days. Abysmal dark lows are also very very rare. Mostly, things are pleasantly… ordinary. I don’t need the excitement of a rollercoaster ride in my emotional life. lol

… I sit quietly sipping my coffee, not quite waiting for the sun, just waiting…

My results will definitely vary. This is a very human experience. Moments are moments, and some of them are difficult. I’m okay. I’m here, now. I breathe, exhale, and relax. Practicing the practices. Beginning again.

Yesterday was… difficult. My Traveling Partner was in pain after PT the previous day and feeling really uncomfortable and cross with the world. Understandable, and honestly, I generally wouldn’t mention it in any specific way, but the results affected me quite directly. The peace of my morning was quickly wrecked, and before midday I was seriously wondering if I’m even cut out for being in a relationship or enduring cohabitation at all. It was that kind of day.

… Caregiving is hard…

I love (adore) my Traveling Partner with an abiding passion that can be described pretty accurately as “ridiculous”. It makes no damned sense that I love him so. Hard days are hard. Bad moods feel…bad. Hurt feelings hurt. Love isn’t some magical effortless fairytale condition that leaps from eye contact to happily ever after. There are verbs involved. Effort. Real work. Personal growth over time. Compromises and changes. Fucking hell, it’s an unreasonable bit of work involved in deepening and maintaining intimacy, especially under trying circumstances. G’damn it’s worth it though, and most of the time that’s obvious.

I breathe, exhale, and relax. The day ended pretty well, though my beloved was still cross and miserable. We talked over the things that mattered. We sorted some stuff out. We called it a night in a good place with each other, in spite of his continued pain and discomfort. It’s a new day, today. A new chance to begin again. Love is worth the effort we make.

I stare into the foggy autumn darkness. It’s awhile yet until daybreak, but the work day begins pretty soon. I lace up my boots and add gloves and a scarf. It’s chilly this morning. I’ve got my cane and my headlamp. I finish my coffee. It’s time to begin again. Again.

I get it. Stress. Pain. Feeling mistreated. Angry with circumstances or people. Overwhelmed by too much to do and too few hours to get shit done. Life can be damned difficult and emotions can be complicated and hard to manage. Still though, do your best to be the person you most want to be, and just fucking try not to be an asshole. I’m saying it to you, sure, and I am also saying it to me.

Everyone has their challenges. Some people struggle with pain while they struggle with everything else going on. Some people struggle to make ends meet or to provide for their family. Some people struggle with existential angst or trauma. There’s a long list of human struggles. Do your day-to-day best to be kind, agreeable, pleasant, considerate, respectful, encouraging and open with people. Yes, you. Yes, in spite of whatever you are going through.

There are people who care about you and want to help. Treat them with gratitude and appreciation, and avoid being a complete shithead even though you are in pain or frustrated or angry. Do your best to avoid destroying the good relationships you have. I’m not saying it’s easy. I’m definitely not accusing you of “doing it on purpose” – hell, I don’t know you, and maybe you are doing your best. Apologize when you hurt someone. It won’t repair the damage you’ve done, but it will at least signal your good intentions.

Remember to assume positive intent. You may be dealing with a ton of complicated shit, a lot of pain, or chaos, and it may be completely understandable that you’re having a tough time. The people around you have their own challenges and pain, themselves. Try to be mindful that they are also doing their very human best. Given a chance, they might even understand what you’re going through. Their results will vary – so will yours. Avoid burning bridges you don’t have the time or ability to repair.

… Try to remember that someone else’s experience may not be anything at all about you (quite a lot of stuff just isn’t about you at all)…

Practice being the person you most want to be. Do your best to live your values with stoic discipline and dedication – because these define you – and when you fail (and you will), begin again. Don’t take other people’s bullshit personally, and do your best not to inflict your worst on the world. Your words and actions have real consequences, even when you “didn’t mean to…”.

… You already know all this. So do I. Do your best. Keep practicing. When you fail, begin again.

… And, oh, yeah…if you think none of this applies to you…? (Maybe you think your words, actions, and behavior are entirely reasonable and justified?) You’re probably exactly who needs to hear this the most. Don’t be an asshole – you can be someone better than that. You’re making choices. Choose wisely.

The journey is the destination.