Archives for posts with tag: TBI

Sometimes, regardless of your attempted attention to detail, your willingness to do more, better, your drive to improve and grow, or the hours of work and study you’ve put into being your best self, it won’t be enough (for someone, or for some circumstance). That’s frustrating (maddening), and real. It’s a harsh truth in life that while we’re walking our own hard mile one step at a time, someone else is also walking theirs, and conflict, confusion, or miscommunication can make just about any endeavor contentious and unpleasant. Humans being human. Some people are truly doing their best. Some people maybe not so much. It’s not really obvious which are which. There’s likely always going to be someone around who just doesn’t think you’re doing enough. There will be someone who thinks you’re doing it “wrong” (often simply because you’re not doing things the way they would). There may even be travelers along the way who earnestly hope to see you fail, though it will be rare for them to say so explicitly.

…We’re each having our own experience…

Points of view differ. Individual perspectives on shared events are sometimes at odds with each other. Personal values may not be shared. People are quite individual, and often we don’t even share the same understanding of the basic meanings of the most common words we use. Recollections of even the most recent events may be quite different among individuals who shared the experience. None of this makes communication easier, quite the contrary.

It can be helpful sometimes, I find, to be very open to the possibility that I’m incorrect. Mistaken. Flat out wrong. It’s helpful to really listen to what someone else is saying about their experience or perspective. This isn’t always easy; I may disagree. I may find my own thinking at odds with theirs. I may recall events quite differently. We may have different values, or place importance on different details. Being open enough to really listen and humble enough to accept that I could be wrong can make a lot of difference and create an emotionally safe environment to sort things out more easily. It takes practice (a lot), and I can’t honestly say I’m “good at it” (yet). I keep practicing.

All of this sounds good “on paper”, but it’s not “easy”, and it really does take a lot of practice, commitment, willingness to fail (and to begin again), and a steadfast refusal to take someone else’s emotions personally, and to refuse to internalize their frustration, anger, or criticism. Listen, yes. Hear them out, yes. Understand their point of view, yes. Be open and compassionate, yes. And refuse to allow their frustration, anger, or criticism to dictate “who you are”, nonetheless. Be the person you most want to be. Make room for them to be who they are, also. Becoming the best version of yourself, the person you most want to be, may bring you into conflict with people who are walking a very different path – their own path. Whatever you choose to do about that, it matters that you still live your values, take care of yourself, and treat people with kindness, compassion, and consideration.

…You’re probably going to fail, a lot…

Keep practicing. Savor the wins, however small. Learn from your mistakes, and avoid allowing them to bring you to despair. This shit isn’t easy, but it’s worthwhile. Change takes time. Time, practice, effort, commitment – and beginning again. Often. Sometimes it’s especially hard, like a barefooted walk on blistered feet down a gravel path. Sometimes it’s easy, like a firm level trail through a sun-dappled forest on a mild summer day. You’ll choose – sometimes poorly. You’ll face anger, frustration, disappointment, and grief. It’s not personal, just part of the human experience. Learn, grow, and walk on.

I sit sipping my coffee, re-reading these words. This one’s for me, from… me. I need the encouragement today, tomorrow, maybe always. It helps to reflect on what works, and to remind myself that it is a complicated journey. It is useful to consider missteps, and to learn and grow, and try again.

Keep walking.

Yesterday my sister messaged me to let me know a favorite aunt had died after a lingering illness. (COVID is still taking lives, people, be safe, be considerate, be vaccinated.) It seems like I’m now in a place in life when the losses come more frequently. We are mortal creatures. I will always remember my Aunt fondly. She opened her home to me more than once when I needed a place to heal. She was peculiar, and special, and interesting, and the first adult who would sit and talk with me for hours about all manner of things, into the wee hours of the morning. Some of who I am developed sitting by her kitchen table in Baltimore on summer evenings, talking about life, love, music, reality… I’ll miss her.

I breathe, exhale, and relax. I don’t know what’s around the next bend on this path. I don’t know how far this path goes, or where it may ultimately lead. I don’t know how long this mortal life will last, or how many moments of joy I can wring from it along the way, nor how many tears I may need to dry from my cheeks. It’s a very human journey.

…It’s time to begin again…

New day, new beginning.

I’m drinking my coffee and catching up on work. It feels an eternity since I’ve logged into work tools, but it’s been more or less a long weekend, just busy and about as far removed from my professional work as it could possibly be. Feels strange, and oddly comforting to be back to work.

My headache woke with me, and it is ferocious this morning. My sleep was interrupted at scheduled intervals through the night to provide my Traveling Partner with care as he recovers from his surgery. The surgery went well. So far the recovery is going well, too, it seems. It’s complicated by volatile emotions on all sides, and the quantity of potentially mind-altering prescription drugs involved doesn’t make that “easier”, at all. Whether tempers or tears, when feelings flare up and escalate, I keep finding my way (unsteadily, awkwardly, doggedly) back to some sort of calm – which feels like progress. I don’t think I could have managed this as well as I am ten years ago. I bet I could manage it better another 10 years from now. Progress. Incremental change over time. We become what we practice.

…I’ll say that one again, because it’s super super important; we become what we practice. If your default is tears, tantrums, and drama, I promise you’ll get very skilled at those behaviors, and those will be the increasingly common outcomes. If you practice calm, you become calm. It’s that simple. (Which is not to say that it is “easy” – it’s isn’t easy at all, and it requires a lot of practice, and persistence.) For me, the hardest part is breaking old habitual behaviors and reactions. I’ve become pretty hard to provoke in the context of my professional life, which is great. I’m often still quite vulnerable to provocation in the context of intimate relationships. (That’s probably pretty commonplace.) Lately, all of it is further complicated by this fucking headache that follows me everywhere.

I breathe, exhale, and relax. I’ve taken my meds, had a big glass of water, and I’ve got this excellent cup of coffee. No walk today, which feels weird, but I need to be here at specific times to care for my Traveling Partner. I’m tired – it’s something to be mindful of, because it holds the risk of volatility as my fatigue deepens later in the day. Maybe I’ll get a walk in later? I notice that my thoughts are less than ideally well organized. I’m distracted by my headache, and by my awareness that my partner is in the other room; I’m alert for the sound of his voice expressing a need or a want, or some opportunity to provide him with support. Competing priorities on top of this headache and my fatigue…I could be a mess right now, but I think I’m mostly okay, which is nice to be able to count on, today.

Don’t forget to slow down and enjoy the journey.

Sometimes it feels like the journey from hell to some better place is endless…but…so much of this human experience is relative. I think back on other experiences, other days, other moments. I reflect on the Parable of the Mire. It wasn’t all that long ago that I was truly mired, myself. It has been a long journey – a worthy journey. A “heroes journey”, in a sense. I mean…I am having my own experience, and this is my journey, my tale, my adventure. I have another sip of coffee and think another thought. I reflect on the “wrong notes” and recent missteps, and what I could have done differently. I rehearse “better” (more desirable) behavior in my head, playing out dialogue that went wrong with different words, different reactions, “practicing” different “scripts” for better results more closely aligned with my values, hoping to do a better job of being the woman I most want to be “next time” (there’s always a next time). I remind myself that it isn’t all about me, and that I can’t control the behavior or reactions of others. I think about the importance of non-attachment, and the risk of becoming “fused” with someone else’s emotional experience, and how best to avoid that risk.

…We become what we practice…

…Fuck, I hope the typing doesn’t prevent my partner getting the rest he needs (it’s a pretty quiet keyboard, though)…

I take a moment to think about recent successes. Small things like my Traveling Partner thanking me for good caregiving matter a lot, and they add up over time. I think, too, about progress toward personal goals, like losing some weight (20lbs or so now), and clearing my task list. I give myself some time to sit with successes, joys, and pleasant recollections. (A useful practice for building a more positive general experience and attitude toward life.)

I put my focus back on work. It’s time to begin again.

Well, shit. Every now and then, just when I start feeling like maybe I’m “well” and whole, and not beat down by bullshit and baggage, and perhaps just maybe there’s something like a “happily ever after” potentially lurking around the next bend in the path… I have a day like today. It’s been a wild ride…

I spilled my Traveling Partner’s coffee early in the morning, mere minutes before we needed to leave for an appointment we could not risk being late for. It didn’t take long to clean up, but it disrupted my calm rather a lot.

The drive into the city got going pretty nicely, except for some reason my Traveling Partner’s phone wasn’t pairing, and once it did, it seemed all his personalized settings for the truck were gone. Annoying. Negative emotions carry a certain unfortunate contagion, too. It was less than ideal.

Traffic was routine, but the route the GPS selected, while familiar, was the most likely to be congested, and it was pretty annoying to drive past a turn that could have taken me down pleasant country roads. That’s on me though, eh? I know GPS is not “AI” – no intelligence, no understanding, no context to the decision-making. I could have chosen differently, but decided against it. My reasoning was poor, and I paid for that.

We got to the appointment in plenty of time, but in the process of getting the truck parked…well…I… Let me start by pointing out that a) I never measured the height of the truck with the tire on the roof rack, and also b) the height wasn’t noted anywhere obvious as I pulled in. Yep. I entered the parking garage, and as I turned around the bend to the next level up…I scraped the roof rack, tire and all, right off the top of the truck. 😦 Well, shit. Fuck.

…Not my best moment, not my best day…

…It could have been ever so much worse, and both the truck and I are entirely fine. The roof rack? Not so much.

My Traveling Partner got to his appointment. We managed to also get safely home, mostly in pretty good spirits. I went on with the day, dropping pill containers (shit!), knocking over books, bottles, objects… it’s just been that sort of day. Also… it’s been hot. Like seriously fucking hot, and I am grateful that the day was such that I got to spend most of it indoors, in A/C. Like I said, could have been so much worse.

Yeah. Fucking rough. Some days are. My pain is pretty well managed. Things have calmed down. It’s evening. The house is comfortable, and quiet. I’m fine, for most values of fine… and it’s enough. Tomorrow? Yeah, of course, obviously – I’ll begin again. (Again.)

It’s late. Or, it’s early. I suppose it’s a matter of perspective – and expectations. I expected to be asleep right now. From my perspective, it’s quite late. Too early to be awake, by far. It’s just a bit after midnight. I could be sleeping right now… I expected to be sleeping right now… I am not sleeping.

The guest in the room next door (or perhaps directly above me, it’s hard to tell) has left the fan on in their bathroom for what now seems an unreasonable amount of very noisy time. It surprises me that anyone could be sleeping through this ridiculously noisy fan. I’m certainly not. I’m quite wide awake.

I breathe, exhale, relax… and try to “get used to” the noise so I can maybe go back to sleep… (Am I even actually still tired, after “sleeping in” yesterday, and multiple delightful naps today?) I’m not adding annoyance or any particular amount of stress to being wakeful over the noise of a bathroom fan that is not mine, so… I could potentially go back to sleep at any point, once I’ve managed to get past being wakened by this noise. By itself, the noise could be super aggravating (once upon a time definitely would have been). For now, it’s just… well, I’m awake. That’s it. lol I’m awake, and I expected to be asleep.

I sip on a bottle of icy cold water. It’s refreshing. Eventually, I’ll go back to sleep. A couple more hours of sleep, and I’ll wake, shower, have coffee, have breakfast, and get packing to return home. I miss my Traveling Partner. I’m eager to be home. I feel rested and recharged, and were it not for this rather annoyingly timed bit of human misadventure, my away time has been quite nearly perfect (from my perspective). Fucking hell, I do wish someone would turn that fan off, though. LOL I keep sipping on this bottle of water; it is both too late and too early for more coffee.

I stepped outside on the balcony for some air, and it was delightful. I could see the stars – so many stars – and even the Milky Way. Wow. I stood there quietly, breathing in the cool ocean air, listening to the waves.

…Why is there always some asshole leaving a bathroom fan on in a hotel room??…

I sigh, and let go of my expectations. I breathe, exhale, and relax. I’m here. Now. Yeah, there’s a fan going, and that’s not ideal, but it will, eventually, pass. Probably. Maybe. Or I’ll get used to it vibrating noisily in the background. I laugh to myself, and put on my noise canceling headphones for a while. I could probably sleep in these, they’re pretty comfortable…

…I’ll try this sleep thing again…

I’m sitting with my first coffee of the morning. I came prepared, and although it is instant, it’s a good quality instant, and a good cup of coffee. It’s hot, clean tasting on my tongue, and satisfying.

A rainy coastal Monday.

My first sight upon waking, was the rainy day beyond the balcony of my “ocean view” hotel room (which lacks any hint of ocean view, by virtue of being on the first floor, but offers a lovely view of Siletz Bay). The second thing I noticed was a couple of young… sea otters? Seals? They were relaxing on this side of the bay, quite nearby. I went to grab my camera to get a shot of this not-all-that-common sight (usually they’re on the other side of the bay, too far away to get a good picture with my lens). Returning to the balcony, I see that a man walking his dog has also spotted them. Does he stay well back to let them be? Oh, hell no, he’s American; he quickly moves forward to take his fucking dog closer. Jackass. The sea otters (I think, based on how they moved) slipped back into the water as he closed in on them with his (thankfully leashed) dog. I got a couple of truly pointless shots of the larger pod they are clearly part of, as individuals bobbed above the water, and the pod moved on down the bay. Still – what a fun sight. I take a moment to enjoy that, and I forget about the man and his dog.

I woke early enough that the beach was empty (on a rainy morning), and slept in (for real) late enough to wake well past daybreak, dawn, or even sunrise (although there is no sunrise to see on this gray rainy morning, only a homogenous gray sky). I feel rested. I leave the balcony door wide open to let in the sea breeze and the cool fresh air. I sip my coffee, contentedly. I’m here with my pastels, and I can paint as easily from reference photos and from my imagination, as I can from the actual view, so the rain is nothing to me, and doesn’t change my plans, or upset me in any way. It was lovely to sleep so deeply, and to wake so rested. If that were all I got from this trip away, it would be very much worth it.

I breathe, exhale, and relax. My back aches ferociously. The damp climate of a cool rainy summer day on the coast is hard on my arthritis pain, and for a moment I am “feeling my years”, until I think to recall that I’ve had this arthritis since I was 24 or 25 years old – so for almost 40 years – and it’s nothing at all to do with age or aging. I shrug it off as an annoyance of no consequence, and get on with things anyway. It still amounts to an irritating distraction, but little more than that, so far. My tinnitus is not quite silenced by the wind and the waves – it’s a combination of sounds that sort of “drowns it out” when I’m on the coast, close enough to hear the ocean. It’s a nice break from the aggravation of my tinnitus at full volume. I take a minute to enjoy it with my full attention.

It’s not yet late enough for the hotel breakfast, but I rarely find their strange grab-and-go assorted things for “breakfast” to be satisfying, nourishing, or even particularly “breakfast-y”. Just a cheap convenience, and this trip I am more prepared to take care of this fragile vessel. I’ve got salad greens, blueberries, cashews, and hard-boiled eggs in the room fridge, and I make a simple breakfast salad. My stomach isn’t yet particularly interested in food (it’s a bit soon after waking), but it’ll be lovely to have a “real breakfast” once I’m ready to eat something.

These are such mundane details of such an ordinary life – why bother writing any of this down? I dunno, because maybe someone, somewhere, reading this hasn’t sorted it all out yet? Hasn’t “solved for X” in some of life’s math, perhaps, and simply reflecting on the things that work – or don’t – and what matters most (at least now, to me) may be helpful perspective in some way? In 2013, for example, I don’t think it would have occurred to me how much my own choices in life – simple practical decision-making – were responsible for the vast majority of my personal misery. I don’t know that simply saying “you’re doing this to yourself” would have gotten through to me, but perhaps someone simply reflecting on the things that are working well – small, sustainable, simple choices – might have guided me (or at least made me think)? Besides… I just write. It’s a thing I do. (I’m grateful that you are reading. Thank you.) It’s also “for me”; I often go back and read my writing from other days, other circumstances, with new eyes, or seeking new inspiration, or a reminder that “this too will pass”, or that I’ve “been here before”. (One of the lasting consequences of my TBI is simply that I have some memory-related challenges, and some oddities about how I perceive (or don’t) novelty – sometimes I just don’t recognize that I’ve “been through this before”. Helps to have a reminder.)

…I sit awhile, reflecting on how far this journey has taken me over the past 11 years, from being deeply negative, traumatized, mired in despair, and looking for “an exit strategy”, to where I am now – mostly pretty positive, generally contented, often joyful, enjoying life and love (and even enjoying work), and feeling a deep sense of… joie de vivre. It’s lovely. Each sunrise is worth seeing. Each day has something new to offer. Not only is the journey the actual destination…it’s a journey I find worth taking. That’s a long way to come from those dark days standing on the precipice, ready to decide whether to make a permanent end to my pain. I’m grateful that I made the appointment with the therapist who helped me find my way to a better path. (If you’re in despair, please reach out to someone for help. You matter.)

I stand, stretch, and begin to dress. I haven’t yet gone for a walk on the beach (or taken any walk at all yet, this morning). Seems a pleasant morning for it. The rain has stopped, the sand is firm, and although the tide is coming in, it won’t be a very high tide – plenty of beach to walk. The morning feels oddly “out of order”, with coffee and breakfast ahead of my walk. I chuckle to myself. This is the sort of healthy variation from a routine that serves to keep my brain flexible and young. I go with it. No complaints. Rigidity of thinking does not serve a human primate well. I breathe in the fresh ocean air deeply, and exhale, imaging blowing my pain out with my exhaled breath. I’m not sure it’s an effective strategy, but doing so amuses me and diminishes the power my pain has over my mind. I stand in the open doorway, watching the gulls and crows down on the beach. Somewhere nearby I hear a woodpecker. Now dressed, the day feels that it has more truly begun. I nibble at my salad, and finish my first coffee. There’s more hot water ready, so making a second cup is an obvious next step; there’s no hurry. This is my life. This is my time. This is my experience. Every step on this path is my “next step” – mine to choose, mine to walk, mine to reflect upon at the end of the day. Although our lives are intertwined and we are interdependent social creatures, we’re also each having our own experience. It matters to be and to choose – and to experience this life that I have chosen. I breathe, exhale, and relax.

…The day stretches ahead of me, unplanned, unconstrained, not yet filled with my choices and the verbs required by those choices. I am my own cartographer. The journey is the destination. It’s time to begin again.