Archives for posts with tag: chronic pain

G’damn life feels too busy. Appointments. Meetings. Calls to make. Errands. Laundry. Household upkeep. Caregiving. Working for a living. Self-care. Sometimes doing the needful feels like an unreasonable amount of work, and this year I’ve rarely found myself able to make time for painting, gardening, reading, or writing (aside from this one sliver of my day early in the morning, when I can indulge myself in solitude and write these few words). I’m exhausted at the end of most days, barely able to stand by the time I take those last steps down the hall to bed.

… I feel like I’m working three or four full-time jobs…

Each morning I get up and do it again. Each day, I get my ass to work. Each day I tackle the errands on my list. Each day I give as much of myself as I can to caregiving tasks, and housekeeping chores. Each day I compromise on some detail of my self-care – because I just can’t do everything, and something has to be put aside for another day.  I’m grateful to enjoy the life I do. I’m grateful to have such a strong and loving partnership. I’m annoyed with myself for griping about how much work life is, when I’ve got it so good, generally speaking. For sure there are people who have it far worse and would happily trade places with me.

I’m tired, I guess. I’ve sustained this for too long. I do make attempts to treat myself a bit better than I often do, but it’s not uncommon to return from a camping trip, or a day spent in solitary meditation, to a whole new list of errands to run, or chores that need doing. I almost immediately use up any reserves I may have built. It seems neverending… because it mostly is. It’s life, and there’s a lot to do.

… It’s only Tuesday…

I sigh quietly to myself, sitting at the halfway point on my morning trek around a favorite local trail. It’s still dark. I don’t mind. Is it my preference to walk in the dark? No. It’s the time I have, though, so it is the time I walk. I feel fortunate to still have my legs under me, and that I can still walk these trails on my own. That’s something worth a moment of appreciation and gratitude; it wasn’t a given that things would turn out so well after I broke my back in the early 80’s. There was a real chance I’d never walk again, at all. I’m deeply grateful my surgeries turned out so well. I keep walking.

I sit with my thoughts awhile. I can remember how difficult it was to understand how fortunate I really am. Understanding my relative privilege and general good fortune in life was hard – complicated by a deeply subjective perspective on life that focused on the trauma, the chaos and damage, the lifetime of hurt and anger. For a long time I was “trapped in the mire“. Resetting my own expectations was a complicated journey of its own. I keep working at it. It’s too easy to resent how much fucking work life requires for that to be “the right answer” (or even a right answer). I breathe, exhale, and relax. I’m grateful for this simple practice (meditation) that does so much to give me the calm and resilience to just keep at it, day after day after day. It’s not “everything”, and life still needs a lot of real work to “run smoothly”, but… it’s something, and mostly it’s enough.

The sky has lightened a bit. It is a deep charcoal gray, barely lighter than the darkness of night, but now I see the treeline silhouetted, where moments ago was only darkness. Meditation and self-reflection work that way for me; slowly illuminating my way, over time. Worthwhile, reliably restorative practices that bring a sense of balance and perspective are few – and worth the effort to cultivate them.

I sit watching the horizon. Daybreak soon. It’s almost time to begin again.

It’s a strange morning, although I can’t put my finger on why exactly it feels so strange. I feel “caught between moments”, I suppose, and not sure what to do about it, or even whether anything I do about will make any difference at all. I feel vaguely disconnected from the many details of a busy adult life, and struggling to care about that. I’d rather drive out to the coast, park somewhere with a view of the beach and the tide, and just… sit awhile with my thoughts. Perhaps clarity would come if only I weren’t listening to my tinnitus, loud, shrill, and grating on my nerves?

… When I am at the seashore, I can’t hear my tinnitus at all, it’s drowned out completely by the sounds of the wind and the waves breaking on the shore. Maybe I just need a break?…

“You lack discipline!” some stern voice in my head says, unyieldingly. “Do your best”, is the kinder recommendation I offer myself. I’m tired. Oh, well-rested enough for the work day ahead, and tonight I’m not also having to cook dinner, but still, I am chronically, persistently fatigued from decades of working. Sometimes the fatigue becomes hard to overlook, and I’m sitting here feeling it – and feeling both a little sorry for myself, and also seriously annoyed about that. It will pass. So will my awareness of my persistent fatigue. Some days are better.

My head aches, and the headache is vexing me. I breathe, exhale, and relax, hoping that the fresh chilly morning air will lift my mood. I watch the sun begin to rise, from a favorite vantage point along a favorite local trail. It could be worse.

I sigh to myself, thinking about life, and the way the path we take can have so little resemblance to the path we planned to take. I’m not filled with regrets or overcome by sorrow or some gloomy feeling of futility, it’s not that at all. I’m just tired. Often. So many things take real work, and require more of me than may be apparent. My little family counts on me for so much… I’m not always sure I have enough to give. I’m doing my best. That’s all I’ve got.

I stretch and get to my feet, eyeing the path that leads back along the riverbank, around the vineyard, and back to the parking lot. It’s already time to begin again, I’ve only got to take that first step to get going…

I’m sitting in the sunshine as the sun rises. Pretty morning. My walk to this point has been quiet and pleasant. There was no traffic on the highway, either. If the folks in my neighborhood are a representative sample of Americans in the area, most folks who were going somewhere this weekend are gone, and those that were up late firing off various fireworks and noise makers are probably sleeping in; that shit was still going on at midnight.

A misty morning at the trailhead.

I’m enjoying the quiet and the solitude. Somewhere in the distance, I hear an occasional car pass by. My tinnitus is crazy loud this morning, and my back aches ferociously. I breathe, exhale, and relax, pulling my posture more upright. Changing my position doesn’t ease my pain in any noteworthy way, but slumping carelessly definitely tends to make it worse. Choices. I grumble silently to myself; everything seems to require a fucking effort. lol I laugh at myself for resisting the truth of it. Yes, surely things require effort. That’s just real. I sigh to myself and let it go. There’s no use fighting the effort required to do things. The best I can do is to make wise choices about what I am doing and where I’m putting my limited resources as an individual (even down to the effort involved).

Halfway “there” is just a point along the way. The journey is the destination.

…Fuck pain…

I sigh to myself and smile, thinking about yesterday. Nice evening. The Anxious Adventurer made lemon bars. Tasty. I made (a fairly simple, summertime) dinner. Nothing fancy. We enjoyed it together as a family. The weather was fairly mild and not hot, and we had turned off the AC, enjoying the natural breeze through windows open wide to the summer air.

I’ve no clear agenda for the weekend. Routine housekeeping stuff I guess. I sit watching the little birds at the edge of the meadow. I think about old friends and try to distract myself from pain. Maybe it is a good day to get out into the garden? There’s laundry to do, too. I chuckle at myself when I find myself daydreaming about doing housework as I sit here in the sunshine visualizing this or that task I know I am likely to do on a Saturday, and wondering what I can actually accomplish in practical terms. I’d rather sit with my feet up in the garden, sipping iced coffee and ignoring the tick of the clock, but time is a precious and finite resource and I have things to do. Another sigh breaks the stillness.

What next? I don’t know, yet. I’ve got options to consider. Choices to make. I’ve got my own path to walk. For the moment I am content just to be here, now, enjoying the morning sun without attachment to any particular outcome. Later, I can begin again.

My walk this morning was short, local, and drizzly. It is a drizzly morning. I walked with my thoughts, and headed home to begin the day. The drive back to the house felt peculiarly nostalgic – something about the drizzle, and the way the sheen of water on the road reflected the light of the gray skies over head – and I found myself thinking about sick days on rainy Spring mornings as a kid. How is it that all my recollections of missing school due to being sick seem to be rainy days? I guess with the average number of rainy days where I grew up being about 111 days per year, falling primarily in the months between March and November, it would be better than a 1 in 3 chance of any given sick day being a rainy one. Maybe they really all were? lol

When I started down the trail, it wasn’t raining. Change is.

I arrived home to find my Traveling Partner awake, and it was lovely to see him. I made coffee for us both, and headed to my office to begin the day. All so very ordinary, so routine that the days sometimes seem to blur together except that the precious loving moments we share stand out, each unique and worth appreciating. It’s strange that when I look back on my childhood, there are really only a small handful of recollections I can count on as “my own”, and many of those are rather archetypical – conflations of many similar events becoming just one “memory”. When I look back on the past 15 years with my Traveling Partner, it’s not that way. There are many many memories, each built on small details that linger in my recollection. I don’t know whether this is a sort of before/after contrasting what remains of my memory after my head injury with how my memory works now, but there it is; I have relatively few childhood memories, and some of those are rather suspiciously recalled “in the third person”, as though I am remembering something I was told, not really remembering something I experienced.

I think about memory awhile, and rainy sick days. I remember those almost fondly. The rainy gray drive to the doctor’s office. Bundled up at home with chicken soup, saltine crackers, and a book to read. Sitting at the dining room table playing with Play-Doh, or coloring in a favorite coloring book. Napping. Waking. Reading. Before my head injury, my sick-day recollections are mostly to do with headcolds or the flu. After my head injury they are more often about headaches. I missed quite a bit of school, even through high school, over headaches. I don’t miss much work over headaches as an adult; I’ve learned to live with them. It’s an uneasy truce, some days, and I’d for sure prefer not to have a headache at all, but since I generally do (of one sort or another), it’s probably best that I don’t just give in and quit, eh?

You’re not alone with your pain. Not really. We’ve all got some kind of pain – well, most of us, I feel fairly certain. There are no doubt those rare few individuals with charmed lives of such good fortune that pain hasn’t become a thing to endure day after day after day after day after… You know? I’m not even sure those people are to be envied; they may lack some useful perspective on endurance, and what they are truly capable of, perhaps. (I don’t know; I’ve never lived that life.) I sip my coffee and notice that my mind has wandered on to other things. The garden. The roses. Pain management. Nutrition, diet, and exercise. The shit I’ve got to get done today. The things I’m eager to do for myself once the needful tasks of the day are behind me. My garden. Work. Life. Love. I let my mind wander on for a few minutes of self-reflection before I get started on work in earnest. Sometimes self-reflection feels a little self-indulgent, but it is actually an important bit of self-care (at least for me); it tends to keep me “on my path”.

…What are you doing to care for yourself? What are you practicing?

I breathe, exhale, and relax. The clock ticks on. The rain continues to fall. I notice that it is time to begin again.

This headache is vexing me. I feel as if I’ve done all I can to ease my discomfort. Have I? A bad headache can limit my ability to think clearly and make wise self-care choices. I let my Traveling Partner know that I’ve got this pretty terrible headache. Doing so isn’t only to feel less alone with it, nor is it solely about making sure he knows if something goes seriously wrong. As much as anything else, it is to get any helpful suggestions of things to do about it that I may have over looked; thinking through the pain is difficult. I know I’m not at my best.

My beloved does indeed think of something I could do that might help some. A hot shower. That does sound soothing. Maybe a soak in the hot tub, too?  I stretch – maybe movement will help. I correct my posture. I adjust the lights. I make myself relax (again). I drink more water. I have some magnesium. I eat a banana (potassium). I take an OTC headache remedy. I limit the noise in my work space. Item by item, I go down the list.

… This too will pass…

Headaches tend to be temporary. Soon enough the work day will end and I can focus on me. I’ll have that shower, a soak, maybe lay down for a few minutes. A great many of my headaches are to do with my neck. Degenerative disk disease is painful and inconvenient, and like the name says it gets progressively worse over time. I try not to think about that. The thought brings tears to my eyes and I feel suddenly helpless and childlike.

…It will pass (for most values of that idea, if only temporarily)…

Not what is generally expected of office decor, but it’s my office and I’ll decorate as I like. lol

I think about this cozy friendly welcoming space I’m in… It’s quite soft and nice and filled with colors and curves and soft places. It’s a very nice spot to lay down with a book (or a headache). It was my studio, it is my home office – my quiet space. Everywhere I look there are reminders that I am loved and valued: helpful or beautiful things my beloved has made for me, precious things collected over time, souvenirs of a life well-lived, and my own art work. It’s a nice spot to enjoy a quiet moment.

I sip my icy cold glass of water. Ice water might not be ideal for some headaches – this one doesn’t care about that. It doesn’t react to the temperature of the water at all. Noises are a bigger deal. The position I’m in matters more. I’m fairly confident this headache is coming from my neck; my left ear itches ferociously deep inside without any obvious cause. Nerve damage. It’s all quite unpleasant, but saying so is better than hiding it, and caring for this fragile vessel helps more than ignoring the pain ever could.

I sigh to myself and get back to work. The work day is nearly over – then I can begin again.