I overlooked writing at all yesterday. I mean, to be clear, I “wrote” quite a lot, as a function of the work I do for a paycheck. A lot. What I failed to do was any other sort of writing: introspective, meditative, creative, nothing of that sort. I arrived home from work wholly exhausted, brain fatigued, dragging myself along on pure willpower alone, and the awareness that if I didn’t do this or that task, no one else would either.
… I managed to hold enough in reserve to make dinner…
I’m still tired this morning. My last several nights have been restless and my sleep interrupted and full of nightmares and stressful dreams of failure, futility, and pointlessly chasing unachievable goals. Hell, Elon-fucking-Musk even made an appearance in one of my unpleasant dreams and he was just as big a clueless out-of-touch douchebag in my dream as he is reported to be in life. Bleh. G’damn I hope I sleep better tonight.
I’m in a ferocious amount of pain and filled with resentment at insurers who don’t want to cover long-term services that maintain better quality of life and reduce pain, but without “fixing” anything. My occipital neuralgia flared up some days ago after quite a long time of only dealing with it occasionally; it’s clear that the additional care I had been receiving was actually reducing my pain. “Fuckers,” I snarl quietly, but I don’t know who I am most angry with – my insurance company or the rich assholes who built this stupid entirely profit-focused system. This is a fucking dumb way to approach medicine.
I sigh quietly. Let it go. I’m paying out of pocket for the care I need, today. It’s not a sustainable choice. I can’t do it often, but I definitely need some help managing the pain right now, after three exhausting work weeks that I am happy to put behind me.
Dawn on the marsh
It’s a new day. Boots on, cane in hand, this trail isn’t going to walk itself. For now I’ve got the place all to myself, a treat for my fatigued consciousness. Solitude. No people. No need to speak or hear words. I breathe, exhale, and relax. Today, self-care first. Then, I’ll begin again.
The woman in my reflection stares pensively outward at some thought that isn’t a visible detail. My coffee sits nearby, untouched, sweating condensation into a pool on the desk. I should do something about that, I think, when I notice. The news annoys me. How can people – especially people of means and good fortune – be so incredibly petty, cruel, inconsiderate, and hateful? I don’t “get it”. I don’t think I actually understood that crap when it filled my own head. Untested assumptions, bullshit I was taught, terrible habits and so much ignorance… I definitely don’t understand it now.
…Feels like we’re all standing on quicksand somehow, these days, only very few people seem to be aware of it… or willing to find something firm to stand on…
I sigh to myself, and stand fast on my personal commitment to be the best version of myself that I can be, knowing what I know, seeing the world as I do, and having the skills I have. I’m certain to fail myself – and others – now and then. I’m very human, but I’m going to do my best to be a better human being today than I was yesterday, because it actually fucking matters. It matters every day, and in every interaction.
What about you? What are you doing to “make the world a better place”, you know, for everyone? You don’t need to tell me, just do the verbs. We become what we practice.
G’damn, I’m so tired this morning. Nightmares all night of strange terrifying things – hallways that never end. Doors that won’t unlock. Empty shelves and people dying of starvation, disease, and fire. Crawling terrified and silently beneath a shower of bullets in the darkness. I woke up choking – it’s just seasonal allergies that last bit, but it was an unpleasant way to wake up from a dream of chemical warfare and endless night. The commute to work was weird, too. The traffic going the opposite direction was quite dense and seemed to be moving faster than usual. There was no traffic at all going my way. I had the road to myself. It was so strange and surreal, for just a second I wondered if there had been some disaster or evacuation that I was unaware of, ahead of me. It was a chilling thought.
“The Nightmare City” 8″ x 10″ acrylic on canvas w/glow
I’m mired in the gloom lingering from a night spent in The Nightmare City. I sip my coffee and work on letting that go.
Daybreak comes, and the sky beyond the window is ordinary enough, some blue, some clouds. There’s pleasant Spring weather in the forecast, however ugly the news is, however tragic and ridiculous our government has become. It’s a strange juxtaposition of circumstances and for the moment I miss my Traveling Partner and the safety of home, more than I can stand. I’d rather be in my garden, planting and weeding, and paying no mind to the world that often disappoints me so very much. Too much death, too much greed, too much warfare, and g’damn – too many terrible petty hateful people. I’ll choose my own path, thanks, and go a different direction. Not because I have to, but because I can – and it seems a choice worth making.
What will you choose? Where does your path lead? It’s time to begin again…
Huh. Just for a moment I had the strange sense that I was completely wrong about the day, and that instead of the Monday I was thinking it was, as I sat here in the office, it was – perhaps – only Sunday, and I did not need to be here at all. A quick double-check of the calendar (and then my phone, and then the tiny date/time at the bottom right of my computer screen for good measure) reassured me that indeed it is Monday. I may not be overly enthused about that, on its own, but I am at least not incorrect about what day it is. lol
A perspective on some orange flowers.
The morning has been a slightly odd one. I woke much earlier than necessary, but got up and made coffee and hit the road anyway. I didn’t have quite enough time to return to sleep, and definitely did have time to make a point to remember my packed lunch, and to make myself some good coffee. Even the commute was somewhat strange and definitely not routine in any way aside from the route I took. I hit every traffic light green, and there was almost no traffic at all. I drove the speed limit, feeling unstressed, unbothered, and unhurried (which makes sense since it was quite a bit earlier than I am usually on the road). The office is chilly in a Spring sort of way, and my thoughts linger in my garden, in spite of the darkness beyond the window. Funny thing; the weekend was quite productive, and I seem to recall it feeling “busy”, but… at least for the moment, I don’t really recall anything that stands out as eventful or special. No, I’m wrong – one thing does stand out; my Traveling Partner rebuilt, refreshed, and enhanced our household automation, updating and correcting some out-of-date programming and making upgrades that had been planned before his injury. Quite successful and useful, and delightful to use. There’s that. That stands out. Nothing much that I did comes to mind at all, but damn I’m sore like I did a bunch of stuff. LOL I also didn’t do a bunch of stuff – I was supposedly “taking it easy”, but I don’t feel like I actually managed that trick. Feels like I just did other stuff, instead of the usual stuff.
Same flowers, different point of view.
I rub my eyes, yawn, and sip my coffee. I still don’t feel quite awake yet, which is strange; I’ve been awake now for almost 3 hours. Groggy. Foolish. Mind wandering. Feeling vaguely purposeless and “out of focus” and caught in a sticky web of random thoughts and distractions. My sleep was restless, interrupted, and filled with strange dreams. I may not “need” more coffee…but I’m sure going to have more! lol The morning feels a bit surreal, so far. And chilly. It’s chillier in the office than it has been. As if in response to that observation, I notice the small heater that was left in this office space at some point. I sip my coffee and consider the option to use it, without acting on the thought. I could, though… If I choose to.
A different angle on the same theme.
I sigh to myself, and try to shake off my grogginess by literally trying to shake it off. The sight, reflected back at me in the window makes me laugh. The laughter does more to wake me up than the shaking did. I sip my coffee, now at that “perfect drinking temperature”, and think about my Traveling Partner sleeping at home. I hope he gets the rest he needs – he has a day of work planned (and specific projects in mind) with the Anxious Adventurer’s help. He’s recovered from his injury and surgery to a point that he has begun “picking up where he left off” on all manner of tasks and projects that fell to the side when he got hurt, although he still has a way to go before he will be “at 100%”, maybe a long way to go (there’s quite a lot of work involved in fully recovering from a spinal injury and surgery). I feel relieved and delighted to see him doing so well. I can’t even describe how worried I was at some points, and I don’t like to think about it.
It won’t always be flowers and garden paths; sometimes it’s an uneven path, an uncertain destination, and a distant horizon.
Being a caregiver has been one of the most difficult things I’ve ever undertaken. I give myself about a “C” on that endeavor, if I’m honest. Even with all of my best effort, I lacked experience and skill, and I fucked up a lot (and I was exhausted all the time), and I could have done so much better given time and training and more practice – but that wasn’t how things went down. I did my best. I can say that, and for most values of worth, it was enough – but fucking hell I wish I could have done more/better for longer. Caregiving is fucking exhausting. If you know someone who is a caregiver (or, frankly, a parent), be appreciative, considerate, and kind; that’s a lot of fucking work they’re undertaking to do, on top of trying to live their own life and manage their own self-care, and possibly also working a full time job (especially if they are committed to doing all of it well). Fuuuuck. That’s a lot. Sometimes it can feel like an inhuman amount of effort is required, and it can feel like the stakes are “too high”. Be helpful if you can – and for sure just don’t be an insensitive jerk about the situation, most especially if you’ve never had to provide full time caregiving yourself. It’s a hard mile to walk. I worried the entire time. Worried about the future. Worried about my beloved. Worried that I wasn’t good enough or capable enough – and painfully aware that things could be still worse.
Walking my own path, one step at a time.
I breathe, exhale, and relax. It’s just a routine (mostly) Monday. Things are okay for most values of “okay”, and the day begins well (if a bit groggily). It’s time to get on with that. Another beginning. Another day. Another mile to walk on my path. Time to begin again.
The clock says 06:14, and I’m sitting at the trailhead waiting for daybreak. Daylight Savings Time began, again, today. I dislike DST fiercely. I don’t think that is unreasonable; twice yearly my timing and my body are given an additional helping of chaos and discomfort for no good reason. The seasons are what they are. DST doesn’t actually change the length of a day. The change to the clocks, though, is legitimately disruptive.
I set my alarm this morning, rather cleverly I thought, for 05:45 – an hour later than usual, so, for the usual time. It’s a Sunday, and I have no need to be up earlier. Figured I’d give myself a break from the chaos and start dealing with it on the other end of the day. The clock said 05:00 when I woke to… a noise? The sound of a voice, puzzled or bewildered? Something. Shit. Okay, I went ahead and dragged myself through my routine, although my body and brain insisted it was only 04:00 and I could have tried to sleep a bit longer. I was awake, for most values of “awake”. (Ah, DST, my old nemesis, you got me again!)
… I don’t actually care that I’m up so early. I often am…
As I drove up the road, I caught a glimpse of the moon half full, low on the horizon and quite huge. Beautiful and strangely golden in hue, I was tempted to pull over and watch her set, but chose to drive on. I regretted my choice almost immediately, it was just that beautiful and rare a sight to see. The morning is peculiarly spooky at the trailhead. There is a clear sky overhead, planets twinkling, shining brightly enough to be visible in spite of the glare of urban lights below, and there’s a dense mist clinging low to the ground here at the edge of the marsh. It’s an interesting effect. Chilly morning. I sit waiting quietly, feeling sort of sleepy, thinking thoughts.
I sit with my thoughts, sipping the coffee I picked up on the way, grateful to have it. Grateful for the quiet moment. Grateful generally, if I’m being honest. I’ve got a list of things to do later, but none of it needs my attention now, and I’m not in much pain today, so far. Win. I meditate. Sip my coffee. Let these quiet minutes tick by gently. I watch the sky begin to lighten ever so slowly as the mist thickens, obscuring other details.
Daybreak comes.
I breathe, exhale, and relax. Soon enough, it will be time to begin again.
I slept somewhat poorly last night, restless with pain mostly. My dreams were filled with chaos and uncertainty, and the occasional random spider. Odd. I woke in the usual way, dressed and left the house, head still full of chaos. My thoughts as I drove up the highway reflected the restlessness of the night and the chaos in my head; I reflected philosophically on a variety of seemingly unrelated ideas, the only connecting thread being my own individual perspective, as I exist today. Useful? Hardly. Barely interesting, already forgotten.
I get to work, in less pain than yesterday but still feeling it as a distraction. I take my meds, get some coffee. I sigh and get things set up for the day. It’s a routine work day and I’m grateful to be working…but…
…Fucking hell life is expensive, and “enough” doesn’t always feel like “enough”. I say this acutely aware that I write from a place of relative privilege. Things could be better, yeah, but they could sure be a lot fucking worse. (And have been, in past eras of my life). My pain grates on my nerves – but so does my feeling of discontent and stress over the future. (Will I ever retire? It doesn’t seem at all likely at this point, until lack of fitness for such endeavors forces me out of the workforce to exist on whatever resources remain. A grim thought, and I try not to linger in this place.)
I breathe, exhale, and relax. Some days it is a force of will to be in a positive frame of mind. This doesn’t mean inauthentically silently screaming positive aphorisms to myself in my head or forcing a smile to the people around me while I proclaim that “everything is fine” – that doesn’t work. “Fake it till you make it” is not my way; I haven’t found success there, myself. Instead, I rely on practicing gratitude – legitimate, heartfelt appreciation for the things that are working, the things that feel good, that things I have, or do, or feel, that truly lift me up. There’s a lot to be grateful for, and generally the very temporary feelings of stress and discontent will pass if I don’t dig in and build myself a trap to fall into. So, here I am. I “feel around in my headspace” looking for a route to reclaiming my sense of self, my perspective, my feeling of being empowered… I remember I playlist I started once-upon-a-time that might be helpful right now… “No F*cks“. Hmmm… Pretty short playlist. I distract myself wondering what to add that fits the theme. I have definitely found that a “positive distraction” can help shift my mood from the dark places my thoughts sometimes wander.
“Anxiety” 10″ x 14″ acrylic on canvas w/ceramic 2011
I breathe, exhale, and relax. I catch myself wondering about the background stress and the thread of anxiety running through my thoughts. What’s up with me? Is it work? Is it life? Is it my doctor’s appointment later today? Oh. Yeah, that could be it, for sure. I sigh quietly. Aging has it’s ups and downs, and the doctor’s appointment is no big thing, but it brings my anxiety about my pain and long-term wellness concerns more to the forefront of my consciousness, where I thoughtlessly push it back in the form of anxiety. “Saving it for later.” Unproductive. I take a minute with myself. I do a quick “body scan”, and an “emotional inventory”, letting myself be more fully present and in touch with the feelings and sensations in my here and now moment. More than the usual pain, but a lot of it is still “just sore muscles”. My headache is worse than usual – and my health insurer (through their bullshit evil middleman) has decided not to reauthorize one of the few things that really actually gives me some pain relief (not a prescription drug, but a physical therapy). It “won’t fix anything”, which is their justification for denying reauthorization, and that’s certainly true – but there isn’t actually a treatment that will “fix” my degenerative disk disease, my osteo-arthritis, or the headache (at least nothing has been proposed as likely to be a real solution, so far). I would think relief and improved quality of life would be a good choice, with that in mind…? I catch myself gritting my teeth with suppressed fury. The pain is bad today, and I’m annoyed because it didn’t have to be, and it may be getting worse before it gets better. Cheaper to addict patients to powerful painkillers and shame them for being junkies than to provide care that actually eases suffering. Fuckers. Another breath, and I let that go. I can care, even if my insurer doesn’t. My Traveling Partner cares. My doctors care. Those things matter. Doesn’t make it easier, but I’m at least not traveling alone.
I let the music play in my ears, and sip my coffee. Sometimes enough has to be enough – even when it doesn’t feel like “enough”. Sufficiency is often not whatI want it to be – it’s only what it is. Things could be legitimately worse – far worse. I’ll make the best of what is – because that’s the path I’ve chosen to walk. That’s the woman I most want to be. Capable. Fearlessly self-aware. Doing my best. It’s not nothing – and sometimes something is all I need to get by for awhile.
I smile to myself. I feel it still. I definitely do. It’s time to begin again anyway.
Evening Light 